Ke manaʻo nei ʻoe i kekahi manawa ua maloʻo loa kou waha, e like me ka pōpō pulupulu? A i ʻole he ʻano wela a ʻā paha kou mau maka, me he mea lā he one kou i loko o kou mau maka? ʻOiai ke manaʻo nei mākou he mau mea maʻamau kēia, i kekahi manawa hiki ke lilo i mau hōʻailona o kahi mea ʻē aʻe e hana nei i loko o ko mākou kino. I kēia lā ke kamaʻilio nei mākou e pili ana i kekahi ʻano maʻi, ʻo Sjogren's Syndrome. ʻOiai he maʻi lōʻihi kēia, ʻaʻohe mea e hopohopo ai. Me ka mālama kūpono, hiki iā ʻoe ke ola i kahi ola maʻamau a hauʻoli.
I ka ʻōlelo maʻalahi, he aha ka Sjogren's Syndrome?
He mea maʻalahi loa kēia e hoʻomaopopo. Loaʻa i ko mākou kino kahi ʻōnaehana pale, kapa mākou ia he ʻōnaehana pale . ʻO nā hunaola koko keʻokeʻo ia e hakakā ana i nā germs a me nā virus e komo i loko o ko mākou kino a pale iā mākou mai nā maʻi. Eia nō naʻe, he maʻi autoimmune ka Sjogren's Syndrome .
I ka ʻōlelo maʻalahi, hana hewa kā mākou ʻōnaehana pale ponoʻī a hoʻomaka e hoʻouka i kā mākou mau hunaola olakino ponoʻī ma kahi o nā huakini haole. Maanei, kuhikuhi nui kēia hoʻouka ʻana i nā glands e hana ana i ka makū i loko o ko mākou kino. ʻO ia hoʻi, nā glands e hana ana i nā waimaka a me nā glands e hana ana i ka lawai i loko o ka waha . No laila, ke hōʻino ʻia kēia mau glands, ʻaʻole hiki iā lākou ke hana i nā waimaka a me ka lawai pono. ʻO ka hopena, maloʻo nā maka, ka waha, a me nā ʻāpana ʻē aʻe o ke kino.
He mea maʻamau ke hopohopo iki i ka wā e ʻike ai ʻoe he maʻi kēia no ke ola holoʻokoʻa. Akā e hoʻomanaʻo, ʻo ka hapa nui o ka poʻe me Sjogren e ola maikaʻi ana a ʻaʻole pinepine lākou e loaʻa i nā pilikia koʻikoʻi.
No ke aha e hana ʻia ai kēia? He aha nā kumu pilikia?
ʻAʻole maopopo loa i nā kauka ke kumu o kēia, akā aia kekahi mau kumu i manaʻo ʻia e kōkua i ia.
- Ka mana hoʻoilina : Loaʻa paha i kāu mau genes kahi predisposition iki i ka hoʻomohala ʻana i kēia maʻi.
- Ke kumu: Hiki i kahi maʻi bacteria a viral paha ke hana ma ke ʻano he kumu no ka hoʻomaka ʻana o kēia maʻi.
E noʻonoʻo i kēia ʻano. Loaʻa iā ʻoe kahi kīnā genetic e pili ana i ka maʻi Sjogren, a loaʻa iā ʻoe kahi mea e like me ke kuni viral. A laila hoʻomaka kāu ʻōnaehana pale. Akā ma muli o kēlā kīnā genetic, hoʻomaka nā hunaola koko keʻokeʻo e hoʻouka ʻaʻole wale i nā germs, akā i nā glands e hana ai i kā mākou lawai a me nā waimaka. No ka mea ke hoʻomau nei kēia kaua, inā ʻaʻole ʻoe e loaʻa i ka lāʻau lapaʻau, e hoʻomau nā hōʻailona.
Eia kekahi, aia kekahi mau kumu pilikia ʻē aʻe:
- Makahiki: ʻO ka maʻamau, ulu nui ia i nā poʻe ma luna o 40 mau makahiki, akā hiki ke ulu pū i nā poʻe ʻōpio a me nā keiki.
- Kāne: ʻOi aku ka nui o nā wahine i kēia maʻi ma mua o nā kāne he 10 mau manawa.
- Nā maʻi autoimmune ʻē aʻe: Ma kahi o ka hapalua o ka poʻe me Sjogren's he maʻi autoimmune ʻē aʻe kekahi, e like me ka lupus a i ʻole ka rheumatoid arthritis.
He aha nā hōʻailona o ka maʻi Sjogren?
