Ke paʻa nei kou mau māmā a paʻakikī hoʻi e hanu? (Pulmonary Fibrosis) E kamaʻilio kākou e pili ana!

Ke manaʻo nei ʻoe i kekahi manawa e like me ʻoe e hanu ana i ka wā e piʻi ai ʻoe i nā alapiʻi a i ʻole e hele wāwae ana i kahi mamao pōkole? A i ʻole ke manaʻo nei ʻoe ʻaʻole ʻoe luhi e like me ma mua, a i kēia manawa ke manaʻo nei ʻoe ua luhi loa ʻoe i ka wā e hana ana i nā hana liʻiliʻi? ʻO kekahi kumu o kēia mau mea he loli paha i loko o kou mau māmā. ʻAe, ʻo Pulmonary Fibrosis, kahi kūlana e hoʻopaʻakikī mālie ai i nā māmā a hoʻolilo iā ia i mea paʻakikī ke hanu, ʻo ia ka mea a mākou e kamaʻilio ai i kēia lā.

He aha maoli ka Pulmonary Fibrosis?

I ka ʻōlelo maʻalahi, ʻo Pulmonary Fibrosis ka ʻōpala a me ka mānoanoa o nā ʻiʻo i loko o kou mau māmā. E noʻonoʻo e like me kahi ʻōpala ma ka ʻili ke loaʻa iā ʻoe kahi ʻeha, hana like kekahi mea i loko o nā māmā. No loko kēia o kahi hui o nā maʻi māmā i kapa ʻia ʻo ka maʻi māmā interstitial. ʻO ka mea e hana ʻia ma ʻaneʻi, ʻo nā ʻeke ea liʻiliʻi loa i loko o ko kākou mau māmā, nā wahi e komo ai ka oxygen i ka wā e hanu ai kākou, kapa mākou iā lākou he `(alveoli)`, a ua hōʻino ʻia nā ʻiʻo a puni kēlā mau `(alveoli)`. E nānā, ua like nā māmā me ka huʻahuʻa. Hoʻopiha lākou i ka wā e hanu ai kākou, a ʻaelike lākou i ka wā e hanu ai kākou i waho. Akā i ka wā e hana ʻia ai kēia ʻano (Pulmonary Fibrosis), lilo nā ʻiʻo i loko o nā māmā i ʻoʻoleʻa a paʻakikī, no laila ʻaʻole hiki iā lākou ke hoʻopiha a ʻaelike paha e like me ka wā ma mua. ʻO ia ka manawa e lilo ai i mea paʻakikī ke hanu, a hopu ʻoe i kou hanu . ʻOiai nā hana o kēlā me kēia lā i maʻalahi i ka wā ma mua hiki ke manaʻo luhi loa.

ʻO ka mea nui loa, ʻo kēia maʻi i kapa ʻia ʻo (Pulmonary Fibrosis) he mau loa ia , ʻo ia hoʻi he paʻakikī ke ho'ōla loa. Eia kekahi, hiki ke lilo i mea ʻino aʻe i ka hala ʻana o ka manawa (ʻoi aku ka ʻino) . Kāhea mākou i kēlā ʻano `(progressive pulmonary fibrosis)`.

Hiki i nā māmā ke paʻakikī me ke kumu ʻole? He aha ka Idiopathic Pulmonary Fibrosis?

ʻAe, i kekahi manawa ʻaʻole i loaʻa ke kumu o kēia maʻi māmā . ʻO ia ka mea a mākou e kapa aku nei he `(Idiopathic Pulmonary Fibrosis)` no ia mau hihia. ʻO ke ʻano o ka huaʻōlelo "idiopathic" ʻo ia hoʻi "no ke kumu i ʻike ʻole ʻia." ʻO ka hapa nui o ka manawa, ʻo ka hapa nui o nā maʻi me (Pulmonary Fibrosis) loaʻa kēia ʻano `(Idiopathic Pulmonary Fibrosis)`.

Pehea ʻoe e ʻike ai inā he Pulmonary Fibrosis kou? He aha nā hōʻailona?

