Hiki paha i kāu pēpē ke loaʻa kēia pilikia 'huna' me ko lākou iwi kuamoʻo? (Spina Bifida Occulta) E aʻo kākou e pili ana i ia mea.

ʻAuē, he mea maʻamau ke hopohopo iki i ka wā e noʻonoʻo ai kākou i kā kākou poʻe liʻiliʻi, me ka noʻonoʻo inā ua maikaʻi nā mea a pau. I kekahi manawa, ʻaʻole lākou i ʻike i ia mea, a ʻaʻole hiki iā kākou ke ʻike mai waho mai. ʻO kekahi o ia mau mea, ʻo ia ka Spina Bifida Occulta . ʻOiai ke kani nei ka inoa me he mea nui lā, mai hopohopo, ʻo ka hapa nui o ka manawa, ʻaʻole ia he mea koʻikoʻi loa. E kamaʻilio kākou e pili ana i kēia me nā kikoʻī hou aku, ʻeā?

He aha ka Spina Bifida Occulta?

I ka ʻōlelo maʻalahi, ʻo Spina Bifida Occulta kahi kīnā hānau hānau e kū mai ana i ka wā ʻaʻole ulu pono ka iwi kuamoʻo i ka wā fetal, ʻoiai ke pēpē i loko o ka ʻōpū.

ʻO ke ʻano o ka huaʻōlelo "occulta" ʻo ia hoʻi "hūnā ʻia." ʻO ia ke kumu i kapa ʻia ai ʻo "hidden spina bifida." ʻO kēia no ka mea ua uhi ʻia ka puka ma ka iwi kuamoʻo e kahi papa lahilahi o ka ʻili, no laila ʻaʻole ʻike ʻia e ka honua waho. ʻO ia hoʻi, ʻaʻohe ʻokoʻa i ʻike ʻia e ka maka ʻōlohelohe. ʻO kēia ke ʻano palupalu a maʻamau o ka spina bifida.

ʻO wai ka mea i ʻoi aku ka pilikia o ka loaʻa ʻana o ka Spina Bifida Occulta?

Hiki i kēia maʻi ke hoʻopilikia i kekahi. Eia nō naʻe, ʻoi aku ka nui o ka pilikia o kekahi poʻe i ka loaʻa ʻana o kahi pēpē me Spina Bifida Occulta. E nānā kākou i ke ʻano o ia mea:

• Ka nele o ka folate i ka makuahine i ka wā hāpai: ʻO ka Folate kahi ʻano wikamina B9. Loaʻa ia i nā meaʻai he nui, e like me nā mea kanu ʻōmaʻomaʻo, nā legumes, nā nati, a me nā palaoa piha. Inā ʻaʻole lawa ka folate a i ʻole ka waikawa folic i ka makuahine hāpai, ua pilikia ʻo ia.
• Moʻolelo ʻohana o ka spina bifida (mana hoʻoilina): Inā ua loaʻa i kekahi o kou ʻohana kēia ʻano ma mua, ʻo ia hoʻi he pilina hoʻoilina liʻiliʻi paha.
• ʻO ka maʻi diabetes mellitus a i ʻole ka momona i ka makuahine hāpai: Inā loaʻa i ka makuahine ka maʻi diabetes i kāohi ʻole ʻia a momona paha, hiki iā ia ke hoʻopilikia i ka ʻōpū.
• Loaʻa i ka pēpē nā kūlana genetic ʻē aʻe: I kekahi manawa e hoʻonui paha kēia pilikia inā loaʻa i ka pēpē nā kūlana genetic ʻē aʻe, e like me Down syndrome, Edwards syndrome, a i ʻole Patau's syndrome .
• ʻO kekahi mau lāʻau lapaʻau a ka makuahine e lawe ai no nā maʻi e like me ka maʻi epilepsy: No ka laʻana, inā ʻo ia e lawe ana i nā lāʻau anti-epileptic e like me valproate a i ʻole carbamazepine , hiki i kēlā ke loaʻa ka hopena.

Inā ʻoe e hoʻolālā ana e hāpai, he mea nui loa e kamaʻilio me ke kauka e pili ana i nā lāʻau lapaʻau āu e lawe nei a me ka mōʻaukala hoʻoilina o kou ʻohana.

Pehea ka maʻamau o kēia ʻano?

ʻO Spina Bifida Occulta ke ʻano maʻamau o ka spina bifida. Ua manaʻo ʻia aia ma waena o 10% a me 20% o ka heluna kanaka ʻAmelika e loaʻa ana kēia maʻi. ʻO ke ʻano kēia, ʻaʻole ia he mea kakaikahi e like me kou manaʻo.

Pehea ka hopena o ka Spina Bifida Occulta i koʻu kino?

