Loaʻa iā ʻoe a i ʻole kāu keiki kahi maʻi i kapa ʻia ʻo PROS? Ua kapa ʻia ʻo ia e nā kauka ʻo PIK3CA-Related Overgrowth Spectrum. I ka ʻōlelo maʻalahi, he ʻano ia kahi e ulu ai nā ʻiʻo ma kekahi mau ʻāpana o ke kino me ka wikiwiki a me ka maʻalahi. He ʻano kakaikahi ia, a he mea paʻakikī ke mālama. Akā i kēia lā e kamaʻilio mākou e pili ana i kahi lāʻau lapaʻau e hiki ke hoʻohana ʻia e mālama ai. He pila ia i kapa ʻia ʻo Alpelisib. E nānā kākou i ke ʻano o kēia lāʻau lapaʻau, pehea e hana ai, a me nā mea e pono ai ʻoe e makaʻala i ka wā e hoʻohana ana.
He aha kēia lāʻau lapaʻau i kapa ʻia ʻo Alpelisib?
ʻO Alpelisib (inoa inoa ʻo Vijoice) kahi lāʻau lapaʻau i hoʻohana ʻia e kāohi i nā hōʻailona o PROS. Aia kahi protein i loko o ko mākou kino e kōkua ana i nā cell e ulu a māhele. I ka poʻe me PROS, he nui loa kēia kaʻina hana. No laila, ʻo ka hana a kēia lāʻau lapaʻau, ʻo ia ke ālai i ka hana o ka protein e hoʻoulu ai i ka ulu wikiwiki ʻana o nā cell. A laila ua kāohi nui ʻia ka ulu ʻana o nā ʻiʻo pono ʻole. Kōkua kēia i ka hōʻemi ʻana i nā hōʻailona a hoʻomaʻalahi i ke ola.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana iā Alpelisib, he mea nui loa ia e kamaʻilio me kāu kauka e pili ana i kou kūlana olakino me ka wehe ʻole ʻia. E hōʻoia e haʻi iā lākou e pili ana i kēia mau mea:
- Maʻi diabetes: E haʻi i kāu kauka inā loaʻa iā ʻoe a i ʻole kekahi o kou ʻohana ka maʻi diabetes.
- Nā maʻi o ka māmā: Inā loaʻa iā ʻoe kekahi maʻi e pili ana i ka māmā.
- Nā Allergies: E haʻi mai iā mākou inā he mau allergies kou iā Alpelisib a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Hāpai: He mea nui e haʻi i kāu kauka inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a inā paha e hāpai ana kāu hoa .
- Ka hānai waiū: Inā ʻoe e hānai waiū ana, e hoʻomaopopo pono e haʻi i kēlā.
Ma muli o kēia ʻike, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Pehea pololei ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
He mea nui loa e hahai pono i nā ʻōlelo a kāu kauka no ka hoʻohana ʻana i kēia lāʻau.
- E lawe waha ʻia kēia mau papa. E lawe pū me ka ʻai .
- E hoʻomaʻamaʻa i ka lawe ʻana i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā. Ma kēlā ʻano, ʻaʻole ʻoe e poina.
- Mai uhaʻi a nau paha i ka papa. E ale holoʻokoʻa.
- E hoʻomau i ka hoʻohana ʻana i kēia lāʻau a hiki i ka wā e ʻōlelo ai kāu kauka e hoʻōki.
He aha kāu e hana ai inā pilikia kekahi i ka ale ʻana i nā pila?
He paʻakikī i kekahi poʻe ke ale i nā pila. No kēlā kanaka, hiki iā ʻoe ke lawe i ka lāʻau lapaʻau penei:
1. E kau i 4-8 punetēpē (2-4 auneke) o ka wai i loko o ke kīʻaha maʻemaʻe.
2. E hoʻohui i kāu mau pila lāʻau i laila a waiho no 5 mau minuke.
3. A laila, e kuʻi maikaʻi i nā ʻāpana me kahi puna maʻemaʻe.
4. E hoʻowali maikaʻi a inu koke i ka hui ʻana ma hope o kona hoʻoheheʻe ʻia ʻana.
5. A laila, e hoʻohui hou i 2-4 punetēpē (1-2 auneke) o ka wai i ke kīʻaha hoʻokahi, e holoi pono i ka puna i hoʻohana ʻia, a inu pū i kēlā wai. He mea nui kēia i ʻole e hoʻonele ʻia kekahi lāʻau lapaʻau.
6. E hana i kēia a hiki i ka pau ʻana o nā ʻāpana i koe i loko o ke kīʻaha.
He mea nui: Hiki i ke kauka ke kuhikuhi i kēia lāʻau lapaʻau ma lalo o kekahi mau kūlana, ʻoiai no nā keiki e like me 2 mau makahiki. Eia nō naʻe, aia nā hana palekana kūikawā. No laila, e hahai pono i nā ʻōlelo a ke kauka.