ʻOkoʻa iki paha nā hōʻailona o kēia maʻi mai kēlā kanaka a kēia kanaka, akā aia kekahi mau hōʻailona maʻamau:

• Pōkole o ka hanu : Paʻakikī ka hanu ʻana, ʻoiai i ka wā a ma hope paha o ka hoʻoikaika kino māmā, ka hana ʻana i kahi hana, a ma hope paha o ka pau ʻana.
• Nā hanu pōkole a pāpaʻu: Ke hanu wikiwiki a liʻiliʻi, me he mea lā ʻaʻole hiki ke hoʻopiha i kou umauma.
• ʻO ke kuni maloʻo mau: He kuni i hana ʻole i ka mucus a ʻaʻole e emi i ka hala ʻana o ka manawa.
• Luhi no ke kumu ʻole (Luhi: Manaʻo mau i ka luhi, ʻoiai inā hiamoe maikaʻi ʻoe a ʻaʻole hana nui paha.
• ʻO ka pohō kaumaha i wehewehe ʻole ʻia: ʻO ka pohō wale ʻana i ke kaumaha me ka ʻole o ka ʻai ʻana.
• Nā manamana lima i hui ʻia : Hiki i nā manamana lima a me nā manamana wāwae o kekahi poʻe ke pehu a hoʻonui ʻia, e like me ka pahu pahu.
• ʻO ke kala ʻili (Cyanosis): Ke lawa ʻole ka oxygen i loko o ke koko, e lilo paha nā lehelehe, a puni nā maka, a me nā kui i polū, hina, a i ʻole keʻokeʻo.

Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​ʻoi aku ka maikaʻi o ka ʻimi ʻana i ke kōkua lapaʻau.

No ke aha e hana ʻia ai kēia (Pulmonary Fibrosis)? He aha nā kumu?

Manaʻo nā loea e loaʻa ka fibrosis pulmonary i ka wā e hōʻino ʻia ai a pehu paha nā māmā, a ʻaʻole hoʻōla pono ke kaʻina hana. ʻO ke ʻano kēia, i ka wā e hoʻāʻo ai nā māmā e hoʻōla iā lākou iho, hewa kekahi mea a hana ʻia nā ʻiʻo ʻeha. Aia kekahi mau kumu kikoʻī e hiki ke kōkua i kēia:

• Nā maʻi pili pili : Inā loaʻa iā ʻoe nā maʻi e like me ka Rheumatoid Arthritis (RA), Lupus, a i ʻole Scleroderma, hiki i kēia ke hoʻopilikia i kou mau māmā .
• Nā pilikia o ke kaiapuni: ʻO ka pilikia lōʻihi i kekahi mau lepo a me nā kemika hiki ke hōʻino i nā māmā. ʻO nā hiʻohiʻona e like me ka asbestos, silica, a me ka beryllium. ʻO ka hypersensitivity pneumonitis, kahi allergy i kekahi mau ʻōpala, bacteria, hulu manu, a i ʻole dander, hiki ke hana i kēia maʻi.
• Nā maʻi Granulomatous: Nā kūlana e like me ka sarcoidosis a i ʻole ka histiocytosis cell Langerhans.
• Kekahi mau lāʻau lapaʻau a i ʻole nā ​​​​lāʻau lapaʻau: ʻO kekahi mau lāʻau lapaʻau e like me ka amiodarone no ka maʻi puʻuwai, nitrofurantoin no nā maʻi ʻōpū urinary, methotrexate no ka maʻi kanesa a me ka arthritis, a me ka radiation therapy no ka maʻi kanesa hiki ke hōʻino i nā māmā.
• Puhipaka: He mea ʻino loa ka puhipaka i nā māmā. He kumu nui nō hoʻi ia o ka Pulmonary Fibrosis.

Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, i nā manawa he nui, ʻaʻole hiki ke loaʻa kahi kumu kikoʻī.

ʻO wai ka mea i ʻoi aku ka pilikia o ka hoʻomohala ʻana i ka Pulmonary Fibrosis?

Ma waho aʻe o nā kumu i ʻōlelo ʻia ma luna nei, aia kekahi poʻe ʻē aʻe i kahi kiʻekiʻe iki o ka pilikia o ka hoʻomohala ʻana i kēia maʻi:

• No nā poʻe ma luna o 65 mau makahiki.
• No nā kāne, ʻoi aku ma mua o nā wahine.
• Inā loaʻa kekahi o ka ʻohana i ka Pulmonary Fibrosis, aia paha he hopena hoʻoilina.
• No nā poʻe me kekahi mau kūlana genetic (nā loli DNA) e hoʻoulu ai i nā maʻi. No ka laʻana, kahi maʻi iwi iwi laha ʻole i kapa ʻia ʻo dyskeratosis congenita.

He aha nā pilikia ʻē aʻe e hiki ke hana ma muli o ka Pulmonary Fibrosis?

