Aia anei kēia maʻi ʻaʻai i piha i ka "jelly" i loko o kou ʻōpū? E aʻo kākou e pili ana iā Pseudomyxoma Peritonei (PMP)!

Ua loaʻa anei iā ʻoe ka ʻeha o ka ʻōpū, ka manaʻo o ka piha, a i ʻole ka paʻa mau ʻana o ka ʻōpū? I kekahi manawa manaʻo mākou he mau mea maʻamau kēia, akā i nā hihia kakaikahi, aia paha kekahi kumu ʻē aʻe ma hope o kēia mau hōʻailona. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi kanesa kakaikahi loa, akā he mea nui loa. ʻO ia ke ʻano i kapa ʻia ʻo 'Pseudomyxoma Peritonei', a mākou e kapa nei hoʻi ʻo '(PMP)' no ka pōkole.

He aha ka Pseudomyxoma Peritonei (PMP)?

I ka ʻōlelo maʻalahi, ʻo ka 'Pseudomyxoma Peritonei' he ʻano maʻi kanesa kakaikahi loa. ʻO ka mea e hana ʻia ma kēia, ʻo ia ka piha ʻana o loko o kou lua ʻōpū, ʻo ia hoʻi, ka ʻōpū a me kona wahi e pili ana (`(peritoneal cavity)`) me nā hunaola kanesa. Hoʻopuka kēia mau hunaola kanesa i nā nui he nui o kahi mea like me ka jelly, slimy i kapa ʻia ʻo ``mucin`` . E noʻonoʻo, ua like ia me ka piha ʻana o loko o kou ʻōpū me ka jelly! ʻO ia ke kumu i kapa ai kekahi poʻe i kēia maʻi he ``jelly belly belly.``

ʻO ke ʻano o ka inoa "Pseudomyxoma Peritonei" he mea like ia me ka "tumor mucinous wahaheʻe o ka lua peritoneal." Kāhea nā kauka i kēia he "tumor wahaheʻe" no ka mea ʻaʻole ia e like me nā maʻi ʻaʻai ʻē aʻe e hoʻomaka ana ma kahi hoʻokahi a pālahalaha. Hoʻomaka maoli ia me kahi puʻupuʻu liʻiliʻi i kapa ʻia he "polyp" e hana ʻia i loko o kāu appendix, ʻo ia hoʻi ka appendix .

Ke puka mai kēia polyp mai loko mai o ka appendix, hoʻomaka nā hunaola kanesa e hana ana i kēlā mea like me ka jelly aʻu i ʻōlelo ai e pālahalaha ma loko o ka ʻōpū. I ka hala ʻana o ka manawa, hiki i kēia ke hoʻopilikia i kāu ʻōnaehana hoʻoheheʻe.

He aha nā hōʻailona a mākou e ʻike ai ke hoʻomohala mākou i ka PMP?

ʻIke pinepine ʻia nā hōʻailona o ka PMP me ka koke ʻole. ʻAʻole paha ʻoe e ʻike iā lākou i ka wā mua, a i ʻole manaʻo paha ʻoe he mea maʻamau lākou, e like me ka paʻa ʻana o ka ʻōpū a i ʻole ka ʻōpū ʻana. Akā inā hoʻomau a ʻoi aku paha ka ʻino o kēia mau hōʻailona, ​​pono ʻoe e hopohopo.

Eia kekahi o nā hōʻailona nui:

• ʻŌpū me ka pehu: ʻIke ʻia ka pehu ʻana a me ka hoʻonui ʻia ʻana o ka ʻōpū.
• ʻEha ʻōpū: Hiki i kēia mea like me ka jelly i loko o ka ʻōpū ke manaʻo e like me ka ʻoluʻolu ʻole a i ʻole ka ʻeha nui.
• Paʻa ʻana: Hiki i ka pehu ke ālai i ka ʻōpū nui a hoʻopaʻakikī i ka hele ʻana i ka ʻōpū.
• Paʻakikī i ka hāpai ʻana: No nā wahine ma ke ʻano kūikawā, hiki ke paʻakikī ke hāpai i kahi keiki ma muli o ke kaomi i hoʻokumu ʻia e kēia ʻōpū i piha i ka jelly a i ʻole ka mumū o nā ʻōpū hānau.
• Hernias: ʻO ka hoʻonui ʻia o ke kaomi i loko o ka ʻōpū hiki ke hana i kekahi o kou mau kino e puka i waho ma o nā ʻiʻo. I nā kāne, ʻo ka hernia inguinal kahi hōʻailona maʻamau o PMP.
• ʻAʻohe ʻono o ka meaʻai.
• Ka luaʻi.

