He koko kou i loko o kou mimi? E kamaʻilio kākou e pili ana i ka IgA Nephropathy!

Ua ʻike anei ʻoe i kahi koko liʻiliʻi i loko o kou mimi? A i ʻole he mau wāwae pehu kou, he manaʻo nāwaliwali, a luhi mau paha? He mau hōʻailona paha kēia o ka maʻi puʻupaʻa, e kuʻu hoaaloha. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi puʻupaʻa nona kahi inoa paʻakikī, akā hoʻokahi mea e pono ai kākou āpau e makaʻala. ʻO ia ka IgA Nephropathy. Mai hopohopo, e kamaʻilio maʻalahi kākou e pili ana.

He aha ka IgA Nephropathy? I ka ʻōlelo maʻalahi...

I ka ʻōlelo maʻalahi, ʻo ka IgA nephropathy kahi ʻano maʻi puʻupaʻa. ʻO ka mea e hana ʻia ma kēia, ʻo ia ka hōʻiliʻili ʻana o kahi `(Antibody)` i loko o ko mākou kino, ʻo ia hoʻi, kahi antibody i kapa ʻia ʻo `IgA`, i loko o nā puʻupaʻa, e hoʻoulu ai i ka mumū, ʻo ia hoʻi, ka pehu ʻana. Hoʻopōʻino kēia mumū i nā kīʻaha koko liʻiliʻi loa i loko o nā puʻupaʻa, nā ʻāpana i kapa ʻia ʻo `(Glomeruli)` e hana ana e like me nā kānana. E noʻonoʻo, ua like ko mākou mau puʻupaʻa me ʻelua mau kānana e kānana ana i nā huahana ʻōpala i loko o ke kino a hoʻokuʻu iā lākou ma ke ʻano he mimi. No laila, i ka wā e hōʻino ʻia ai kēia mau `(Glomeruli)`, hoʻomaka ke koko (`(Hematuria)`) a me ka protein (`(Proteinuria)`) e puka mai ana mai loko mai o nā puʻupaʻa me ka mimi.

Ua ʻike ʻia hoʻi ia ma nā inoa ʻē aʻe, e like me `IgAN` a me `Berger's disease`. ʻO ke kumu o kēia, ʻo ia ka ʻike mua ʻana o nā kauka Farani ʻelua, ʻo Jean Berger lāua ʻo Nicole Hinglas, i kēia maʻi i ka hopena o nā makahiki 1960.

He aha ke ʻano o kēia inoa?

He lōʻihi iki ke kani ʻana o ka inoa "IgA nephropathy", ʻeā? E nānā kākou i kona manaʻo.

• Immunoglobulin A (IgA): ʻO kēia ka antibody aʻu i ʻōlelo ai ma mua. He protein ia i hana ʻia e kā mākou ʻōnaehana pale, ka ʻōnaehana e pale iā mākou mai nā maʻi. ʻO kāna hana nui ka pale ʻana iā mākou mai nā mea komo hewa ʻē e like me nā bacteria a me nā virus.
• Nephropathy: He huaʻōlelo lapaʻau kēia. I ka ʻōlelo maʻalahi, hoʻohana ʻia ia e wehewehe i kekahi pōʻino, maʻi, a i ʻole pilikia ʻē aʻe e kū mai ana i nā puʻupaʻa.

He mea hoʻoweliweli anei kēia i ke ola?

Eia ka mea nui. Inā ʻaʻole mālama ʻia, hiki i ka IgA nephropathy ke ʻoi aku ka ʻino a alakaʻi i ka hāʻule ʻana o ka puʻupaʻa. Hiki i ka hāʻule ʻana o ka puʻupaʻa ke hoʻoweliweli i ke ola inā ʻaʻole mālama ʻia. Akā , mai hopohopo, me ka mālama pono ʻana, hiki ke kāohi nui ʻia ke ʻano o kēia maʻi.

Pehea ka maʻamau o kēia maʻi?

