Aia kekahi mau maʻi, no ka laʻana, e like me Thalassemia, kahi e pono ai ka poʻe me kēlā mau maʻi e hāʻawi koko i nā manawa a pau. Ke loaʻa mau ke koko iā mākou ma kēia ʻano, hiki i ka pae hao i loko o ko mākou kino ke piʻi aʻe ma mua o ka nui e pono ai. ʻO ka hao keu e hōʻiliʻili ana i loko o ke kino ma kēia ʻano hiki ke hōʻino i nā ʻōpū koʻikoʻi e like me ko mākou puʻuwai a me ke akepaʻa. No laila, ʻo kahi inikini kūikawā i hāʻawi ʻia e wehe i kēia hao keu mai ke kino ua kapa ʻia ʻo Deferoxamine. I kēia lā, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau ma nā ʻōlelo maʻalahi.
He aha ke ʻano lāʻau lapaʻau ʻo Deferoxamine?
I ka ʻōlelo maʻalahi, ʻo Deferoxamine kahi lāʻau lapaʻau e hana ana e like me ka magnet e huki i ka hao keu i loko o ko mākou kino. Ke komo kēia lāʻau lapaʻau i ke kino, hoʻopaʻa ia i nā ʻāpana hao keu. A laila, hoʻokuʻu aku ko mākou mau puʻupaʻa i kēia hao i hoʻopaʻa ʻia ma o ka mimi. Hoʻemi kēia i nā pae hao o ke kino i kahi pae palekana a hoʻōki i ka hōʻino ʻana i nā ʻōpū. Ua kapa ʻia kēia ʻo 'chelation therapy'.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻohana ʻana i kēia lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana e lawe iā Deferoxamine, pono ʻoe e haʻi i kāu kauka i ka ʻike ma lalo nei, no ka mea, pono ʻoe e makaʻala loa i ka wā e hoʻohana ai i kēia lāʻau me kēia mau kūlana.
| Kou kūlana | No ke aha ʻoe e hoʻomaopopo ai i ke kauka? |
|---|---|
| Maʻi puʻupaʻa a i ʻole ka paʻakikī o ka mimi ʻana | Ma muli o ka hoʻopau ʻia ʻana o kēia lāʻau lapaʻau mai ke kino ma o nā puʻupaʻa, he mea nui e ʻike e pili ana i ka hana a ka puʻupaʻa. |
| Maʻi puʻuwai (Ka hāʻule ʻana o ka puʻuwai) | Pono ke kauka e makaʻala i nā hopena o ka lāʻau lapaʻau, no ka mea, hiki i ka hao keu ke hoʻopilikia i ka puʻuwai. |
| Maʻi akepaʻa | He mea nui ka ʻike e pili ana i ka hana o ke akepaʻa no ka hoʻolālā ʻana i ka mālama ʻana. |
| ʻO kēlā me kēia ʻano maʻi | Hiki ke hoʻonui ʻia kekahi mau maʻi e kēia lāʻau lapaʻau. |
| Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai | He lāʻau lapaʻau kēia e hiki ke hōʻeha i ka pēpē i ka wā hāpai, no laila he mea nui loa ke kamaʻilio e pili ana i ia mea. |
| Inā hānai waiū ka makuahine i kāna keiki | Pono ʻoe e kūkākūkā me kāu kauka inā paha e hele ka lāʻau lapaʻau i kāu pēpē ma o ka waiū umauma a i ʻole. |
| Nā maʻi ʻaleka i nā lāʻau lapaʻau ʻē aʻe, nā meaʻai a i ʻole nā mea ʻē aʻe | Inā he maʻi ʻoe i ka deferoxamine a i ʻole kekahi mea ʻē aʻe, he mea nui e ʻike i kēia ma mua o ka mālama ʻana. |
Pehea e hoʻohana ai i ka lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano he inikini. Hiki ke hāʻawi ʻia ma nā ʻano ʻelua:
