Ðe wò mo ƒe akpa ɖeka ʋuʋuna le susu aɖeke manɔmeea? Mina míasrɔ̃ nu tso Hemifacial Spasm ŋu!

Ðe nèse le ɖokuiwò me kpɔ be yeƒe ŋkuwo alo ŋgonu le ʋuʋum zi ɖeka esime nèle nu kom alo le nu ƒom na ame aɖe, alo ne ɖeɖi te ŋuwò viea? Lãmetsi siwo le wò mo ƒe akpa ɖeka ƒe ʋuʋu sia si dzi womate ŋu aɖu o ate ŋu ado dziku na wò vie eye wòado ŋukpe wò. Togbɔ be ame geɖe susuna be esia sɔ hã la, ɣeaɖewoɣi ate ŋu anye atikewɔwɔ kpata. Egbea míele nu ƒom tso nɔnɔme mawo dometɔ ɖeka ŋu, si nye Hemifacial Spasm (HFS).

Nuka tututue nye Hemifacial Spasm?

Kpuie ko la, Hemifacial Spasm (HFS) nye ahɔhɔ̃mekawo ƒe dɔléle si nana lãmekawo ʋuʋuna le wò mo ƒe akpa ɖeka le lɔlɔ̃nu faa me. Esia nye dzesi si nu sẽna ɖe edzi zi geɖe le ɣeyiɣi aɖe megbe.

Ne èlé ŋku ɖe gɔmesese si le ŋkɔa ŋu ŋu la, “Hemi” gɔmee nye “afã.” “Modzakaɖeɖe” gɔmee nye “si ku ɖe mo ŋu.” “Spasm” gɔmee nye “lãmekawo ƒe ʋuʋu.” Eyata “Hemifacial Spasm” gɔmee nye “lãmekawo ƒe ʋuʋu le mo ƒe afã me.”

Zi geɖe la, nɔnɔme sia dzea egɔme tso ame tsitsi me, ne woxɔ tso ƒe 40 va ɖo ƒe 60. Ðɔktawo yɔe be gotagome ʋuʋu ƒe dɔléle. Eyae nye kuxi aɖe le lãmeka siwo le gota, si nye lãmekawo ƒe akpa si le míaƒe ahɔhɔ̃ kple aklã godo la ŋu.

Hemifacial Spasm nye dɔléle si mebɔ kura o, eye nyɔnuwo ate ŋu axɔ dɔlélea zi gbɔ zi eve wu ŋutsuwo.

Ðe nɔnɔme sia ƒomevi vevi aɖewo lia?

Ẽ, esia ƒomevi vevi eve li, le alesi dzesiawo va doa mo ɖa le ɣeyiɣi aɖe megbe nu. Be nàse esia gɔme nyuie la, kpɔ kplɔ̃ si le ete.

Nukawoe nye mo ƒe ʋuʋu ƒe dzesiwo?

Nɔnɔme sia ƒe dzesi vevitɔe nye lãmeka siwo le mo ƒe akpa ɖeka ƒe ʋuʋu. Esia nye nusi menye lɔlɔ̃nu faa o (míate ŋu aɖu edzi o). Ʋuʋudedi sia bɔ ɖe miame wu ɖusime. Gake ƒã ŋutɔ be ʋuʋudedi sia ate ŋu adzɔ le mo ƒe akpa eveawo.

Zi geɖe la, dzesi gbãtɔ dzea egɔme tso ŋkume ƒe ʋuʋu dzi. Esia va eye wòdzona. Le ɣeyiɣi aɖe megbe la, dzesiawo ate ŋu ava zu:

• Ŋkuʋuʋu si dzi womeɖu o: Ele abe ŋkuʋuʋu ene, gake míate ŋu aɖu edzi o.
• Ŋkumeʋuʋu: Ŋkumeʋuʋua yia dzi le eɖokui si le ʋusɔgbɔdɔa ta.
• Mo ƒe ʋuʋu le anyime: Esia ate ŋu ana woahe nu ayi axa ɖeka.
• Ŋusẽkpɔɖeamedzi ɖe lãmeka siwo katã le mo ƒe akpa ɖeka ŋu: Le go aɖewo me la, ʋuʋu sia ate ŋu anɔ anyi ɖaa eye madzudzɔmadzudzɔe.

Nuwo abe nuteɖeamedzi, ɖeɖiteameŋu, nuɖuɖu, kple dzimaɖitsitsi ate ŋu ana dzesi siawo nagado gã ɖe edzi. Nukutɔe la, amedzidzedze siawo ate ŋu adzɔ ne èle alɔ̃ dɔm hã. Esia ate ŋu ahe alɔ̃madɔmadɔ vɛ na ame aɖewo gɔ̃ hã.

Dzesi bubuwo

Ame aɖewo ate ŋu akpɔ nu bubuwo tsɔ kpe ɖe dzesi vevi siawo ŋu.