He maʻi puʻupaʻa maʻamau ka IgA nephropathy. Hiki iā ia ke hoʻopilikia i nā kānaka o kēlā me kēia makahiki. ʻOkoʻa kona laha ma nā wahi like ʻole o ka honua. Ua hōʻike ʻia ua ʻike pinepine ʻia kēia maʻi ma nā ʻāina ʻo ʻAsia Hikina, ʻo ia hoʻi, ma ka ʻāina a mākou e noho nei. ʻO kēia ʻano kekahi mea a nā kauka e ʻike pinepine ai ma Sri Lanka.

He aha nā hōʻailona nui?

I ka manawa pinepine, ʻaʻohe paha he mau hōʻailona i ka wā mua. Hiki i ka maʻi ke hoʻomau no nā makahiki a i ʻole nā ​​​​ʻumi makahiki me ka ʻole o nā hōʻailona. Eia nō naʻe, ke ʻike ʻia nā hōʻailona, ​​​​e ʻike paha ʻoe i nā mea e like me:

• Koko i loko o ka mimi:I kekahi manawa hiki i ka mimi ke lilo i ʻulaʻula, ʻeleʻele, a i ʻole ke kala o ka wai kī. ʻO kēia ka hōʻailona mua a ka poʻe he nui e ʻike ai.
• ʻEha ʻaoʻao: Pili kēia i ka ʻeha ma nā ʻaoʻao ʻelua o ka pūhaka, kahi i loaʻa ai nā puʻupaʻa.
• Pehu ʻana (Edema): Hiki ke pehu, ʻoiai ma nā wāwae, nā kuʻekuʻe wāwae, ka ʻōpū, a i kekahi manawa ke alo.
• Mimi huʻa: Inā ʻike ʻia ke huʻa nui aʻe o kou mimi ma mua o ka maʻamau, he hōʻailona nō hoʻi kēlā.

E noʻonoʻo, he kumu ʻōpio ʻo Samantha (he inoa hoʻopunipuni). I kekahi lā, ma hope o kona hoʻōla ʻana me ke kuni, ua ʻike ʻo ia ua ʻulaʻula kona mimi. ʻAʻole ʻo ia i hoʻolohe mua iā ia, me ka manaʻo, "Malia paha he luhi wale nō." Akā ma hope o kekahi mau lā, ua hoʻomaka kona mau wāwae e pehu, a ua luhi loa ʻo ia. Ma hope wale nō o kona ʻike ʻana i ke kauka a me ka loaʻa ʻana o nā hoʻokolohua ua ʻike ʻia ʻo ia me ka IgA nephropathy.

No ke aha i loaʻa ai kēia maʻi? He aha nā kumu?

Manaʻo nā loea lapaʻau he "maʻi autoimmune" ka IgA nephropathy. I ka ʻōlelo maʻalahi, ʻo ka mea e hana ʻia ma ʻaneʻi, ʻo kā mākou ʻōnaehana pale ponoʻī, nā koa i manaʻo ʻia e pale iā mākou mai ka maʻi, e hoʻouka hewa ana i ko mākou mau puʻupaʻa ponoʻī.

ʻO ka poʻe me ka IgA nephropathy he emi iki ka nui o ke ʻano kō i kapa ʻia ʻo `(Galactose)` i loko o kā lākou mau antibodies `IgA` ma mua o ka maʻamau. Hoʻomaopopo kā mākou ʻōnaehana pale i kēia `(Galactose)`-deficient `IgA` ma ke ʻano he "mea hoʻouka kaua haole". A laila hana ʻia kēia:

• ʻO nā antibodies ʻē aʻe i loko o ko mākou kino e hoʻopaʻa i kēia `IgA` nele i ka `(Galactose)`.
• Hoʻohui kēia ʻIgA e hana i nā puʻupuʻu liʻiliʻi i kapa ʻia ʻo 'Immune complexes'.
• Hoʻopaʻa ʻia kēia mau "pūʻulu pale" i loko o nā kānana liʻiliʻi i loko o ko kākou mau puʻupaʻa, i kapa ʻia ʻo "Glomeruli".
• A laila kū mai ka mumū ma laila a hoʻomaka nā puʻupaʻa e hōʻino ʻia.

