The pain and loneliness that comes with watching your beloved mother, father, or close friend become more and more childlike day by day, and I understand that very well. Caring for someone living with Alzheimer's is one of the greatest sacrifices in the world. Although it is a loving thing to do, sometimes it can feel like a burden you can't bear alone. But it is important to remember that you are not alone in this journey.
Why is this so difficult? The challenges faced by the caregiver
Caring for someone with Alzheimer's can be a very tiring experience, both physically and mentally. It's like going on a long journey.
- Emotional exhaustion: It's hard to put into words the sadness you feel when the person you love gradually forgets you, their family, and who they are. Sometimes you may feel angry and disappointed because of their changed behavior. You may even think about it and feel sad. All of these feelings are very normal.
- Physical strain: You have to be alert 24 hours a day. You may be the one feeding, bathing, dressing, and occasionally administering medication. You may not be able to sleep at night. With all of this, it's only natural that your body will feel very tired.
- Social isolation: You may no longer have time to go out with friends, attend events, or do things you enjoy. You may gradually feel isolated and isolated from society.
- Financial Issues: The cost of treatment and necessary facilities can put a strain on your finances. You may even have to quit your job to care for the patient.
You are not the only one facing these challenges. This is something that everyone who cares for Alzheimer's patients experiences all over the world, including in our homes in Sri Lanka. The most important thing is to understand that asking for help is not a weakness, but a strength.
Do we have to carry this burden alone? Ways to get help
Absolutely not! You don't have to do all this alone. Asking for help doesn't mean you're less loving. It just means you need the strength to take better care of yourself and your loved one.
Think of it like saying, in an emergency on a plane, you need to put on your oxygen mask before helping others. Only if you are well can you take good care of the patient.
Let's see how we can help with these challenges.
| The challenge you face | How can I get help? |
|---|---|
| Unbearable stress and frustration | Talk to your family, a trusted friend, about what's on your mind. Talk to your doctor. If necessary, seek the help of a mental health counselor. |
| Physical fatigue and insomnia | Share the work with other family members. Set aside an hour a day for yourself and take a break. If you have the financial means, get help from a home care service. |
| Lack of understanding about the disease and behavior management | Listen carefully to the doctor treating the patient. Get informed from organizations like the Lanka Alzheimer's Foundation. Don't be afraid of the patient's sudden changes, learn how to cope with them. |
| Social isolation and loneliness | Stay in touch with friends online or by phone. Join support groups to talk to people who have been through similar experiences. |
Where can we get help in Sri Lanka?
Although there are many institutions for this purpose in countries like America and Europe, there are also valuable places in Sri Lanka that can help you.
1. Lanka Alzheimer's Foundation
This is the leading organization in Sri Lanka dedicated to Alzheimer's patients and their caregivers. They provide a wide range of services free of charge.
- Awareness programs: They educate you about the disease, how to care for a patient, and legal issues.
- Caregiver Support Groups: This is a great way to meet other caregivers like you, share experiences, and find comfort.
- Helpline: You can call their phone number to discuss any questions, concerns, or issues you may have, and to get advice.
- Day Care Center: Their center in Maradana provides facilities for patients to spend the day with various activities. This is a great opportunity for you to take a little break.
2. Your Doctor
Your family doctor or the specialist treating you is your first and best advisor. Talk openly with him or her about your condition, new medications, and your mental and physical health . They can refer you to other specialists if necessary.
3. Memory Clinics in Hospitals
Many public and private hospitals have specialized dementia clinics, which provide diagnosis, treatment, and advice for those caring for the patient.
4. Family and friends
This is the support you have close by. Don't be shy about asking for help. Asking for small things like, "Can you watch mom for two hours this afternoon?" or "Can you wait for me while I go to the store?" will be a great relief. Share your feelings with them.
Take-Home Message
- Caring for someone with Alzheimer's is very challenging. It's completely normal to feel tired, sad, and frustrated about it.
- You are not alone in this battle. There are valuable institutions and services in Sri Lanka, such as the "Lanka Alzheimer's Foundation", to help you.
- Always talk to your doctor about the patient's condition, as well as any difficulties you may be facing.
- Taking care of yourself is not selfish; it is essential to providing good care to the patient. Never hesitate to ask for help from family and friends.
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