He palale māwae ko kāu keiki liʻiliʻi? (Submucous Cleft Palate) - E kamaʻilio kākou e pili ana i kēia!

Ke puka mai nei ka waiū o kāu pēpē mai kona ihu i kekahi manawa ke hānai waiū ʻo ia? A i ʻole he ʻeha pinepine kona pepeiao? He paʻakikī iā ia ke haʻi i kekahi mau huaʻōlelo? ʻOiai he mau mea kēia a mākou e nānā ʻole ai i kekahi manawa, i kekahi manawa hiki ke kumu o kēia ma muli o kahi maʻi i kapa ʻia ʻo Submucous Cleft Palate (SMCP) . Mai hopohopo, e nā mākua, e kamaʻilio maʻalahi mākou e pili ana i kēia, ma ke ʻano e hiki ai iā ʻoe ke hoʻomaopopo.

He aha ka Submucous Cleft Palate (SMCP)?

I ka ʻōlelo maʻalahi, ʻo Submucous Cleft Palate (SMCP) he māwae ma ka ʻili o ka waha. Akā, ʻaʻole ia e like me ka māwae maʻamau. ʻO ke ʻano o ka huaʻōlelo "submucous" ʻo ia hoʻi "ma lalo o ka membrane mucous." ʻO ka ʻili o kou waha, i kapa ʻia ʻo ka palate , ua hana ʻia i ʻelua ʻāpana. ʻO ka palate paʻakikī ma mua a me ka palate palupalu ma hope. I ka SMCP, ʻaʻole hui pono nā ʻiʻo o ka palate palupalu, aia ma lalo o ka membrane lahilahi ma luna o ka ʻili,. Hana ʻia kēia i ka wā o ka ulu ʻana o ka fetal i ka wā e noho ana ke pēpē i loko o ka ʻōpū.

E noʻonoʻo e like me ke uhi ʻia ʻana o kahi mea me ka lole, akā ʻaʻole i hoʻopili pono ʻia kekahi mea ma lalo o ka lole. ʻO ia ke kumu ʻaʻole ʻike koke ʻia mai waho. ʻAʻole hōʻike nā kānaka a pau i nā hōʻailona o kēia. Eia nō naʻe, hiki i kēia kūlana ke hoʻonui i ka pilikia o kāu keiki i ka ʻōlelo , nā maʻi pepeiao pinepine, a me ka paʻakikī i ka hānai ʻana i ka wā pēpē.

Pehea ka maʻamau o kēia ʻano?

He maʻi laha ʻole ka Submucous Cleft Palate . Hoʻopilikia ia i kahi pakeneka liʻiliʻi loa o nā pēpē i hānau ʻia. Eia nō naʻe, ʻaʻole hōʻike kekahi mau pēpē i nā hōʻailona maopopo, no laila ʻoi aku ka nui o ka helu maoli o nā pēpē me kēia maʻi. ʻO kēia no ka mea ʻaʻohe hōʻailona waho maopopo, no laila hiki ke ʻike ʻia i kekahi manawa lohi.

Pehea e ʻike ai inā loaʻa kēia maʻi i kaʻu keiki?

Ua hūnā ʻia ma lalo o ka membrane, no laila he paʻakikī ke ʻike koke. Akā, e nānā inā ua ʻike ʻoe i kekahi o kēia mau mea e pili ana i kāu pēpē:

• Ua loaʻa anei iā ʻoe kekahi pilikia i ka hānai waiū ʻana i kou wā pēpē? (e.g., ka waiū e puka mai ana mai ka ihu mai, ka lōʻihi o ka manawa e hoʻopau ai i ka hānai waiū)
• Loaʻa pinepine iā ʻoe nā ʻeha pepeiao a i ʻole nā ​​maʻi pepeiao?
• Ke manaʻo nei ʻoe he paʻakikī iā ia ke haʻi ʻana i kekahi mau huaʻōlelo a me nā leka?

Inā ʻike ʻoe i kekahi mea e like me kēia, e haʻi aku i ke kauka lapaʻau o kāu keiki i hiki iā ia ke nānā pono i ka waha o kāu keiki.

He aha nā hōʻailona o ka Submucous Cleft Palate?

Aia kekahi mau hōʻailona nui e ʻike ʻia i kahi keiki me kēia maʻi.