Ke loaʻa iā kākou ke anu, ka maʻi palū, a i ʻole ka ʻāʻī ʻeha, e kaʻapuni nui kēia mau 'IgA immune complexes' i loko o ko kākou kino. Hoʻopau kekahi o kēia mau mea i nā puʻupaʻa, no laila hoʻomaka kekahi poʻe e hoʻomohala i nā hōʻailona o ka IgA nephropathy ma hope o ko lākou loaʻa ʻana i ke anu a i ʻole ka maʻi palū.

He mea kēia i loaʻa mai nā hanauna mai?

No kekahi poʻe, pili paha kēia i ka mōʻaukala ʻohana o ka maʻi. ʻO ia hoʻi, aia paha kahi mana genetic e holo ana i loko o nā ʻohana. Ua ʻike nā kauka i kekahi mau māka genetic. ʻO ia hoʻi, aia paha kahi pilina ma waena o kekahi mau hoʻololi gene a me ka IgA nephropathy.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia maʻi?

ʻOiai hiki i kekahi ke loaʻa i ka IgA nephropathy, ʻoi aku ka nui o ka pilikia o kekahi poʻe. ʻO kēia mau mea:

• Inā loaʻa i kekahi o ka ʻohana ka IgA nephropathy.
• Inā loaʻa i kekahi o kou ʻohana ka `IgA vasculitis` (i kapa ʻia hoʻi ʻo `(Henoch-Schönlein purpura)`).
• Ua hōʻike ʻia nā noiʻi ʻAmelika he ʻelua ka nui o ka pilikia o nā kāne ma mua o nā wahine.
• No nā poʻe ʻōpio ma waena o nā makahiki 15-18 a me ko lākou mau makahiki 30 .
• ʻĀkia a ʻEulopa pahaUa ʻōlelo ʻia e hiki i ka poʻe o ka hanauna ʻĀsia, e like me Sri Lanka, ke ʻike hou aku i kēia.

I ka makahiki hea e hoʻomaka pinepine ai kēia?

ʻOiai hiki i kēia maʻi ke hoʻopilikia i nā kānaka o kēlā me kēia makahiki, hoʻomaka pinepine nā hōʻailona mua e ʻike ʻia i ka wā ʻōpio o ke kanaka, ma waena o nā makahiki 15-18 a me ka hopena o nā makahiki 30.

He aha nā pilikia e hiki mai ana inā ʻaʻole mālama ʻia?

Inā ʻaʻole mālama pono ʻia ka nephropathy IgA, hiki ke ulu aʻe nā pilikia like ʻole i ka hala ʻana o ka manawa. ʻO nā mea nui:

• Hypertension: ʻO ke ʻano kēia ka hoʻonui ʻia o ke koko .
• Ka hāʻule ʻana o ka puʻupaʻa: Ka nalowale koke ʻana o ka hana a ka puʻupaʻa.
• Ka hāʻule mau ʻana o nā puʻupaʻa: Ka nāwaliwali mālie ʻana o nā puʻupaʻa i ka hala ʻana o ka manawa .
• ʻO ka maʻi Nephrotic: He kūlana kēia kahi e hoʻokuʻu ai nā puʻupaʻa i ka nui o ka protein i loko o ka mimi. ʻO kēia ke kumu o ka pehu ʻana a me nā pae cholesterol kiʻekiʻe.
• Nā pilikia o ka ʻōnaehana cardiovascular: ʻO ke ʻano kēia e piʻi aʻe ka pilikia o ka hoʻomohala ʻana i nā maʻi puʻuwai a me nā pilikia o ke kīʻaha koko.

Pehea e ʻike pololei ai nā kauka i kēia maʻi?

Ke ʻike ʻoe i ke kauka, e nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, ​​inā paha ua loaʻa i kekahi o kou ʻohana kēia maʻi, a me kou mōʻaukala olakino. A laila e hana lākou i kahi hoʻokolokolo kino, e komo pū ana me ka nānā ʻana i kou koko a me ka nānā ʻana i ka pehu. Eia kekahi, hiki iā lākou ke hana i kēia mau hoʻokolohua:

• Urinalysis: Nānā i ke koko a me ka protein i loko o ka mimi.
• Nā hoʻāʻo koko: E nānā i nā pae o ka cholesterol, ka protein, a me nā ʻōpala i loko o ke koko.
• Hoʻāʻo koko glomerular filtration rate (eGFR): Ke ana kēia i ka nui o ke koko e kānana pono ʻia ana e kou mau puʻupaʻa i kēlā me kēia minuke.
• Hoʻāʻo protein mimi: Nānā i ka protein a/a i ʻole kekahi ʻano protein i kapa ʻia ʻo albumin i loko o ka mimi.
• Nā hoʻāʻo hōʻiliʻili mimi 24-hola: E hōʻiliʻili i ka mimi i ka lā a pau a ʻike i ka nui o ka protein i hoʻokuʻu ʻia.