I kekahi manawa, hiki i ke kauka ke loaʻa i kēia maʻi 'PMP' i ka wā mua o kāu nānā makahiki a i ʻole i ka wā e hoʻāʻo ai iā ʻoe no kekahi maʻi ʻē aʻe. Akā ʻike ka hapa nui o ka poʻe i ia mea ke hoʻomau a ʻoi aku ka ʻino o ko lākou mau pilikia ʻōpū.

No ke aha e hana ʻia ai kēia PMP? He aha ke kumu?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo i nā loea ke kaulahao o nā hanana e alakaʻi ai i ka PMP. Akā ua ʻike lākou e hoʻomaka ia me kahi ulu liʻiliʻi i kapa ʻia he polyp ma ka appendix. Mai laila mai, hele nā ​​​​pūnaewele kanesa e hana ai i ka mucin i loko o ka ʻōpū.

E hoʻomanaʻo, he maʻi laha ʻole loa ka `PMP`. Hoʻopilikia ia i hoʻokahi a ʻehā mau kānaka i hoʻokahi miliona i kēlā me kēia makahiki. No laila, mai makaʻu nui ʻoe i ka lohe ʻana i kēia.

Pehea e ʻike ai nā kauka inā loaʻa iā lākou ka PMP?

Ke hele ʻoe e ʻike i ke kauka, e nīnau lākou iā ʻoe e pili ana i kāu mau hōʻailona. Pehea ka lōʻihi o kou loaʻa ʻana iā lākou, a inā paha e ʻoi aku ka ʻino? A laila e hana lākou i kahi hoʻokolokolo kino. E kauoha pū lākou i nā hoʻokolohua koko a me nā hoʻokolohua kiʻi.

Nā hoʻāʻo koko

Hiki i kāu kauka ke kauoha i kahi helu koko piha (CBC). Hiki iā lākou ke kauoha i nā hoʻokolohua koko e ʻimi i nā māka puʻupuʻu. He mau mea kēia e hiki ke hōʻike he maʻi kanesa kou i loko o kou kino.

Nā hoʻokolohua kiʻi

Hiki ke hana i nā hoʻāʻo e ʻike ai inā ua hoʻonui ʻia kou mau ʻōpū ʻōpū, piha i ka wai (ascites), a i ʻole he hōʻiliʻili ʻana o ka mucin, e like me ka "ʻōpū jelly":

• ʻO ka ultrasound ʻōpū.
• He scan CT.
• He kiʻi MRI.

Eia kekahi, hiki i ke kauka ke hana i kahi biopsy nila, ʻo ia hoʻi ka lawe ʻana i kahi hāpana liʻiliʻi o ka wai a i ʻole ka ʻiʻo mai loko mai o kou ʻōpū. E nānā kekahi kauka lapaʻau i ka hāpana ma lalo o kahi microscope (cytology). I kekahi manawa hiki ke hana ʻia kahi laparoscopy e nānā i loko o kou ʻōpū a lawe i nā hāpana ʻiʻo.

He aha nā lāʻau lapaʻau no ka PMP? Hiki ke ho'ōla ʻia?

Aia ka lāʻau lapaʻau i nā kumu he nui, me kou kūlana a me kou olakino holoʻokoʻa. I kekahi mau hihia, hiki i nā kauka ke mālama a ho'ōla iā Pseudomyxoma Peritonei.