Nā hōʻailona hiki iā ʻoe ke ʻike i kāu keiki:

• Nā pilikia o ka hānai ʻana: ʻOi aku hoʻi i ka wā kamaliʻi, i ka wā e hānai ana i ka ʻōmole a i ʻole ka hānai waiū, hiki i kāu pēpē ke paʻakikī i ka hoʻopili ʻana. Hiki ke lōʻihi ka manawa ma mua o ka pēpē maʻamau e hoʻopau i ka hānai ʻana. I kekahi manawa , hiki ke puka mai ka waiū a i ʻole ka waiū formula mai ka ihu.Hiki nō. E noʻonoʻo, i kou wā e hānai waiū ana i kāu pēpē, puka pinepine mai kahi waiū liʻiliʻi mai kou ihu. Inā hana pinepine kēia ʻaʻole i hoʻokahi a ʻelua paha manawa, akā, i nā manawa a pau, pono ʻoe e hopohopo.
• Nā maʻi pepeiao pinepine: Loaʻa paha i kēia mau keiki nā maʻi pepeiao pinepine, e like me nā ʻeha pepeiao a me ka hoʻokuʻu ʻana o ka pepeiao.
• Nā pilikia ʻōlelo: Hiki ke paʻakikī ke haʻi maopopo i kekahi mau leka a me nā huaʻōlelo.
• ʻŌlelo ihu: Ke ʻōlelo ʻoe, manaʻo paha ʻoe me he mea lā e puka mai ana nā huaʻōlelo mai kou ihu mai , e like me kekahi kanaka me ke anu nui.
• Ke ea e puka mai ana mai ka ihu i ka wā e ʻōlelo ai: Manaʻo paha ia me he ea lā e puka mai ana mai ka ihu i ka wā e ʻōlelo ai ke keiki.

ʻO nā hōʻailona e ʻike ai ke kauka i ka nānā ʻana i ka waha o kahi keiki:

Ke nānā ke kauka i loko o ka waha o ke keiki, ʻike paha lākou i nā mea e like me:

• ʻO Bifid Uvula: ʻO ka ʻāpana liʻiliʻi e like me ke alelo (uvula) e kau ana ma ke kua o ko mākou puʻu e like paha me he mea lā ua māhele ʻia i ʻelua.
• He ʻano polū/hina ma waenakonu o ka lehelehe palupalu (`(Zona Pellucida)`) : Hiki ke ʻike ʻia ke kala polū a hina paha ma lalo o ka membrane ma waenakonu o ka lehelehe palupalu.
• He ʻauwai ʻano 'V' ma ka lehelehe paʻakikī : Hiki iā ʻoe ke ʻike i kahi ʻauwai liʻiliʻi ʻano 'V' ma ke kua o ka lehelehe paʻakikī ma ke alo o ka lehelehe luna.

ʻO ke kani ʻana o ka ihu a me ka ea e puka mai ana mai ka ihu i ka wā e ʻōlelo ana, ua hana ʻia e kahi kūlana i kapa ʻia ʻo Velopharyngeal Dysfunction (VPD) . I ka ʻōlelo maʻalahi, hana ʻia kēia ke pani pono ʻole ke kua o ka palale palupalu i ka wā e ʻōlelo ana. A laila, puka mai ke kani a me ka ea e pono e puka mai ana mai ka waha ma o ka ihu. ʻAʻole nā ​​​​kānaka a pau me Submucous Cleft Palate i loaʻa i kēia kūlana, akā ʻo kēia ka pilikia nui e hoʻopilikia ai i ka ʻōlelo ʻana.

He aha nā kumu o ka Submucous Cleft Palate?

Aia paha kekahi mau kumu no kēia. ʻO ke kumu nui:

• Nā kumu hoʻoilina (`(Genetics)`): Hiki ke hana ʻia kēia kūlana e nā mana hoʻoilina i hoʻoilina ʻia mai nā mākua mai.
• Nā kumu o ke kaiapuni: Hiki ke hana ʻia kēia e ka pilikia o ka makuahine i kekahi mau mea i ka wā e noho ana ke pēpē i loko o ka ʻōpū (e.g., kekahi mau lāʻau lapaʻau, ka paka, ka waiʻona, nā kemika ʻawahia).

