I kekahi manawa, e kuhikuhi paha kāu kauka i kahi lāʻau lapaʻau me kahi inoa i kamaʻāina ʻole iā ʻoe a i ʻole kekahi o kou ʻohana. ʻO Lonafarnib kekahi o ia mau lāʻau lapaʻau i kuhikuhi ʻia no nā kūlana kikoʻī loa. No laila i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau ma ke ʻano aloha a maʻalahi hoʻi, pehea e hoʻohana ai, a me nā mea āu e pono ai e makaʻala.
He aha maoli ka Lonafarnib?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ʻo Lonafarnib i hoʻohana ʻia e mālama i nā maʻi genetic kakaʻikahi loa e like me ka Hutchinson-Gilford progeria syndrome. Loaʻa pinepine ʻia ia ma lalo o ka inoa inoa ʻo Zokinvy.
ʻO ka mea nui, ʻaʻole kēia he lāʻau lapaʻau no ka maʻi. Akā, kōkua ia i ka hoʻomalu ʻana i nā hopena a me nā hōʻailona o ka maʻi a kōkua i ka mea maʻi e ola i kahi ola maikaʻi aʻe.
Hiki i kāu kauka ke kuhikuhi i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe, no laila inā he mau nīnau kāu, e nīnau i kāu kauka e pili ana i ia mea.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e haʻi i kāu kauka e pili ana i kou mōʻaukala olakino piha. ʻOi loa aku inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei, e hōʻoia e haʻi i kāu kauka.
- Nā maʻi maka: Inā loaʻa iā ʻoe kekahi maʻi pili i ka maka.
- Nā loli i nā pae mineral: Inā ua loaʻa i nā hoʻokolohua ma mua nā pae haʻahaʻa a kiʻekiʻe paha o nā mineral (electrolytes) e like me ka calcium, potassium, a me ka sodium i loko o ke koko.
- Nā pilikia puʻupaʻa: Kekahi ʻano olakino e pili ana i nā puʻupaʻa.
- Maʻi akepaʻa: Kekahi ʻano maʻi e pili ana i ke akepaʻa.
- Nā maʻi ʻaleka: Inā he mau maʻi ʻaleka kou i kēia lāʻau lapaʻau, ʻo Lonafarnib, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā mea hoʻoluʻu.
- Hāpai: Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai.
- Ka hānai waiū ʻana: Inā he makuahine hānai waiū ʻoe.
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e loaʻa ai ka hopena maikaʻi loa mai ka lāʻau lapaʻau, he mea nui e lawe pono.
- Pono e lawe ʻia kēia lāʻau me ka ʻai .
- E ale i ke kāpule holoʻokoʻa me ke aniani wai. Mai nau, kuʻi, a uhaʻi paha i ke kāpule.
- Inā pilikia ʻoe i ka ale ʻana:Inā pilikia koke ʻoe a i ʻole kahi keiki i ka moni ʻana i ke capsule, hiki iā ʻoe ke wehe mālie a kāwili i ka lāʻau lapaʻau i loko me 5-10 ml o kahi wai kūikawā i kapa ʻia ʻo Ora Blend SF, Ora-Plus, wai ʻalani, a i ʻole 1-2 teaspoon o ka applesauce.
- He ʻōlelo aʻo koʻikoʻi loa: Mai lawe, ma lalo o nā kūlana āpau, i kēia lāʻau lapaʻau me ka wai popekala a i ʻole ka wai o nā ʻalani Seville, i kapa ʻia i kekahi manawa he ʻalani ʻawaʻawa.
- Inā hui ʻia ka lāʻau lapaʻau me kekahi mea, pono e inu ʻia ka hui ʻana i loko o 10 mau minuke .
- E hoʻomau i ka lawe ʻana i ka lāʻau a hiki i ka wā e ʻōlelo ai ke kauka e hoʻōki.
Inā hāʻawi ʻoe iā ia i nā keiki liʻiliʻi ...
Paipai pū nā kauka i kēia lāʻau lapaʻau no nā keiki ma luna o 12 mau mahina i kekahi mau hihia kūikawā. Akā hana ʻia ia ma lalo o nā hana palekana kūikawā. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kahi keiki, e kamaʻilio pono me kāu kauka a loaʻa ka ʻōlelo aʻoaʻo.
He aha kāu e hana ai inā e poina ʻoe i kahi lāʻau a lawe nui paha?
