Ua ʻike anei kāu kauka iā ʻoe a i ʻole kekahi mea kokoke iā ʻoe me kahi maʻi i kapa ʻia ʻo 'Multiple Sclerosis' (MS)? Inā pēlā, ua kuhikuhi ʻia paha ʻoe i kahi lāʻau i kapa ʻia ʻo 'Diroximel Fumarate', nona ka inoa inoa ʻo VUMERITY, ma ke ʻano he lāʻau lapaʻau. He mea paʻakikī paha ke kani ʻana o ka inoa. Akā, mai hopohopo. Ma kēia ʻatikala, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau ma ke ʻano maʻalahi loa, e like me kāu e haʻi aku ai i kahi hoaaloha, pehea e hana ai, nā mea e makaʻala ai i ka wā e hoʻohana ana, a me kona mau hopena ʻaoʻao.
ʻO ka mea mua, e nānā kākou i ke ʻano o kēia lāʻau lapaʻau.
I ka ʻōlelo maʻalahi, ʻo ka 'Multiple Sclerosis' (MS) kahi kūlana kahi e lilo ai ka ʻōnaehana pale o ko mākou kino i mea hana nui a hoʻouka i kā mākou ʻōnaehana nerve ponoʻī. Ua like ia me ko mākou mau pale ponoʻī e kuhihewa ana iā mākou no ka ʻenemi a hoʻouka mai iā mākou.
I kēia manawa, hana kēia lāʻau lapaʻau i kapa ʻia ʻo Diroximel Fumarate ma ka hoʻolohi ʻana i ka ʻōnaehana pale ikaika loa. Hoʻemi kēia i ka hōʻino ʻana i ka ʻōnaehana nerve. Kōkua kēia i ka kaohi ʻana i ka ʻino o nā hōʻailona a hoʻemi i ke alapine o nā flare-up i hoʻokumu ʻia e ka maʻi.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
He mea nui loa i kāu kauka ke ʻike i kou mōʻaukala olakino piha ma mua o ke kau ʻana i kēia lāʻau. No laila, inā loaʻa iā ʻoe kekahi o kēia mau kūlana, e hōʻoia e haʻi iā lākou ma mua o ka hoʻomaka ʻana i kēia lāʻau.
- Inā loaʻa iā ʻoe kekahi maʻi lele i kēia manawa (e like me ke kuni, ke anu, ka ʻūhā).
- Inā he maʻi puʻupaʻa kou .
- Inā he maʻi kou i ke akepaʻa .
- Inā ua ʻike mua ʻia ʻoe me ka helu haʻahaʻa o nā keʻokeʻo koko keʻokeʻo .
- Inā ua loaʻa iā ʻoe kahi hopena maʻi i Diroximel Fumarate, Dimethyl Fumarate, a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā hāpai ʻoe a i ʻole e kali ana i kahi pēpē .
- Inā he makuahine hānai waiū ʻoe.
He mea nui loa ia no kou palekana e haʻi i kāu kauka i kēia ʻike me ka hūnā ʻole. A laila hiki iā ia ke hoʻoholo i ka lāʻau kūpono a palekana loa nāu.
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e loaʻa ai ka hopena maikaʻi loa mai ka lāʻau lapaʻau, he mea nui e hoʻohana ia e like me ke kuhikuhi ʻana.
- Loaʻa kēia lāʻau lapaʻau i loko o nā capsules. E ale me ke aniani wai.
- Mai uhaʻi, kuʻi, a nau paha i kēia mau capsules. Pono e ale ʻia a pau.
- E lawe i kāu lāʻau lapaʻau e like me ke kauoha a kāu kauka, i ka manawa kūpono.
- Hiki ke lawe ʻia kēia me ka meaʻai a me ka ʻole o ka meaʻai. Eia nō naʻe, hiki i kekahi poʻe ke loaʻa i ka ʻeha ʻōpū iki inā lawe ʻia me ka ʻole o ka meaʻai. Inā hana ʻia kēia, e lawe me kahi ʻai liʻiliʻi.