He aha inā e hala wau i kahi lāʻau a luaʻi paha?
- Inā ʻoe e poina i kahi lāʻau lapaʻau: Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā ʻoi aku ma mua o 9 mau hola ma mua o kou manawa i hoʻonohonoho ʻia, e hōʻalo i kēlā lāʻau lapaʻau. E lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau lapaʻau i ka manawa hoʻokahi.
- Inā ʻoe e luaʻi: Inā ʻoe e luaʻi ma hope o ka lawe ʻana i ka lāʻau lapaʻau, mai lawe hou i kahi pila. E lawe i kāu mahele maʻamau i ka manawa i hoʻonohonoho ʻia i ka lā aʻe.
Nā lāʻau lapaʻau ʻē aʻe e launa pū me kēia lāʻau lapaʻau
Hiki i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei ke launa pū me Alpelisib. Hiki i kēia ke hoʻonui a hoʻemi paha i ka pono o Alpelisib, a i ʻole e hoʻonui i ka pilikia o nā hopena ʻaoʻao. No laila e haʻi i kāu kauka e pili ana i kekahi o kēia mau mea:
- ʻO kekahi mau lāʻau lapaʻau i hoʻohana ʻia no ka hopu ʻana (e like me carbamazepine, phenobarbital, phenytoin)
- ʻO Rifampin
- ʻO ka wort ʻo St. John (he mea hoʻohui lāʻau kēia)
- ʻO Warfarin (mea hoʻokahe koko)
ʻAʻole i piha kēia papa inoa. No laila e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau, nā huaora, nā huahana lāʻau lapaʻau, a me nā mea hoʻohui āu e lawe nei. Hiki iā ia ke kōkua iā ʻoe e hoʻomohala i ka hoʻolālā lapaʻau palekana loa nāu.
Nā mea kūikawā e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
Pono ʻoe e makaʻala iki e pili ana i nā loli i kou kino i ka wā e lawe ana i kēia lāʻau.
- E ʻike pinepine i kāu kauka: Pono kāu kauka e ʻike pinepine iā ʻoe e ʻike pehea e pili ai ka lāʻau lapaʻau iā ʻoe. E kauoha pū ʻo ia i nā hoʻāʻo koko. Mai hōʻalo i kekahi o lākou.
- Nā maʻi ʻili koʻikoʻi:Hiki i kēia lāʻau lapaʻau ke hoʻoulu i nā hopena ʻili koʻikoʻi i kekahi poʻe. Hiki ke hana ʻia kēia mau mea i nā pule a i ʻole nā mahina ma hope o ka hoʻomaka ʻana i ka lāʻau lapaʻau. E haʻi koke i kāu kauka inā loaʻa iā ʻoe kahi ʻulaʻula me nā hōʻailona e like me ke kuni a i ʻole ke anu. Hiki i kēia mau ʻulaʻula ke lilo i ʻulaʻula a poni paha, a laila pehu a hoʻomaka paha ka ʻili e ʻili. Eia kekahi, inā ʻike ʻoe i kekahi ʻulaʻula o ka ʻili me ka pehu ʻana o ka maka, nā lehelehe, a i ʻole ka pehu ʻana o ka ʻāʻī a i ʻole nā armpits, e haʻi koke i kāu kauka.
- Ka maloʻo ʻana o ka wai: E haʻi i kāu kauka inā loaʻa iā ʻoe ka maʻi kahe nui, ka nausea, ka luaʻi ʻana, a i ʻole ka hou nui ʻana. Hiki i ka nalowale nui o ka wai mai ke kino ke lilo i mea weliweli i ka wā e lawe ana i kēia lāʻau.
- Ke kō koko kiʻekiʻe (Hyperglycemia): Hiki i kēia lāʻau lapaʻau ke hoʻoulu i ke kō koko kiʻekiʻe. ʻOi aku ka kiʻekiʻe o kēia pilikia i ka poʻe i loaʻa mua i ka maʻi diabetes. E haʻi i kāu kauka inā loaʻa iā ʻoe nā hōʻailona e like me ka makewai ʻole, ka mimi pinepine, ka luhi nui, a i ʻole ka ʻike pohihihi .
- Ka hāpai ʻana a me ka hānai ʻana i ka waiū:
- ʻO ka lawe ʻana i kēia lāʻau lapaʻau i ka wā hāpai hiki ke hana i nā kīnā hānau koʻikoʻi i ka pēpē. No laila, pono ʻoe e lawe i kahi hoʻāʻo e hōʻoia ʻaʻole ʻoe hāpai ma mua o ka hoʻomaka ʻana i ka lāʻau.