ʻAʻole like kēia mau hōʻailona no kēlā me kēia kanaka. Loaʻa i kekahi poʻe hoʻokahi a ʻelua paha, aʻo kekahi poʻe he nui paha. E nānā kākou i ke ʻano o kēia mau hōʻailona.
| Hōʻailona | Wehewehena |
|---|---|
| Nā Hōʻailona Nui a me nā Hōʻailona Maʻamau | |
| Waha maloʻo | Ua like ke ʻano o loko o ka waha me ka pōhaku lepo a i ʻole ka pulupulu. Hiki ke paʻakikī ke ʻōlelo a me ke ale ʻana i ka meaʻai. Hiki i kēia ke alakaʻi i ka pala o nā niho, ka maʻi ʻāʻī, a me ka thrush waha (candidiasis). |
| Nā maka maloʻo | Ke kuni, ka maneʻo, kahi manaʻo ʻōniʻoniʻo i nā maka. Hiki ke loaʻa ka ʻike i ka mālamalama (nā maka polū) a me ka ʻike pōwehiwehi. |
| Nā Hōʻailona ʻē aʻe | |
| Maloʻo ma nā wahi ʻē aʻe o ke kino | ʻĀʻī maloʻo, lehelehe, ʻili, a me ka ihu. Wahine maloʻo. |
| ʻEha kino a me ka pehu | Pehu ʻana o nā hono, ʻeha, a me ka ʻoʻoleʻa. ʻEha nā ʻiʻo. Nā ʻōpū pehu ma ka ʻāʻī a me ka maka. |
| Nā ʻano laulā ʻē aʻe | Luhi mau. Paʻakikī i ka noʻonoʻo a me ka hoʻomanaʻo ʻana. ʻEha poʻo. ʻŌhūhū ʻili a me ka ʻike i ka lā. ʻŪhū maloʻo a pōkole paha ka hanu. |
ʻElua ʻano o ka maʻi Sjogren
E ke kauka, hiki iaʻu ke haʻi aku iā ʻoe e pili ana i ʻelua ʻano o kēia maʻi:
1. ʻO ka maʻi Sjogren mua: ʻO ke ʻano kēia, loaʻa iā ʻoe ʻo Sjogren wale nō, me ka ʻole o nā maʻi ʻē aʻe.
2. ʻO ka maʻi Sjogren lua: ʻO ke ʻano kēia ua hele pū ʻia ka maʻi Sjogren me kahi maʻi ʻē aʻe o ka ʻōnaehana pale, e like me ka rheumatoid arthritis a i ʻole lupus.
Pehea e ʻike ai i ka maʻi?
Ma muli o ke ʻano like o nā hōʻailona o kēia maʻi me nā maʻi ʻē aʻe (e.g., fibromyalgia) a pinepine pū me nā maʻi ʻē aʻe o ke kino, hiki i kekahi manawa ke paʻakikī iki ka ʻike ʻana.
E nānā kāu kauka iā ʻoe a nīnau i nā nīnau e like me:
- Ke ʻā mau nei kou mau maka? Ke wela nei lākou?
- Palaho mau anei kou mau niho?
- Ua maloʻo anei kou waha a me kou lehelehe?
- Loaʻa iā ʻoe ka ʻeha a i ʻole ka ʻoʻoleʻa i kou mau hono?
A laila, e kauoha lākou i kekahi mau hoʻokolohua e hōʻoia i ka maʻi.
- Nā hoʻāʻo koko: Ke ana kēia i nā pae o nā antibodies i loko o kou koko, a me ka mumū i loko o kou kino. He nui ka poʻe me Sjogren's he mau ʻano antibodies kikoʻī i loko o ko lākou koko.
- Nā hoʻāʻo maka a me ka waha:
- Hoʻāʻo Schirmer: No ka ʻike ʻana i ka maloʻo o kou mau maka, kau ʻia kahi ʻāpana pepa liʻiliʻi ma lalo o ka lihilihi o lalo a ana ʻia ka nui o nā waimaka.
- Ka nānā ʻana i ke kukui ʻoki: Ua nānā ʻia ka ʻili o ka maka me kahi mea hoʻonui.
- ʻO ka biopsy salivary gland: Lawe pinepine ʻia kahi ʻāpana liʻiliʻi o ka salivary gland mai ka lehelehe lalo a nānā ʻia.
Pehea e mālama ai a hoʻokele?
ʻAʻole hiki ke ho'ōla loa ʻia kēia maʻi, akā he nui nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona a ola i kahi ola olakino.
