ʻO ka noho ʻana me ka Multiple Sclerosis, a i ʻole MS e like me kā mākou e ʻike nei, hiki ke paʻakikī loa i kekahi manawa. Kuhikuhi nā kauka i nā lāʻau lapaʻau like ʻole e kāohi i nā exacerbations koke (relapses) o nā hōʻailona o kēia maʻi. ʻO kekahi lāʻau lapaʻau koʻikoʻi ʻo Diroximel Fumarate. E kamaʻilio kākou e pili ana i kēia me ka maʻalahi a me ka maopopo i kēia lā.
I ka ʻōlelo maʻalahi, he aha kēia lāʻau lapaʻau i kapa ʻia ʻo Diroximel Fumarate?
ʻO kēia ka mea āu e loaʻa ai ma lalo o ka inoa inoa ʻo VUMERITY®. I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ia e kōkua i ka poʻe me nā ʻano relapsing o Multiple Sclerosis (MS) e hōʻemi i ke alapine o kā lākou mau hōʻailona. ʻO ke ʻano kēia hiki iā ia ke kōkua i ka maʻalahi o kou ola ma ka hōʻemi ʻana i ka ʻoluʻolu ʻole i hoʻokumu ʻia e ka maʻi.
Akā, pono ʻoe e hoʻomaopopo ʻaʻole kēia he lāʻau lapaʻau no MS. He lāʻau lapaʻau wale nō ia e kōkua ai i ka kaohi ʻana i nā hōʻailona.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau
He mea nui loa i kāu kauka ke loaʻa kahi kiʻi piha o kou olakino ma mua o ke kau ʻana i kēia lāʻau lapaʻau. No laila, inā loaʻa iā ʻoe kekahi o kēia mau maʻi, e hōʻoia e haʻi i kāu kauka e pili ana iā lākou.
- Inā he mau pilikia kou me kou ʻōnaehana pale.
- Inā loaʻa iā ʻoe kahi maʻi e like me ke kuni a i ʻole ke anu i kēia manawa.
- Inā he maʻi puʻupaʻa kou.
- Inā he maʻi kou akepaʻa.
- Inā hōʻike nā hoʻokolohua koko i nā helu koko haʻahaʻa, e like me nā hunaola koko keʻokeʻo.
- Inā loaʻa iā ʻoe kahi hopena maʻi i nā lāʻau lapaʻau ʻo Diroximel fumarate, Dimethyl fumarate, a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā ʻoe e hāpai ana, a ke kali nei paha i kahi pēpē.
- Inā he makuahine hānai waiū ʻoe.
Pehea pololei ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e loaʻa ai ka pono nui mai kēia lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono. E hahai mau i nā ʻōlelo a kāu kauka.
- E inu i kēia me ke aniani wai.
- He mea nui loa kēia: Kapu loa ke uhaʻi, kuʻi, a nau paha i ka lāʻau lapaʻau. Pono e ale koke ʻia ka capsule holoʻokoʻa.
- Hiki ke lawe ʻia kēia me ka meaʻai a me ka ʻole o ka meaʻai. Eia nō naʻe, inā ʻeha iki kou ʻōpū, ʻoi aku ka maikaʻi o ka lawe ʻana me ka ʻai.
- ʻO kekahi mea nui ʻaʻole e inu i ka waiʻona i ka wā e lawe ana i kēia lāʻau.
- E hoʻomaʻamaʻa i ka lawe ʻana i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā. Mai lawe ʻoe ma mua o ka mea a ke kauka e ʻōlelo ai.
- Mai ho'ōki koke i ka lawe ʻana i kēia lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e kāhea koke aku i ke Kikowaena ʻIke ʻAi ʻona Lahui ma ka Halemai Lahui ʻo Colombo. A i ʻole, e hele koke i ka Emergency Unit (ETU) kokoke loa.
Nā mea kūikawā e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
He mea maikaʻi ke nānā pono i kou kino i ka wā e lawe ana i kēia lāʻau.
Nā hoʻokolohua lapaʻau maʻamau
E ʻike pinepine i kāu kauka e nānā i kou kūlana. E haʻi iā ia inā ua hoʻomaikaʻi a i ʻole ua ʻino aʻe paha kou mau hōʻailona. Pono paha kāu kauka e hana i kahi hana koko i kēia manawa.
