Pono kekahi o kā mākou mau keiki, a me nā mākua hoʻi, e hoʻololi pinepine ʻia ke koko ma muli o nā maʻi e like me Thalassemia. Ke hāʻawi mau mākou i ke koko ma kēia ʻano, hiki i ko mākou kino ke hōʻiliʻili i ka nui o ka hao i hiki ʻole iā ia ke lawelawe. Kāhea mākou i kēia ʻo 'Iron Overload'. No laila, ʻo kahi lāʻau lapaʻau kūikawā a nā kauka e kuhikuhi ai e wehe i ka hao keu e hōʻiliʻili ana ma kēia ʻano mai ke kino ua kapa ʻia ʻo Deferasirox. Ua ʻike paha ʻoe i kēia lāʻau lapaʻau ma ka inoa inoa ʻo Jadenu. No laila, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau i kēia lā.
He aha ka Deferasirox?
I ka ʻōlelo maʻalahi, ʻo Deferasirox kahi ʻano lāʻau lapaʻau 'hao chelator'. ʻO ke ʻano kēia e hana ai kēia lāʻau lapaʻau ma ka hopu ʻana i nā ʻāpana hao keu i loko o kou koko, e hoʻopaʻa ana iā lākou, a wehe iā lākou mai kou kino i loko o kāu ʻōpala. E noʻonoʻo iā ia e like me ka magnet, e huki ana i ka hao i makemake ʻole ʻia. He mea nui loa ka wehe ʻana i ka hao keu ma kēia ʻano. No ka mea, inā nui ka hao e hōʻiliʻili i loko o ke kino, hiki iā ia ke hōʻino i nā ʻōpū koʻikoʻi e like me ke akepaʻa a me ka puʻuwai.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau, he mea nui loa ia e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. No ka mea, pono e hāʻawi ʻia kēia lāʻau lapaʻau i nā poʻe me kekahi mau kūlana olakino, he mea nui loa ia e haʻi iā lākou inā loaʻa iā ʻoe kekahi o kēia mau kūlana:
- Inā loaʻa iā ʻoe ka maʻi kanesa a i ʻole ke mālama ʻia nei no ka maʻi kanesa.
- Inā he maʻi kou i ke akepaʻa a i ʻole nā puʻupaʻa .
- Inā he ʻike maka maikaʻi ʻole kou a i ʻole kahi maʻi maka (e like me ka cataracts).
- Inā he pilikia kou i ka lohe .
- Inā he mōʻaukala kou o nā maʻi koko . No ka laʻana, he kūlana kahi i haʻahaʻa ai ka helu o nā hunaola koko keʻokeʻo, nā hunaola koko ʻulaʻula, a i ʻole nā platelets i loko o ke koko.
- Inā he maʻi ʻaleka kou i kēia lāʻau lapaʻau Deferasirox a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā ʻoe e hāpai ana, e hoʻāʻo ana e hāpai, a e hānai waiū ana paha .
He mea nui loa ia no kou palekana ka haʻi ʻana i kāu kauka e pili ana i kēia mau mea me ka hūnā ʻole ʻana iā lākou.
Pehea e pono ai iaʻu ke hoʻohana i ka lāʻau lapaʻau?
E wehewehe pono ana kāu kauka pehea e hoʻohana ai i kēia lāʻau. He mea nui e hahai pono i kēlā mau kuhikuhi.
- Manawa: Pono e lawe mau ʻia kēia lāʻau lapaʻau ma ka ʻōpū ʻole . ʻO ia hoʻi ma ka liʻiliʻi he 30 mau minuke ma mua a i ʻole 2 mau hola ma hope o ka ʻai ʻana . ʻO ka lawe ʻana me ka meaʻai e hōʻemi paha i ka pono o ka lāʻau lapaʻau. ʻOi aku ka maikaʻi o ka hoʻomaʻamaʻa ʻana i ka lawe ʻana i ka manawa like i kēlā me kēia lā.
