Ua ʻike koke anei ʻoe i kahi ʻokoʻa i kou mau maka, malia paha e ʻike ana i ʻelua ma kahi o hoʻokahi, a i ʻole ke kaumaha nei ʻoe i kou hele ʻana? Ke manaʻo nei hoʻi ʻoe i kahi ʻano hilahila iki i kou kamaʻilio ʻana? ʻAʻole kēia he mau mea wale nō, i kekahi manawa aia paha kahi maʻi kakaikahi ma hope o kēia i kapa ʻia ʻo Miller Fisher Syndrome. I kēia lā, e kamaʻilio mākou e pili ana i kēia me nā kikoʻī, me ka maʻalahi loa.
He aha maoli ka Miller Fisher Syndrome?
I ka ʻōlelo maʻalahi, ʻo Miller Fisher Syndrome kahi maʻi neurological kakaʻikahi kahi e hoʻouka hewa ai ko kākou ʻōnaehana pale ponoʻī i ko kākou mau hunaola nerve olakino. Ua like ia me nā kiaʻi kino ponoʻī o ko kākou kino e hoʻouka ana i ko kākou mau ʻohana ponoʻī.
I kēia kūlana, hoʻopilikia pinepine ʻia nā aʻalolo o kou alo ma mua. ʻOi loa aku i ka wā e hōʻino ʻia ai nā aʻalolo e kaohi ana i kou mau maka, pilikia paha ʻoe i ka hoʻoneʻe ʻana i kou mau maka. ʻAʻole wale kēlā, akā hiki nō hoʻi ke hoʻopilikia i kou kaulike, ka hoʻonohonoho ʻana, a me nā reflexes. I ka manawa pinepine, ʻike ʻia kēia mau hōʻailona ma hope o ka pau ʻana o kahi maʻi viral a bacteria paha.
ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o kēia maʻi?
ʻOiai hiki i kekahi ke loaʻa iā Miller Fisher Syndrome (MFS), ʻoi aku ka nui o ka loaʻa ʻana o ia mea i kekahi poʻe.
- Nā kānaka o ka lāhui ʻĀsia: Ua ʻike ʻia e ka noiʻi ʻana he ʻoi aku ka nui o ka poʻe ma nā ʻāina ʻĀsia e ʻike i kēia ʻano ma mua o nā kānaka ma nā ʻāina Komohana.
- Nā Kāne: ʻOi aku ka nui o ka loaʻa ʻana o kēia i nā kāne ma mua o nā wahine.
- ʻO nā kānaka ma luna o 55 mau makahiki: Me he mea lā e piʻi aʻe ana kēia pilikia me ka makahiki.
He aha ka ʻokoʻa ma waena o ka Miller Fisher Syndrome (MFS) a me ka Gilen-Barre Syndrome (GBS)?
Ua lohe paha ʻoe i ka Guillain-Barré Syndrome (GBS). ʻO Miller Fisher Syndrome (MFS) kahi ʻano like ʻole o GBS. Hāʻule nā mea ʻelua i loko o ka māhele o nā maʻi autoimmune, ʻo ia hoʻi he mau kūlana ia e hoʻouka ai ka ʻōnaehana pale ponoʻī o ke kino iā ia iho. Loaʻa pinepine nā mea ʻelua ma hope o kahi maʻi.
Eia nō naʻe, aia kekahi mau ʻokoʻa koʻikoʻi.
- I ka MFS , hoʻomaka pinepine nā hōʻailona ma nā ʻāpana o luna o ke kino, ʻoiai ke alo a me nā maka.
- Ma GBS , hoʻomaka nā hōʻailona ma nā ʻāpana haʻahaʻa o ke kino (nā wāwae, nā wāwae) a pālahalaha mālie i luna.
- ʻO ka ʻeha o ke kua, ka paʻakikī o ka hanu ʻana, a me ka nāwaliwali o nā ʻiʻo ma nā lālā he mea maʻamau ia i ka GBS.
- ʻO ka GBS kahi maʻi i ʻike pinepine ʻia i loko o ke kaiāulu ma mua o MFS.
He maʻi lele anei ka Miller Fisher Syndrome (MFS)?
He nīnau kēia a ka poʻe he nui e nīnau ai. ʻAʻole, ʻaʻole he maʻi lele ka Miller Fisher Syndrome (MFS).ʻO ke ʻano kēia, ʻaʻole ia e laha mai kekahi kanaka a i kekahi. ʻAʻole ʻoe e ʻike ua launa pū ʻoe me kekahi mea i loaʻa i kēia maʻi.
Pehea ka maʻamau o kēia ʻano?