Ke hōʻino ʻia nā ʻiʻo māmā, ʻaʻole hiki iā ia ke hāʻawi pono i ka oxygen i ke koena o ke kino. Hoʻoikaika kēia i ko mākou puʻuwai. Hiki i kēia ke alakaʻi i nā pilikia like ʻole:

• Ua emi ka pae o ka oxygen i loko o ke koko (hypoxemia) a me ka nele o ka oxygen i nā ʻiʻo (hypoxia).
• Ke koko kiʻekiʻe o ka puʻuwai.
• Pūmāmā i hiolo.
• Nā maʻi pinepine o ka māmā.
• Ka hāʻule piha ʻana o ka hanu.
• Ka hāʻule ʻana o ka puʻuwai.

ʻO ia ke kumu he mea nui e ʻike koke i ke kauka a e ʻimi i ka lāʻau lapaʻau inā loaʻa nā hōʻailona.

Pehea ʻoe e ʻike ai i ka fibrosis pulmonary? He aha nā hoʻokolohua e hana ʻia?

Pono kekahi mau hoʻokolohua e hōʻoia i ka ʻike ʻana o ka fibrosis pulmonary. E hoʻolohe mua kāu kauka i kou mau māmā a nīnau e pili ana i kāu mau hōʻailona. A laila e hana lākou i nā hoʻokolohua e ʻike ai i ka hana maikaʻi o kou mau māmā. E nānā pū lākou no nā maʻi puʻuwai a māmā paha e hiki ke hoʻoulu i kāu mau hōʻailona. ʻO nā hoʻokolohua maʻamau:

• X-ray o ka umauma: E nānā i ke kūlana holoʻokoʻa o nā māmā.
• ʻO ke kiʻi CT hoʻonā kiʻekiʻe (HRCT): Hiki i kēia ke hōʻike maopopo i ke kaha o nā māmā.
• Nā hoʻāʻo hana pulmonary (PFTs): Ke ana kēia i ka maikaʻi o kou hanu ʻana i loko a i waho, a me ka nui o ka ea e hiki i kou mau māmā ke paʻa.
• Nā hoʻāʻo koko: Nā hoʻāʻo e like me ke kinoea koko arterial e nānā i ka pae oxygen i loko o ke koko, a me ka nānā ʻana i nā maʻi ʻē aʻe.
• Bronchoscopy: He hoʻāʻo kahi e hoʻokomo ʻia ai kahi kāmela liʻiliʻi me kahi paipu i hoʻopili ʻia ma ka ihu a i ʻole ka waha e nānā i loko o nā māmā. Hiki ke lawe ʻia kahi hāpana ʻiʻo (biopsy) i kēia manawa.
• Biopsy: Lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai loko mai o nā māmā a nānā ʻia ma lalo o kahi microscope.

I kekahi manawa, hiki i kāu kauka ke ʻōlelo aku i kahi echocardiogram e nānā i nā pilikia o ka puʻuwai.

Hiki ke ho'ōla loa ʻia ka Pulmonary Fibrosis? He aha nā lāʻau lapaʻau i loaʻa?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau no ka fibrosis pulmonary i kēia manawa. Akā, mai hopohopo. Hiki i nā lāʻau lapaʻau o kēia manawa ke kōkua i ka kaohi ʻana i nā hōʻailona, ​​​​hoʻolohi i ka holomua o ka maʻi, a hoʻomaikaʻi i kou ʻano ola . ʻO nā lāʻau lapaʻau nui i hoʻohana ʻia:

• Nā lāʻau lapaʻau antifibrotic: ʻO nā lāʻau lapaʻau e like me Nintedanib (OFEV®) a i ʻole Pirfenidone (Esbriet®) e kōkua i ka hoʻolohi ʻana i ka wikiwiki o ka ʻeha o ka māmā a mālama i ka hana o ka māmā.
• Corticosteroids: Hoʻohana ʻia kēia mau mea i kekahi manawa e hōʻemi i ka mumū i loko o nā māmā.
• Lapaʻau oxygen: Inā ʻaʻole lawa ka oxygen i kou koko a i ʻole nā ​​​​ʻiʻo, e haʻi aku paha kāu kauka iā ʻoe e lawe i ka oxygen hoʻohui. Hāʻawi ʻia kēia ma o ka cannula ihu a i ʻole kahi pale maka.
• Hoʻoponopono hou ʻana i ka pulmonary: Pili kēia i nā hoʻomaʻamaʻa hanu kūikawā a me nā hoʻomaʻamaʻa kino e kōkua ai i ka hoʻoikaika ʻana i kou mau māmā a maʻalahi ka hanu ʻana.
• Hoʻoili māmā: Hiki ke noʻonoʻo ʻia kekahi mau maʻi me ka Pulmonary Fibrosis no ka hoʻoili māmā inā koʻikoʻi ka maʻi.
• Nā hoʻokolohua lapaʻau: Inā makemake ʻoe, hiki iā ʻoe ke komo i nā noiʻi noiʻi e pili ana i nā lāʻau lapaʻau hou a me nā lāʻau lapaʻau. E nīnau i kāu kauka e pili ana i kēia.