He mea pono anei ka biopsy o ka puʻupaʻa?

ʻAe, inā hāpai nā hoʻokolohua ʻē aʻe i ka kānalua e pili ana i kēia maʻi, ʻo ka hoʻāʻo koʻikoʻi e hōʻoia i ka maʻi he biopsy puʻupaʻa . Ma kēia, lawe ke kauka i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupaʻa me ka hoʻohana ʻana i kahi mea hana liʻiliʻi e like me ke nila. A laila nānā ke kauka maʻi, he loea i ka nānā ʻana i nā ʻiʻo, i kēlā ʻāpana ma lalo o kahi microscope. A laila, hiki ke ʻōlelo pololei ʻia inā ua waiho ʻia ʻo IgA i loko o nā puʻupaʻa, pehea ka nui o ka pōʻino i hana ʻia, a me ke kahua o ka maʻi.

He aha nā lāʻau lapaʻau i loaʻa?

ʻO ka pahuhopu nui o ka mālama ʻana, ʻo ia ke kāohi i ka holomua o ka maʻi a pale iā ia mai ka holomua ʻana i ka maʻi puʻupaʻa hope loa (ESRD). Inā haʻi aku ke kauka iā ʻoe he IgA nephropathy kou, e kuhikuhi paha lākou iā ʻoe i kahi nephrologist, he kauka loea i ka maʻi puʻupaʻa.

ʻO nā lāʻau lapaʻau no ka IgA nephropathy e komo pū me kēia mau lāʻau lapaʻau:

• Kaohi i ke koko: Nā lāʻau lapaʻau e like me nā mea hoʻopaʻa (Angiotensin-converting enzyme - ACE) a me nā mea hoʻopaʻa (Angiotensin receptor blockers - ARBs). Hoʻohaʻahaʻa kēia i ke koko a hōʻemi pū i ka hōʻino ʻia o nā puʻupaʻa.
• Wehe i ka wai keu mai ke kino: Nā lāʻau diuretic, i ʻike nui ʻia ʻo "nā pila wai."
• E kāohi i ka ʻōnaehana pale: No ka hōʻemi ʻana i ka mumū i loko o nā puʻupaʻa, hiki ke hāʻawi ʻia nā lāʻau lapaʻau ʻē aʻe e like me nā steroids (e.g., prednisone) a i ʻole cyclophosphamide. Hāʻawi ʻia kēia mau mea ma muli o ke koʻikoʻi o ka maʻi.
• Nā pae cholesterol haʻahaʻa: Nā lāʻau lapaʻau e like me `(Statins)`.

He kōkua anei ka wehe ʻana i nā tonsils (Tonsillectomy) i kēia?

Ua hōʻike kekahi mau noiʻi e loaʻa paha i kahi poʻe liʻiliʻi me ka IgA nephropathy ka pōmaikaʻi mai ka tonsillectomy. Eia naʻe, ʻaʻole kēia he lāʻau lapaʻau no nā mea āpau . ʻOi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka e ʻike inā kūpono kēia iā ʻoe.

He aha kāu e manaʻo ai i ka wā e noho ai me kēia maʻi?

Hiki ke ʻokoʻa kēia mai kēlā kanaka a kēia kanaka. I kekahi manawa e hoʻomaikaʻi ʻia ka nephropathy IgA me nā lāʻau lapaʻau maʻalahi. I ka manawa kākaʻikahi, hiki i ka maʻi ke ʻoi aku ka wikiwiki, e alakaʻi ana i ka hāʻule ʻana o nā puʻupaʻa i loko o kekahi mau makahiki.