Inā ʻoe e poina i kahi mahele o ka lāʻau lapaʻau
Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia ke hoʻomanaʻo ʻoe inā ʻoi aku ma mua o 8 mau hola a hiki i kāu lāʻau lapaʻau aʻe. Eia nō naʻe, inā emi ma mua o 8 mau hola a hiki i kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi.
Overdose
Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, e kāhea koke aku i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo, a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Nā mea e hoʻomanaʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau
- Nā lāʻau lapaʻau ʻē aʻe: Hiki i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe he nui, no laila e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui).
- Ka palekana mai nā maʻi: ʻO ka lawe ʻana i kēia lāʻau lapaʻau e hoʻohaʻahaʻa iki i ka pale ʻana o kou kino. No laila, inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ka puʻu, a i ʻole ke kuni, mai hoʻōla ponoʻī a haʻi i kāu kauka. E hoʻāʻo e noho mamao aku mai ka poʻe maʻi i ka hiki.
- Mālama ʻIke: Makemake paha kāu kauka e nānā i kou ʻike ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau a ʻoiai ʻoe e lawe ana. E haʻi koke i kāu kauka inā ʻike ʻoe i kekahi mau loli i kou ʻike, e like me ka ʻike pōwehiwehi.
- Ka hāpai ʻana a me ka hānau keiki ʻana:He mea nui loa kēia. E pale i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau. Hiki iā ia ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. Inā ʻoe e hoʻolālā ana e loaʻa kahi pēpē, e kamaʻilio me kāu kauka e pili ana i ia mea ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau. Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i ka hānau keiki ʻana i nā kāne a me nā wahine. E kamaʻilio pū me kāu kauka e pili ana i kēia.
Nā hopena ʻaoʻao hiki ke loaʻa
E like me nā lāʻau lapaʻau āpau, hiki i ka Lonafarnib ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o lākou ke koʻikoʻi a pono e hōʻike koke ʻia.
| ʻAno o ka hopena ʻaoʻao | Nā hiʻohiʻona e nānā ai |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka | |
| Ka pōʻino o ke akepaʻa | Melemele o nā maka a i ʻole ka ʻili, ka mimi melemele/ʻeleʻele, ka ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale o ka makemake e ʻai. |
| Ka pōʻino o nā puʻupaʻa | Ka paʻakikī i ka mimi ʻana a i ʻole kahi loli o ka nui o ka mimi e puka mai ana. |
| Nā kūlana maʻi | Kuni, anu, ʻū, ʻeha ka puʻu. |
| Nā loli i nā pae potassium i loko o ke koko | Puʻuwai wikiwiki a ʻano ʻē paha, ʻeha ka umauma, ʻoniʻoni nā ʻiʻo, a me ke poʻo māmā. |
| Anemia | Paʻakikī ka hanu ʻana, keʻokeʻo, luhi loa, maule. |
| Nā loli o ka ʻike | ʻIke pōwehiwehi a i ʻole nā loli ʻē aʻe. |
| Ka nalowale o ka makemake a me ka pohō kaumaha | Ka nalowale ʻana o ka makemake e ʻai a i ʻole ka pohō kaumaha i manaʻo ʻole ʻia. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ʻōpū, nausea, luaʻi, diarrhea. |
| Nā pilikia maʻamau ʻē aʻe | Kuke, ʻeha poʻo, ʻeha hono, ʻeha ʻiʻo, luhi. |
ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mea ʻē, e kamaʻilio me kāu kauka e pili ana i ia mea.
Pehea ʻoe e mālama ai i ka lāʻau lapaʻau?
- E mālama pono, mai hiki i nā keiki a me nā holoholona ke loaʻa.
- E mālama ma ka mahana o ka lumi (ma waena o 20-25 kekelē Celsius). E pale mai ka wela nui a me ka makū.
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Lonafarnib i hoʻohana ʻia no nā kūlana olakino kūikawā loa. E lawe mau e like me ke kauoha a kāu kauka, ma ka nui kūpono.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i nā maʻi ʻē aʻe āu e loaʻa nei a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe kekahi mau hopena koʻikoʻi, e like me nā loli o ka ʻike, ke kuni, a i ʻole nā hōʻailona o ka hōʻino ʻia o ke ake.
- Mai hāpai i ka wā e lawe ana i kēia lāʻau. E kamaʻilio me kāu kauka e pili ana i kēia.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe.
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