An ka kuma dɔrɔn ADEM (Acute Disseminated Encephalomyelitis) kan: bana min bɛ sɔrɔ hakiliɲagami barikama fɛ, min ka jugu kosɛbɛ

Miiri k’a filɛ, farigan walima mura bɛ i walima i den na, wa a bɛ kɛnɛya tile damadɔ kɔnɔ. K’a sɔrɔ bɛɛ nisɔndiyalen don, o bana bannen kɔ, bana kura dɔ bɛ daminɛ yɔrɔnin kelen dɔgɔkun kelen walima dɔgɔkun fila ɲɔgɔn kɔnɔ. O yɔrɔnin bɛɛ, i fanga bɛ ban, i yeli bɛ dɔgɔya, kuma ka gɛlɛn i ma, kungolodimi juguman bɛ i la ani i bɛ fɔɔnɔ daminɛ. An tun bɛna siran cogo di ni nin ɲɔgɔnna ko dɔ kɛra? Bi, an bɛ kuma bana jugu dɔ kan, siga bɛ se ka kɛ min na o waati sugu la, hali ni a man ca, a ka kan ka furakɛ joona. Nin bana in bɛ wele ko ADEM (Acute Disseminated Encephalomyelitis) .

ADEM (Encéphalomyelite acute disseminée) ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, ADEM ye an ka farikolo yɔrɔw funu walima funu barikama ye , o kɔrɔ ye ko kunsɛmɛ ni kɔkolo. A bɛ i n’a fɔ kunsɛmɛnasumaya.

An k’o faamuya dɔɔnin dɔɔnin. Nɛrɛmuguma minnu bɛ an fari la, olu bɛ i n’a fɔ kuran fiyɛw. Plastiki datugulan dɔ bɛ kuran siraw lamini na, tiɲɛ tɛ? O de b’a to kuran bɛ taa ka ɲɛ ani ka teliya ani ka nɛgɛ lakana. O cogo kelen na, lakanani bɔgɔdaga dɔ bɛ yen, datugulan min bɛ wele ko "myelin" an ka nɛrɛmuguma lamini na. O miyɛlini bɔgɔdaga in de bɛ a to cikanw (siginidenw) bɛ taa teliya la ani ka ɲɛ ka tɛmɛ nɛrɛmuguma fɛ ka bɔ farikolo yɔrɔ dɔ la ka taa farikolo yɔrɔ wɛrɛ la.

ADEM la, an yɛrɛ farikolo tangalanw bɛ fili ka bin nin miyɛlini bɔgɔdaga in kan. O kɔ, a bɛ daminɛ ka tiɲɛ ani ka tiɲɛ. I n’a fɔ kuran nɛgɛso plastiki bɔra cogo min na. O kɔ, nɛrɛmuguma cikanw tɛ taa ka ɲɛ. O de kama taamasiɲɛw bɛ sɔrɔ i n’a fɔ farikolo yɔrɔw sɔgɔsɔgɔli, yelikɛbaliya, ani kuma gɛlɛya.

O bana in bɛ wele ko ‘acute’ barisa a taamasiɲɛw bɛ bɔ yɔrɔnin kelen, tile damadɔ kɔnɔ. A ka c’a la fana a bɛ kɛ siɲɛ kelen dɔrɔn ɲɛnamaya kɔnɔ. Nka, a man teli ka segin a kan kosɛbɛ.

ADEM taamasiɲɛw ye jumɛnw ye?

ADEM taamasiɲɛw bɛ se ka ɲɔgɔn ta kosɛbɛ, ka kɛɲɛ ni farikolo yɔrɔ min bɛ a la. Nka, a ka ca a la, u bɛ bɔ dɔgɔkun kelen walima dɔgɔkun fila ɲɔgɔn banakisɛ walima banakisɛfagalanw (i n’a fɔ mura, sɔgɔsɔgɔninjɛ walima kɔnɔboli) bannen kɔfɛ.

Walasa ka faamuyali nɔgɔya, an ka o yɔrɔw tila tila fila ye.

