Ua noʻonoʻo paha ʻoe i ke ʻano kupaianaha a paʻakikī o ko kākou lolo? Hoʻomalu kēia ʻōkana liʻiliʻi i ko kākou mau manaʻo a pau, kēlā me kēia neʻe ʻana, a me kēlā me kēia hoʻomanaʻo. No laila, pono ka lolo i ke kahe mau ʻana o ke koko e hāʻawi ana i ka oxygen a me nā meaʻai. Akā e noʻonoʻo i ka mea e hana ʻia inā e ālai ʻia nā aʻa nui e lawe ana i ke koko i ka lolo? I kēia lā, e kamaʻilio mākou e pili ana i kekahi maʻi kakaikahi, akā he mea nui loa e makaʻala. ʻO ia ka maʻi Moyamoya.
I ka ʻōlelo maʻalahi, he aha ʻo Moyamoya?
He maʻi ka hahau ʻana e hoʻopilikia ai i nā kīʻaha koko i loko o ko kākou lolo. Ma ke ʻano lapaʻau, he maʻi ia o ka lolo. ʻElua mau kīʻaha koko nui i loko o ko kākou ʻāʻī e lawe ana i ke koko i ka lolo, i kapa ʻia ʻo nā aʻa carotid. I ka hahau ʻana, hoʻokahi a i kekahi manawa ʻelua o kēia mau aʻa nui e ʻāwili mālie a paʻa. Hiki iā ia ke hoʻopilikia i kekahi aʻa koʻikoʻi ʻē aʻe i loko o ka lolo, ʻo ia hoʻi nā aʻa lolo. ʻO kēia nā kīʻaha koko nui e hoʻolako ana i ke koko i nā ʻaoʻao mua o ko kākou lolo.
E noʻonoʻo ʻoe ua ālai ʻia ka paipu wai nui e lawe mai ana i ka wai i kou hale. He aha ka mea e hana ʻia a laila? ʻAʻohe wai. No laila, hoʻāʻo ia e kiʻi i ka wai mai nā paipu liʻiliʻi i loko o ka hale. Pēlā nō ko kākou lolo. Ke ālai ʻia ke kīʻaha koko nui, hana ka lolo i nā kīʻaha koko liʻiliʻi a lahilahi hou e hoʻopiha ai i ka nele. Ua like kēia me nā alanui ʻaoʻao. Akā ʻo ka pilikia, ua nāwaliwali loa a lahilahi kēia mau kīʻaha koko hou. No laila, ʻaʻole hiki ke hoʻolako ʻia me ke koko e like me ke aʻa koko nui. Hiki i kēia mau aʻa koko nāwaliwali ke pohā i kekahi manawa. I ia mau hihia, hiki i ka maʻi Moyamoya ke hoʻoulu i ke kahe koko i loko o ka lolo (Brain hemorrhage). Eia kekahi, hiki ke loaʻa nā maʻi koʻikoʻi e like me ka hahau ʻana no ka mea ʻaʻole lawa ke koko i ka lolo.
No ke aha i kapa ʻia ai kēia ʻo "Moyamoya"?
He huaʻōlelo Kepanī ʻo "Moyamoya". ʻO ia hoʻi, "e like me ka puhi uahi." I ka wā i hana ai nā kauka Kepanī i ʻike mua i kēia maʻi i kahi angiogram o nā kīʻaha koko i loko o ka lolo, ua ʻike lākou ua huikau ka pūnaewele o nā kīʻaha koko liʻiliʻi i hana hou ʻia e like me ka puhi uahi. ʻO ia ke kumu i kapa ʻia ai kēia maʻi ʻo "Moyamoya."
He aha nā hōʻailona o ka maʻi moyamoya?
ʻO nā hōʻailona nui o kēia maʻi, ʻo ia ka emi ʻana o ke kahe koko i ka lolo. I kekahi manawa, ʻike mua ʻia ka maʻi ma hope o ka hahau ʻana a i ʻole kekahi mau hoʻouka kaua ischemic transient (TIA). I kekahi manawa, ua kapa ʻia kēia mau hahau liʻiliʻi he "mini-strokes." ʻO ke ʻano kēia, hele mai a hele aku nā hōʻailona o ka hahau ʻana no kekahi manawa.