Lapaʻau no nā maka maloʻo
Hiki i kāu kauka ke kuhikuhi i nā kulu maka i kapa ʻia ʻo 'nā waimaka hana'. Pono ʻoe e hoʻohana iā lākou i ke ao holoʻokoʻa. Aia kekahi mau gels mānoanoa e hoʻohana ai i ka pō. Inā ʻaʻole kōkua kēia mau mea, hiki ke kuhikuhi ʻia kahi lāʻau lapaʻau e like me '(Restasis)'. ʻO kekahi lāʻau lapaʻau ʻo 'punctal occlusion'. Maanei, ua kau ʻia kahi plug liʻiliʻi i loko o nā ala waimaka e ālai iā lākou. ʻAe kēia i nā waimaka e noho ma ka maka no ka manawa lōʻihi a mālama iā ia i ka pulu.
Lapaʻau no ka waha maloʻo
Hiki i ke kauka ke ʻōlelo aku i nā lāʻau lapaʻau e like me ka pilocarpine, ka mea e hoʻoulu ai i ka hana ʻana o ka lawai i loko o ka waha. Aia pū kekahi mau pīpī lawai hana. ʻO ka mea nui loa, ʻo ia ke ʻike pinepine i ke kauka niho a mālama i kou olakino niho. No ka mea, i ka wā e emi ai ka lawai, piʻi aʻe ka pilikia o ka palaho niho.
Lapaʻau no nā hōʻailona ʻē aʻe
Hiki ke mālama ʻia ka ʻeha o nā hono me nā lāʻau ʻeha a i ʻole nā lāʻau lapaʻau e like me ka hydroxychloroquine. I kekahi manawa, inā pilikia nā ʻōpū o loko o ke kino, hiki ke kuhikuhi ʻia nā steroids e like me ka prednisone a i ʻole methotrexate no kahi manawa pōkole. Hoʻoholo ʻia kēia mau mea a pau e kāu kauka.
ʻO nā ʻano hana maʻalahi hiki iā ʻoe ke hana ma ka home
Me ke kōkua o ka lāʻau lapaʻau, hiki iā ʻoe ke loaʻa ka hōʻoluʻolu nui mai nā hana maʻalahi hiki iā ʻoe ke hana ma ka home.
- Waha maloʻo:
- E inu liʻiliʻi i ka wai i ka lā a pau.
- ʻO ka nau ʻana i ka gum kō ʻole a i ʻole ka nau ʻana i ka lozenge hiki ke hoʻonui i ka hana ʻana o ka lawai.
- E hōʻalo i nā meaʻai ʻala, paʻakai, ʻawaʻawa, a me nā mea maloʻo (e like me nā biscuits).
- E palaki i kou mau niho i ʻelua manawa i ka lā. Mai hoʻohana i nā mea holoi waha i loaʻa ka waiʻona.
- E pale loa i ka puhipaka a me ka pili ʻana i ka uahi o ka cigarette.
- Nā maka maloʻo a me ka ʻili:
- E pale i nā wahi me ka uahi, ka lepo, a me nā makani ikaika.
- E hoʻomaha mau i ka wā e hoʻohana ai i ke kamepiula.
- E hoʻohana i kahi humidifier e mālama i ka makū i loko o ka hale.
- E hoʻohana i ka wai mehana ma kahi o ka wai wela i ka wā e ʻauʻau ai.
- E hoʻopili i kahi moisturizer maikaʻi i kou ʻili i kēlā me kēia lā.
Leka Lawe-Home
- He maʻi ka Sjogren's Syndrome i hoʻokumu ʻia e kahi hana hewa i loko o kā mākou ʻōnaehana pale ponoʻī. Mai hopohopo, ʻaʻole ia he mea laha.
- ʻO nā hōʻailona nui ka waha maloʻo a me nā maka . Eia kekahi, hiki ke ʻike ʻia nā hōʻailona e like me ka ʻeha o nā hono a me ka luhi.
- ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia kēia maʻi, me ka mālama pono ʻana i nā lāʻau lapaʻau a me nā loli maʻalahi o ke ʻano o ka nohona, hiki ke kaohi maikaʻi ʻia nā hōʻailona a hiki ke alakaʻi ʻia i kahi ola maʻamau.
- Inā loaʻa iā ʻoe kēia mau hōʻailona, e ʻoiaʻiʻoE ʻike i kāu kauka a e kiʻi i ka ʻōlelo aʻoaʻo.
- E mālama pono i kou olakino niho. E ʻike pinepine i ke kauka niho.
ʻO ka maʻi Sjogren, waha maloʻo, maka maloʻo, nā maʻi autoimmune, ʻeha hui, maʻi autoimmune
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