Ua pau koke anei kāu keiki i ka ʻōlelo ʻana? He Landau-Kleffner Syndrome paha ia?

Ua holo a puni kāu keiki a pāʻani a kamaʻilio nani. Akā, ua emi koke anei kāna ʻōlelo? A i ʻole ua ʻike ʻoe he paʻakikī iā ia ke hoʻomaopopo i kāu mea e ʻōlelo nei? Loaʻa iā ia kekahi manawa nā ʻōʻō? Inā loaʻa i kāu keiki kekahi a ʻoi aku paha o kēia mau mea, pono ʻoe e hana i kekahi noiʻi. No ka mea, ma muli paha kēia o kahi maʻi kakaikahi i kapa ʻia ʻo Landau-Kleffner Syndrome (LKS) . Mai hopohopo, e kamaʻilio kākou e pili ana i kēia me nā kikoʻī.

He aha ka Landau-Kleffner Syndrome?

I ka ʻōlelo maʻalahi, ʻo ka Landau-Kleffner Syndrome (LKS) kahi maʻi e hoʻopilikia ai i ka lolo o kā mākou mau keiki. ʻO ka mea nui i kēia, ʻo ia ka hiki i ke keiki ke ʻōlelo a hoʻomaopopo i ka ʻōlelo (a mākou e kapa nei i ka ʻepekema lapaʻau (Aphasia) ) e emi mālie a koke paha. Eia kekahi, ʻo ka hapa nui o nā keiki me kēia maʻi hiki ke loaʻa i nā hopu ʻana, e kū mai ana i ka wā hiamoe.

E noʻonoʻo e pili ana i ia mea, he nui nā leka uila liʻiliʻi e hele ana i mua a i hope i loko o ko kākou lolo. ʻO kēia mau hōʻailona uila ka mea e kōkua iā kākou e hana pono i ka wā e ʻōlelo ai, lohe, noʻonoʻo, a hana i nā mea āpau. Loaʻa i nā keiki me LKS kekahi ʻano ʻē i loko o kēia ʻōnaehana hōʻailona uila i loko o ko lākou lolo. ʻO ia ke kumu e paʻakikī ai iā lākou ke hoʻomaopopo i ka ʻōlelo a me ka ʻōlelo ʻana.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia kūlana LKS?

ʻO kēia maʻi, i kapa ʻia ʻo LKS, ʻike pinepine ʻia i nā keiki ma waena o 3 a me 8 mau makahiki. Eia nō naʻe, hiki i kekahi manawa ke hoʻopilikia i nā keiki ʻōpiopio e like me 2 mau makahiki, a me nā keiki makua, e like me nā ʻōpio. Ua ʻōlelo ʻia hoʻi he ʻoi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā keikikāne ma mua o nā kaikamahine.

Pehea ka hopena o LKS i kaʻu keiki?

Inā loaʻa i kāu keiki ka LKS, hiki iā lākou ke nalowale koke a lohi paha i ka hiki ke ʻōlelo. Hiki iā lākou ke paʻakikī i ka hoʻomaopopo ʻana i kāu mea e ʻōlelo ai a me nā mea a haʻi e ʻōlelo ai. ʻO kēia ka mea a mākou e kapa nei (aphasia) .

E noʻonoʻo, ua haʻi mua kāu keiki i nā mele, hīmeni i nā mele, a kamaʻilio pū me ʻoe me ka hoʻōki ʻole. Akā i kēia manawa, ʻaʻole ʻo ia e ʻōlelo i hoʻokahi huaʻōlelo, a i ʻole e haka pono ana ʻo ia iā ʻoe ke ʻōlelo ʻoe, me he mea lā ʻaʻole ʻo ia i maopopo i kekahi mea, pehea ka paʻakikī o ka ʻoiaʻiʻo?

Ma kahi o 70% o nā keiki me LKS e loaʻa paha i nā hopu ʻana o ka epileptic, a i ʻole nā ​​​​​​konvulsions, i ka wā hiamoe. Hiki i kekahi mau keiki ke loaʻa i kēia mau hopu ʻana i ke ao.

He like anei ka maʻi Landau-Kleffner me ka autism?