Eia nō naʻe, me ka mālama kūpono, hiki i ka hapa nui o ka poʻe ke ola me ko lākou mau puʻupaʻa e like me ke olakino a kaohi i ka holomua o ka maʻi.

Wahi a nā noiʻi, ma kahi o hoʻokahi o nā pākeke ʻehā me ka IgA nephropathy e pilikia ana i ka loaʻa ʻana o ka hāʻule ʻana o ka puʻupaʻa i ka hala ʻana o ka manawa. I waena o nā keiki, hiki ke kiʻekiʻe kēia pilikia i hoʻokahi i loko o 10 a 20.

He mea pono anei ka hoʻoili ʻana o ka puʻupaʻa?

He ʻokoʻa nō hoʻi ia mai kēlā me kēia mea maʻi a i kēia mea maʻi. ʻAʻole like ka holomua o ka maʻi o kēlā me kēia kanaka. Pane maikaʻi kekahi poʻe i ka lāʻau lapaʻau a hiki ke ola me ke ʻano no ka manawa lōʻihi.

Inā pau koke ka hana ʻana o kou mau puʻupaʻa ma muli o ka IgA nephropathy, pono paha ʻoe e noʻonoʻo i ka dialysis (kahi hana hoʻomaʻemaʻe koko) a i ʻole kahi hoʻoili puʻupaʻa. E kūkākūkā kāu hui lapaʻau i kēia mau koho āpau me ʻoe.

Pehea ka lōʻihi o kēia maʻi?

He maʻi puʻupaʻa holomua ka nephropathy IgA e mau ana no ke ola holoʻokoʻa. ʻO ke ʻano kēia e hiki ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa. Eia nō naʻe, hiki i ka lāʻau lapaʻau ke hoʻolohi i ka wikiwiki o ka holomua.

Pehea e pili ana i ke ola?

Ua hōʻike ʻia nā haʻawina e hiki ke hoʻemi ʻia ka awelika o ke ola o ka poʻe me ka IgA nephropathy ma kahi o 6 a 10 mau makahiki i hoʻohālikelike ʻia me kekahi me ka ʻole o ka maʻi. Eia nō naʻe, he helu helu wale nō kēia. Mai poina me ka mālama maikaʻi ʻana a me nā hoʻololi ʻana i ke ʻano o ka nohona, hiki ke kaohi nui ʻia kēia kūlana.

Hiki iaʻu ke ola i kahi ola maʻamau?

ʻAe loa! Inā mālama pono ʻia a ola e like me ka ʻōlelo a kā lākou kauka, hiki i ka hapa nui o ka poʻe me ka IgA nephropathy ke ola lōʻihi a hauʻoli. Hiki iā lākou ke hoʻomau i ka hana, hele i ke kula, a hana i nā mea a lākou e aloha ai.

Aia kekahi ala e pale aku ai i kēia mai ka hana ʻana?

ʻO ka mea pōʻino, ʻaʻohe ala i hōʻoia ʻia e pale aku ai i ka IgA nephropathy. Eia nō naʻe, inā loaʻa i kekahi o kou ʻohana ka maʻi, he mea nui e kamaʻilio me kāu kauka e pili ana i nā ala e noho olakino ai, ʻoiai hoʻi e mālama i kou koko a me nā pae cholesterol ma lalo o ka kaohi.

He hopena anei ka meaʻai a me ka mea inu i kēia?

ʻAʻole i loaʻa i ka noiʻi kahi pilina pololei ma waena o nā ʻano ʻai a i ʻole ka meaʻai a me ka pale ʻana i ka hoʻomohala ʻana o ka IgA nephropathy.

He aha nā meaʻai a me nā mea inu e pono e hōʻole ʻia?

Hiki i ke kauka ke haʻi aku i kahi kanaka me ka IgA nephropathy e kaupalena i kekahi mau meaʻai a me nā mea inu, me:

• Hoʻemi i ka paʻakai .
• Ka palena ʻana i nā meaʻai waiwai i ka protein (e like me ka ʻiʻo, iʻa, hua manu, a me ka waiū).

Inā kiʻekiʻe kou pae cholesterol, pono e hoʻemi i ka momona saturated a me nā meaʻai kiʻekiʻe i ka cholesterol.

