Ua ʻike anei ʻoe i ka wā e ʻai ai ʻoe, i kekahi manawa ke ʻike ʻoe i kahi mea ʻala, a i ʻole ke noʻonoʻo ʻoe i kahi mea ʻono, hoʻomaka ʻoe e hou ma kekahi ʻaoʻao o kou maka, ʻoi aku hoʻi ma kou mau papālina, ma nā ʻaoʻao ʻelua o kou ʻauwae, a i ʻole a puni kou mau pepeiao? E ʻike paha ʻoe ua lilo ka ʻāpana a puni kou maka i ʻulaʻula a mehana iki. ʻAʻole like kēia me ka hou ʻana ma kou kino holoʻokoʻa, akā ma kahi kikoʻī wale nō o kou maka. ʻO kēia nā hōʻailona nui o kahi maʻi neurological laha ʻole i kapa ʻia ʻo Frey's Syndrome , a mākou e kamaʻilio nei i kēia lā. He mea hou paha ka inoa iā ʻoe, akā he mea pono ke ʻike.
He aha ka Frey's Syndrome?
I ka ʻōlelo maʻalahi, he maʻi neurological kakaʻikahi ka maʻi Frey. Hoʻoulu ia i ka hou nui ʻana ma kahi kikoʻī o kou helehelena, ʻo ia hoʻi kou mau papālina, nā luakini, a/a i ʻole ma hope o kou mau pepeiao , ke ʻai ʻoe, noʻonoʻo e pili ana i ka meaʻai, a i kekahi manawa honi i ka meaʻai. ʻAʻole ia e pili ana i ka hou ʻana ma kou kino holoʻokoʻa. Hiki iā ia ke hana i ka ʻulaʻula a i ʻole ke kala ʻana o ka ʻili ma kēia mau wahi hou.
Hoʻomaka pinepine kēia ʻano ma ke ʻano he hopena ʻaoʻao o ke ʻoki kino. ʻO ka mea maʻamau ma hope o ke ʻoki kino ʻana i kāu mau kelepa parotid . ʻO nā kelepa parotid nā kelepa salivary nui i loko o ko mākou waha. Aia lākou ma nā ʻaoʻao ʻelua o ko mākou maka, ma lalo pono a ma mua o ko mākou mau pepeiao. Hoʻopuka kēia mau kelepa i ka saliva, ka mea e kōkua ai i ka mālama ʻana i ko mākou waha i ka pulu a kōkua iā mākou e nau a hoʻoheheʻe i ka meaʻai.
He mau inoa ʻē aʻe ko Frey's syndrome:
- ʻO ka maʻi aʻalolo Auriculotemporal
- ʻO ka ʻūhū ʻana i ka makemake (e pili ana kēia i ka ʻūhū ʻana i ka wā e ʻono ai)
- ʻO ka 'Gustatory hyperhidrosis' (ʻo ia ka manaʻo like, ʻo ka 'hyperhidrosis' ʻo ia hoʻi ka hou nui)
- ʻO ka maʻi Baillarger
- ʻO ka maʻi Dupuy
Ua kapa ʻia kēia ʻano maʻi ʻo "Frey's syndrome" no ka hoʻohanohano ʻana iā Lucja Frey, he loea neurologist Polani nāna i ʻike mua iā ia i ka makahiki 1923.
Pehea ka maʻamau o kēia ʻano?
He mea paʻakikī i nā kānaka noiʻi ke ʻōlelo pololei i ke ʻano maʻamau o ka maʻi Frey, no ka mea, aia kekahi mau hemahema i ka hōʻike ʻana i ke kūlana. Akā, ua hōʻike kekahi mau noiʻi e hiki i ka 30% a me 50% o nā maʻi i hana ʻia i ka parotidectomy ke loaʻa i ka maʻi. ʻO ia hoʻi, ʻaʻole e loaʻa i nā mea a pau i hana ʻia i ia ʻoki kino, akā aia kekahi pakeneka i ka pilikia.