ʻO kēia ke ʻano palupalu loa o ka spina bifida, no laila ʻaʻole ia he nui nā hopena koʻikoʻi i ke kino e like me nā ʻano koʻikoʻi ʻē aʻe. He mea kākaʻikahi nā hōʻailona e hoʻopilikia ai i nā mea e like me ka hele wāwae ʻana, ʻoiai i ka wā kamaliʻi. Ma kahi o 1 i loko o 1000 poʻe me ka spina bifida occulta e hoʻomohala i nā hōʻailona . Hana pinepine ia i ka wā o ka ulu ʻana i ka wā ʻōpiopio i ka wā e huki ʻia ai ke kaula spinal . Hiki i kēia ke loaʻa kahi hopena liʻiliʻi i nā mea e like me ka ikaika o nā ʻiʻo a me ka kaohi ʻana o ka ʻōpū a me ka ʻōpū mimi. Eia nō naʻe, ʻoiai pēlā, hiki ke hoʻemi ʻia nā hōʻailona me ka mālama kūpono.

He aha nā hōʻailona o ka Spina Bifida Occulta?

E like me ka mea i ʻōlelo ʻia ma mua, he ʻano palupalu loa kēia o Spina Bifida, no laila ʻaʻohe hōʻailona o ka hapa nui o ka manawa . Eia nō naʻe, hiki i kekahi mau pēpē me Spina Bifida Occulta ke loaʻa kahi ʻili ma ko lākou kua i lalo ke hānau ʻia lākou. ʻO kēia paha:

• E like me kahi puʻu liʻiliʻi.
• He wahi ʻulaʻula a poni paha (hemangioma) .
• He hōʻailona hānau ʻeleʻele.
• He lua liʻiliʻi i loko o ka ʻili.

Akā, ʻaʻole ʻike ʻia kēia mau hōʻailona i nā pēpē a pau.

I ka liʻiliʻi loa, hiki ke loaʻa kekahi mau hōʻailona ma muli o ka hōʻino ʻia ʻana o ke aʻalolo (neurologic deficit). ʻO kēia mau mea:

• Nā pilikia ʻōpū a me/a i ʻole ka mimi (e like me ka paʻa ʻana o ka ʻōpū, ka incontinence).
• ʻEha hope .
• Ka nāwaliwali o nā ʻiʻo wāwae .
• ʻO ke skoliosis .

Hiki ke ʻike ʻia nā hōʻailona i ka wā makua?

ʻIke pinepine ʻia nā hōʻailona ma kahi o hoʻokahi i loko o hoʻokahi tausani kānaka, pinepine i ka wā ʻōpio, i ka wā e kīkoʻo ʻia ai ke kaula kuamoʻo i ka wā o ka ulu koke ʻana. ʻAʻohe hōʻailona o ka nui o nā keiki me ka spina bifida occulta. Eia nō naʻe, hiki ke hoʻonui ʻia kēia mau hōʻailona kakaikahi i ka hoʻomau ʻana o ke kaula kuamoʻo i ka wā ʻōpio a i ʻole ka wā makua.

He aha nā kumu o ka Spina Bifida Occulta?

ʻAʻole maopopo ke kumu kikoʻī o Spina Bifida Occulta , akā ua hōʻike ʻia e ka noiʻi he hiki ke hana ʻia e ka hui pū ʻana o nā kumu genetic, nutritional, a me ke kaiapuni. ʻO kēia mau mea:

• Ka nele o ka Folate (vitamin B9) i ka makuahine i ka wā hāpai.
• Ka moʻolelo ʻohana o kēia maʻi (genetic) .
• Loaʻa i ka makuahine hāpai ka maʻi diabetes i kāohi ʻole ʻia .
• Ka momona i ka makuahine hāpai.
• ʻO kahi pane i nā lāʻau lapaʻau e like me valproate a i ʻole carbamazepine, i hoʻohana ʻia e mālama i nā kūlana e like me ka maʻi epilepsy.

No laila, inā ʻoe e hoʻolālā ana e hāpai, he mea nui e kamaʻilio me kāu kauka e hoʻomaopopo i ka pilikia o kāu pēpē e loaʻa i kahi maʻi e like me Spina Bifida Occulta. Hiki iā ia ke aʻo iā ʻoe inā pono ʻoe e hoʻohui i ka folate a i ʻole ka folic acid i kāu meaʻai, a i ʻole inā paha he mau lāʻau lapaʻau āu e lawe nei i kēia manawa e hoʻoweliweli i ke olakino o kāu pēpē.

Pehea e ʻike ʻia ai ka Spina Bifida Occulta?

ʻIke pinepine ʻia ka Spina Bifida i ka wā hāpai me kahi scan ultrasound . Eia nō naʻe, no ka mea he ʻano maʻalahi loa ka Spina Bifida Occulta, "huna" ʻia, pinepine ʻole ia e ʻike ʻia a i ʻole e ʻike ʻia i ka wā makua . ʻO kēia no ka mea, ʻaʻole pinepine ke ʻano e hōʻike i nā hōʻailona.