Nin taamasiɲɛ ninnu juguya bɛ se ka ɲɔgɔn ta mɔgɔ ni mɔgɔ cɛ. Dɔw fɛ, u ka nɔgɔn ani u bɛ taa u yɛrɛ ma, ka sɔrɔ dɔw fɛ, u ka jugu fo ka se u ma ka taa dɔgɔtɔrɔso la.

Mun na nin ɲɔgɔn bɛ kɛ?

ADEM sababu tigitigi ma dɔn hali bi 100%, nka dɔgɔtɔrɔw ni dɔnnikɛlaw dalen b’a la ko a bɛ sɔrɔ an yɛrɛ ka farikolo tangacogo baarakɛbaliya fɛ .

An ka nin faamu nin cogo la. An ka farikolo tangacogo bɛ i n’a fɔ an ka jamana kɛlɛbolo. Nin kɛlɛbolo in ka baara ye ka juguw dɔn ani k’u kɛlɛ i n’a fɔ banakisɛw ni banakisɛw minnu bɛ bɔ kɛnɛma, k’an tanga banaw ma. Nka min bɛ Kɛ ADEM la, o ye ko nin kɛlɛbolo in bɛ fili fitinin Kɛ. U kɛlen kɔ ka jugu dɔ kɛlɛ min nana jamana kɔnɔ (misali la, mura banakisɛ), u bɛ daminɛ ka bin miyɛlini bɔgɔdaga kan an yɛrɛ ka farikoloɲɛnajɛ la, k’a miiri ko jugu don. A bɛ iko i ye binkanni kɛ sɔrɔdasi sigiyɔrɔ dɔ kan i yɛrɛ ka jamana kɔnɔ, k’a miiri ko jugu ka kɛlɛbolo don. O bɛ wele ko ‘autoimmune reaction’ . O binkanni in bɛ funu ni funu bila farikolo yɔrɔw la.

ADEM banabagatɔ 70% ni 80% cɛ, banakisɛ bɛ u la sani a taamasiɲɛw ka bɔ kɛnɛ kan. Banakisɛ minnu ka teli ka sɔrɔ ka kɔn ADEM ɲɛ olu ye:

• Grippe (Gripe) .
• Sumayabana
• Mumps (banakisɛfagalanw).
• Rubella ye
• Kɔnɔboli
• Epstein-Barr banakisɛ

Kɔsa in na, fɛn wɛrɛ min sɔrɔla, o ye ko denmisɛn dɔw bɛ se ka ADEM sɔrɔ.A bɛ se ka kɛ fana ko bana dɔ bɛ se ka kɛ a sababu ye min bɛ wele ko MOGAD (Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease). Nin ye bana kɛrɛnkɛrɛnnen wɛrɛ ye min bɛ tali kɛ farikolo tangacogo la.

ADEM bɛ sɔrɔ cogo di?

Aw ka dɔgɔtɔrɔ bɛna fɔlɔ ka ɲininkali caman kɛ aw la aw ka bana taamasiɲɛw kan ani ka farikoloɲɛnajɛ sɛgɛsɛgɛli kɛ. O kɔfɛ, u bɛna sɛgɛsɛgɛli caman kɛ walasa ka ADEM sɛgɛsɛgɛli dafa ani ka bana wɛrɛw bɔ kɛnɛ kan minnu bɛ se ka o taamasiɲɛ suguw lase mɔgɔ ma.

Sɛgɛsɛgɛli kunbaba minnu bɛ Kɛ olu ye:

1. MRI sɛgɛsɛgɛli (Magnetic Resonance Imaging) .

MRI ye sɛgɛsɛgɛli ye min bɛ kɛ ni magɛnni barikama ni arajo ye walasa ka ja caman ta an kunkolo ni an kɔkolo kan. A tɛ baara kɛ ni X-ray ye. ADEM bɛ mɔgɔ min na, o ka MRI sɛgɛsɛgɛli la, yɔrɔ minnu tiɲɛna miyɛlini (joginda) la, olu bɛ se ka ye ka jɛya i n’a fɔ nɔ finmanw. Dɔgɔtɔrɔ bɛna o yɔrɔ ninnu sigiyɔrɔ n’u cogoya lajɛ walasa k’a dɔn ni ADEM don.