ʻO ka hapa nui, pili kēia lāʻau i ke ʻoki kino. Pili kēia i ka wehe ʻana i nā ʻōpū āpau i loaʻa nā hunaola kanesa. Hiki ke hāʻawi ʻia iā ʻoe ka chemotherapy (intraperitoneal chemotherapy) i ka wā o ke ʻoki kino. Akā e hana wale ke kauka ʻoki kino i kēia inā hiki i ke ʻoki kino ke wehe i ka hapa nui a i ʻole ke kanesa a i ʻole ka mucin. Hana ʻia kēlā hoʻoholo i ka wā o ke ʻoki kino.

Aia nā ʻano hana like ʻole e mālama ai i ka PMP.

Eia kekahi laʻana, inā he mucin kou i loko o kou ʻōpū liʻiliʻi a i ʻole ka ʻōpū nui, e hana kāu kauka i kahi ʻoki ʻōpū . Aia kekahi mau ʻano hana ʻē aʻe e wehe ai i nā ʻāpana kikoʻī:

• Cholecystectomy: Ka wehe ʻana i kou gallbladder.
• ʻO ka Hysterectomy me ka bilateral salpingo-oophorectomy : Wehe ʻana i kāu mau ʻōpū fallopian, ovaries, a me ka uterus.
• ʻO ke capsulectomy ake: Ke wehe ʻana i kahi ʻāpana o ka ʻili o kou ake.
• Omenectomy: Wehe ʻana i ka papa momona ma mua o ka ʻōpū .
• Peritonectomy : Wehe ʻana i ka membrane e uhi ana i loko o kou ʻōpū a me ka pelvis (peritoneum).
• Splenectomy : Wehe ʻana i kou spleen.

He aha nā pilikia e hiki ke hana i ka wā o ke ʻoki kino?

Ke hana ʻia ʻoe i ke ʻoki kino e wehe i nā ʻōpū, aia mau ka manawa kūpono o nā pilikia e like me ke kahe koko nui , ka maʻi, a i ʻole ka leaka anastomotic . Hiki i nā ʻoki kino nui ke hoʻoulu i nā pilikia e hoʻoweliweli i ke ola. Ua ʻōlelo ʻia ma kahi o hoʻokahi a ʻelua pakeneka (1-2%) o nā maʻi e make ma hope o ke ʻoki kino nui. No laila, he mea nui e kūkākūkā i kēia mau mea āpau me kāu kauka.

Aia kekahi mau lāʻau lapaʻau ʻē aʻe i pili ʻole i ke ʻoki kino?

I kekahi manawa, hiki i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau ʻē aʻe ʻaʻole ʻokiʻoki, e like me:

• Nānā ikaika : Inā loaʻa iā ʻoe ka PMP mua, a inā he ʻano ʻino loa ia, a ʻoi aku ka nui o ka pilikia o ke ʻoki ʻana ma mua o ka pilikia o ka maʻi, hiki i kāu kauka ke kuhikuhi i ka nānā ikaika. Pili kēia i kāu kauka e nānā mau i kou olakino. Hiki iā lākou ke hana i nā hoʻokolohua kiʻi a me nā hoʻokolohua koko e ʻike ai inā e laha ana ka PMP.
• Mālama palekana : Inā ʻaʻole hiki iā ʻoe ke hana ʻoki kino, hiki i kāu kauka ke ʻōlelo i nā lāʻau lapaʻau e like me ka chemotherapy a i ʻole ka radiation therapy e hiki ke kaohi i ke kūlana PMP a hōʻemi i nā hōʻailona.

I kēia manawa, ke noiʻi nei nā kauka i ka hoʻoili ʻana o ka ʻōpū liʻiliʻi ma ke ʻano he lāʻau lapaʻau no ka poʻe me PMP i loko o ka ʻōpū liʻiliʻi.

He aha ke ʻano o ka wā e hiki mai ana e hiki i kekahi me ka PMP ke manaʻo?

I kekahi mau hihia, hiki i ke ʻoki ʻana e wehe i nā hunaola kanesa āpau i loko o ka ʻōpū ke kōkua i ka kaohi ʻana i ka maʻi no ka manawa lōʻihi . Hiki i nā lāʻau lapaʻau ʻē aʻe ke kōkua iā ʻoe e ola me ka maʻi no kahi manawa lōʻihi.

