Do you or someone in your family have Spinal Muscular Atrophy ( SMA ), a disease that causes muscle weakness in the spine? If so, your doctor may have prescribed a medicine called Risdiplam. This is a liquid medicine that you take. So, today we will talk about Risdiplam (brand name: Evrysdi), how to use it, and what it can do, in a simple and clear way.
Simply put, what kind of medicine is this?
Risdiplam is a medicine used to treat patients with a condition called Spinal Muscular Atrophy (SMA) . It helps control the gradual weakening of the body's muscles due to SMA.
The most important thing is that this is not a cure for the disease, but it does help control the symptoms and improve the patient's quality of life.
Doctors may also prescribe this medicine for other conditions, so if you have any questions, ask your doctor about it.
Things you need to tell your doctor before using the medicine
Before starting this medication, you should definitely inform your doctor about these facts, as it is very important for your safety.
- Tell us if you have an allergic reaction to Risdiplam or any other medicine, food, or dye .
- If you are pregnant, or planning to have a baby soon, be sure to mention it.
- If you are a breastfeeding mother, inform your doctor about this as well.
Based on this information, your doctor will decide whether this medication is right for you or not.
How exactly do I use this medicine?
Since this is a liquid medicine, you need to be a little careful when using it. You will only get the best results if you use it properly.
- This is an oral liquid. Take the dosage exactly as prescribed by your doctor.
- To measure the medicine, use only the special oral syringe provided with the medicine . Do not use things like teaspoons or syrup cups from the kitchen.
- After drawing the amount of medicine into the syringe, it should be administered to the patient within 5 minutes .
- Imagine that you took the medicine into the syringe and went to do something else and it took more than 5 minutes. If that happens , discard that dose of medicine and prepare a new dose . Do not give the old one.
- Always take this medicine after a meal .
- Drink some water after taking the medicine.
- Get into the habit of taking your medicine at about the same time every day. Take it exactly as your doctor tells you to.
- Do not stop taking this medication suddenly without your doctor's advice.
- Do not let this medicine get on your skin or in your eyes. If you accidentally get it on your skin, wash the area thoroughly with soap and water. If it gets in your eyes, rinse your eyes thoroughly with water.
- This medicine is sometimes given even to newborns, but only under very strict medical supervision.
| If you miss a dose or take too much | |
|---|---|
| If you miss a dose | If you remember within 6 hours of the time you usually take your pill, take it as soon as you remember. But if it's been more than 6 hours , skip that dose altogether and take your next dose at the regular time. Never take two doses at once. |
| Overdosage | If you think you have taken too much medicine, immediately call the National Poisons Information Centre at the Colombo National Hospital . Or go to the Emergency Treatment Unit (ETU) of the nearest hospital. |
Things to be especially careful about when taking medication
While using this medicine, be aware of these points for your safety and that of your family.
Other medications
If you are taking diabetes medication, such as metformin , tell your doctor . Also, give your doctor a complete list of all other medications you are taking (including medications for other conditions, vitamins, traditional medicines, and herbal products). Also tell your doctor if you smoke or drink alcohol, as some things can interact with this medication.
Pregnancy and childbearing
This is very important. Please pay special attention to this.
- For women: Avoid becoming pregnant while taking this medicine and for 1 month after stopping the medicine. This medicine can cause serious harm to an unborn baby. If you think you may be pregnant, tell your doctor right away.
- For men: This medicine may reduce sperm count in some men, which may make it harder for them to have children. If you have any questions about your fertility, talk to your doctor.
What are the possible side effects of the medication?
Like all medicines, Risdiplam can cause some side effects, although not everybody gets them.
| Types of side effects | |
|---|---|
| Side effects that should be reported to the doctor immediately | |
| Allergic reactions | Symptoms such as skin rash, itching, hives, swelling of the face, lips, or tongue. |
| Side effects that are usually not serious, but should be reported to the doctor if they persist | |
| Digestive system problems | Constipation, diarrhea, vomiting. |
| Other common features | Cough, fever, mouth sores, sore throat. |
This list does not include all side effects. If you notice anything unusual in addition to these, talk to your doctor about that as well.
How to store the medicine?
To maintain the quality of the medicine, it must be stored properly.
- Keep it in a safe place out of the reach of children .
- Keep the medicine in the refrigerator . But do not freeze it . Do not let the medicine freeze.
- Keep the medicine in the original bottle it came in.
- After 64 days of opening the bottle, discard any remaining medicine. Do not use it.
This information sheet is only a summary. If you have any further questions about this medicine, please feel free to discuss them with your doctor.
Take-Home Message
- Risdiplam is a treatment for SMA, but not a cure for the disease.
- Use only the special syringe provided to measure the medicine, and inject within 5 minutes after drawing it up.
- Always take the medicine after a meal.
- Avoid stopping the medication without your doctor's advice.
- Avoid becoming pregnant while taking the medication and for 1 month after stopping. Men should also talk to their doctor about their fertility.
- Store the medicine in the refrigerator, open it, and discard it within 64 days.
- If you have any problems or doubts, never hesitate to talk to your doctor.
💬 අදහස් (0)
තවමත් කිසිදු අදහසක් පළ කර නොමැත. ඔබේ අදහස පළමු වරට මෙහි එක් කරන්න.
ඔබේ අදහස එක් කරන්න