Loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai ka lupus? A laila ua lohe paha ʻoe e hiki i kēia maʻi ke hoʻopilikia i nā ʻāpana he nui o ke kino. Ma waho aʻe o ka ʻili a me nā hono, hiki i ka lupus ke hoʻopilikia i nā puʻupaʻa, he mau ʻāpana koʻikoʻi loa ia i loko o ko mākou kino. I kēia lā e kamaʻilio mākou e pili ana i nā hopena o ka lupus i nā puʻupaʻa, kahi maʻi i kapa ʻia ʻo Lupus Nephritis. Mai hopohopo, e kamaʻilio maʻalahi kākou e pili ana i kēia.
I ka ʻōlelo maʻalahi, he aha ka Lupus Nephritis?
ʻAe, e hoʻomaopopo mua kākou i ke ʻano o Lupus. He maʻi autoimmune ʻo Lupus. ʻO ia hoʻi, ʻo ka ʻōnaehana pale, ka mea e pale ai i ko mākou kino mai nā maʻi, hoʻomaka hewa i ka hoʻouka ʻana i kā mākou mau ʻiʻo olakino a me nā ʻōpū. Ua like ia me ko mākou pūʻali koa ponoʻī e hoʻouka ana i ko mākou ʻāina ponoʻī. ʻO ke ʻano maʻamau o ka lupus ʻo Systemic Lupus Erythematosus (SLE) .
I kēia manawa, ke hoʻouka aku ko kākou ʻōnaehana pale i ko kākou mau puʻupaʻa ma kēia ʻano, hoʻoulu ia i ka mumū, ʻo ia hoʻi, ka pehu ʻana, a me ka hōʻino ʻana i nā puʻupaʻa. ʻO ia ke ʻano a mākou e kapa nei ʻo Lupus Nephritis .
Ua like nā puʻupaʻa me nā kānana ʻelua i loko o ko kākou kino. Inā ʻaʻole lākou e hana pono, hiki ke kū mai nā pilikia nui. Hiki i ka Lupus Nephritis ke hana i nā puʻupaʻa i hiki ʻole ke hana pono i kēia mau mea:
- Ke kānana ʻana a me ka wehe ʻana i nā huahana ʻōpala mai ke koko.
- Ka mālama ʻana i nā pae wai o ke kino, nā paʻakai, nā waikawa, a me nā minelala ma nā pae kūpono.
- Ke kāohi ʻana i ke koko a me ka nui o ke koko.
- Ke hoʻoponopono nei i nā pae hormone.
Inā ʻaʻole mālama pono ʻia kēia kūlana, hiki iā ia ke alakaʻi i ka hāʻule ʻana o nā puʻupaʻa a me nā maʻi puʻupaʻa hope loa, e pono ai ka mālama ʻia no ke ola holoʻokoʻa. No laila, he mea nui loa ka makaʻala i kēia.
ʻO wai ka mea kūpono loa e loaʻa i kēia maʻi?
I mea e loaʻa ai ka Lupus Nephritis, pono mua ke kanaka e loaʻa i ka lupus (SLE). E nānā kākou i ka poʻe i ʻoi aku ka nui o ka pilikia o ka loaʻa ʻana o ka lupus:
- No nā wāhine: ʻEiwa o loko o ka ʻumi o ka poʻe me ka lupus he mau wāhine. Kiʻekiʻe loa ka pilikia no ka poʻe ma waena o 15 a me 44 mau makahiki. Akā, he mea kupanaha, inā loaʻa i ke kāne ka lupus, ʻoi aku ka nui o ka loaʻa ʻana o ka Lupus Nephritis.
- Hoʻoilina: Inā loaʻa ka lupus i kekahi o ka ʻohana, ua pilikia pū kekahi.
- Mana hoʻoilina: ʻOi aku ka maʻamau o kēia maʻi i nā poʻe o ʻAsia, ʻApelika, a me nā kūpuna ʻōiwi o ʻAmelika.
- Nā kumu o ke kaiapuni: Ua manaʻoʻiʻo ʻia ʻo ka hoʻopili ʻana i kekahi mau maʻi, nā maʻi, a me nā kemika ʻawahia ke kumu o kēia.
- Nā maʻi autoimmune ʻē aʻe: Inā loaʻa i kekahi kanaka kahi maʻi autoimmune ʻē aʻe, hiki ke hoʻonui iki ʻia ka pilikia o ka hoʻomohala ʻana i ka lupus.
Ma kahi o 50% o nā pākeke me ka lupus, a i ʻole hoʻokahi i loko o ʻelua, e loaʻa paha i ka lupus nephritis. Ma kahi o 80% o nā keiki me ka lupus, a i ʻole ʻehā i loko o ʻelima, e loaʻa paha i kēia maʻi puʻupaʻa.
He aha nā hōʻailona o kēia?