E nānā kākou i kekahi o nā hōʻailona maʻamau e ʻike ʻia ma kēia maʻi.
| Hōʻailona | He wehewehe maʻalahi |
|---|---|
| ʻO ka hahau ʻana a i ʻole nā haʻi liʻiliʻi (TIAs) | Nā hōʻailona e like me ka mae ʻole ma kekahi ʻaoʻao o ke kino, ka paʻakikī i ka ʻōlelo ʻana, a me ke kūlou ʻana o kekahi ʻaoʻao o ka maka. Hoʻopau pinepine kēia mau hōʻailona ma hope o kekahi manawa pōkole i nā TIA. |
| Ke kahe koko o ka lolo | Hiki ke kahe ke koko i loko o ka lolo ke pohā kahi kīʻaha koko liʻiliʻi a nāwaliwali. Hiki i kēia ke hana i kahi ʻeha poʻo nui. |
| ʻEha poʻo | ʻEha poʻo pinepine, i kekahi manawa koʻikoʻi. |
| Nā hopu ʻana | ʻO ka hiki ʻana mai o nā kūlana kūpono. |
| Nā neʻe ʻana i kāohi ʻole ʻia | Neʻe nā ʻāpana o ke kino, e like me nā lālā, me ke kāohi ʻole ʻia. |
| Nā lohi o ka hoʻomohala ʻana | Inā pili kēia maʻi i nā keiki ʻōpio, ʻoi aku hoʻi, e lohi paha lākou i ko lākou ulu ʻana a me ke aʻo ʻana. |
| Nā pilikia sensory | Nā pilikia me ka ʻike, ka lohe, ke honi, ka pā, a i ʻole ka ʻono. |
He aha ke kumu o ka maʻi Moyamoya?
ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike ʻia ke kumu maoli o kēia maʻi.Akā, manaʻoʻiʻo nā kānaka noiʻi aia kahi pilina genetic i kēia. ʻO ia hoʻi, hiki ke hoʻoili ʻia ma o nā hanauna. ʻOiai he mea maʻamau kēia maʻi i waena o ka poʻe Kepanī, ua ʻike ʻia aia kekahi pilina i loko o kā lākou mau genes. Ua ʻike ʻia i kēia manawa e hiki i nā loli i loko o kahi gene i kapa ʻia ʻo `RNF213` ke kōkua i kēia.
I kekahi manawa, hiki ke hana ʻia kēia hanana Moyamoya me nā kūlana olakino ʻē aʻe. A laila kapa mākou iā ia ʻo Moyamoya syndrome. Eia kekahi laʻana:
- ʻO ka maʻi Down
- Maʻi Graves
- ʻAno Neurofibromatosis 1
- Maʻi ʻeha o ke kelepona ʻokiʻoki
- Atherosclerosis
ʻO ke kanaka me nā maʻi e like me ia, aia i ka pilikia o ka loaʻa ʻana o kahi maʻi i kapa ʻia ʻo Moyamoya.
ʻO wai ka mea i loaʻa pinepine i kēia maʻi?
He maʻi laha ʻole ʻo Moyamoya. Kākaʻikahi ka hōʻike ʻia ʻana ma nā ʻāina e like me Sri Lanka. Akā, he mea nui e makaʻala i kēia maʻi.
- Hiki ke ulu kēia maʻi i kēlā me kēia makahiki, akā ʻoi aku ka maʻamau i nā keiki ma waena o 5 a me 10 mau makahiki a me nā pākeke ma waena o 30 a me 50 mau makahiki .
- ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī, ʻoi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā wahine ma mua o nā kāne.
- ʻIke pinepine ʻia kēia maʻi i waena o ka poʻe ma Iapana a me nā ʻāina ʻē aʻe o ʻAsia Hikina.
Pehea ʻoe e ʻike pololei ai i kēia maʻi?