1. I loko o kahi aa: Ma ke ʻano he inikini i hāʻawi ʻia i loko o kahi aa.
2. Ma lalo o ka ʻili: Ma ke ʻano he inikini i hāʻawi ʻia ma lalo o ka ʻili.
ʻO ka maʻamau, hāʻawi ʻia kēia lāʻau pale ma kahi haukapila a i ʻole ke keʻena lapaʻau. Eia nō naʻe, i kekahi manawa, aʻo ʻia ka mea maʻi pehea e lawe ai i ka lāʻau lapaʻau ma ka home. I kēia hihia, hoʻohana ʻia kahi pamu kūikawā (infusion pump). Ma o kēia pamu, hoʻokomo mālie ʻia ka lāʻau lapaʻau i loko o ke kino no kekahi mau hola.
Inā ʻoe e hoʻohana ana i kēia lāʻau lapaʻau ma ka home, e hahai pono i nā kuhikuhi i hāʻawi ʻia e kāu kauka a kahu maʻi paha. Mai hoʻololi i ka nui o ka lāʻau, ka manawa o ka lawelawe ʻana, a i ʻole ke ʻano o ka lawelawe ʻana.
Mea nui: Mai hoʻolei i nā nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi pahu kūikawā (pahu ʻoi) i hāʻawi ʻia. Inā ʻaʻohe āu, e noi i kāu kauka a kahu maʻi paha no hoʻokahi.
Nā hanana kūikawā
- Nā kamaliʻi ʻōpio: Ke hāʻawi ʻia i nā kamaliʻi ʻōpio, ʻoiai ma nā nui kiʻekiʻe a no ka manawa lōʻihi, hiki ke loaʻa kahi hopena liʻiliʻi i ka ulu ʻana o ke keiki. No laila, e nānā mau ke kauka i ke kiʻekiʻe a me ke kaumaha o ke keiki.
- Nā kānaka ma luna o 65 mau makahiki: Hiki i ka poʻe ʻelemakule ke ʻike ikaika i nā hopena o kēia lāʻau lapaʻau, no laila ua kuhikuhi pinepine ʻia lākou i kahi mahele haʻahaʻa.
He aha ka mea e hana ai inā lawe ʻoe i ka nui o ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, mai hopohopo a hana koke. I ka hikiwawe loa.E kelepona i ke Kikowaena ʻIke Lāʻau Make Lahui ma ka Halemai Lahui ʻo Colombo. A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Hiki paha ke loaʻa nā pilikia me nā lāʻau lapaʻau ʻē aʻe? (Nā Hana like)
ʻAe, hiki i kekahi mau lāʻau lapaʻau ke launa pū me Deferoxamine. No laila, pono ʻoe e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei, me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui.
- Mai lawe: Inā ʻoe e lawe ana i kēia lāʻau lapaʻau, mai lawe i nā mea hoʻohui hao no kekahi kumu . No ka mea, lawe mākou i kēia lāʻau lapaʻau e wehe i ka hao keu mai ke kino.
- E makaʻala i kēia mau mea:
- Wikamina C (ʻakika Ascorbic)
- ʻO Prochlorperazine (he lāʻau lapaʻau e pale ai i ka luaʻi)
- Gallium-67 (kahi mea i hoʻohana ʻia i kekahi mau scan)
ʻOi loa aku i ka wā e pili ana i ka wikamina C, mai lawe i ka wikamina C ma kāu iho ke ʻole ke kuhikuhi ʻia e kāu kauka. I kekahi manawa, ua ʻōlelo ʻia ka lawe ʻana i nā liʻiliʻi o ka wikamina C me ka deferoxamine e ʻoi aku ka maikaʻi o ke kaʻina hana wehe hao. Akā, pono e hana ʻia kēia ma lalo o ke aʻo ʻana a ke kauka.
Nā mea e noʻonoʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau
- Nā nānā kino maʻamau: E nānā pono kāu hui lapaʻau iā ʻoe i kou wā lapaʻau. Pono ʻoe e loaʻa nā hoʻāʻo koko maʻamau.