• Gbeɖiɖi si nye "clicking" sese le to me.
• To ƒe vevesese.
• Tosese ƒe kuxi (vevietɔ le HFS evelia me).

Nukatae esia le dzɔdzɔm? Nukawoe nye susu siwo tae?

Nu vevitɔ si gbɔ mo ƒe akpa eve ƒe ʋuʋu tsonae nye míaƒe mo ƒe lãmekawo dometɔ ɖeka (tagbɔ ƒe lãmeka adrelia) ƒe nyaƒoɖeamenu ɣeyiɣi didi. Gake nu bubu geɖe ate ŋu anɔ anyi siwo gbɔ nyaƒoɖeamenu sia tsona.

Lãmetsi vevi eve le míaƒe mo ƒe akpa ɖesiaɖe. Lãmetsi sia dzea egɔme tso míaƒe ahɔhɔ̃meka me eye wòdoa alɔ ɖe mo ƒe akpa ɖeka. Ekpɔa ŋusẽ ɖe nuwo abe lãmeka siwo kpɔa mo ƒe dzedzeme dzi, aɖuɖɔtoe siwo le nu me, aɖatsimɔ̃ siwo le ŋkuwo me, kple vivisese ƒe lãkusi siwo le aɖe ƒe ŋgɔgbe ƒe akpa eve le etɔ̃ me dzi.

Nusiwo gbɔ wòtso ate ŋu ato vovo le HFS ƒe ƒomevi nu.

Nusiwo Hea Mo ƒe Akpa Gbãtɔ ƒe Ʋuʋu vɛ

Esiae nye nusi gbɔ wòtsona wu. Nusi dzɔna le afisiae nye ʋuka aɖe si le teƒe si mesɔ o.(ʋuka) va ƒoa mo ƒe lãmeka si ŋu míeƒo nu tsoe la. Le nutete sia ta la, lãmekaa ƒe ametakpɔnu (myelin sheath) la nu yina vivivi. Emegbe lãmekawo ƒe dzesiwo mezɔna nyuie o, womewɔa dɔ nyuie o eye lãmekawo dzea ʋuʋu gɔme.

Nusiwo Hea Mo ƒe Akpa Evelia ƒe Ʋuʋu vɛ

Esiae nye ne nɔnɔme alo kuxi bubu aɖe si le ete la gblẽ nu le mo ƒe lãmeka ŋu. Nusiwo gbɔ wòtso dometɔ aɖewoe nye:

• Afɔku alo abi si te ɖe mo ƒe lãmeka ŋu.
• Bell ƒe lãmetutudɔ ƒe nɔnɔme.
• Nusiwo gblẽ le ahɔhɔ̃meka ŋu, le kpɔɖeŋu me, nɔnɔmewo abe lãmekawo ƒe ʋuʋu alo ʋusɔgbɔdɔ ene.
• Kuxi siwo le ʋuka siwo le ahɔhɔ̃a me ŋu, abe ahɔhɔ̃ me ʋuka siwo me ʋu sina tona kple ʋuka siwo me kansa mele o (angiomas) ene.
• Tomekuxiwo. Nɔnɔmewo abe titinato me dɔlékuiwo (otitis media), mastoiditis.
• Dɔdzẽ siwo dzɔna le aɖuɖɔtoewo me (parotid glands).
• Dɔwɔnu ƒe kuxi siwo dzɔna le taɖua ƒe megbe kple eƒe anyime.

Aleke ɖɔkta awɔ ake ɖe esia ŋu?

Ne dzesi siawo le ŋuwò la, ne èyi ɖɔkta gbɔ la, ado wò ŋutilã kpɔ gbã eye wòado wò ahɔhɔ̃mekawo kpɔ.

Emegbe zi geɖe la, wokafua MRI-dɔdamɔnu be woatsɔ agbe nu bubu siwo gbɔ wò dzesiawo tso eye woakpɔ nusi tututu gbɔ wò HFS tso. Le HFS gbãtɔ me la, zi geɖe la, MRI-dɔdamɔnu ate ŋu ade dzesi ʋuka si mesɔ o si le lãmekaa tem.

Ɣeaɖewoɣi la, lãmekawo ƒe ʋuʋu siawo ateŋu aɖi mo ƒe ʋuʋu ƒomevi bubuwo (e.g. blepharospasm) alo alɔ̃madɔmadɔ. Eyata ne wò ɖɔkta mete ŋu de dzesi ʋuka si ƒomevi wòxɔ la nyuie o la, ate ŋu aɖo aɖaŋu be woawɔ electromyography (EMG) dodokpɔ.

Nukawoe nye atike siwo wozãna na esia?