He aha nā hōʻailona o ka maʻi Frey?
ʻO ka hōʻailona nui a maopopo loa o kēia ʻano, ʻo ia ka hou nui ʻana (hyperhidrosis) ke ʻai ʻoe a i ʻole e noʻonoʻo e pili ana i ka ʻai ʻana no ka manawa lōʻihi . Ua kapa ʻia hoʻi kēia he "Gustatory sweating". Hoʻokumu ʻia kēia hou ʻana e:
- Ma ka ʻāina ʻo Kammula
- Ma nā ʻaoʻao ʻelua o ka lae (luakini)
- A puni ka pepeiao
Ma waho aʻe o kēia hou ʻana, hiki ke ʻulaʻula a mehana paha ka ʻili ma kēlā mau wahi .
Hiki i kēia hou ʻana a me ka ʻulaʻula o ka ʻili ke lilo i mea ʻoluʻolu loa no kekahi poʻe, a no kekahi poʻe hiki ke koʻikoʻi a ʻoluʻolu ʻole . Hiki ke hoʻonui ʻia ka hou ʻana ke ʻai ʻia nā meaʻai e hoʻomehana ai i kou lawai, no ka laʻana , nā meaʻai ʻawaʻawa (e like me ka lime, tamarind), nā meaʻai ʻala (chili maka, pauka chili), a me nā meaʻai paʻakai . E noʻonoʻo inā ʻoe e ʻai i kahi pickle maikaʻi, a i ʻole ʻai i ka laiki me kahi mea ʻala chili ʻala, a hoʻomaka koke ka hou ʻana mai kou mau papālina!
ʻIke pinepine ʻia nā hōʻailona o ka maʻi Frey i loko o ka makahiki mua ma hope o ke ʻoki ʻana ma ka parotid gland, akā i kekahi poʻe, ʻaʻole paha e ʻike ʻia nā hōʻailona no kekahi mau makahiki ma hope o ke ʻoki ʻana.
He aha nā hopena maikaʻi ʻole ʻē aʻe o ka Frey syndrome?
He ʻoluʻolu pinepine nā hōʻailona o ka maʻi Frey. ʻO ia hoʻi, ʻaʻole lākou e hōʻeha nui. Eia nō naʻe, no kekahi poʻe , hiki i ka hou nui ke hoʻoulu i ka ʻoluʻolu ʻole a i ʻole ka hopohopo pili kanaka . E noʻonoʻo, inā ʻoe e ʻaina ahiahi me nā hoaaloha a hoʻomaka kou helehelena e hou i ka wā e ʻai ana ʻoe, hiki ke lilo i mea hoʻonāukiuki iki, ʻeā?
Inā ʻoe e hopohopo nei no ka mea ua nui kou hou ʻana i ka wā e ʻai ana, he mea nui loa e kamaʻilio me ke kauka a i ʻole kekahi kākāʻōlelo olakino noʻonoʻo , e like me ke kanaka noʻonoʻo, e pili ana i ia mea.
He aha ke kumu o ka maʻi Frey?
ʻAʻole ʻike nā kānaka ʻepekema i ke kumu kikoʻī o ka maʻi Frey. Eia nō naʻe, ʻo kā lākou manaʻo nui, ʻo ia ka wā e hōʻino ʻia ai ʻelua ʻano aʻalolo kokoke i kou gland parotid i ka manawa like . ʻO kēia mau ʻano aʻalolo ʻelua, ʻo ia nā "aʻalolo sympathetic" a me nā "aʻalolo parasympathetic".
No kā mākou ʻōnaehana nerve autonomic (ANS) kēia mau ʻōnaehana nerve ʻelua. Hoʻomalu kēia ANS i nā hana kino i makemake ʻole ʻia (e like me ka helu o ka puʻuwai a me ka ʻai ʻana) hiki ʻole iā mākou ke hoʻomalu me ka ʻike.