Ka holoi ʻana
Hiki i kekahi poʻe ke ʻike i ka ʻulaʻula a me ka wela ma ka maka a me ka ʻāʻī i ka wā e lawe ai i kēia lāʻau. Kāhea mākou i kēia 'flushing'. No ka hōʻemi ʻana i kēia, he mea kōkua paha ka lawe ʻana i ka lāʻau me kahi ʻai maʻamau, me ka ʻai ʻole i nā meaʻai momona kiʻekiʻe a me nā calorie kiʻekiʻe. Inā hoʻomau kēia ʻeha a hoʻopilikia paha iā ʻoe, e haʻi i kāu kauka.
Ka pilikia o ka maʻi
Hiki i kēia lāʻau lapaʻau ke hoʻohaʻahaʻa iki i kou pale ʻana a hoʻonui i kou pilikia o ka loaʻa ʻana o nā maʻi. No laila, inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ke kino, a i ʻole ka ʻeha o ka puʻu, mai hoʻōla ponoʻī, akā e kāhea i kāu kauka no ka ʻōlelo aʻo. E hoʻāʻo e noho mamao mai nā wahi i maʻi ai ka poʻe.
He pilikia koʻikoʻi loa, akā he mea nui e makaʻala
He mea kākaʻikahi loa, hiki i kekahi poʻe ke loaʻa i kahi maʻi lolo koʻikoʻi mai kēia lāʻau lapaʻau. Hiki i kēia ke hoʻoweliweli i ke ola, no laila he mea nui e makaʻala i kēia.
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, e haʻi koke aku i kāu kauka. Inā ʻaʻole hiki iā ʻoe ke hoʻokaʻaʻike aku i kāu kauka, e ʻimi koke i ke kōkua lapaʻau.
- Hoʻololi i ka hihiʻo
- Ka paʻakikī o ka noʻonoʻo a i ʻole ka huikau
- ʻO ka ʻeha ma kekahi ʻaoʻao o ke kino
- Nā pilikia me ke kaulike i ka wā e hele ana a kū paha
- Ka nalowale o ka hoʻomanaʻo a i ʻole nā loli o ke ʻano
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i kekahi mau hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o lākou, a ʻo kekahi ʻaʻole ia he mea koʻikoʻi.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona e ʻike ai |
|---|---|
| Nā mea e hōʻike koke aku ai i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, a i ʻole ke alelo. |
| Nā hōʻailona o ka hōʻeha o ke akepaʻa | Mimi melemele/ʻeleʻele, melemele o nā maka a i ʻole ka ʻili, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale o ka makemake e ʻai, nausea, a me ka luhi nui. |
| Nā hōʻailona o ka maʻi lolo koʻikoʻi | Nā loli o ka ʻike, ka huikau, nāwaliwali ma kekahi ʻaoʻao o ke kino, ka nalowale o ke kaulike, ka nalowale o ka hoʻomanaʻo. |
| ʻAʻole maʻamau ka koʻikoʻi (akā e haʻi i kāu kauka inā hoʻomau ia) | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ʻōpū, nausea, diarrhea. |
| ʻO ka ʻulaʻula o ka maka | ʻUlaʻula ka maka a me ka ʻāʻī a wela ke ʻano. |
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Diroximel Fumarate e kaohi ai i ka hoʻi hou ʻana o nā hōʻailona MS, akā ʻaʻole ia e ho'ōla loa i ka maʻi.
- Mai uhaʻi, kuʻi, a nau paha i ka lāʻau. E ale holoʻokoʻa.
- E haʻi i kāu kauka e pili ana i nā pilikia olakino ʻē aʻe āu e loaʻa ai a me nā lāʻau lapaʻau ʻē aʻe āu e lawe ai.
- E ʻimi koke i ke kōkua lapaʻau inā ʻike ʻoe i nā hōʻailona o ka maʻi (kuni, ʻū) a i ʻole nā hōʻailona koʻikoʻi o ka maʻi lolo (nā loli o ka ʻike, nalowale o ke kaulike).
- E hahai mau i nā kuhikuhi a kāu kauka. Inā he mau nīnau kāu, mai makaʻu e nīnau.
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