Hoʻomaopopo pinepine ʻia ka Spina Bifida Occulta ma ke ʻano ulia pōpilikia ke hana ʻia kahi X-ray o ka iwi kuamoʻo no kekahi ulia a ʻeha paha .

Hoʻomaopopo ʻia ka Spina Bifida Occulta ma o nā hoʻokolohua kiʻi e like me ka X-ray, MRI scan, a i ʻole CT scan . Hiki i kēia mau hoʻokolohua ke hāʻawi i kahi kiʻi maopopo o nā iwi o ka iwi kuamoʻo i hana pono ʻole ʻia i ka wā o ka pēpē.

Pehea e mālama ʻia ai ka Spina Bifida Occulta?

ʻO ka nūhou maikaʻi, ʻo ka hapa nui o nā hihia o Spina Bifida Occulta ʻaʻole pono ia i kekahi lāʻau lapaʻau .

Eia nō naʻe, i nā hihia kakaikahi kahi e ʻike ʻia ai nā hōʻailona, ​​​​​​ʻo ka pahuhopu o ka lāʻau lapaʻau e hōʻemi i ke kaomi ma ke kaula iwi kuamoʻo. Hiki i nā lāʻau lapaʻau ke komo pū me:

• ʻO ke ʻoki kino e pani ai i ka hakahaka ma waena o nā iwi kuamoʻo o ka iwi kuamoʻo.
• Hoʻoikaika kino a i ʻole ka hoʻoikaika hana e hoʻomaikaʻi i ka ikaika o nā ʻiʻo.
• Ka hoʻohana ʻana i nā mea kōkua e like me ke kākoʻo hope, ka mea hele wāwae, a i ʻole ka noho huila.
• Ke hāʻawi nei i ka lāʻau lapaʻau no nā pilikia ʻōpū a i ʻole ka mimi.

He aha nā lāʻau lapaʻau i hāʻawi ʻia no ka Spina Bifida Occulta?

Inā kū mai nā hōʻailona, ​​​​pono paha nā lāʻau lapaʻau e like me kēia e mālama ai iā lākou:

• Nā lāʻau hoʻopau ʻeha no ka ʻeha hope.
• No nā pilikia ʻōpū e like me ka constipationNā lāʻau hoʻomaha ʻōpū, nā suppositories, a me/a i ʻole nā ​​​​ʻenemia.
• Nā lāʻau antibiotic e pale ai i nā maʻi ma hope o ke ʻoki ʻana.
• Nā lāʻau lapaʻau kikoʻī e hoʻomaha ai i ka ʻōpū mimi a mālama i nā pilikia mimi.

Pehea e hōʻemi ai i ka pilikia o ka Spina Bifida Occulta?

ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī, ʻaʻohe ala e pale loa ai i kēia maʻi. Eia nō naʻe, inā ʻoe e hoʻolālā ana e hāpai, hiki iā ʻoe ke hana i kēia mau hana e hōʻemi i ka pilikia o ka loaʻa ʻana o kahi pēpē me Spina Bifida Occulta:

• Ka Lawe ʻana i ka Folic Acid: Manaʻo ka US CDC (Centers for Disease Control and Prevention) e lawe i 400 micrograms (400 mcg) o ka folic acid i kēlā me kēia lā. Hiki i kēia ke hōʻemi i ka pilikia o ka loaʻa ʻana o kahi pēpē me Spina Bifida ma kahi o 75%!
• Ke kamaʻilio ʻana me kāu kauka: E kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau, nā huaora, a me nā mea hoʻohui āu e lawe nei. ʻO kekahi mau lāʻau lapaʻau, ʻoiai nā mea no ka maʻi epilepsy, hiki ke kōkua i ka ulu ʻana o ka spina bifida occulta.
• Ka Hoʻokele ʻana i nā kūlana i hala mua: Inā he mau kūlana i hala mua e like me ka maʻi diabetes mellitus a i ʻole ka momona, e hana pū me kāu kauka e hoʻokele i kēlā mau kūlana ma mua o ka hāpai ʻana.
• Ka hoʻāʻo ʻana i ka genetics: Inā loaʻa i kekahi o kou ʻohana nā maʻi genetic, e kamaʻilio me kāu kauka e pili ana i ka hoʻāʻo genetic e hoʻomaopopo i kou pilikia o ka loaʻa ʻana o kahi keiki me kahi maʻi genetic.

He aha ka mea e hana ai inā loaʻa iaʻu ka Spina Bifida Occulta?