I kēia manawa, e nānā, ʻo kekahi o nā hana o kēia mau aʻalolo `(parasympathetic)` ʻo ia ke kāohi i ka hana o kā mākou mau kelepa salivary, ʻo ia hoʻi, ka hana ʻana o ka saliva e nā kelepa parotid. Eia naʻe, ʻaʻole kēia mau aʻalolo `(parasympathetic)` e kāohi i kā mākou mau kelepa hou. Hana ʻia kēlā e kēlā ʻano aʻalolo ʻē aʻe, nā aʻalolo `(sympathetic)`.
Manaʻo nā kānaka noiʻi e hana ʻia ka maʻi Frey i ka wā e hōʻino ʻia ai nā aʻalolo parasympathetic a me ka sympathetic kokoke i nā gland parotid i ka manawa like.
ʻO ka maʻamau, hiki i nā olonā liʻiliʻi i loko o ko mākou kino ke ho'ōla a ulu hou i ka wā e ʻeha ai. I ka maʻi Frey, manaʻo nā kānaka ʻepekema ua hōʻino ʻia nā olonā "parasympathetic" i hōʻino ʻiaUa like ia me ʻelua mau uaea kelepona e hihia ana, a ua pili nā aʻalolo 'parasympathetic' i nā ʻōpū hou i loko o ka ʻili.
Ma muli o kēia "rewiling" maʻamau ʻole, ʻo nā aʻalolo parasympathetic e hōʻailona mau ana i nā gland parotid e hana i ka lawai ke ʻono lākou i kahi mea i kēia manawa e hoʻomaka nei e hōʻailona i nā gland hou e "hou."
ʻO ka hopena o kēia, ʻo ia ka hou nui ʻana i ka wā e ʻai ana .
Eia kekahi, ke kāohi nei nā aʻalolo sympathetic i ke kahe koko ma o ka hoʻopaʻa ʻana a me ka hoʻonui ʻana i ko mākou mau kīʻaha koko. ʻO ia paha ke kumu e ʻulaʻula ai ka ʻili i kekahi manawa (flushing) i ka maʻi Frey.
He lōʻihi ka manawa e ulu hou ai nā aʻalolo ma hope o ka hōʻino ʻia, ʻo ia paha ke kumu e ʻike pinepine ʻia ai ka maʻi Frey ma waena o 6 a me 18 mau mahina ma hope o ke ʻoki ʻana.
Nā ʻoki kino a me nā ulia e hiki ai ke hana i ka maʻi Frey
ʻO ka maʻi Frey ka mea i hoʻokumu pinepine ʻia e ka hōʻino ʻia ʻana o ke aʻalolo i ka wā o ka parotidectomy . Eia nō naʻe, hiki ke hana ʻia ke ʻano e nā ʻoki kino a i ʻole nā ulia pōpilikia:
- ʻO ke ʻoki kino ʻana o ke kelepaʻi submandibular.
- ʻO ke ʻoki kino e hoʻoponopono ai i ka ʻāwae haki (haʻi mandibular).
- Nā ulia pōpilikia e pili ana i ka hui Temporomandibular (TMJ).
- ʻO ke ʻoki kino e wehe i nā lymph node ma ka ʻāʻī.
- ʻO nā ʻeha waho ʻē aʻe i kahi i loaʻa ai ka parotid gland.
Pehea e ʻike ʻia ai ka maʻi Frey?
I mea e kōkua ai i ka ʻike ʻana i ka maʻi Frey, e nīnau kāu kauka iā ʻoe e pili ana i kāu mau hōʻailona, e like me ka wā i hoʻomaka ai. E nīnau pū lākou e pili ana i kou mau kūlana olakino ma mua, inā ua hana ʻia ʻoe i ke ʻoki maka, a i ʻole inā ua loaʻa ʻoe i kahi ulia.
ʻO kahi hoʻāʻo e hiki ai ke ʻike pololei i kēia kūlana ua kapa ʻia ʻo 'Minor starch-iodine test' . Eia pehea e hana ai i kēia hoʻāʻo:
1. ʻO ka mea mua, e hoʻopili ke kauka i kahi hopena iodine i nā wahi o kou maka āu e manaʻo nei e hou ana.