ʻIke pinepine ʻia nā hōʻailona o ka Lupus Nephritis ma kahi o ʻelima mau makahiki ma hope o ka hoʻomaka ʻana o nā hōʻailona lupus. Eia nō naʻe, i kekahi manawa, ʻo ka hōʻailona mua a hoʻokahi wale nō o ka lupus ʻo ia ka hōʻino ʻia o nā puʻupaʻa. He mea nui e makaʻala i kēia mau hōʻailona.
E noʻonoʻo i kou mau wāwae, ʻoi aku hoʻi kou mau kuʻekuʻe wāwae, ua pehu. A i ʻole ke ala ʻoe i ke kakahiaka, ua pehu kou mau maka. ʻOi aku ka huʻa o kou mimi ma mua o ka maʻamau. ʻO kēia nā hōʻailona mua āu e ʻike ai.
E nānā pono kākou i kēia mau hōʻailona.
| Hōʻailona | He wehewehe maʻalahi |
|---|---|
| Pehu (Edema) | Pehu ma nā wāwae, nā kuʻekuʻe wāwae, nā kapuaʻi wāwae, a i ʻole a puni nā maka ma muli o ka hōʻiliʻili ʻana o ka wai i loko o ke kino. |
| ʻO ka protein i loko o ka mimi (Proteinuria) | Lilo ka mimi i huʻa (e like me nā huʻa kopa) ma muli o ka hoʻokuʻu ʻia ʻana o ka protein i loko o ka mimi. |
| Ke koko i loko o ka mimi (Hematuria) | He koko liʻiliʻi i loko o ka mimi. ʻAʻole paha e ʻike ʻia e ka maka ʻōlohelohe, akā he poni a ʻeleʻele paha ke kala o ka mimi. |
| Ke koko kiʻekiʻe | Hoʻonui ʻia ke koko ma muli o ka hana ʻino o nā puʻupaʻa. |
| Piʻi ke kaumaha | Ka piʻi koke ʻana o ke kaumaha ma muli o ka hōʻiliʻili ʻana o ka wai i loko o ke kino. |
| Nā hōʻailona lupus ʻē aʻe | ʻEha a pehu paha nā hono, ʻehaʻeha nā ʻiʻo, ke kuni i wehewehe ʻole ʻia, a me ka ʻulaʻula ʻano pepeke ma ka maka. |
Pehea e ʻike ai ke kauka i kēia?
Inā loaʻa iā ʻoe kēia mau hōʻailona, e nānā mua kāu kauka iā ʻoe, e nīnau e pili ana i kāu mau hōʻailona a me ka mōʻaukala olakino, a laila e kauoha i kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona.
- Nā hoʻāʻo koko:
- Nā hoʻāʻo koko antibody: Nānā kēia i nā pae kiʻekiʻe o kekahi mau protein (antibodies) i hana ʻia e ka ʻōnaehana pale. ʻOi aku ka maʻamau o kēia mau mea i ka lupus.
- Nā hoʻāʻo hana puʻupaʻa: Ana i nā mea e like me ka creatinine e ʻike ai i ka hana maikaʻi o nā puʻupaʻa.
- Nā hoʻāʻo mimi:
- Urinalysis: Nānā i ka mimi no ke koko, ka protein, a i ʻole nā mea ʻē aʻe.
- Hoʻāʻo protein mimi: Ana i ka nui o ka protein i loko o ka mimi.
- Biopsy o nā puʻupaʻa:
ʻO kēia ke ala maikaʻi loa e ʻike pono ai i ka Lupus Nephritis a hoʻoholo i ka nui o ka hōʻino ʻia o nā puʻupaʻa. Lawe ʻia kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupaʻa me ka hoʻohana ʻana i kahi nila lahilahi a nānā ʻia ma lalo o kahi microscope. Hana pinepine ʻia kēia ma kahi haukapila, ma lalo o ka anesthesia māmā.
He aha nā lāʻau lapaʻau no kēia?
ʻElua mau pahuhopu nui o ka mālama ʻana i ka lupus nephritis. ʻO kekahi, ʻo ia ke kāohi i nā hōʻailona. ʻO kekahi, ʻo ia ke hoʻōki a hoʻolohi paha i ka hōʻino hou ʻana i nā puʻupaʻa. ʻO ka maʻamau, pili ka lāʻau lapaʻau i nā lāʻau lapaʻau a me nā hoʻololi ʻana i ka meaʻai.
