Loaʻa pinepine iā ʻoe ke poʻo ʻeha? Ke luaʻi nei ʻoe? A i ʻole ke manaʻo nei ʻoe e emi mālie ana kou hoʻomanaʻo, a i ʻole ua paʻakikī kāu mau ʻōlelo ke ʻōlelo ʻoe? ʻOiai hiki ke hana ʻia kēia mau mea no nā kumu maʻamau, kakaikahi, hiki ke lilo i mau hōʻailona o kahi puʻupuʻu lolo. No laila i kēia lā e kamaʻilio mākou e pili ana i kahi ʻano puʻupuʻu e hana ʻia ana i loko o ka lolo a me ke kaula kuamoʻo, i kapa ʻia ʻo 'Astrocytoma'. Mai hopohopo, e hoʻomaopopo maʻalahi kākou i nā mea āpau e pili ana i kēia.
I ka ʻōlelo maʻalahi, he aha ka Astrocytoma?
ʻO ka Astrocytoma kahi ʻano puʻupuʻu e hiki ke ulu i loko o kā mākou ʻōnaehana nerve waena (CNS) , aia ma ka lolo, akā i kekahi manawa i loko o ke kaula spinal. Hoʻomohala kēia mau puʻupuʻu mai kahi ʻano kūikawā o ke kelepona hōkū i loko o ko mākou lolo i kapa ʻia ʻo 'astrocyte'. ʻO kēia mau kelepona astrocyte kahi ʻano kelepona e hana ana ma ke ʻano he kākoʻo no nā kelepona nerve ʻē aʻe i loko o ka lolo, e hānai ana a pale ana iā lākou. Hoʻokumu ʻia kahi puʻupuʻu astrocytoma ke hoʻomaka kēia mau kelepona e ulu me ka hiki ʻole ke kāohi ʻia.
ʻO ka mea nui, ʻaʻole he maʻi kanesa kēia mau Astrocytomas a pau. He mau puʻupuʻu maikaʻi kekahi. Akā hiki i kekahi ke lilo i maʻi kanesa (malignant).
ʻO Astrocytoma ke ʻano maʻamau o ka puʻupuʻu lolo i kapa ʻia ʻo glioma.
Aia kekahi mau ʻano a me nā ʻano o Astrocytoma?
ʻAe, ua hoʻokaʻawale ka World Health Organization (WHO) i nā puʻupuʻu Astrocytoma i ʻehā mau papa nui (Nā Papa 1-4) ma muli o ko lākou ulu ʻana a me ka hiki ke pālahalaha i nā ʻiʻo a puni. ʻO ka Papa 1 ka mea ʻoi aku ka liʻiliʻi o ke koʻikoʻi, a ʻo ka Papa 4 ka mea ʻoi loa ke koʻikoʻi a laha wikiwiki.
E hoʻomaopopo kākou i kēia me kahi papa.
| Papa | Ka wehewehe a me nā ʻano |
|---|---|
| Papa 1 (ʻAʻole maʻi kanesa) | He mau puʻupuʻu maikaʻi ʻole kēia e ulu mālie loa a ʻaʻole e pālahalaha. Ke wehe loa ʻia e ke ʻoki ʻana, ʻaʻohe pono hou o ka lāʻau lapaʻau (radiation a chemotherapy paha).