I ke kamaʻilio ʻana e pili ana i ka "helu ola", ʻo ka mea nui e hoʻomanaʻo ai, he maʻi laha ʻole kēia. ʻO ke ʻano kēia, he kakaikahi ka poʻe e loaʻa ana iā ia. Ke aʻo nei nā kānaka noiʻi i kā lākou ʻike e pili ana iā ia mai nā hui liʻiliʻi o ka poʻe. Inā loaʻa iā ʻoe kēia maʻi, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka e pili ana i kēia noiʻi "helu ola" a pehea e pili ai i kou kūlana.

Pehea e mālama ai iaʻu iho? (Mālama ponoʻī)

Inā ua hana ʻia ʻoe i ke ʻoki kino e wehe i nā hunaola kanesa a i ʻole e wehe i kekahi mau ʻōkana, he mea nui e hoʻomanaʻo he pono i kou kino ka manawa a me ka hoʻomaha e ho'ōla ai. No ka laʻana, inā hana ʻia ʻoe i ke ʻoki kino e wehe i kou ʻōpū, e wehewehe kāu kauka pehea e pili ai kēia iā ʻoe.

Inā koho ʻoe i ka mālama palliative, pono paha ʻoe e hana i nā lāʻau lapaʻau maʻi kanesa e like me ka chemotherapy a me ka radiation therapy no ke koena o kou ola. He mea nui e noho ikaika a hahai pono i nā ʻōlelo a kāu kauka.

I ka manawa hea e pono ai iaʻu ke ʻike i ke kauka?

Inā loaʻa iā ʻoe ka 'PMP', pono ʻoe e hoʻomaopopo i kāu kauka i nā hihia aʻe:

• Inā loaʻa nā pilikia ma hope o ka mālama ʻana. Eia kekahi laʻana, inā he nui ke kahe koko ma hope o ke ʻoki ʻana, a inā he mau hōʻailona o ka maʻi ma ka ʻeha ʻoki.
• Inā ʻoi aku ka ʻino o nā hopena ʻaoʻao o ka lāʻau lapaʻau ma mua o kou manaʻo.
• Inā loaʻa nā hōʻailona o ka 'Pseudomyxoma Peritonei' e hoʻi hou mai ma hope o ke ʻoki ʻana.

ʻO ka mea hope loa, ʻo ka leka koʻikoʻi loa (Leka Lawe-Home)

He maʻi laha ʻole a paʻakikī hoʻi ka Pseudomyxoma Peritonei (PMP). ʻAʻole maopopo i nā loea ke kumu o kona ulu ʻana. Loaʻa paha iā ʻoe no ka manawa lōʻihi a ʻaʻole ʻoe e ʻike i nā loli nui i kou kino. Ke ʻike ʻia nā hōʻailona, ​​hiki ke maʻalahi e like me ka paʻa ʻana o ka ʻōpū a i ʻole ka pehu ʻana.

No laila, he mea hoʻohoka paha ka ʻike ʻana ua hoʻokumu ʻia kāu mau hōʻailona e kahi maʻi laha ʻole. Hiki ke kaumaha ke haʻi ʻia aku e pili ana ka lāʻau lapaʻau i ke ʻoki ʻana e wehe i hoʻokahi a ʻoi aku paha o nā kino i loko o kou ʻōpū. Hiki ke paʻakikī ke hoʻomaopopo i kēia mau mea a pau i ka manawa hoʻokahi.

Akā, mai hopohopo. Ua maopopo i kāu mau kauka he nui paha kāu mau nīnau - malia paha he mau nīnau like i nā manawa he nui. I kou aʻo ʻana e pili ana i kāu mau koho lapaʻau a noʻonoʻo i kāu mau hana aʻe, makemake lākou e lohe i nā mea āpau ma kou manaʻo. ʻO kou kuleana ia. ʻO ka noho ʻana i kahi kūlana noʻonoʻo maikaʻi he mea kōkua nui ia i ka mālama ʻana.

ʻO Pseudomyxoma Peritonei, PMP, maʻi ʻaʻai, lua ʻōpū, mucin, ʻōpū jelly, appendix, ʻoki kino