Inā loaʻa iā ʻoe nā hōʻailona a mākou i kūkākūkā ai ma mua, e nānā mua kāu kauka iā ʻoe a nīnau iā ʻoe e pili ana i kāu mau hōʻailona. A laila, inā he kānalua no ka maʻi moyamoya, e paipai lākou i kekahi mau hoʻokolohua kūikawā e hōʻoia iā ia.
| Hoʻāʻo | He aha kāu e hana ai me kēia? |
|---|---|
| ʻO ka arteriography cerebral | ʻO kēia ka hoʻāʻo maikaʻi loa e ʻike ai i kēia maʻi. Ma kēia hoʻāʻo, hoʻokomo ʻia kahi paipu liʻiliʻi (catheter) i loko o kahi aʻa koko ma ka lima a i ʻole ka wāwae, a hoʻokomo ʻia kahi kala kūikawā i loko o nā kīʻaha koko ma o ia mea. A laila lawe ʻia nā kiʻi X-ray e ʻike i ka lahilahi o nā kīʻaha koko a me ke kahe maikaʻi ʻana o ke koko. |
| ʻO ka MRA Scan (Magnetic Resonance Angiography) | He hoʻāʻo ʻeha ʻole kēia e hoʻohana ana i kahi kahua magnetic a me nā nalu lekiō e kiʻi i nā kiʻi kikoʻī o nā kīʻaha koko i loko o ka lolo. |
| ʻIke MRI (Kiʻi Resonance Magnetic) | Hoʻohana ʻia kahi ʻano hana like me MRA e nānā i ke kūlana o ka ʻiʻo o ka lolo. Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā he pōʻino i ka lolo ma muli o ka emi ʻana o ke kahe koko. |
Aia kekahi lāʻau lapaʻau no ka maʻi moyamoya?
ʻAe, aia nā lāʻau lapaʻau e mālama ai i kēia maʻi. ʻElua mau pahuhopu nui o ka lāʻau lapaʻau. ʻO kekahi e kāohi i nā hōʻailona. ʻO kekahi e hoʻomaikaʻi i ke kahe koko i ka lolo a hoʻemi i ka pilikia o nā maʻi koʻikoʻi e like me ka hahau ʻana.
1. Ka mālama ʻana me ka lāʻau lapaʻau
Hiki i ke kauka ke kuhikuhi i nā lāʻau lapaʻau like ʻole ma muli o ke kūlana o ka mea maʻi.
- ʻAspirin: Kōkua kēia lāʻau lapaʻau i ka pale ʻana i nā ʻūpā koko a hoʻomaʻamaʻa i ke kahe koko ma o kēlā mau kīʻaha koko liʻiliʻi.
- Nā lāʻau lapaʻau antiseizure: Inā hoʻoulu ka maʻi i nā hopu epileptic, hāʻawi ʻia kēia mau lāʻau lapaʻau e kāohi iā lākou.
- Nā Anticoagulants: ʻOiai ke kōkua nei kēia i ka pale ʻana i nā ʻaʻa koko, ʻōlelo wale nā kauka i kēia mau mea i nā hihia kūikawā loa ma muli o ka pilikia o ke kahe ʻana o ke koko.
- Nā mea pale i ke kahawai kalipuna: Hiki i kēia ke kōkua i ka hōʻemi ʻana i nā hōʻailona e like me ke poʻo ʻeha. Eia nō naʻe, hiki iā lākou ke hoʻohaʻahaʻa i ke koko, kahi e hoʻonui ai i ka pilikia o ka hahau ʻana, no laila e hoʻohana pono ʻia.
ʻO ka mea nui loa, ʻaʻole hiki i nā lāʻau lapaʻau ke hoʻōki i ka lahilahi o nā kīʻaha koko , no laila hiki ke ʻoi mālie ka maʻi.
2. Lapaʻau ʻoki kino (ʻoki kino bypass)
Inā ʻaʻole hiki ke kāohi ʻia ka maʻi me nā lāʻau lapaʻau, a inā e ʻoi mālie ka ʻino, hiki i ke kauka ke ʻōlelo aku i ke ʻoki kino. Ua kapa ʻia kēia ʻo ke ʻoki bypass.
I ka ʻōlelo maʻalahi, pili kēia i ka hana ʻana i kahi ala hou no ke kahe ʻana o ke koko i ka lolo, e kāpae ana i kahi kīʻaha koko i paʻa. Pili kēia i ka lawe ʻana i kahi aʻa olakino e hoʻolako pinepine ana i ke koko i ke poʻo a hoʻopili iā ia i kahi kīʻaha koko i loko o ka lolo. Ua like ia me ke kūkulu ʻana i kahi ala lele hou e kāpae i kahi alanui paʻahana. Hiki i kēia ʻoki kino ke hoʻonui i ka nui o ke koko e hiki aku ana i ka lolo, e hōʻemi nui ana i ka pilikia o ka hahau ʻana.