Eia kekahi, inā he maʻi ʻē aʻe e hoʻoulu ai i ka ulu ʻana o ka Pulmonary Fibrosis (e.g., `(maʻi autoimmune)`), pono e mālama ʻia, a inā he mau kūlana e hoʻonui ai i ka paʻa ʻana o ka māmā (e.g., `(GERD)` - gastric distress), pono nō hoʻi ʻoe e lawe i ka lāʻau lapaʻau no ia mea.

Inā loaʻa iaʻu ka Pulmonary Fibrosis, pehea wau e mālama ai iaʻu iho?

(Pulmonary Fibrosis) Hiki ke paʻakikī iki i ke kanaka me ka pulmonary fibrosis ke pale aku i nā maʻi a hoʻōla. No laila, he mea nui loa ka holoi pinepine ʻana i kou mau lima me ke kopa a me ka wai, e mālama i kou wahi a puni i ka maʻemaʻe, a e noho mamao aku mai nā wahi i piha i ka lehulehu i ka hiki (ʻoi aku hoʻi i ka wā o ka maʻi palū a me ke anu a i ka wā o ka maʻi ahulau COVID). Eia kekahi, he mea nui e loaʻa nā lāʻau pale i ʻōlelo ʻia e kāu kauka. Kōkua kēia mau lāʻau pale i ka pale ʻana i nā maʻi e like me ka pneumonia, influenza, RSV, a me COVID.

Āhea wau e ʻike ai i ke kauka?

Inā pilikia ʻoe i ka hanu ʻana a i ʻole luhi maʻalahi ʻoe ma mua o ka wā ma mua, e ʻike koke i ke kauka. No ka mea , inā ʻike ʻoe a hoʻomaka i ka mālama ʻana no kēia mau kūlana i ka wā mua, hiki iā ʻoe ke hoʻolohi i ka holomua o ka maʻi.Inā loaʻa iā ʻoe kahi maʻi pili i nā ʻiʻo pili a i ʻole ka maʻi granulomatous, e kamaʻilio me kāu kauka e pili ana i nā ala e hōʻemi ai i kou pilikia o ka hoʻomohala ʻana i ka fibrosis pulmonary.

I ka manawa hea ʻoe e pono ai e hele i ka Emergency Treatment Unit (ETU) ?

Inā loaʻa kekahi o nā hōʻailona ma lalo nei, e kāhea i 911 a i ʻole e hele koke i ka lumi pilikia kokoke loa:

• Paʻakikī koke a nui ka hanu ʻana.
• ʻEha nui o ka umauma.
• Ka huikau a i ʻole ka loli o ke kūlana noʻonoʻo.
• Ka loli ʻana o ke ʻano polū o ka ʻili, nā lehelehe, a i ʻole nā ​​​​kui lima.

He aha kaʻu e nīnau aku ai i kaʻu kauka?

He mea kōkua iā ʻoe ke nīnau i kēia mau nīnau i kou wā e kipa aku ai i ke kauka:

• "E ke kauka, he aha ke kumu o koʻu mau māmā e ʻūmiʻi nei penei?"
• "He aha nā koho lapaʻau e loaʻa iaʻu?"
• "Pehea lā wau e hoʻohana ai i kēia mau lāʻau lapaʻau?"
• "Āhea wau e hele hou aku ai e ʻike i ke kauka?"
• "Ua kūpono anei au no ka hoʻoili ʻana i ka māmā?"

He mea nui loa ka nīnau ʻana i nā nīnau e like me kēia a loaʻa kahi ʻike maikaʻi aʻe i kou kūlana.

Hiki ke pale ʻia ka Pulmonary Fibrosis?