- Akā eia kekahi mea e hoʻomanaʻo ai: Inā ʻoe e lawe ana i ka lāʻau lapaʻau me kahi ʻai, ʻaʻole pono ia he ʻai kiʻekiʻe-calorie a momona paha. I ka ʻōlelo maʻalahi, ʻaʻole pono e ʻoi aku ma mua o 700 calories a me 30 grams o ka momona. (No ka laʻana, mai lawe pū me kahi ʻai kaumaha e like me ka laiki palai a i ʻole kottu, i hana ʻia me ka nui o ka ʻaila.)
- E pale loa i ka lawe ʻana i kēia lāʻau lapaʻau me ka waiʻona.
- E hoʻomau i ka hoʻohana ʻana i kēia lāʻau a hiki i ka wā e ʻōlelo ai kāu kauka e hoʻōki.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
I kekahi manawa poina iā mākou ke lawe i kā mākou lāʻau lapaʻau. Inā hana ʻia kēlā, e lawe i ka lāʻau i hala ʻole i ka wā e hoʻomanaʻo ai ʻoe. Akā inā kokoke ka manawa no ka lāʻau aʻe, e kāpae i ka lāʻau i hala ʻole a lawe i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe hewa ʻoe ma mua o ka nui i kuhikuhi ʻia, e hele koke i ka Halemai Pilikia (ETU) kokoke loa. A i ʻole, e kelepona i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo.
Nā mea āu e makaʻala nui ai i ka wā e lawe ai i ka lāʻau lapaʻau
I ka wā e hoʻohana ai i kēia lāʻau lapaʻau, he mea nui e makaʻala i nā loli i loko o kou kino.
- Nā nānā lapaʻau maʻamau: E haʻi aku kāu kauka iā ʻoe i ka wā e pono ai ʻoe e hoʻi mai. E hōʻoia e hele i kēlā mau lā e nānā i kou kūlana. E kauoha pū ʻo ia i nā hoʻokolohua koko e nānā i nā mea e like me ka helu o nā hunaola koko keʻokeʻo i loko o kou koko ʻoiai ʻoe e lawe ana i kēia lāʻau.
- ʻUlu ʻana: Hiki i kekahi poʻe ke ʻike i ka ʻulaʻula, wela, a i ʻole ke kuni ʻana i ko lākou maka, ʻāʻī, a i ʻole ka umauma ma hope o ka lawe ʻana i kēia lāʻau lapaʻau. Ua kapa ʻia kēia he ʻulu ʻana. ʻAʻole ia he mea weliweli a e nalo ma hope o kekahi manawa. No ka hōʻemi ʻana i kēia, e like me kā mākou i ʻōlelo ai ma mua, hiki i ka lawe ʻana i ka lāʻau lapaʻau me kahi pāʻina haʻahaʻa-momona/haʻahaʻa-calorie ke kōkua. I kekahi manawa, e kōkua ka lawe ʻana i ka aspirin i ka hōʻemi ʻana i kēia. Akā , mai hana i kēia me ka ʻole o ka nīnau mua ʻana i kāu kauka.
- Ka pilikia o ka maʻi: ʻOiai ke kāohi nei kēia lāʻau i ka ʻōnaehana pale, hiki iā ʻoe ke piʻi iki aʻe ka pilikia o ka loaʻa ʻana o nā maʻi. No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, a i ʻole ke kuni, mai hoʻōla ponoʻī a e ʻike i ke kauka. E hoʻāʻo e noho mamao mai nā wahi e hele ai ka poʻe maʻi.
- He maʻi lolo kakaikahi akā koʻikoʻi:He mea kākaʻikahi loa kēia. Akā, he mea nui e makaʻala. Hiki i kēia lāʻau lapaʻau ke hoʻoulu i kahi maʻi lolo koʻikoʻi (PML - Progressive Multifocal Leukoencephalopathy) i kekahi mau maʻi. Inā loaʻa iā ʻoe nā pilikia ʻike, paʻakikī i ka noʻonoʻo ʻana, paʻakikī i ka ʻōlelo ʻana, a i ʻole nā pilikia i ka hele wāwae a i ʻole ka mālama ʻana i kou kaulike , e haʻi koke i kāu kauka.