|
| Papa 2 (Maʻi Kanesa) | He mau puʻupuʻu kanesa kēia. Loaʻa iā lākou ke ʻano e laha i nā ʻiʻo lolo a puni. No laila, ʻaʻole lawa paha ke ʻoki kino wale nō no ka mālama ʻana. |
| Papa 3 (Maʻi Kanesa) | He ʻoi aku ka ikaika o kēia mau puʻupuʻu a ʻoi aku ka wikiwiki o ka ulu ʻana ma mua o ka papa 2. I ka manawa pinepine, hiki i nā puʻupuʻu papa 2 ke holomua i kēia pae i ka hala ʻana o ka manawa. ʻAʻole hiki i ke ʻoki kino wale nō ke ho'ōla iā lākou. Pono maoli ka radiation a me ka chemotherapy. |
| Papa 4 (Maʻi Kanesa) | Ua kapa ʻia kēia mau mea he glioblastoma . ʻO kēia ke ʻano astrocytoma ʻoi loa ka ikaika, ka ulu wikiwiki loa, a me ka ikaika loa. ʻO ia hoʻi ke ʻano maʻamau o ka maʻi ʻaʻai lolo i nā pākeke. |
ʻO wai ka mea i loaʻa pinepine i kēia maʻi?
Hiki ke ulu a Astrocytoma i kēlā me kēia makahiki, akā ʻoi aku ka maʻamau o nā māka like ʻole i nā hui makahiki like ʻole.
- Papa 1: Mea maʻamau i waena o nā keiki a me nā ʻōpio.
- Papa 2: ʻO ka mea maʻamau i nā pākeke ma waena o 20 a me 60 mau makahiki.
- Papa 3: He mea maʻamau i nā pākeke ma waena o 30 a me 60 mau makahiki.
- Papa 4 (Glioblastoma): Mea maʻamau i waena o nā pākeke ma waena o 50 a me 80 mau makahiki.
ʻOi aku ka nui o ka loaʻa ʻana o nā kāne i nā astrocytomas koʻikoʻi (papa 3 a me 4).
He aha nā hōʻailona o kēia?
Aia nā hōʻailona i ka nui o ka puʻupuʻu a me kona wahi i loko o ka lolo. No ka mea, ʻo nā ʻāpana like ʻole o ka lolo ke kaohi i nā hana like ʻole i loko o ko kākou kino, ke kau ka puʻupuʻu i ke kaomi ma luna o kēlā ʻāpana, ʻike ʻia nā hōʻailona e pili ana i kēlā ʻāpana.
Eia kekahi mau hōʻailona maʻamau.
| Hōʻailona | Wehewehena |
|---|---|
| Nā ʻeha poʻo | He ʻeha poʻo pinepine a koʻikoʻi i ke ala ʻana i ke kakahiaka a ʻaʻole ia e pane i nā lāʻau hoʻomaha ʻeha maʻamau. |
| Ka luaʻi a me ka luaʻi | Ka luaʻi a me ka luaʻi ʻana me ke kumu ʻole. |
| Nā hopu ʻana | Loaʻa i ka maʻi ʻōʻō no ka manawa mua i ke ola. |
| Nā loli noʻonoʻo a me ke ʻano | Ka nalowale ʻana o ka hoʻomanaʻo, ka paʻakikī i ka noʻonoʻo ʻana, nā loli o ke ʻano (huhū koke, kaumaha), a me ka huikau. |
| ʻO ka ʻoluʻolu ʻole o ke kino | Nā pilikia ʻike (ʻike pōwehiwehi, ʻike pālua), paʻakikī i ka ʻōlelo ʻana (aphasia), maneʻo a nāwaliwali paha ma kekahi ʻaoʻao o ke kino, a me ka paʻakikī i ka hele wāwae. |
Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona ma ka lālani, e ʻoluʻolu e ʻike i kāu kauka i ka wā hikiwawe loa.
He aha nā kumu o ka astrocytoma?
ʻO ka ʻoiaʻiʻo, ʻaʻole i ʻike ʻia ke kumu kikoʻī o ka hapa nui o nā astrocytomas . Loaʻa pinepine lākou i kekahi manawa, me ke kumu ʻole. Eia nō naʻe, aia ʻelua mau mea pilikia i ʻike ʻia e nā mea noiʻi.
1. Ka Hōʻike ʻia ʻana o ka Pāhawewe: ʻO ka lāʻau lapaʻau pāhawewe i ke poʻo, ʻoiai i ka wā kamaliʻi, no kekahi maʻi ʻaʻai ʻē aʻe e hoʻonui paha i ka pilikia o ka loaʻa ʻana o ka astrocytoma ma hope o ke ola.