- Pono ʻoe e hoʻohana i kahi ʻano kaohi hānau kūpono loa i ka manawa a pau āu e lawe ai i ka pila, a no hoʻokahi pule ma hope o ka lawe ʻana i ka mahele hope loa .
- Inā hiki i kāu hoa ke hāpai, he mea nui e hoʻohana i ka condom i ka wā o ka moekolohe ʻana i ka wā e lawe ana i ka pila a no hoʻokahi pule ma hope o ka mahele hope loa.
- Mai hānai i ka waiū i ka wā e lawe ana i kēia lāʻau lapaʻau a no hoʻokahi pule ma hope o ka lāʻau hope loa.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki iā Alpelisib ke hana i nā hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| Nā hopena ʻaoʻao e pono ʻoe e hōʻike koke i kāu kauka | |
|---|---|
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā maka, nā lehelehe, ke alelo, nā lima a i ʻole nā wāwae, paʻakikī ke ale a i ʻole ka hanu ʻana. |
| Paʻakikī ka hanu ʻana | ʻŪhū maloʻo, pōkole o ka hanu, a i ʻole ka paʻakikī o ka hanu ʻana. |
| Ke kō koko kiʻekiʻe (Hyperglycemia) | ʻO ka make wai nui loa, ka mimi pinepine ʻana, ka luhi nui, ka ʻike maka pohihihi. |
| ʻO ka maʻi pancreatitis | ʻEha nui o ka ʻōpū (ʻoi aku hoʻi ma ke kua), ʻeha e ʻoi aku ka ʻino ma hope o ka ʻai ʻana a i ʻole ke pā ʻana i ka ʻōpū, kuni, nausea, luaʻi. |
| Nā maʻi ʻili koʻikoʻi | ʻUlaʻula o ka ʻili, pehu, ʻili o ka ʻili (a hiki i loko o ka waha), kuni a me ka pehu ʻana o nā ʻāʻī. |
| ʻEha nui o ka ʻōpū | ʻEha koke ka ʻōpū nui, ka ʻōpala koko, ke kuni, ka nausea, ka luaʻi. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
|---|---|
| Ka maʻi pākī | ʻIli maloʻo |
| Pohō lauoho | ʻEha poʻo |
| ʻEha waha a ʻāʻī paha | ʻEha, ʻulaʻula, a pehu paha i loko o ka waha a i ʻole ka puʻu. |
He mea nui: ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē, e ʻimi i ke kōkua lapaʻau.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e hele koke i ka Emergency Unit (ETU) o ka haukapila. A i ʻole e kelepona i ke National Poisons Information Centre ma ka Colombo National Hospital .
Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi no kekahi kumu.
Pehea ʻoe e mālama ai a hoʻolei aku i nā lāʻau lapaʻau me ka palekana?
- Ka mālama ʻana: E mālama mau i nā lāʻau lapaʻau mai ka hiki ʻana aku o nā keiki a me nā holoholona . ʻOi aku ka maikaʻi o ka mahana o ka lumi (ma waena o 20-25 kekelē Celsius). Mai hoʻohana i nā lāʻau lapaʻau i pau ka lā.
- Ka Hoʻolei ʻana: E nīnau i kāu kauka e pili ana i ke ala maikaʻi loa e hoʻolei aku ai i nā lāʻau lapaʻau i hoʻohana ʻole ʻia a i ʻole nā lāʻau lapaʻau i pau. ʻAʻole pono e hoʻolei ʻia kekahi mau lāʻau lapaʻau i loko o ka lua. Inā ʻaʻole hiki kēlā, hiki iā ʻoe ke wehe i nā pila mai ka ʻōmole, e kāwili iā lākou me kahi mea e like me ke kope kope i hoʻohana ʻia, ka lepo, a i ʻole ka ʻōpala pōpoki, a waiho iā lākou i loko o kahi ʻeke i hoʻopaʻa paʻa ʻia a waiho i loko o ka ʻōpala.
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Alpelisib e kaohi ana i ka ulu ʻana o nā ʻiʻo i makemake ʻole ʻia i hoʻokumu ʻia e kahi maʻi i kapa ʻia ʻo PROS.
- E lawe mau i kēia lāʻau lapaʻau e like me ke kuhikuhi a kāu kauka, i ka manawa i kauoha ʻia, me ka meaʻai.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau a me nā mea hoʻopihapiha ʻē aʻe āu e lawe nei.
- Inā ʻike ʻoe i kekahi mau hōʻailona ʻili koʻikoʻi, nā hōʻailona o ke kō koko kiʻekiʻe, a i ʻole ka paʻakikī o ka hanu ʻana, e hoʻomaopopo koke i kāu kauka.
- E makaʻala loa e pale i ka hāpai ʻana i ka wā a no hoʻokahi pule ma hope o ka lāʻau lapaʻau. E pale pū i ka hānai waiū i kēia manawa.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe.
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