He maʻi laha ʻole ʻo Miller Fisher Syndrome (MFS). Ma ka honua holoʻokoʻa, hoʻokahi a ʻelua paha kānaka i loko o hoʻokahi miliona e hoʻopilikia ai. No laila hiki iā ʻoe ke ʻike i kona laha ʻole.
He aha nā hōʻailona o ka Miller Fisher Syndrome (MFS)?
Hiki ke ʻike koke ʻia nā hōʻailona o kēia maʻi a ulu aʻe i loko o kekahi mau lā. ʻO ka hapa pinepine, ʻike ʻia kēia mau hōʻailona ma kahi o 10 mau lā ma hope o kahi maʻi viral a bacteria paha. Eia nō naʻe, i kekahi manawa ʻaʻole paha e ʻike ʻia nā hōʻailona no kekahi mau pule.
ʻO nā hōʻailona nui i ʻike ʻia e ka hapa nui o nā kānaka:
- Nā pilikia kaulike: Hiki iā ʻoe ke manaʻo me he mea lā e nalowale ana kou kaulike i kou hele ʻana.
- Nā loli i ke ʻano hele wāwae: Hiki paha iā ʻoe ke hoʻomaka e hele ma ke ʻano ʻē a ʻokoʻa ma mua o kou hele mau ʻana.
- Diplopia a i ʻole ka ʻike maka pohihihi: Hiki i kēia ke ʻano o nā mea ʻelua a i ʻole ka ʻike maka pohihihi.
- Ptosis a i ʻole ka paʻakikī i ka kaohi ʻana i nā ʻiʻo maka: Hiki ke ʻike ʻia kekahi a i ʻole nā liʻiliʻi ʻelua e kūlou ana. He mea paʻakikī paha ke kaohi i nā ʻano helehelena.
- Nalowale paha nā reflexes tendon ma nā wahi e like me ke kuʻekuʻe wāwae, ke kuli, a me ka lima. Hiki ke ʻike ʻia kēia ke kīkēkē ʻia e ke kauka me ka hāmare liʻiliʻi.
- Paʻakikī i ka hoʻoneʻe ʻana i nā maka: He mea paʻakikī paha ke hoʻoneʻe i nā maka mai kēlā ʻaoʻao a i kēia ʻaoʻao, i luna a i lalo.
- Nā neʻe ʻana o nā ʻiʻo kūpono ʻole a haunaele paha: ʻAʻole paha ʻoe e hiki ke hoʻomalu pono i kou mau lālā, e hoʻolilo ana i kāu mau hana i mea haunaele.
E noʻonoʻo, aia kekahi kanaka i kapa ʻia ʻo Nimal. Ma kahi o hoʻokahi pule i hala aku nei, ua loaʻa iā ia kahi anu nui a ua hoʻōla ʻia. I kēia manawa, ua hele koke ʻo ia me ka ʻōʻopa, e like me ka mea i inu. I kona nānā ʻana i ke aniani, ʻike ʻo ia ua iho iki kekahi o kona mau lihilihi maka. I kona nānā ʻana i ke TV, ʻike ʻo ia i ʻelua kiʻi i ka manawa hoʻokahi. ʻO kēia ka mea hiki ke hana.
Ma waho aʻe o kēia mau hōʻailona nui, hiki i kekahi poʻe ke loaʻa nā hōʻailona e like me:
- Paʻakikī ka hanu ʻana
- Ka nāwaliwali o nā ʻiʻo ma nā lima a me nā wāwae
- Paʻakikī ke ale ʻana
- Ka nāwaliwali o ke alelo
He aha ke kumu o ka Miller Fisher Syndrome (MFS)?
I mea e pololei ai, hana ʻia ka MFS i ka wā e hoʻomaka hewa ai ko kākou ʻōnaehana pale kino, i ka pane ʻana i kahi maʻi, e hoʻouka i ko kākou mau aʻalolo ponoʻī. ʻO ia hoʻi, ʻoiai e hakakā ana i kahi germ i komo i ke kino, hoʻouka hewa ko kākou mau cell pale ponoʻī i nā cell aʻalolo olakino, me ka manaʻo he ʻenemi lākou.
ʻO kekahi mau maʻi viral a me bacteria e hiki ai ke hana i ka MFS:
- ʻO ka maʻi Campylobacter - He maʻi ʻōpū kēia e kū pinepine mai ana mai ka meaʻai i haumia ʻia.
- ʻO Haemophilus influenzae - He bacteria kēia e hoʻoulu ai i nā maʻi o ka ʻōnaehana hanu.
- Ka maʻi pale ʻole kanaka (HIV)
- Mononucleosis (Mononucleosis - Epstein-Barr virus) - He kuni kēia i kapa ʻia hoʻi ʻo "ka maʻi honi".
- ka maʻi Zika
He mea kēia i loaʻa mai nā hanauna mai?