- Ke ʻano o ka lawe ʻana:He lāʻau lapaʻau kēia i loaʻa ma ke ʻano granule. Hāʻawi pinepine ʻia ia ma ka hoʻoheheʻe ʻana i loko o kahi mea e like me ka wai, ka wai ʻāpala, a i ʻole ka wai ʻalani a inu. E hana e like me ka ʻōlelo a kāu kauka.
- Ke kū nei: Mai ho'ōki koke i ka lawe ʻana i kēia lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a kāu kauka. ʻO ka hana ʻana pēlā e hiki ai ke piʻi hou koke i kou pae hao.
- Inā hāʻawi ʻia i nā keiki: Aia kekahi mau hihia kahi e hiki ai ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki ma luna o 2 mau makahiki. Akā, pono e hana ʻia ma lalo o ka nānā kūikawā a ke kauka. E hoʻomaopopo pono i ka nui a me ke ʻano o ka hāʻawi ʻana i ke keiki.
- Inā ʻoe e poina i kahi lāʻau lapaʻau: Inā poina iā ʻoe ke lawe i kahi lāʻau lapaʻau, e lawe koke iā ia ke hoʻomanaʻo ʻoe. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau lapaʻau.
Mea nui: Inā lawe ʻoe i ka nui o ka lāʻau lapaʻau, mai hoʻowahāwahā. E kelepona koke i ke Kikowaena ʻIke ʻAi Poisons Lahui ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Nā mea e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
ʻOiai ʻoe e lawe ana i kēia lāʻau lapaʻau, e nānā mau kāu kauka i kāu mau hoʻāʻo koko, ʻike maka, a me ka lohe. Mai hōʻalo i kēia mau hoʻāʻo. Eia kekahi, e makaʻala i kēia mau hōʻailona.
- Nā hopena ʻili koʻikoʻi: Hiki i kekahi poʻe ke loaʻa i nā hopena ʻili koʻikoʻi i kekahi mau pule ma hope o ka hoʻomaka ʻana i kēia lāʻau lapaʻau. Inā loaʻa iā ʻoe ke kuni, ʻeha kino, a me nā kiko ʻulaʻula a poni paha ma kou ʻili e pehu a ʻili ma hope, pono ʻoe e haʻi koke i kāu kauka. Eia kekahi, inā he ʻulaʻula kou ma kou ʻili a me nā lymph node pehu ma kou maka, lehelehe, a i ʻole ka ʻāʻī/armpits, he hōʻailona koʻikoʻi nō hoʻi kēlā.
- Ke kahe koko ʻana o ka ʻōpū: Inā ʻeleʻele iki kou mau ʻōpala a i ʻole ʻoe e luaʻi i kahi mea e like me ke kofe lepo , hiki ke kahe koko mai kahi ʻōpū ma kou ʻōpū a i ʻole nā ʻōpū. He pilikia kēia, no laila e ʻike koke i ke kauka.
- Pōniuniu: Hiki i kēia lāʻau lapaʻau ke hoʻoulu i ka pōniuniu i kekahi poʻe. No laila, e pale i nā hana weliweli e like me ka hoʻokele kaʻa a i ʻole ka hoʻohana ʻana i nā mīkini a hiki i kou ʻike ʻana i ke ʻano o ka hopena o ka lāʻau lapaʻau iā ʻoe. ʻOi loa aku inā he ʻelemakule ʻoe, mai ala koke mai kahi noho.
- Ka maloʻo ʻana o ka wai i nā keiki: Inā loaʻa i kāu keiki ka maʻi diarrhea nui, ka luaʻi ʻana, a i ʻole ka hou nui ʻana, e nalowale ana paha lākou i ka nui o ka wai mai ko lākou kino. Hiki ke lilo kēia i mea weliweli i ka wā e lawe ana i kēia lāʻau lapaʻau. No laila e haʻi i kāu kauka e pili ana i ia mea i kēlā hihia.
He aha nā hopena ʻaoʻao?