No ke aha ʻoe e ʻōlelo ai e hōʻemi i ka protein?

Pono e kānana ʻia kekahi o nā mea i hana ʻia i ka wā e ʻeli ʻia ai ka protein e nā puʻupaʻa. No laila, inā ʻoe e ʻai nui i nā meaʻai momona i ka protein, pono kou mau puʻupaʻa e hana ikaika aʻe, hiki ke hoʻonāwaliwali koke i kou mau puʻupaʻa. Eia nō naʻe, inā ʻaʻole ʻoe e ʻai i ka protein lawa, hiki iā ʻoe ke loaʻa nā pilikia e like me ka ʻai ʻole. No laila, ʻoi aku ka maikaʻi o ka ʻike ʻana i kahi meaʻai renal e kōkua iā ʻoe e hana i kahi papaʻai kūpono iā ʻoe a maikaʻi hoʻi no kou mau puʻupaʻa. Inā ua ʻōlelo ʻia ʻoe e hōʻemi i kāu lawe ʻana i ka protein, pono paha ʻoe e loaʻa nā hoʻāʻo koko maʻamau e nānā i kāu mau pae protein.

Pono anei au e lawe i nā huaale Omega-3?

No kekahi poʻe me ka IgA nephropathy, hiki i nā kauka ke ʻōlelo aku i nā mea hoʻohui ʻaila iʻa e loaʻa ana nā waikawa momona omega-3. Hōʻike kekahi mau noiʻi e hoʻohaʻahaʻa paha kēia i ke koko a hoʻolohi i ka holomua o ka maʻi.

Eia nō naʻe, he mea nui loa ia ʻaʻole loa e hoʻomaka e lawe i kekahi mea hoʻopihapiha, ʻoiai nā pila ʻaila iʻa, me ka ʻole o ke kūkākūkā ʻana me ke kauka.

Āhea wau e ʻike ai i ke kauka?

I mea e noho olakino ai, he mea maikaʻi ke ʻike pinepine i ke kauka a loaʻa nā hoʻokolohua lapaʻau, e like me nā poʻe ʻē aʻe.Hiki i ka ʻike mua ʻana ke kōkua i ka pale ʻana i ka nephropathy IgA mai ka holomua ʻana i ka hāʻule ʻana o ka puʻupaʻa. Eia kekahi, inā loaʻa iā ʻoe nā kūlana ʻē aʻe e hiki ke hoʻopilikia i kou mau puʻupaʻa, e like me ke koko kiʻekiʻe a i ʻole ka maʻi diabetes, he mea nui e hana pū me kāu kauka e mālama pono iā lākou.

I ka manawa hea ʻoe e hele ai i kahi Emergency Treatment Unit (ETU) ?

Inā loaʻa iā ʻoe ka IgA nephropathy a loaʻa nā hōʻailona o ka hāʻule ʻana o ka puʻupaʻa, pono ʻoe e hele koke i ka lumi pilikia kokoke loa. ʻO ia mau hōʻailona:

• ʻO ka manaʻo luhi ma mua o ka maʻamau, ʻo ia hoʻi ka "Luhi".
• Piʻi a emi paha ke alapine (frequency) a i ʻole ka nui o ka mimi ʻana ma mua o ka mea i manaʻo ʻia.
• ʻAʻohe ʻono o ka meaʻai.
• ʻAʻohe hiamoe a paʻakikī paha ke kālele.

He aha nā nīnau koʻikoʻi e nīnau aku ai i ke kauka?

Ke aʻo ʻoe e pili ana i kēia maʻi, nui paha kāu mau nīnau. He mea nui e nīnau i kāu kauka a e wehewehe ʻia lākou. Eia kekahi mau nīnau hiki iā ʻoe ke nīnau:

• Pehea e ʻike pololei ai i ka IgA nephropathy?
• He aha ka lāʻau lapaʻau maikaʻi loa noʻu?
• He aha nā hopena ʻaoʻao o nā lāʻau lapaʻau āu e ʻōlelo nei?
• E kōkua anei ka wehe ʻana i koʻu mau tonsils iaʻu?
• Pono anei au e ʻike i kahi meaʻai meaʻai no nā puʻupaʻa?
• He manaʻo maikaʻi anei iaʻu e lawe i nā mea hoʻohui ʻaila iʻa?
• ʻEhia pinepine e pono ai iaʻu e hana i nā hoʻāʻo koko a me ka mimi?
• E pono anei iaʻu kahi hoʻoili puʻupaʻa?
• Aia kekahi mau hoʻokolohua lapaʻau e kūpono paha iaʻu?
• Hiki iā ʻoe ke haʻi mai iaʻu e pili ana i nā hui kākoʻo no ka poʻe me ka IgA nephropathy?