2. Kɔnɔbara basigilen / Kɔkolo sɔgɔli

Tɔgɔ bɛ se ka mɔgɔ dɔw lasiran, nka a ye sɛgɛsɛgɛli ye min bɛ kɛ ni hakilijagabɔ ye kosɛbɛ, dɔgɔtɔrɔ bɛna min kɛ. O ye ka i wuli i kɛrɛ fɛ ka pikirijikɛlan fitinin dɔ don i kɔ duguma walasa ka ji fitini dɔ ta min bɛ i kunkolo ni kɔkolo lamini , o bɛ wele ko kunsɛmɛji (CSF) ADEM bɛ mɔgɔ minnu na, farikolo tangalanw hakɛ bɛ caya, kɛrɛnkɛrɛnnenya la joli kuru finmanw. O bɛ se ka dɛmɛba lase bana in dafalen ma.

Ka fara o kan, joli sɛgɛsɛgɛliw fana bɛ kɛ.

ADEM furakɛcogo jumɛnw bɛ yen?

ADEM furakɛli kunba ye ka dɔ bɔ teliya la funu na min bɛ sɔrɔ kunsɛmɛ ni kɔkolo la ani ka farikolo tangalanw bali ka baara jugu kɛ. Aw ka dɔgɔtɔrɔ bɛ se ka furakɛli caman kɛ walasa ka o sɔrɔ.

A bɛna waati joli ta walasa ka kɛnɛya? O ko ɲɛnabɔcogo ye mun ye?

Nin ye ɲininkaliba ye min bɛ bɛɛ hakili la. kibaru duman min bɛ ADEM kan , o ye ko bana in sɔrɔla mɔgɔ minnu na , olu fanba bɛ kɛnɛya dafalen walima u bɛ ɲini ka kɛnɛya .

Mɔgɔ fanba bɛ a daminɛ ka kɛnɛya tile damadɔ kɔnɔ furakɛli daminɛ kɔfɛ. Nka, ka kɛɲɛ ni a taamasiɲɛw juguya ye, a bɛ se ka kalo damadɔw ta, tuma dɔw la, fo ka se kalo 6 ma, ka sɔrɔ ka kɛnɛya pewu. A man teli kosɛbɛ, mɔgɔ dɔw bɛ se ka to ka ɲɛnayeli gɛlɛya misɛnniw sɔrɔ walima ka u ɲɛnasisi.

Aw ka kan ka taa dɔgɔtɔrɔso la tuma jumɛn?

An ye baro kɛ taamasiɲɛ minnu kan, ni aw walima aw ka denbaya kɔnɔmɔgɔ dɔ, kɛrɛnkɛrɛnnenya la denmisɛn, ye olu sɔrɔ a kɛnɛyalen kɔfɛ bana dɔ fɛ i n’a fɔ farigan walima mura, aw bɛ taa dɔgɔtɔrɔso la joona, aw ma mɛn.

• A hakili bɔnɛni yɔrɔnin kelen
• Sebaliya ka taama walima ka sennatiɲɛ
• A bɛ yeli kɛ ka ɲɛ walima a tɛ yeli kɛ tuguni
• Kuma gɛlɛya
• Kɔnɔboli minnu sababu tɛ a la

Ni nin taamasiɲɛ ninnu bɛ aw la, aw kana to so kɔnɔ dɔrɔn ka a miiri ko a tɛ kojugu ye. Fɛn min ka fisa, o ye ka taa dɔgɔtɔrɔso la, kɛrɛnkɛrɛnnenya la, furakɛli kɔrɔtɔlen yɔrɔ (ETU), joona. Sabula nin bana suguya ninnu na, ni furakɛli daminɛna joona, a kɛnɛyali bɛ se ka kɛ.