E like me nā lāʻau lapaʻau āpau, hiki iā Deferasirox ke hana i nā hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau, akā he mea nui e makaʻala iā lākou.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena maʻi koʻikoʻi | ʻŌhūhū ʻili, maneʻo, pehu o ka maka/lehelehe/alelo, paʻakikī ke hanu. |
| Nā loli i ka ʻike a i ʻole ka lohe ʻana | ʻO ka ʻike maka pōwehiwehi, nā loli i ka ʻike kala, a me ka emi ʻana o ka lohe. |
| Nā hōʻailona o ka hōʻino ʻana o ke akepaʻa | Mimi melemele/ʻeleʻele, melemele o nā maka a i ʻole ka ʻili, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nausea, luhi nui. |
| Nā hopena ma nā puʻupaʻa | Ka emi ʻana o ka mimi a i ʻole ka paʻakikī o ka mimi ʻana. |
| Ke kahe ʻana o ke koko | He ʻeleʻele, ʻeleʻele ka lepo, he luaʻi e like me ke ʻano o ka lepo kofe, a me nā palapū ma ke kino holoʻokoʻa. |
| E haʻi i kāu kauka inā hoʻomau a hoʻopilikia paha. | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ʻōpū, nausea, luaʻi, diarrhea. |
| Nā pilikia hiamoe | ʻO ka hiamoe ʻole a i ʻole nā pilikia hiamoe. |
Hiki i kēia ke launa pū me nā lāʻau lapaʻau ʻē aʻe?
ʻAe, he mea nui loa kēia. Hiki iā Deferasirox ke hana i nā pilikia ke lawe ʻia me kekahi mau lāʻau lapaʻau ʻē aʻe. No laila e haʻi i kāu kauka e pili ana i kēlā me kēia lāʻau lapaʻau, wikamina, lāʻau lapaʻau lāʻau, a i ʻole mea hoʻohui āu e lawe nei.
Pono ʻoe e makaʻala loa i ka wā e lawe ai iā Deferasirox me kēia mau lāʻau lapaʻau:
- ʻO nā pila a i ʻole nā mea hoʻohui ʻē aʻe i loaʻa ka hao: Lawe ʻia kēia lāʻau lapaʻau e wehe i ka hao keu, no laila ʻaʻole e kōkua ka lawe ʻana i nā pila hao.
- Nā Antacids: ʻO nā antacids i loaʻa i ka alumini i hoʻohana ʻia no ke kinoea a me ka heartburn e hiki ke hōʻemi i ka absorption o Deferasirox.
- ʻO kekahi mau lāʻau lapaʻau cholesterol: Nā lāʻau lapaʻau e like me Cholestyramine a me Colestipol.
- ʻO kekahi mau lāʻau ʻeha: Nā lāʻau ʻeha ʻano NSAID (e.g. Ibuprofen, Naproxen).
- Nā lāʻau hoʻomalu hānau.
- Nā lāʻau lapaʻau e pale ai i ke kāpili ʻana o ke koko, e like me Warfarin .
- Nā lāʻau steroid e like me Prednisone .
ʻAʻole i piha kēia papa inoa, no laila ʻoi aku ka palekana o ka haʻi ʻana i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai .
Leka Lawe-Home
- He lāʻau lapaʻau koʻikoʻi loa ʻo Deferasirox i hāʻawi ʻia e wehe i ka hao keu mai ke kino ma muli o nā maʻi e like me ka thalassemia.
- E lawe mau i kēia lāʻau lapaʻau ma ka ʻōpū ʻole, i ka manawa a ma ka nui i kuhikuhi ʻia e kāu kauka.
- He mea nui e hoʻomaopopo i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, nā huaora, a me nā mea hoʻopihapiha āu e lawe nei.
- Inā ʻike ʻoe i kekahi mau hōʻailona koʻikoʻi e like me ka ʻulaʻula nui o ka ʻili, ka luaʻi e like me ke kofe, nā ʻōpala tarry, a i ʻole nā loli o ka ʻike, mai hoʻowahāwahā iā ia a e ʻimi koke i ke kōkua lapaʻau.
- Mai ho'ōki i ka lawe ʻana i ka lāʻau lapaʻau a hoʻololi paha i ka nui me ka ʻole o ke aʻo ʻana a kāu kauka.
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