2. Ma hope o ka maloʻo ʻana, e hoʻopili i ka starch (e like me ka starch kulina) ma luna.
3. A laila, e hāʻawi ʻia ʻoe i kahi mea e ʻai ai e hoʻoulu ai i kāu mau kelepa salivary - ʻo ka maʻamau he mea ʻawaʻawa (e like me ka toffee ʻawaʻawa, kahi ʻāpana lime).
Inā hoʻomaka ʻoe e hou, e pulu kēlā starch a lilo i polū a ʻeleʻele paha . Hiki i kēia ke hōʻoia he Frey syndrome kou. He hoʻāʻo maʻalahi loa ia, ʻeā?
Pehea e mālama ʻia ai ka maʻi Frey?
ʻAʻohe lāʻau lapaʻau no ka maʻi Frey, no laila ke kau nui nei ka lāʻau lapaʻau ma ka kaohi ʻana i nā hōʻailona. Inā he ʻoluʻolu loa kāu mau hōʻailona, ʻaʻole paha ʻoe e pono i ka lāʻau lapaʻau. Eia nō naʻe, no ka poʻe me nā hōʻailona koʻikoʻi, aia kekahi mau ala e kaohi ai i ka hou ʻana:
- Nā inikini Botox® (botulinum toxin):ʻO kēia ke ʻano maʻamau i hoʻohana ʻia e nā kauka e kāohi i ka "huhū ʻana o ka ʻili." Ke hāʻawi ʻia kēia inikini, hoʻopau ʻia nā ʻōpū hou kokoke i kahi i inikini ʻia no kekahi manawa. ʻO ka hapa nui o ka poʻe e loaʻa ana i kēia inikini e ʻōlelo nei ua emi iki ko lākou hou ʻana i ka wā e ʻai ana, emi iki ka ʻulaʻula, a hoʻomaikaʻi ʻia ko lākou ʻano ola. Eia nō naʻe, emi ka hopena o kēia i ka hala ʻana o ka manawa - ma kahi o 9 a 12 mau mahina . No laila, pono paha ʻoe e loaʻa hou i ka inikini.
- Nā lāʻau anticholinergic topical: Hana kēia mau lāʻau lapaʻau ma ka hōʻemi ʻana i ka hana o kāu mau kelepa hou. ʻOiai he pono lākou, pono e hoʻopili pinepine ʻia i ka ʻili.
- Nā antiperspirants topical: Hiki i kekahi mau deodorants ke kōkua i ka kaohi ʻana i ka hou ʻana, akā he akahai ko lākou hopena. E like me nā anticholinergics, pono e hoʻopili pinepine ʻia kēia mau mea.
He mea kākaʻikahi loa, inā ʻaʻole kōkua kēia mau ʻano hana, hiki i nā kauka ke ʻōlelo aku i ke ʻoki ʻana. Pili kēia i ka ʻoki ʻana i kekahi mau aʻalolo. Aia kekahi mau ʻano o ia ʻano ʻoki ʻana.
He maʻi koʻikoʻi anei ka maʻi Frey?
ʻOiai he mea hoʻonāukiuki, ʻaʻole ia he mea hōʻino i kou olakino kino ka maʻi Frey. No laila, ʻaʻole ia he maʻi koʻikoʻi ma ia ʻano. Eia nō naʻe, ʻo ka hou nui ʻana i hiki ʻole iā ʻoe ke kaohi hiki ke hilahila a hiki ke hoʻopilikia i kou olakino noʻonoʻo . E like me ka mea i ʻōlelo ʻia ma mua, hiki iā ia ke hoʻoulu i ka hopohopo pili kanaka a me ka hilahila.
He mea nui e ʻimi i ke kōkua inā ʻoe e hakakā nei me kēia maʻi. Hiki i nā mea e like me nā inikini Botox® ke kōkua i ka kaohi ʻana i ka hou nui. Eia kekahi, inā e hoʻopilikia ana i kou olakino noʻonoʻo, he manaʻo maikaʻi paha e ʻike i kahi mea lapaʻau a i ʻole psychologist.