ʻAʻole hiki iā mākou ke pale aku i nā kumu he nui o ka fibrosis pulmonary. Eia nō naʻe, aia kekahi mau mea hiki iā mākou ke hana e hōʻemi i ka hōʻino ʻana i nā māmā i hoʻokumu ʻia e nā kumu kaiapuni:

• E noho mamao aku mai nā mea e hōʻino ai i nā māmā (e like me ka asbestos, ka lepo metala, nā kemika) i ka hiki. Inā pono ʻoe e hana me ia mau mea, e hoʻohana i kahi mea hanu kūikawā.
• E noho mamao aku mai nā mea e hiki ai ke hoʻoulu i nā maʻi allergies lōʻihi (e like me ka mauʻu maloʻo, nā huaʻai, nā ʻōpala manu, nā hulu manu, a me kekahi mau ʻōnaehana ea hoʻoluʻu). E hoʻohana i ka respirator inā ʻoe e hana me kēia mau mea.
• Inā ʻoe e puhipaka, e hoʻōki koke, a i ʻole, mai hoʻomaka.

Inā loaʻa iaʻu ka Pulmonary Fibrosis, he aha kaʻu e manaʻo ai?

ʻAneʻane mau loa kēia ʻeha o nā māmā (koe wale nō i nā hihia kakaikahi, ke kumu ʻia e kahi lāʻau lapaʻau a ʻike koke ʻia). Inā loaʻa iā ʻoe kekahi maʻi ʻē aʻe, hiki i ka kaohi ʻana i kēlā ʻano ke kōkua i ka hōʻemi ʻana i ka hōʻino hou ʻana i kou mau māmā. Inā ʻaʻole hiki ke loaʻa ke kumu, e hoʻāʻo kāu kauka e mālama i kāu mau hōʻailona me ka hoʻāʻo ʻana e pale i ka hōʻino hou ʻana. He mea paʻakikī i nā kauka ke wānana pololei pehea e holomua ai ka fibrosis pulmonary. No kekahi poʻe, hiki i nā hōʻailona ke ulu mālie i loko o kekahi mau makahiki. No kekahi poʻe, hiki i ka maʻi ke holomua koke a lilo i mea koʻikoʻi i loko o kekahi mau mahina.

ʻEhia ka lōʻihi e hiki ai iā ʻoe ke ola me ka Pulmonary Fibrosis?

ʻO ka awelika o ke ola no kekahi me ke kūlana maʻamau, ʻo "Idiopathic Pulmonary Fibrosis," he ʻekolu a ʻelima mau makahiki. Eia nō naʻe, me nā holomua hou o ka mālama ʻana, ua piʻi iki ke ola no ka poʻe me Pulmonary Fibrosis. No laila, mai hopohopo.

Aia kekahi mau pae o ka Pulmonary Fibrosis?

ʻAʻohe ʻōnaehana "staging" i ʻike kūhelu ʻia no ka pulmonary fibrosis. Eia nō naʻe, hiki i kekahi mau kauka ke hoʻokaʻawale i ka maʻi ma ke ʻano he "mālie," "waena," "koʻikoʻi," a i ʻole "koʻikoʻi loa" ma muli o kāu mau hōʻailona, ​​​​nā hopena hoʻāʻo hana māmā, a me nā scan.

I ka makahiki hea e hoʻomaka pinepine ai ka Pulmonary Fibrosis?

Hoʻomaopopo pinepine ʻia ka Pulmonary Fibrosis i nā poʻe ma luna o 65 mau makahiki.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka ʻike ʻana ua loaʻa iā ʻoe ka Pulmonary Fibrosis hiki ke lilo i mea hoʻololi ola. Hiki ke kaumaha a kānalua hoʻi e pili ana i ka wā e hiki mai ana. I nā manawa e like me kēia , ʻo ka loaʻa ʻana o kahi ʻōnaehana kākoʻo mai kāu poʻe aloha, ʻohana, a me nā poʻe ʻē aʻe me ke ʻano like hiki ke waiwai nui ʻia.

ʻO ka mea nui, ʻokoʻa kēlā me kēia kanaka me ka fibrosis pulmonary. ʻAʻohe mea hiki ke wānana pololei i ke ʻano o kou wā e hiki mai ana. Hiki i nā lāʻau lapaʻau o kēia manawa ke kōkua i ka lohi o ka holomua o ka maʻi, kaohi i nā hōʻailona, ​​​​a hoʻomaikaʻi i kou ʻano ola. No laila, e ʻoiaʻiʻo me kāu kauka e pili ana i ka mea e manaʻo ai a me ka mea hiki iā ʻoe ke hana e pili ana i kou kūlana. He mea nui hoʻi e noho maikaʻi.

ʻO ka Pulmonary Fibrosis, ka paʻa ʻana o ka māmā, ka paʻakikī o ka hanu ʻana, ka ʻū maloʻo, ka maʻi māmā, ka maʻi hanu, ka Idiopathic Pulmonary Fibrosis, ka ʻeha o ka māmā