Nā hopena ʻaoʻao e hiki mai ana i ka wā e hoʻohana ai i ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. He koʻikoʻi loa kekahi, no laila pono ʻoe e ʻimi koke i ke kōkua lapaʻau. ʻAʻole koʻikoʻi loa kekahi, akā inā hoʻomau lākou, pono ʻoe e haʻi i kāu kauka. E nānā kākou i kēia mau mea ma ke kaʻawale.
| Nā hopena ʻaoʻao koʻikoʻi e pono ai ke kōkua koke ʻana o ke kauka | |
|---|---|
| Ka hopena ʻaoʻao | Wehewehena |
| Nā hopena maʻi a i ʻole Angioedema | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā maka, nā lehelehe, ke alelo, nā lima a i ʻole nā wāwae, paʻakikī ke ale a i ʻole ka hanu ʻana. |
| ʻEha o ke akepaʻa | ʻEha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale ka makemake e ʻai, nausea, nā ʻōpala māmā, mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o ka ʻili a i ʻole nā maka, luhi ʻē. |
| Ke kahe koko ʻana o ka ʻōpū | ʻEleʻele a ʻeleʻele paha nā ʻōpala, ka luaʻi ʻana i ke koko, a i ʻole ka luaʻi e like me ke ʻano o ka lepo kofe. |
| ʻEha nui o ka ʻōpū | ʻEha nui, mau, a i ʻole ka ʻeha o ka ʻōpū. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu, nā ʻeha ʻaʻole e ho'ōla ʻia, ʻeha a paʻakikī paha ka mimi ʻana, a me ka manaʻo palaualelo. |
| Nā pilikia o ka ʻōnaehana nerve | Ka poniuniu, ka nalowale o ke kaulike, ka huikau, a i ʻole ka paʻakikī i ka ʻōlelo ʻana (he mau hōʻailona paha kēia o ka maʻi lolo i ʻōlelo ʻia ma luna). |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike i ke kauka inā hoʻomau lākou: | |
|---|---|
| ʻUlaʻula o ka ʻili a me ka manaʻo wela) | Ka luaʻi a me ka luaʻi |
| ʻEha ʻōpū | Ka maʻi pākī |
Pehea ʻoe e mālama pono ai i kāu lāʻau lapaʻau?
- E mālama i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi aku .
- E mālama ma ka mahana o ka lumi (ma waena o 20-25 kekelē Celsius). E mālama ʻia mai ka wela nui a me ka makū.
- Mai hoʻohana i ka lāʻau lapaʻau i pau ka lā.
ʻO ke ala maikaʻi loa e hoʻopau ai i nā lāʻau lapaʻau i pau ka manawa a i ʻole nā lāʻau lapaʻau e pono ʻole ʻia, ʻo ia ke hāʻawi iā lākou i kahi 'papahana lawe-hoʻihoʻi lāʻau lapaʻau' ma kāu haukapila a hale kūʻai lāʻau paha. Inā ʻaʻole hiki kēlā, e nīnau i kāu kauka e pili ana i ia mea.
Leka Lawe-Home
- Nou wale nō kēia lāʻau lapaʻau. Mai ʻae i kekahi e hoʻohana i kēia lāʻau lapaʻau no kekahi kumu.
- E lawe i ka lāʻau i kuhikuhi ʻia, i ka manawa i kuhikuhi ʻia, e like me ke kauoha a kāu kauka.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i nā pilikia olakino ʻē aʻe āu.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe kahi hopena koʻikoʻi, e like me ka maʻi allergies, ka ʻeha nui o ka ʻōpū, a i ʻole nā pilikia o ka ʻōnaehana nerve.
- Mai hoʻōki i kāu lāʻau lapaʻau me ka ʻole o ke kūkākūkā ʻana me kāu kauka.
- Inā he mau nīnau a pilikia paha kāu e pili ana i ka lāʻau lapaʻau, mai hilahila e kamaʻilio me ke kauka e pili ana i ia mea.
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