| ʻAno lapaʻau | He aha ka mea e hana ʻia ai? |
|---|---|
| Nā lāʻau lapaʻau immunosuppressive | Hana kēia mau lāʻau lapaʻau ma ka kaohi ʻana i ka hiki o ka ʻōnaehana pale e hoʻouka i ko kākou mau puʻupaʻa ponoʻī. ʻO Corticosteroids ka lāʻau lapaʻau i hoʻohana pinepine ʻia no kēia kumu. |
| Nā lāʻau lapaʻau koko | ʻO nā lāʻau lapaʻau e like me nā ACE inhibitors a me nā ARBs e kāohi i ke koko a hoʻemi i ka hoʻokuʻu ʻia ʻana o ka protein i loko o ka mimi, hiki ke hōʻemi i ka hōʻino ʻana i nā puʻupaʻa. |
| Nā lāʻau lapaʻau | Ua kapa ʻia kēia mau mea he 'nā pila wai'. Kōkua lākou i ka hōʻemi ʻana i ka pehu ʻana ma ka hoʻopau ʻana i ka wai keu mai ke kino ma ke ʻano he mimi. Kōkua pū lākou i ka hoʻohaʻahaʻa ʻana i ke koko. |
| Nā loli i ka ʻai | Hiki i kāu kauka ke aʻo aku iā ʻoe e hōʻemi i ke kaumaha ma kou mau puʻupaʻa a hōʻemi i kāu ʻai sodium . Hiki ke noi ʻia ʻoe e kaupalena i nā meaʻai kiʻekiʻe i ka protein e like me ka ʻiʻo a me ka waiū. ʻOi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka a me kahi meaʻai meaʻai e pili ana i kēia a hana i kahi hoʻolālā papaʻai kūpono iā ʻoe. |
Pono anei nā kānaka a pau e hana i ka dialysis?
ʻAʻole. ʻAʻole ia e hana i nā kānaka a pau. Ma waena o 10% a me 30% o ka poʻe me Lupus Nephritis e loaʻa i ka hāʻule ʻana o ka puʻupaʻa. Inā hana ʻia kēlā, pono paha ʻoe e noʻonoʻo i kēia mau lāʻau lapaʻau:
- Dialysis: Ke kaʻina hana o ka kānana ʻana i nā huahana ʻōpala mai ke koko me ka hoʻohana ʻana i kahi mīkini ke hana pono ʻole nā puʻupaʻa.
- Hoʻololi Puʻupaʻa: Hoʻololi ʻoki kino i kahi puʻupaʻa i hāʻule me kahi puʻupaʻa olakino.
I ka manawa hea e pono ai ʻoe e ʻike koke i ke kauka?
Inā loaʻa iā ʻoe ka lupus, e makaʻala i nā loli i loko o kou mau puʻupaʻa. Inā ʻike koke ʻoe i kekahi a ʻoi aku paha o nā hōʻailona ma lalo nei, he hōʻailona paha ia o ka hāʻule koke ʻana o ka puʻupaʻa . Inā hana ʻia kēia , e ʻimi koke i ke kōkua lapaʻau . Inā pono, e hele i ka lumi pilikia o ka haukapila kokoke loa (ETU).E hele.
- ʻeha ka ʻōpū
- Ka paʻakikī o ka mimi ʻana, a i ʻole ka liʻiliʻi loa o ka mimi e hala ʻia ana
- Luhi nui a hiamoe paha
- Mimi huʻa a koko paha
- ʻIli ʻāʻī
- Piʻi koke ke koko
- Makemake nui
- Ka luaʻi a me ka luaʻi
- Paʻakikī ka hanu ʻana
- Pehu kino
Hiki ke paʻakikī ke ola me kēia maʻi, akā me ka mālama pono ʻana a me nā ʻōlelo aʻoaʻo lapaʻau, ua hiki i nā poʻe he nui ke ola i kahi ola maʻamau. ʻO ka mea nui loa, ʻo ia ka mālama mau ʻana i ka launa pū ʻana me kāu kauka a loaʻa i nā hoʻokolohua a me nā lāʻau lapaʻau āu e pono ai.
Leka Lawe-Home
- ʻO ka Lupus Nephritis ka hōʻino ʻana a me ka mumū o nā puʻupaʻa i hoʻokumu ʻia e ka lupus (SLE).
- ʻO ka pehu ʻana o nā wāwae, ka pehu ʻana a puni nā maka, ka mimi huʻa, a me ke koko kiʻekiʻe paha nā hōʻailona nui e pili ana i kēia .
- ʻO ka ʻike mua ʻana a me ka mālama ʻana i kēia maʻi hiki ke hōʻemi nui i ka pōʻino i nā puʻupaʻa.
- Hoʻokomo ʻia ka lāʻau lapaʻau i nā lāʻau immunosuppressive, nā lāʻau lapaʻau koko, a me nā hoʻololi ʻana i ka meaʻai.
- He mea nui loa e hahai pololei i nā ʻōlelo a kāu kauka a hele i nā keʻena lapaʻau i ka manawa kūpono.
- Inā loaʻa nā hōʻailona pilikia, e ʻimi koke i ke kōkua lapaʻau.
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