ʻOiai aia kekahi mau hōʻike e hiki ke hoʻoilina ʻia ka MFS, he mea kakaikahi loa ia no ʻelua mau kānaka i ka ʻohana hoʻokahi ke loaʻa i ka maʻi, no laila ʻaʻohe hōʻike e hōʻike ana ua laha ʻia ma ke ʻano genetic.
Pehea ʻoe e ʻike pono ai inā loaʻa iā ʻoe ka Miller Fisher Syndrome (MFS)?
ʻO ka mea pōʻino, ʻaʻohe hoʻokolohua hoʻokahi e hiki ke hoʻomaopopo pono i ka MFS. E nānā ke kauka iā ʻoe, e nānā pono i kāu mau hōʻailona, a lawe i kāu mōʻaukala olakino (ʻoi aku hoʻi nā maʻi hou). Inā ua loaʻa iā ʻoe ke kuni a ʻeha paha ka ʻōpū, pono ʻoe e haʻi i kāu kauka e pili ana i ia mea.
Inā kānalua kāu kauka he MFS kou, hiki iā lākou ke hana i kekahi mau hoʻokolohua, e like me:
- Nā hoʻāʻo koko: Hiki i kēia ke nānā i nā pae kiʻekiʻe o kekahi mau ʻano antibodies i loko o ke koko. ʻO nā antibodies nā protein a kā mākou ʻōnaehana pale e hana ai e hakakā i nā maʻi. Ma MFS, hiki ke loaʻa kahi ʻano antibody kikoʻī (Anti-GQ1b antibodies) i nā pae kiʻekiʻe i loko o ke koko.
- Electromyography (EMG): Ke ana kēia i ka maikaʻi o ka pane ʻana o kou mau ʻiʻo i nā hōʻailona mai kou mau aʻalolo.
- Haʻawina hoʻoili aʻalolo (NCS): Ke ana kēia hoʻāʻo i ka wikiwiki o ka hele ʻana o kahi hōʻailona uila ma ke aʻalolo. Hiki ke lohi kēia wikiwiki ma MFS.
- ʻO ke kī ʻana o ka iwi kuamoʻo/lumbar puncture: Pili kēia i ka lawe ʻana i kahi hāpana liʻiliʻi o ke wai a puni kou iwi kuamoʻo a hoʻāʻo iā ia no kekahi mau antibodies a me nā pae protein kiʻekiʻe.
Pehea e mālama ʻia ai ka Miller Fisher Syndrome (MFS)?
ʻAʻohe lāʻau lapaʻau no ka Miller Fisher Syndrome (MFS). Eia nō naʻe, aia nā lāʻau lapaʻau e hiki ke kōkua i ka pale ʻana i kāu ʻōnaehana pale mai ka hoʻouka ʻana i nā aʻalolo olakino. ʻO ka wikiwiki o kou hoʻomaka ʻana i kēia mau lāʻau lapaʻau, ʻoi aku ka maikaʻi o nā hopena.
ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia:
- ʻO ka lāʻau lapaʻau Intravenous Immunoglobulin (IVIG): ʻO kēia ka hāʻawi ʻana i kou kino i ka plasma i hoʻomaʻemaʻe ʻia (ka ʻāpana wai o kou koko) a me nā antibodies olakino mai nā mea hāʻawi olakino. Kōkua kēia mau antibodies olakino i ka pale ʻana i kāu mau antibodies ponoʻī mai ka hoʻouka ʻana i nā ʻiʻo olakino.
- Hoʻololi plasma / Plasmapheresis: Pili kēia i ka lawe ʻana i kou koko, kānana ʻana i ka plasma, kahi paha e loaʻa ai nā antibodies ʻino, a hoʻihoʻi i ke koko i koe i kou kino. Ua like ia me ka "hoʻomaʻemaʻe" ʻana i kekahi o kou koko.
- Hoʻoponopono kino: E hana pū ʻoe me kahi mea hoʻoponopono kino a i ʻole ka mea hoʻoponopono hana e hana i nā hoʻoikaika kino a me ke aʻo ʻana e hoʻihoʻi i ka ikaika o nā ʻiʻo, ka maʻalahi, a me ka hoʻonohonoho ʻana. E aʻo lākou iā ʻoe i nā ʻano hana e hoʻomaikaʻi ai i kou kaulike, ka hele ʻana, a me nā hana o kēlā me kēia lā.
Hiki ke pale ʻia ka Miller Fisher Syndrome (MFS)?
ʻO ka mea pōʻino, ʻaʻohe ala kikoʻī e pale aku ai i ka ulu ʻana o ka Miller Fisher Syndrome (MFS), no ka mea, ke kumu ia o kahi loli i ke ʻano o ka hana ʻana o kā mākou ʻōnaehana pale ponoʻī.