Hiki ke pale ʻia ka maʻi Frey?
ʻAʻohe mea hiki iā ʻoe ke hana e pale aku i ka maʻi Frey. Hoʻāʻo nā kauka lapaʻau e hoʻohana i kekahi mau ʻano hana e pale aku i ka hōʻino ʻana o ke aʻalolo i ka wā o ke ʻoki maka. Akā, ʻaʻole pono mau kēia mau ʻano hana. Loaʻa i kēlā me kēia ʻano hana kona mau pilikia a me nā hemahema, no ka laʻana:
- Hoʻonui ʻia ka manawa no ke ʻoki kino.
- ʻOkoʻa ka pono o ka pale ʻana i ka maʻi Frey.
- Ka hiki ke loaʻa ka maʻi ʻeha.
- Nā pilikia e hiki mai ana ma hope o ke ʻoki ʻana.
E kūkākūkā kāu kauka lapaʻau i nā pilikia, nā hopena ʻaoʻao, a i ʻole nā pilikia e hiki mai ana me ʻoe ma mua o ke ʻoki ʻana. No laila, mai makaʻu e nīnau a haʻi i kāu kauka i nā mea āpau ma kou manaʻo .
Āhea ʻoe e ʻike ai i ke kauka?
Inā e ʻoi aku ka ʻino o kāu mau hōʻailona, a inā ʻoe e lawe nei i ka lāʻau no ka maʻi Frey a ʻaʻole ia e hana, e kamaʻilio me kāu kauka . Hiki iā ia ke haʻi iā ʻoe i nā koho ʻē aʻe i loaʻa iā ʻoe.
ʻO ka hou nui ʻana i ka wā e ʻai ana hiki ke lilo i mea ʻoluʻolu ʻole a hoʻonāukiuki. Inā ke hoʻopilikia nei ka maʻi Frey i kou ola o kēlā me kēia lā, e kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau e hiki ke kōkua iā ʻoe e hoʻokele i kou hou ʻana i ka makemake.
I ka hōʻuluʻulu manaʻo, eia nā mea e pono ai mākou e hoʻomanaʻo (Leka Lawe-Home):
ʻAe, e nānā kākou i kekahi o nā mea nui e hoʻomanaʻo mai nā mea a mākou i kamaʻilio ai:
- ʻO ka Frey's Syndrome kahi maʻi e hoʻoulu ai i ka hou ʻana o ka maka (nā papālina, ka lae, a puni nā pepeiao) a i kekahi manawa e ʻulaʻula i ka wā e ʻai ai a noʻonoʻo paha i ka meaʻai.
- ʻO ka mea maʻamau, ʻo kēia ka hōʻino ʻia ʻana o ke aʻalolo ma hope o ke ʻoki ʻana ma nā kelepa parotid.
- Hiki ke ʻoluʻolu a koʻikoʻi paha nā hōʻailona.
- Hiki ke ʻike ʻia kēia me ka `Minor starch-iodine test`.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha, hiki i nā lāʻau lapaʻau e like me nā inikini Botox® ke kaohi i nā hōʻailona.
- ʻOiai ʻaʻole kēia he mea hōʻeha kino, hiki ke hoʻopilikia i ka naʻau. No laila e kiʻi i ke kōkua inā pono ʻoe.
- Inā loaʻa iā ʻoe kēia mau hōʻailona a i ʻole kānalua paha, ʻoi aku ka maikaʻi o ka ʻimi ʻana i ke kōkua lapaʻau.
Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā loaʻa iā ʻoe kahi ʻike like, mai kānalua e kamaʻilio me ke kauka e pili ana i ia mea.
ʻO ka maʻi Frey, ka hou ʻana i ka wā e ʻai ana, ka hou ʻana o ka ʻono, ke ʻoki ʻana i ka parotid gland, ka hou ʻana o ka maka, nā maʻi neurological
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