Taɖodzinu vevitɔ si le atikewɔwɔ ŋue nye be woaɖe mo ƒe ʋuʋu zi geɖe kple eƒe sesẽ dzi akpɔtɔ. Atikewɔwɔ ƒe tiatia nɔ te ɖe nusi gbɔ dɔlélea tso kple eƒe sesẽ dzi. Mina míalé ŋku ɖe atikewɔmɔnu vevi siwo li ŋu.

Botox Dodo (Botulinum Aɖi Dodo) .

Wobua botox-tikewo be enye HFS ƒe atike gbãtɔ le woƒe dɔwɔwɔ nyuie kple eƒe nugbegblẽ le ame ŋu si mebɔ o ta. Woate ŋu aɖe dzesiawo dzi akpɔtɔ le ŋkeke etɔ̃ va ɖo ade megbe tso esime wodoe. Gake nusiwo wògblẽna le ame ŋu nɔa anyi abe ɣleti etɔ̃ va ɖo ene ene. Le ema megbe la, ahiã be nàgado atike la ake be nàɖu tics la dzi.

Nu suesuesue siwo ate ŋu ado tso eme ate ŋu ado mo ɖa le atike sia dodo vɔ megbe:

• Ŋku ƒe dzikudodo
• Ŋku ƒe ʋuʋudedi
• Mo ƒe gbɔdzɔgbɔdzɔ hena ɣeyiɣi aɖe

Atike Siwo Wonona

Ðɔktaa ate ŋu aŋlɔ atikewo abe esiawo ene:

• Atike siwo wua asrãdɔ abe carbamazepine alo gabapentin ene.
• Benzodiazepines abe clonazepam ene.
• Lãmetsiŋusẽtikewo abe baclofen ene.

Togbɔ be atike siawo ate ŋu akpe ɖe ame ŋu wòaɖe dzi ƒe tsotso dzi akpɔtɔ hã la, womewɔa dɔ na amesiame o. Azɔ hã, eŋudɔwɔwɔ ɣeyiɣi didi ate ŋu ahe nugbegblẽ le ame ŋu abe alɔ̃dɔdɔ kple ɖeɖiteameŋu ene vɛ.

Amekoko

Abe alesi míegblɔe va yi ene la, mɔ ɖeka kolia si dzi woato ada HFS tegbee enye amekoko. Gake ne dɔlélea nu sẽ ŋutɔ eye Botox-tikewo mewɔa dɔ o ko hafi ɖɔktawo kafua esia.

Woyɔa amekoko si bɔ wu be microvascular decompression . Esia bia be woaɖe asi le ʋuka si le lãmekaa tem ɖe lãmekaa me ŋu eye woatsɔ Teflon-nu sue aɖe ade wo ame evea dome.

Ne amekoko sia kpɔ dzidzedze la, magahiã be nàgakpe fu le HFS ŋu akpɔ gbeɖe o. Gake abe amekoko ɖesiaɖe ene la, afɔku aɖewo li.

• Nusiwo wòwɔna ne wotsɔ atike si naa alɔ̃dɔdɔ ame.
• Mo ƒe lãmeka ƒe gbegblẽ ɣeyiɣi kpui aɖe alo tegbee.
• Tosese ƒe kuxi.
• Ahɔhɔ̃ me tsi (CSF) ƒe sisi.

Ðe esia nye nɔnɔme si me afɔku lea? Ðe wòle be mavɔ̃a?

Ao, Hemifacial Spasm ŋutɔ megblẽa nu le wò ŋutilã ƒe lãmesẽ ŋu o. Gake ɣeaɖewoɣi la, atikewɔwɔ me nɔnɔme si gbɔ wòtsona (e.g., ahɔhɔ̃ me dɔdzẽ, ahɔhɔ̃mekawo ƒe gbegblẽ) ate ŋu anye afɔku.

Tsɔ kpe ɖe eŋu la, àte ŋu ado go kuxiwo abe:

• Alɔ̃dɔdɔ ƒe kuxiwo.
• Susu ƒe lãmesẽkuxiwo, abe ame ɖokui ɖeɖe ɖe aga le hadome, dzimaɖitsitsi, kple blanuiléle ene.
• Ŋkuʋuʋu si dzi womeɖu o ɣeyiɣi didi aɖe. Esia ate ŋu anye afɔku ne edzɔ, abe esime míele ʋu kum ene.

Hemifacial Spasm nye nɔnɔme si doa dziku ŋutɔ eye wòdoa ŋukpe ame. Seselelãme si nye be màte ŋu aɖu wò ŋutilã dzi o la menyo na ame aɖeke o. Gake nya nyuiae nye be atike nyuiwo li na esia, abe Botox dodo, atikewo, kple amekoko ene. Ne wò hã mo ʋuʋuna enuenu eye nèsena le ɖokuiwò me be ele sesẽm ɖe edzi la, ke yi ɖɔkta gbɔ godoo. Awɔ dodokpɔ siwo hiã eye wòana atikewɔwɔ ƒe ɖoɖo si sɔ wu wò.