Eia nō naʻe, hiki iā ʻoe ke hana i nā hana e pale aku iā ʻoe iho mai nā maʻi viral a me bacteria e hiki ai ke hana i kēia. ʻO ia hoʻi:
- E hōʻemi i ka pilina kokoke me ka poʻe maʻi.
- E uhi i kou waha a me kou ihu i ka wā e ʻū ai a e kihe ana.
- E hoʻomaʻemaʻe i nā ʻili i hoʻopā pinepine ʻia (nā ʻūpā puka, nā papa ʻaina) me ka disinfectant.
- Mai hoʻopā i kou maka me ka holoi ʻole ʻana i kou mau lima.
- E holoi pinepine i kou mau lima me ke kopa a hoʻohana paha i ka mea hoʻomaʻemaʻe lima.
He aha ka wā e hiki mai ana no kekahi me Miller Fisher Syndrome (MFS)?
Ma ke ʻano laulā, maikaʻi ka nānā ʻana no ka poʻe me kēia maʻi. Kākaʻikahi ka make. ʻAʻole hoʻi ia e hoʻoulu i nā pilikia olakino koʻikoʻi no ka wā lōʻihi. Hoʻōla ka hapa nui o ka poʻe i loko o ʻelua a ʻeono mahina. ʻOiai paha he mau kīnā liʻiliʻi kekahi poʻe no kekahi manawa, hoʻi ka hapa nui o ka poʻe i ke ola maʻamau.
Āhea wau e ʻike ai i ke kauka?
Inā loaʻa koke iā ʻoe nā pilikia me nā reflexes, ka hoʻonohonoho ʻana, a i ʻole ka neʻe ʻana o nā ʻiʻo, e ʻike koke i ke kauka. Hiki ke like nā hōʻailona o ka Miller Fisher Syndrome (MFS) me nā maʻi ʻē aʻe e hoʻopilikia ai i nā aʻalolo a me nā ʻiʻo.
Hiki ke hopohopo ke ʻike i kekahi mau loli i kou mau maka, nā ʻiʻo, a i ʻole ke kaulike. Akā e hoʻomanaʻo, he maʻi laha ʻole ka MFS, no laila, mai manaʻo he MFS kou no ka mea he mau hōʻailona kēia. Eia naʻe, he hōʻailona ia e hewa ana kekahi mea. No laila, inā manaʻo ʻoe i kekahi ʻano ʻoluʻolu ʻole e like me kēia, ʻoi aku ka maikaʻi o ka ʻike ʻana i ke kauka i ka wā hikiwawe. A laila hiki i ke kauka ke nānā i kou mau ʻiʻo, nā aʻalolo, a me ke olakino holoʻokoʻa a hana i kahi hoʻolālā lapaʻau kūpono loa iā ʻoe.
ʻO ka mea nui e hoʻomanaʻo mai nā mea a mākou i kūkākūkā ai (Leka Lawe-Home)
ʻAe, i kēia manawa ua maopopo iā ʻoe ka Miller Fisher Syndrome a mākou i kamaʻilio ai i kēia lā. Eia kekahi mau mea e hoʻomanaʻo ai:
- He maʻi neurological laha ʻole ka MFS.
- ʻO ka mea e hana ʻia ana ma kēia , ʻo ia ka hoʻouka ʻana o ko kākou ʻōnaehana pale ponoʻī i ko kākou mau aʻalolo ponoʻī.
- ʻO nā hōʻailona nui ka pilikia o ka maka (ʻike pālua, ʻūmiʻi, paʻakikī i ka hoʻoneʻe ʻana i nā maka), nā pilikia kaulike, a me nā reflexes i hōʻino ʻia.
- ʻAʻole kēia he maʻi lele.
- Hoʻomaʻamaʻa pinepine ʻia ma hope o kahi maʻi viral a bacteria paha.
- ʻOiai ʻaʻohe hoʻāʻo kikoʻī, hiki ke ʻike ʻia ma o nā hōʻailona a me kekahi mau hoʻokolohua ʻē aʻe.
- Hiki i nā lāʻau lapaʻau e like me IVIG a me ka hoʻololi plasma ke hāʻawi i nā hopena maikaʻi.
- Hoʻōla ka hapa nui o ka poʻe i loko o kekahi mau mahina.
- Inā ʻike ʻoe i kēia mau hōʻailona, e ʻimi koke i ke kōkua lapaʻau.
Mai hopohopo, akā he mea nui e makaʻala. Makemake au iā ʻoe a me kou ʻohana i ke olakino maikaʻi!
ʻO ka Miller Fisher Syndrome, nā maʻi neurological, ka ʻōnaehana pale, ka maʻi Gilen-Bere, ka ʻike maka, ke kaulike, ka nāwaliwali o nā ʻiʻo
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