Ua kuhikuhi anei kāu kauka iā Luspatercept nou a i ʻole kekahi o kou ʻohana? Inā pēlā, he mea nui e maopopo e pili ana i kēia lāʻau no kou palekana a me ka holomua o kāu lāʻau lapaʻau. No laila i kēia lā, e kamaʻilio pōkole kākou e pili ana i kēia lāʻau, kāna hana, a me nā mea e pono ai ʻoe e makaʻala.
He aha ke ʻano lāʻau lapaʻau ʻo Luspatercept?
I ka ʻōlelo maʻalahi, ʻo Luspatercept kahi lāʻau lapaʻau i hoʻohana ʻia e mālama i kekahi mau kūlana e hoʻoulu ai i ka anemia , kahi kūlana i haʻahaʻa ai nā hunaola koko ʻulaʻula o ke kino. Hoʻohana nui ʻia ia e mālama i ka anemia i hoʻokumu ʻia e nā kūlana e like me ka beta thalassemia, kahi ʻano thalassemia, a me nā myelodysplastic syndromes .
Kōkua kēia lāʻau lapaʻau i ko mākou kino e hana i nā hunaola koko ʻulaʻula hou aʻe. Ua like ia me ka hāʻawi ʻana i ke ola hou i ka hale hana hunaola koko ʻulaʻula o ko mākou kino. Loaʻa pinepine kēia lāʻau lapaʻau ma lalo o ka inoa inoa ʻo `REBLOZYL`.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui e wehewehe pono i kēia mau mea i kāu kauka, no ka mea, he mea nui loa ia no kou palekana.
- Inā ua wehe ʻia kou spleen ma ke ʻoki ʻana .
- Inā he koko kiʻekiʻe kou.
- Inā he moʻolelo kou no nā ʻōpū koko .
- Inā he mea puhi paka ʻoe.
- Inā ua loaʻa iā ʻoe kahi hopena maʻi i ka Luspatercept a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Inā ʻoe e manaʻo nei e hāpai a manaʻo paha ua hāpai mua ʻoe . (He mea nui loa kēia!)
- Inā he makuahine hānai waiū ʻoe.
ʻO kou kuleana ke kamaʻilio me kāu kauka me ka hūnā ʻole i kekahi o kēia ʻike. E kōkua nui ia i ka mālama palekana ʻana i kāu lāʻau lapaʻau.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. He inikini ʻo Luspatercept ma lalo o ka ʻili . Hāʻawi wale ʻia kēia inikini e nā limahana lapaʻau i aʻo ʻia ma kahi haukapila a i ʻole ke keʻena lapaʻau. No laila, ʻaʻohe ou mea e hopohopo ai.
ʻAʻole i ʻāpono ʻia kēia lāʻau lapaʻau no ka hoʻohana ʻana i nā keiki.
He aha inā e piʻi aʻe ka nui o ka lāʻau?
Hāʻawi ʻia kēia ma ka haukapila, no laila ua haʻahaʻa loa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau ma kekahi ʻano, e hele koke i ka haukapila.E hele i ka Emergency Treatment Unit (ETU). Eia kekahi, inā pono, hiki iā ʻoe ke kelepona i ke National Poisons Information Centre ma ka Colombo National Hospital no ka ʻōlelo aʻoaʻo.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
He mea nui loa ka hele ʻana i ka manawa o ke kauka a loaʻa kāu lāʻau lapaʻau i nā lā āna i hāʻawi ai iā ʻoe. Mai hōʻalo i kēia mau manawa no kekahi kumu. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i ka lā i hoʻonohonoho ʻia, e kelepona koke i kāu kauka a i ʻole ke keʻena lapaʻau a e hoʻomaopopo iā lākou.
Nā mea kūikawā e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
E nānā pono kāu kauka i kou kūlana i kou wā e lawe ana i kēia lāʻau lapaʻau. He mea nui hoʻi e hana i nā hoʻokolohua koko maʻamau, e like me ka hana koko, i ka manawa kūpono.
ʻŌlelo aʻo kūikawā e pili ana i ka hāpai ʻana a me ka hānai ʻana i ka waiū:
He mea nui loa kēia! Inā ʻoe e hoʻolālā ana e hāpai i ka wā e lawe ana i kēia lāʻau lapaʻau, a inā paha ʻoe e manaʻo ua hāpai ʻoe, e kamaʻilio koke me kāu kauka. Hiki i kēia lāʻau lapaʻau ke hana i nā kīnā hānau koʻikoʻi i kāu pēpē i hānau ʻole ʻia. No laila, e kamaʻilio me kāu kauka e pili ana i ka hoʻohana ʻana i kahi ʻano palekana o ka kaohi hānau ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau. Eia kekahi, mai hānai i ka waiū i ka wā e lawe ana i kēia lāʻau lapaʻau.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki iā Luspatercept ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| ʻAno o ka hopena ʻaoʻao | Ka wehewehe a me nā hōʻailona |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| ʻAʻa koko | ʻEha wāwae, pehu a mehana paha, paʻakikī ka hanu ʻana, ʻeha umauma. |
| Hoʻonui ʻia ke koko | ʻEha nui ka ʻeha, ka poniuniu, nā loli o ka ʻike. |
| Nā pilikia o ka ʻōnaehana nerve | ʻEha nui ke kua, mae a nāwaliwali paha nā lālā, nalowale ke kaulike, nalowale ke kaohi ʻana i ka ʻōpū a i ʻole ka mimi ʻōpū. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā ʻeha like ʻole | ʻEha iwi, ʻeha hono, ʻeha ʻiʻo, ʻeha ʻōpū. |
| Nā hiʻohiʻona liʻiliʻi ʻē aʻe | ʻEha poʻo, poniuniu, luhi. |
ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe, e ʻoluʻolu e hoʻomaopopo i kāu kauka.
Leka Lawe-Home
- He lāʻau pale ʻo Luspatercept e hoʻonui ai i ka hana ʻana o nā sela koko ʻulaʻula o ke kino a mālama i ka anemia i hoʻokumu ʻia e nā kūlana e like me ka beta thalassemia a me ka myelodysplastic syndrome.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e hōʻoia e haʻi i kāu kauka e pili ana i kou mau maʻi āpau, nā maʻi allergies, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Hāʻawi ʻia kēia lāʻau lapaʻau ma ka haukapila a i ʻole ke keʻena lapaʻau a ʻaʻole loaʻa no ka hoʻohana ʻana ma ka home.
- He mea nui loa: Mai hāpai a pale loa i ka hānai waiū ʻana i ka wā e lawe ana i kēia lāʻau.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe kekahi mau hopena koʻikoʻi, e like me nā hōʻailona o ke koko i hoʻopaʻa ʻia (pehu ʻana i nā wāwae, ʻeha umauma), a i ʻole nā hōʻailona o kahi maʻi ʻaleka koʻikoʻi (pehu ʻana o ka maka).
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