ʻAʻole, he kuhihewa maʻamau kēia. ʻAʻole ʻo ka Landau-Kleffner Syndrome ka autism. Eia nō naʻe, hiki ke like nā hōʻailona o nā mea ʻelua i kekahi manawa, no laila hiki ke paʻakikī ke ʻike i ka ʻokoʻa. Hoʻomaopopo pinepine nā kauka i nā kūlana ʻelua ma ka hana ʻana i nā hoʻokolohua EEG (electroencephalograms) ʻoiai ke ala a hiamoe ke keiki.

Aia kekahi mau inoa ʻē aʻe no LKS?

ʻAe, i kekahi manawa kapa pū nā kauka i kēia maʻi ʻo "Acquired Aphasia me Epilepsy." ʻO ia hoʻi, ʻo ia hoʻi kekahi mea e like me ka "hōʻino ʻōlelo e kū mai me ka epilepsy a loaʻa ma hope."

Pehea ka maʻamau o kēia kūlana LKS?

He maʻi laha ʻole ka Landau-Kleffner Syndrome. He mea paʻakikī i nā kānaka noiʻi ke ʻōlelo pololei i ka nui o ka poʻe i loaʻa iā ia. He mea laha ʻole ia.

He aha ke kumu o ka Landau-Kleffner syndrome?

I ka hapanui o nā hihia, ʻaʻole hiki i ka hapa nui o nā keiki me LKS ke loaʻa kahi kumu kikoʻī no ko lākou kūlana. ʻO kēia ka ʻoiaʻiʻo. No laila, mai noʻonoʻo nui a hoʻāhewa paha iā ʻoe iho.

Eia nō naʻe, ma kahi o 20% o nā keiki me LKS he mau loli (mutations) i loko o kā lākou mau genes. ʻOi aku hoʻi, ua ʻike ʻia nā loli i loko o kahi gene i kapa ʻia ʻo (GRIN2A) e pili ana i kēia. Hiki ke hoʻoilina ʻia kēia mau loli genetic mai kekahi o nā mākua. Eia naʻe, ʻaʻole e loaʻa i nā mea āpau me kēia loli genetic ka LKS. Loaʻa paha i kekahi mau keiki nā loli i nā genes ʻē aʻe. I kekahi manawa, hiki i ke keiki ke loaʻa i kēia mutation gene no ka manawa mua (ua kapa ʻia kēia he de novo mutation ) me ka ʻole o kekahi mea ʻē aʻe o ka ʻohana.

Manaʻo nā kānaka noiʻi ua hana kēia mau loli genetic i kahi hana hewa i loko o ka ʻōnaehana hōʻailona uila o ka lolo, e hana hewa ai kēlā mau hōʻailona. ʻO kēia mau hōʻailona kūpono ʻole ke kumu o nā hōʻailona o LKS.

Ke hana ʻia nei hoʻi ka noiʻi e hoʻoholo ai inā he pilina ma waena o LKS a me ka ʻōnaehana pale o ko mākou kino. Ua manaʻoʻiʻo ʻia ua hiki ke hana ʻia kēia kūlana e kahi pane autoimmune kahi e hoʻouka ai nā pūnaewele ponoʻī o ka ʻōnaehana pale i nā pūnaewele ponoʻī o ke kino.

He aha nā hōʻailona o ka Landau-Kleffner syndrome?

ʻAʻole hōʻike nā keiki āpau me LKS i nā hōʻailona like. Hiki ke ʻokoʻa mai kēlā keiki a kēia keiki.

Inā loaʻa i kāu keiki ʻo LKS, e ʻike paha ʻoe i nā mea e like me:

• Manaʻo ʻaʻole hiki iā ia ke lohe iā ʻoe ke kamaʻilio ʻoe: ʻAʻole paha ʻo ia e pane mai ke kamaʻilio ʻoe me ia. Me he mea lā ʻaʻole ia i lohe iā ʻoe.
• Ka paʻakikī e hoʻomaopopo i kāu mea a me nā poʻe ʻē aʻe e ʻōlelo nei: ʻAʻole paha ʻoe e hiki ke hoʻomaopopo i nā ʻōlelo kuhikuhi maʻalahi.
• Ka emi ʻana a nalowale loa paha o ka ʻōlelo: ʻO ke keiki i ʻōlelo maikaʻi ma mua, ʻaʻole paha e ʻōlelo hou, a i ʻole hiki ke ʻōlelo i kekahi mau huaʻōlelo me ka paʻakikī nui.
• Nā lohi o ka ulu ʻana hou: ʻAʻole hiki ke hana i nā mea ma ke ʻano kūpono i ka makahiki.
• Nā loli noʻonoʻo a i ʻole nā ​​​​pilikia aʻo: E nalowale paha kou hoihoi i nā hana kula a paʻakikī iā ʻoe ke hoʻomanaʻo i nā mea.
• Nā loli ʻano: Hoʻonāukiuki ʻia ke keiki e kēia mau pilikia ʻōlelo, hiki ke alakaʻi iHiki ke loaʻa nā pilikia o ka hana e like me ka hoʻomaha ʻole, ka hiki ʻole ke noʻonoʻo pono (ua like paha kēia me nā hōʻailona o ka Attention-Deficit Hyperactivity Disorder - ADHD), ka huhū, a me ka hoʻomauleʻa.

E noʻonoʻo i ke ʻano o ka manaʻo o kahi keiki liʻiliʻi i ka wā hiki ʻole iā ia ke haʻi aku i kona mau mākua i kāna mea e makemake ai e ʻōlelo, i ka wā ʻaʻole ʻo ia e maopopo i kā lākou mea e ʻōlelo nei? ʻO kēlā manaʻo kōkua ʻole a me ka hoʻonāukiuki ka mea e puka mai i kekahi manawa i kēia ʻano hana.

ʻO nā keiki me LKS ma ke ʻano nui:

• ʻAʻole paha ʻoe e hiki ke ʻōlelo.
• Aia ka manawa kūpono kiʻekiʻe o ka loaʻa ʻana o nā hopu ʻana.
• Aia kekahi manawa kiʻekiʻe aʻe o ka hoʻomohala ʻana i nā maʻi ʻano (e like me ka Attention-Deficit Hyperactivity Disorder - ADHD) .

Pehea e ʻike ai nā kauka i ka maʻi Landau-Kleffner?

ʻO ka maʻamau, ma mua o ka hoʻomaka ʻana o LKS, he mea maʻamau ka ulu ʻana o ke keiki, e like me ke kamaʻilio ʻana a me ka hele wāwae ʻana, no ko lākou mau makahiki. E ʻike koke paha ʻoe i kahi loli i kā lākou ʻōlelo ʻana. A i ʻole, e ʻike paha kāu kauka i kēia mau hōʻailona ke lawe ʻoe i kāu keiki no kahi kipa olakino.

Hiki ke paʻakikī iki ka ʻike ʻana i ka LKS, no laila he mea nui e haʻi i kāu kauka e pili ana i nā loli āu e ʻike ai i ke ʻano o kāu keiki, ʻoiai nā mea liʻiliʻi loa.

He aha nā hoʻokolohua a nā kauka e hoʻohana ai e ʻike i ka LKS?

Hiki i ke kauka o kāu keiki ke ʻōlelo i kēia mau hoʻokolohua:

• Electroencephalogram (EEG): Ke ana kēia i ka hana uila o ka lolo o kāu keiki. He hoʻāʻo ʻeha ʻole kēia. Hiki i ke kauka ke ʻike i ke ʻano o ka hana ʻana o ka lolo o kāu keiki.
• Hana pinepine ʻia kēia hoʻāʻo (EEG) i ʻelua manawa, hoʻokahi i ka wā e hiamoe ana ke keiki a hoʻokahi i ka wā e ala ana . Ke hiamoe mākou, lohi mālie ko mākou mau nalu lolo. Eia naʻe, ke komo mākou i ka hiamoe hohonu (pae hiamoe REM), hana hou nā nalu lolo. Eia naʻe, hōʻike nā moʻolelo (EEG) o nā keiki me LKS e hoʻomau ka hana nalu lolo maʻamau ʻole ma nā pae āpau o ka hiamoe.
• Hoʻāʻo Audiometry / Hoʻolohe: Hana ʻia kēia hoʻāʻo e ʻike inā hiki i ke keiki ke lohe. I kekahi manawa, pono nō hoʻi e nānā inā ʻo ka hemahema o ka lohe ke kumu o nā pilikia ʻōlelo.
• MRI o ko lākou lolo: Kōkua kēia e hōʻoia ʻaʻohe maʻi koʻikoʻi ʻē aʻe, e like me ka puʻupuʻu lolo.
• Ka loiloi ʻana e kahi loea noʻonoʻo: He mea nui kēia e loaʻa ai kahi loiloi o ke ʻano o ke keiki, ka naʻauao, a me nā hiki ke aʻo.