E wehewehe pono aku kāu kauka iā ʻoe i ke ʻano o ke ʻoki kino ʻoi loa iā ʻoe, a me kona mau pono a me nā hemahema.
Āhea e ʻimi ai i ke kōkua lapaʻau pilikia? Nā hōʻailona o ka hahau ʻana (FAST)
He mea nui loa i kekahi me ka maʻi Moyamoya ke ʻike i nā hōʻailona o ka hahau ʻana . ʻO ka wikiwiki o ka loaʻa ʻana o ka lāʻau lapaʻau, ʻo ka emi ʻana o ka hōʻino ʻana i ka lolo hiki ke pale ʻia. Hoʻohana ʻia ka acronym FAST e kōkua iā ʻoe e hoʻomanaʻo i nā hōʻailona o ka hahau ʻana.
| Nā Hōʻailona o ka Hahau ʻana (WIKIWIKI) - E hana koke! | |
|---|---|
| F - Maka | Ke ʻāʻī nei kekahi ʻaoʻao o kou maka? Ke ʻoniʻoni nei kekahi ʻaoʻao o kou maka i kou minoʻaka ʻana? |
| A - Nā Mea Kaua | Hiki iā ʻoe ke hāpai i nā lima ʻelua? Ke hāʻule nei kekahi lima i lalo? |
| S - ʻŌlelo | Ke huikau nei ke kamaʻilio ʻana? Ke ʻōhumu nei ʻoe? He paʻakikī anei ke ʻōlelo i kahi ʻōlelo maʻalahi? |
| Manawa T | Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, mai hoʻokaʻulua. E hele koke i ka ʻOihana Pilikia (ETU) o ka haukapila a i ʻole e kāhea i kahi kaʻa kaʻa. He mea nui ka manawa! |
Ma waho aʻe o kēia mau mea, ʻo nā hōʻailona e like me ka huikau koke, ka mae ʻole ma kekahi ʻaoʻao o ke kino, nā pilikia ʻike, ka paʻakikī i ka hele wāwae, a i ʻole ka ʻeha poʻo nui a hiki ʻole ke hoʻomanawanui ʻia hiki ke lilo i mau hōʻailona o ka hahau ʻana.
I ka wā e noho ai me kēia maʻi, inā ʻike mua ʻia ka maʻi a mālama pono ʻia, hiki i ka hapa nui o ka poʻe ke ola i kahi ola maʻamau. Inā ʻaʻole mālama ʻia, hiki i ka maʻi ke lilo i mea koʻikoʻi a make paha. No laila, he mea nui loa ka makaʻala i nā hōʻailona a hahai pololei i nā ʻōlelo a ke kauka.
Leka Lawe-Home
- He maʻi laha ʻole ka maʻi Moyamoya kahi e emi mālie ai a ālai ʻia ke aʻa nui e hoʻolako ana i ke koko i ka lolo.
- Hiki i kēia ke alakaʻi i ka emi ʻana o ke kahe koko i ka lolo, e alakaʻi ana i nā kūlana koʻikoʻi e like me ka hahau ʻana a i ʻole ke kahe koko o ka lolo.
- ʻO nā hōʻailona nui e like me nā hōʻailona e like me ka hahau ʻana, ka ʻeha poʻo, a me nā hopu ʻana.
- Hiki ke mālama pono ʻia ka maʻi ma ka ʻike mua ʻana a me ka mālama ʻana me ka lāʻau lapaʻau a i ʻole ke ʻoki ʻana.
- Inā ʻoe a i ʻole kekahi āu i ʻike ai e ʻike nei i nā hōʻailona o ka hahau ʻana (FAST), pono ʻoe e hele koke i ka Emergency Department (ETU) o ka haukapila. ʻO ka hoʻonele ʻana i ka manawa hiki ke hoʻonui i ka hōʻino ʻana o ka lolo.
- Inā he kānalua a nīnau paha kāu e pili ana i kēia, e kamaʻilio me kāu kauka no ka ʻōlelo aʻo.
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