2. Nā Kūlana Hoʻoilina Kakaikahi:Hiki i kekahi mau kūlana genetic kakaikahi a hoʻoilina ke hoʻonui i ka pilikia o ka loaʻa ʻana o ka astrocytoma. Nā Laʻana:
- ʻO ka maʻi Li-Fraumeni
- ʻAno Neurofibromatosis 1 (NF1)
- ʻO ka sclerosis tuberous
- ʻO ka maʻi Turcot
Pehea e ʻike ai i ka maʻi?
Ke hele ʻoe i ke kauka, e hoʻolohe pono mua ʻo ia i kāu mau hōʻailona a nānā iā ʻoe, ʻoiai kahi hoʻokolohua neurological.
Ma hope o kēlā, hiki ke kuhikuhi ʻia ʻoe no kekahi mau hoʻokolohua e nānā i loko o ka lolo.
- ʻO ke kiʻi MRI (Magnetic Resonance Imaging): ʻO kēia ke ala maikaʻi loa a maopopo loa e ʻike ai i nā ʻōpū o ka lolo.
- CT (Computed Tomography) Scan: Hana ʻia kēia hoʻāʻo ke hiki ʻole ke hana i kahi MRI (e laʻa, inā ua hoʻokomo ʻia kahi pacemaker).
Inā hōʻike kēia scan i kahi mea ʻē i loko o ka lolo, a laila hana ʻia kahi biopsy e ʻike pono ai i ke ʻano o ka puʻupuʻu. Pili kēia i ka wehe ʻana i kahi ʻāpana liʻiliʻi o ka puʻupuʻu a me ka nānā ʻana iā ia ma lalo o kahi microscope. I kekahi manawa, lawe ʻia kēia ʻiʻo i ka wā o ke ʻoki kino like (resection) e wehe loa ai i ka puʻupuʻu.
He aha nā lāʻau lapaʻau?
Hoʻoholo ʻia ka lāʻau lapaʻau e kekahi mau kumu, me ke ʻano (ʻano) o ka puʻupuʻu, kona nui, kona wahi i loko o ka lolo, kou mau makahiki, a me kou olakino holoʻokoʻa. Hana pū nā neurologists, neurosurgeons, a me nā oncologists e hoʻoholo i ka hoʻolālā lapaʻau maikaʻi loa.
ʻO nā ʻano lapaʻau nui:
1. ʻoki kino
ʻO ke ʻoki kino ke koho lapaʻau mua loa i nā manawa āpau e hiki ai. He nui nā pono koʻikoʻi o kēia:
- Hiki ke kiʻi ʻia kahi hāpana ʻiʻo e ʻike pololei i ke ʻano o ka puʻupuʻu.
- Hiki iā ʻoe ke hoʻemi i ke kaomi ma luna o ka lolo ma ka wehe ʻana i ka nui o ka puʻupuʻu i ka hiki.
- Hiki ke hoʻomaha ʻia nā hōʻailona e kū mai ana.
Inā hiki ke wehe loa ʻia nā ʻōpū astrocytoma papa 1 ma ke ʻoki ʻana, hiki ke ho'ōla loa ʻia ka maʻi.
2. Nā Lapaʻau Kōkua
I nā hihia koʻikoʻi (nā papa 2, 3, 4), pono nā lāʻau lapaʻau hou aʻe e luku i nā hunaola kanesa i koe ma hope o ke ʻoki ʻana.
- Lapaʻau Radiation: ʻO ka hoʻohana ʻana i nā kukuna ikehu kiʻekiʻe (e like me nā kukuna X) e luku i nā hunaola kanesa.
- Chemotherapy: Ke hāʻawi ʻana i nā lāʻau lapaʻau e pepehi i nā hunaola kanesa a i ʻole e hoʻōki i ko lākou ulu ʻana. ʻO 'Temozolomide (TMZ)' kahi lāʻau lapaʻau i hoʻohana pinepine ʻia no kēia.