Pehea e mālama ʻia ai ka Landau-Kleffner syndrome?

I ka mālama ʻana i nā keiki me LKS, hoʻohana nui nā kauka i ka lāʻau lapaʻau, ka hoʻōla ʻōlelo, a me ka hoʻōla ʻano . ʻO ka wikiwiki o ka hoʻomaka ʻana o ka hoʻōla ʻōlelo, ʻoi aku ka maikaʻi o ka manawa kūpono o ke keiki e hoʻi hou i kāna mau mākau ʻōlelo.I kekahi manawa, hiki i nā kauka ke ʻōlelo aku i kahi papaʻai kūikawā (ʻai ketogenic) e kāohi i ka maʻi epilepsy.

He aha nā lāʻau lapaʻau i hāʻawi ʻia no LKS?

Hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau e like me:

• Nā lāʻau lapaʻau anticonvulsant: Hoʻohana ʻia kēia mau mea e kāohi i nā hopu ʻana.
• Corticosteroids: Hana kēia ma ka hoʻemi ʻana i ka hana o ka ʻōnaehana pale a me ka kaohi ʻana i nā kūlana e like me ka pehu ʻana i loko o ka lolo.

Hana ʻia ke ʻoki kino no LKS?

He mea kākaʻikahi loa, hiki i nā kauka ke hana i kahi ʻoki lolo i kapa ʻia ʻo Multiple Subpial Transections . Eia nō naʻe, ʻaʻole maopopo i ka nui o ka pōmaikaʻi e hiki ke hōʻoia ʻia mai kēia ʻoki. No laila, he mea nui e nānā pono i nā pono a me nā pōʻino o ke ʻoki ma mua o ka hana ʻana.

ʻEhia ka manawa e ola ai kaʻu keiki ma hope o ka hoʻomaka ʻana o ka lāʻau lapaʻau?

ʻAʻohe mea hoʻokahi "ʻo kēia ke ala maikaʻi loa" e mālama ai iā LKS. Hiki i kāu keiki ke hoʻomaikaʻi mālie me ka hoʻōla ʻōlelo a me nā lāʻau lapaʻau ʻē aʻe. Eia nō naʻe, i kekahi mau hihia, ʻaʻole paha e pane maikaʻi kāu keiki i ka lāʻau lapaʻau. E nānā mau kāu kauka i ke kūlana o kāu keiki a hoʻoponopono i ka hoʻolālā lapaʻau e like me ka mea e pono ai.

He aha kaʻu e hana ai e hōʻemi i ka pilikia o ka loaʻa ʻana o ka Landau-Kleffner syndrome i kaʻu keiki?

He maʻi hoʻoilina ka LKS. ʻO ke ʻano kēia, ʻaʻohe mea hiki iā ʻoe ke hana e pale aku i ka Landau-Kleffner Syndrome a i ʻole e hōʻemi i kou pilikia o ka loaʻa ʻana. ʻAʻole na ʻoe ia hewa.

Hiki ke ho'ōla loa ʻia ka maʻi Landau-Kleffner?

Loaʻa i kekahi mau keiki ko lākou hiki ke ʻōlelo a hoʻomaopopo i ka ʻōlelo. Loaʻa paha i kekahi poʻe kekahi mau mākau ʻōlelo. ʻO nā keiki e hoʻomaka ana i nā hōʻailona ma hope o 6 mau makahiki a hoʻomaka mua i ka hoʻōla ʻōlelo, ʻoi aku ka maikaʻi o ka hoʻōla ʻana. Hoʻopau pinepine nā ʻōhū i ka wā makua.