Hiki ke lilo i mea hoʻohoka nui ka ʻike ʻana he maʻi puʻupaʻa kou. Nui nā ʻike e hiki mai ana i ka noʻonoʻo i ka manawa hoʻokahi, nā hoʻokolohua e hana ʻia, nā manawa e ʻike ai i nā loea ... He mea maʻamau ka manaʻo kaumaha i kēlā mau mea āpau. ʻO ka mea nui loa, ʻo ia ka hanu ʻana a hoʻomaopopo maoli i ke ʻano o ka IgA nephropathy.

No kekahi poʻe, ʻaʻole kēia he mea koʻikoʻi loa, a hiki i nā lāʻau lapaʻau maʻalahi a me nā hoʻokolohua maʻamau ke kōkua i ka mālama ʻana i ka hana o nā puʻupaʻa. No kekahi poʻe, pono ka lāʻau lapaʻau e pale i nā puʻupaʻa. Akā e hoʻomanaʻo, hiki ke mālama ʻia kēia maʻi, a me ka mālama pono ʻana, hiki iā ʻoe ke ola maikaʻi no nā makahiki he nui.

E kiʻi i ke kōkua mai kou ʻohana a me kou mau hoaaloha. Hiki i nā hui kākoʻo no ka poʻe me nā maʻi like ke lilo i wahi maikaʻi e kaʻana like ai i kou mau manaʻo. Mai kānalua e nīnau i ke kauka inā he mau nīnau kāu, e kuʻu hoaaloha.

Leka Hoʻihoʻi Hope Loa

ʻAe, ua kamaʻilio nui mākou e pili ana i ka IgA nephropathy, ʻeā? ʻO ka mea hope loa, eia nā mea nui e pono ai ʻoe e hoʻomanaʻo:

• He mea nui loa ka ʻike mua ʻana: no laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke koko i loko o ka mimi a i ʻole ka pehu ʻana, e ʻike pono i ke kauka.
• E hahai pono i nā ʻōlelo aʻoaʻo lapaʻau: E lawe i ka lāʻau lapaʻau i kuhikuhi ʻia e ke kauka i ka manawa kūpono. E hahai i nā ʻōlelo aʻoaʻo.
• Nā hoʻololi ʻana i ke ʻano o ka nohona: E hahai i nā ʻōlelo aʻo a kāu kauka e pili ana i ka ʻai a me ka hoʻoikaika kino. Inā haʻi lākou iā ʻoe e kāohi i kāu ʻai ʻana i ka paʻakai a me ka protein, e hana pēlā.
• Nā hoʻokolohua lapaʻau maʻamau: E hana i nā hoʻokolohua maʻamau e like me ke kuhikuhi a kāu kauka a e makaʻala i ke kūlana o kou mau puʻupaʻa.
• He maʻi kēia e hiki ke mālama ʻia: Mai hopohopo. Me ka mālama kūpono a me ke ʻano olakino, hiki iā ʻoe ke ola i kahi ola hauʻoli a olakino me ka IgA nephropathy.
• ʻAʻole ʻoe hoʻokahi: loaʻa iā ʻoe ka ʻohana, nā hoaaloha, a me nā kauka e kōkua iā ʻoe. Hiki iā ʻoe ke loaʻa ka ikaika nui i nā hui kākoʻo.

E mālama pono i ke olakino o kou puʻupaʻa, e ke hoa!

ʻO ka Nephropathy IgA, IgA Nephropathy, Maʻi Pūpū, Maʻi Buerger, Koko i loko o ka mimi, Proteinuria, Ka hāʻule ʻana o ka Pūpū, Biopsy Pūpū, Hoʻoili Pūpū