- Nā kahua mālama puʻupuʻu: He mea hana kūikawā kēia e like me ka mahiole. ʻO nā kahua uila āna e hoʻopuka ai e kāohi i ka ulu ʻana o nā hunaola kanesa. Hiki ke ʻōlelo ʻia kēia no ka glioblastoma (papa 4).
- ʻO Bevacizumab:He lāʻau pale kēia. Hoʻōki ia i ke kūkulu ʻia ʻana o nā kīʻaha koko e hoʻolako koko i ka puʻupuʻu, e kaohi ana i ka ulu ʻana o ka puʻupuʻu.
He aha ka wānana o kēia maʻi?
ʻO ka ho'ōla a me ke ola ʻana o ka maʻi e pili ana i kekahi mau kumu.
- Ke ʻano o ka puʻupuʻu: Hiki ke lilo ke ʻano i mea ʻoi aku ka koʻikoʻi i ka piʻi ʻana o ke ʻano.
- ʻO ka nui e hiki ke wehe ʻia ma ke ʻoki ʻana: Inā hiki ke wehe ʻia ka nui o ka puʻupuʻu, e ʻoi aku ka maikaʻi o nā hopena.
- Makahiki: Loaʻa pinepine nā hopena maikaʻi i ka poʻe ʻōpio.
- Ke kūlana olakino holoʻokoʻa: He mea nui e maikaʻi ke kūlana olakino o ka mea maʻi i ka wā e ʻike ʻia ai ka maʻi.
ʻO ka maʻamau,
- Papa 1: Aia kahi hiki ke ola ma mua o 10 mau makahiki ma hope o ke ʻoki ʻana.
- Papa 2: ʻOi aku ma mua o 5 mau makahiki.
- Papa 3: Ma waena o 2 a me 5 mau makahiki.
- Papa 4 (Glioblastoma): ʻO ka maʻamau ma kahi o hoʻokahi makahiki.
Mea nui: E hoʻomanaʻo he mau waiwai awelika wale nō kēia e pili ana i ka ʻikepili mai kahi hui nui o ka poʻe. Hiki ke loli kēia mau mea ma muli o kou kūlana pilikino. No laila, ʻoi aku ka maikaʻi o ke kūkākūkā ʻana me kāu kauka no ka ʻike pololei loa e pili ana i kou kūlana.
Leka Lawe-Home
- He ʻano puʻupuʻu ka Astrocytoma e kū mai ana i loko o ka lolo a i ʻole ke kaula kuamoʻo. Aia nā ʻano maʻi kanesa a me nā ʻano ʻaʻole maʻi kanesa.
- Ua hoʻokaʻawale ʻia kēia mau mea mai nā papa 1 a i ka 4 e like me ko lākou koʻikoʻi. ʻO ka Papa 1 ka mea ʻoi loa ka ʻino, a ʻo ka papa 4 (Glioblastoma) ka mea ʻoi loa ka ʻino.
- Mai hoʻowahāwahā i nā hōʻailona e like me ke poʻo pinepine, ka luaʻi ʻana, nā hopu ʻana, a me ka nalowale o ka hoʻomanaʻo. Inā hoʻomau kēia mau mea, e ʻike koke i ke kauka.
- ʻO ke ʻoki ʻana, ka radiation therapy, a me ka chemotherapy nā ʻano lapaʻau nui i hoʻohana ʻia.
- ʻOiai hiki ke hopohopo ka ʻike ʻana e pili ana i kahi puʻupuʻu lolo, me ka mālama kūpono a me nā ʻōlelo aʻoaʻo lapaʻau, hiki iā ʻoe ke hoʻokele i kāu mau hōʻailona a neʻe i mua me kou ola. Ua mākaukau mau kāu hui lapaʻau e kōkua iā ʻoe.
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