ʻAʻohe lāʻau lapaʻau no Spina Bifida Occulta. Eia nō naʻe, inā loaʻa iā ʻoe ke ʻano, ʻaʻole paha ʻoe e ʻike no ka mea he kakaikahi loa nā hōʻailona a he palupalu hoʻi. Hoʻopilikia ka Spina Bifida Occulta i kēlā me kēia kanaka i nā ʻano like ʻole. Inā loaʻa iā ʻoe kekahi ʻeha a i ʻole nā ​​hōʻailona ma muli o ke kaomi ʻana o ke kaula iwi kuamoʻo, hiki i ka lāʻau lapaʻau ke kōkua i ka hoʻomaha ʻana iā lākou.

Pehea wau e mālama ai iaʻu iho?

He ʻokoʻa kēlā me kēia hōʻailona o Spina Bifida Occulta. I ka hapanui o nā hihia, ʻaʻole ia e hoʻopilikia i kou ola o kēlā me kēia lā a i ʻole kāu hana . Inā loaʻa iā ʻoe nā hōʻailona, ​​​​e hahai i ka hoʻolālā lapaʻau a kāu kauka e hāʻawi ai iā ʻoe.

Āhea wau e ʻike ai i ke kauka?

E ʻike i ke kauka inā loaʻa iā ʻoe nā hōʻailona o ka spina bifida occulta, ʻoiai nā mea e hoʻopilikia ai i kāu neʻe ʻana . Inā koʻikoʻi loa kāu mau hōʻailona a hiki ʻole iā ʻoe ke hana i kāu mau hana o kēlā me kēia lā, hele i ke kula, a i ʻole ka hana ma muli o ka ʻeha a i ʻole ka incontinence, e ʻike i ke kauka no ka mālama ʻana.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

• Aia anei au i ka pilikia o ka loaʻa ʻana o kahi keiki ʻē aʻe me Spina Bifida Occulta?
• Pehea e hiki ai iaʻu ke noho olakino i koʻu wā hāpai?
• He aha nā pilikia o ka hana ʻoki kino e mālama ai i ka Spina Bifida Occulta?
• Aia kekahi mau hopena ʻaoʻao i nā lāʻau lapaʻau āu i ʻōlelo ai?

He aha ka ʻokoʻa ma waena o ka Spina Bifida Occulta a me ka Spina Bifida Cystica?

I ka ʻōlelo maʻalahi, ʻo Spina Bifida Occulta ke ʻano Spina Bifida ʻoluʻolu loa a maʻamau . ʻO ka hapa nui o ka poʻe me kēia maʻi ʻaʻole lākou e ʻike i nā hōʻailona ʻike ʻia a i ʻole nā ​​​​​​hōʻailona e hoʻopilikia ai i ka neʻe ʻana.

He ʻano koʻikoʻi ka Spina Bifida Cystica . Hōʻike ʻia ia e kahi ʻeke piha wai (cyst) e puka mai ana mai ke kua o lalo o ke pēpē. ʻO kēia ʻeke kahi hōʻailona o nā kūlana i kapa ʻia ʻo spina bifida meningocele a me myelomeningocele.

ʻOiai he hakahaka ko nā keiki me Spina Bifida Occulta ma waena o nā vertebrae i loko o ko lākou iwi kuamoʻo, ʻaʻole ʻike ʻia ka ʻeke piha wai (cyst) ma waho o ka iwi kuamoʻo.

ʻAʻole i ʻike ʻia ka nui o nā hihia o Spina Bifida Occulta, a inā paha ua ʻike ʻia, ʻaʻole pono ka lāʻau lapaʻau no ka mea he asymptomatic lākou.

ʻO ka mea hope loa, pono wau e ʻōlelo... (Leka Lawe-Home)

No laila, ua maopopo paha iā ʻoe i kēia manawa ʻaʻole he mea e makaʻu ai ka Spina Bifida Occulta. Loaʻa i ka poʻe he nui, akā ʻaʻole lākou i ʻike, a ʻaʻole ia e hoʻopilikia i ko lākou ola.

ʻO ka mea nui loa, ʻo ia ka lawe ʻana o kēlā me kēia makuahine hāpai i ka waikawa folic lawa ma mua a i ka wā hāpai . He mea nui loa hoʻi e kamaʻilio ākea me kāu kauka e pili ana i kou olakino, nā lāʻau lapaʻau āu e lawe nei, a me ka mōʻaukala olakino o kou ʻohana. A laila e loaʻa iā ʻoe kahi manawa kūpono e hānau ai i kahi pēpē olakino.

Inā he mau nīnau hou aku kāu e pili ana i kēia, mai kānalua e nīnau i kāu kauka. ʻO lākou ka poʻe hiki ke hāʻawi iā ʻoe i ka ʻōlelo aʻoaʻo maikaʻi loa.

ʻO Spina bifida occulta, iwi kuamoʻo, kīnā hānau, waikawa folic, hāpai keiki, ʻeha hope, spina bifida huna