- ʻIke a me ka lohe: Hiki ke nānā ʻia kou ʻike a me kou lohe ma mua a i ka wā o ka mālama ʻana. Inā ʻike ʻoe i kekahi mau loli i kou ʻike a i ʻole ka lohe ʻana, a inā paha e kani ana kou mau pepeiao, e haʻi koke aku i kāu kauka.
- Pōniuniu: Hiki i kēia lāʻau lapaʻau ke hoʻomālielie iā ʻoe. No laila, e pale i nā hana weliweli e like me ka hoʻokele kaʻa a i ʻole ka hoʻohana ʻana i nā mīkini a hiki i kou ʻike ʻana i ka hopena o kēia lāʻau lapaʻau iā ʻoe. I mea e pale aku ai i ka pōniuniu, e kū mālie i ke ala ʻana mai kahi noho a i ʻole mai kahi moe.
- Waihoʻoluʻu mimi: Hiki i kou mimi ke lilo i ʻulaʻula-ʻeleʻele i ka wā e lawe ana i kēia lāʻau. He mea maʻamau kēia a ʻaʻole pono e hopohopo.
- ʻO ka hāpai ʻana a me ka kaohi hānau: He mea nui loa kēia. Hiki i kēia lāʻau lapaʻau ke hana i nā kīnā hānau koʻikoʻi i ka pēpē inā lawe ʻia i ka wā hāpai. No laila, he mea nui e hoʻohana i kahi ʻano kaohi hānau hilinaʻi i ka wā o ka mālama ʻana a no hoʻokahi mahina ma hope o ka hoʻōki ʻana i ka mālama ʻana. E kamaʻilio me kāu kauka e pili ana i kēia a koho i kahi ʻano kūpono.
Nā hopena ʻaoʻao o ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki iā Deferoxamine ke loaʻa nā hopena ʻaoʻao. He koʻikoʻi kekahi o lākou, aʻo kekahi he mea maʻamau.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Nā loli o ka ʻike | ʻIke pōwehiwehi, nā loli i ka ʻike kala. |
| Nā pilikia lohe | Ka nalowale o ka lohe, ke kani ʻana o nā pepeiao. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu. |
| Nā hōʻailona o ka hōʻino ʻana o ka puʻupaʻa | Ka emi ʻana o ka mimi i hoʻopuka ʻia, ka pehu ʻana o nā kuʻekuʻe wāwae, nā lima, a i ʻole nā wāwae. |
| Ke koko haʻahaʻa | Pōʻino, māʻule, ʻike maka pōwehiwehi. |
| Paʻakikī ka hanu ʻana | Pōkole o ka hanu, paʻakikī ka hanu ʻana. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha/ʻulaʻula ma kahi i inikini ʻia | ʻUlaʻula, pehu, a ʻeha paha ma kahi i hoʻokomo ʻia ai. |
| ʻEha ʻōpū, maʻi pākī | ʻEha ka ʻōpū, pehu. |
| Pōʻino | Manaʻo o ka poniuniu iki. |
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Deferoxamine e kōkua ai i ka hoʻopau ʻana i ka hao keu mai ke kino ma o ka mimi.
- E haʻi mau i kāu kauka e pili ana i nā maʻi ʻē aʻe āu e lawe ai, nā lāʻau lapaʻau āu e lawe ai, a me nā maʻi allergies āu e loaʻa nei.
- Mai lawe i nā papa hao i ka wā e lawe ana i kēia lāʻau. Mai lawe i ka wikamina C me ka ʻole o ke aʻo ʻana a ke kauka.
- Inā loaʻa iā ʻoe kekahi mau loli i kou ʻike, lohe, nā hōʻailona maʻi ʻaleka, a i ʻole ka paʻakikī o ka hanu ʻana, e hoʻomaopopo koke i kāu kauka.
- E hōʻoia e hoʻohana i kahi ʻano kūpono o ka kaohi hānau ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau a no hoʻokahi mahina ma hope o ka hoʻōki ʻana.
- Inā he mau nīnau a hopohopo paha kāu, mai makaʻu e kūkākūkā me kāu kauka.
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