He aha kaʻu e manaʻo ai inā loaʻa ka LKS i kaʻu keiki?

Hiki ke lōʻihi ka manawa e hoʻōla ai kāu keiki mai ka LKS. E ʻike paha ʻoe i kekahi mau hoʻomaikaʻi i ka hala ʻana o ka manawa. Eia kekahi, i kekahi manawa e hoʻomaikaʻi paha nā mākau ʻōlelo a laila e emi hou (ua kapa ʻia kēia he relapse) . Hiki i kāu kauka ke paipai i nā papa hoʻonaʻauao kūikawā a i ʻole ke aʻo ʻana i ka ʻōlelo lima , ma muli o nā pono o kāu keiki.

He paʻakikī kēia huakaʻi. Akā, ʻaʻole ʻoe hoʻokahi. Aia nā kauka, nā mea lapaʻau ʻōlelo, kou ʻohana, a me nā hoaaloha e kōkua iā ʻoe a me kāu keiki. ʻO ka mea nui loa, ʻo ia ke mālama i kāu keiki me ke aloha a me ke ahonui, me ka haʻalele ʻole i ka manaʻolana.

Pehea e mālama ai i kaʻu keiki me LKS?

E hahai pono i nā ʻōlelo a kāu kauka e mālama i ke olakino o kāu keiki. Inā loaʻa i kāu keiki kekahi mau hōʻailona hou, e hoʻomaopopo koke i kāu kauka. Ma kēia ʻano, hiki iā lākou ke loaʻa koke i ka lāʻau lapaʻau e pono ai.

ʻO ka Landau-Kleffner Syndrome ke kumu o ka nalowale ʻana o ka hiki i nā keiki i ulu maʻamau ke ʻōlelo a hoʻomaopopo i ka ʻōlelo. Loaʻa i nā keiki me LKS ka hana lolo ʻē i ka wā hiamoe a loaʻa pinepine iā lākou nā hopu. Hoʻōla nā kauka iā LKS me ka lāʻau lapaʻau a me ka hoʻōla ʻōlelo. I ka hala ʻana o ka manawa a me ka mālama kūpono, hiki i nā keiki ke loaʻa hou i ko lākou akamai ʻōlelo.

Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

• He maʻi laha ʻole ka LKS akā he maʻi koʻikoʻi: hiki iā ia ke lilo i ke keiki i ko lākou hiki ke ʻōlelo a hoʻomaopopo i ka ʻōlelo.
• He mea maʻamau nā hopu ʻana i ka wā hiamoe: He hiʻohiʻona koʻikoʻi kēia o LKS.
• ʻAʻole loaʻa mau ke kumu: ʻOiai paha he kuleana ko nā kumu genetic i nā manawa he nui, ʻaʻohe paha kumu kikoʻī.
• Mai huikau me ka autism: Hiki ke hoʻokaʻawale ʻia nā mea ʻelua ma o nā hoʻokolohua (EEG).
• He mea nui ka ʻike mua ʻana a me ka mālama ʻana: ʻo ka wikiwiki o ka hoʻomaka ʻana o ka hoʻōla ʻōlelo, ʻoi aku ka maikaʻi o nā hopena.
• ʻOkoʻa ka hoʻōla ʻana mai kēlā keiki a kēia keiki: hoʻōla piha kekahi mau keiki, hoʻōla hapa kekahi. He mea nui loa ke ahonui a me ke kākoʻo mau.
• ʻAʻole ʻoe hoʻokahi: ʻO ke aʻo lapaʻau, ke kākoʻo ʻohana, a me ke aloha nā ikaika nui no ke keiki e lanakila ai i kēia kūlana.

Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā loaʻa i kāu keiki kekahi o kēia mau hōʻailona, ​​e ʻoluʻolu e ʻike i ke kauka kūpono i ka hikiwawe loa.

ʻO ka Landau-Kleffner Syndrome, LKS, epilepsy, nā pilikia ʻōlelo, nā pilikia ʻōlelo, nā maʻi pediatric, ka hana uila o ka lolo, EEG