Pehea e ʻike ai i ka submucous cleft palate?

E nānā mua ke kauka lapaʻau o kāu keiki i ka waha o kāu keiki. Inā kānalua ʻo ia iā SMCP, e kuhikuhi lākou i kāu keiki i kahi mea lapaʻau ʻōlelo , kahi loea otolaryngologist a i ʻole ENT, a i ʻole ke kauka lapaʻau i loea i nā palate cleft. Hiki ke paʻakikī ke ʻike iā SMCP no ka mea ʻaʻole maʻalahi ka ʻike ʻana a ʻaʻole paha e hōʻike i nā hōʻailona koʻikoʻi.

Hoʻākoakoa kēia hui o nā kauka loea e hoʻoholo i ke ʻano o ka pilikia a me ke ʻano o ka lāʻau lapaʻau kūpono loa.

No ka hōʻoia hou ʻana i kēia kūlana, hiki iā ʻoe ke hana i nā hoʻokolohua aʻe:

• Nasopharyngoscopy: Pili kēia i ke komo ʻana i kahi ʻōmole liʻiliʻi i lako me ke kāmela ma o ka ihu a me ka nānā ʻana i ke kua a me nā ʻaoʻao o ka puʻu . Hiki ke ʻike maopopo ʻia kekahi o nā ʻeha ke nānā ʻia ma kēia ʻano.
• Videofluoroscopy: Ua like kēia me kahi hoʻāʻo X-ray . Hiki iā ʻoe ke nānā i ka neʻe ʻana o ka lehelehe i ka wā e ʻōlelo ana ke keiki a moni paha i kahi mea, me he mea lā ma ke wikiō.

Pehea e mālama ʻia ai ka Submucous Cleft Palate?

Aia ka lāʻau lapaʻau i ke ʻano o nā pilikia a kāu keiki e loaʻa nei me ke ʻano. Loaʻa i kekahi mau keiki ka paʻakikī i ka ʻōlelo ʻana a i ʻole nā ​​maʻi pepeiao, aʻo kekahi poʻe ʻaʻohe hōʻailona iki.

• Inā ʻaʻohe hōʻailona: Inā ʻaʻole ke keiki e ʻike nei i kekahi ʻeha a pilikia paha i ka ʻōlelo ʻana, ʻaʻole pono ka lāʻau lapaʻau. Eia nō naʻe, e hoʻomau nā kauka i ka nānā ʻana i ke keiki.
• Inā loaʻa iā ʻoe nā pilikia ʻōlelo (Velopharyngeal Dysfunction): Inā loaʻa iā ʻoe nā hōʻailona e like me ka hanu ʻana o ka ihu, e like me ka hanu ʻana o ka ihu i ʻōlelo ʻia ma luna, a i ʻole ka ea e puka mai ana mai kou ihu i ka wā e ʻōlelo ana, pono paha ʻoe e hana i ke ʻoki kino (`(Palatoplasty)`) . ʻO kēia ʻoki kino e pili ana i ka hoʻoponopono ʻana i ka ʻāpana palupalu o ka lehelehe a me ka pani ʻana i ka puka. A laila, i kāu ʻōlelo ʻana, pani pono ka lehelehe, e pale ana i ka ea a me ke kani mai ka puka ʻana mai kou ihu.
• Lapaʻau ʻŌlelo: I nā hihia he nui, pono ke keiki i ka lāʻau lapaʻau ʻōlelo e aʻo ai pehea e haʻi pololei ai i kekahi mau leo. I kekahi manawa hiki i ke ʻoki kino wale nō ke hoʻoponopono i ke kūlana, a ʻaʻole pono ka lāʻau lapaʻau ʻōlelo.
• No nā maʻi pepeiao: Inā loaʻa pinepine iā ʻoe nā maʻi pepeiao, hiki iā ʻoe ke hoʻokomo i nā ʻōmole liʻiliʻi i loko o kou mau pepeiao e pale aku iā lākou, mālama i ka lohe maikaʻi, a kōkua i ka ulu ʻana o ka ʻōlelo.

He mea nui: Ua hōʻike ʻia nā noiʻi ʻaʻole pono e hana ʻia ka adenoidectomy i nā keiki me ka Submucous Cleft Palate , no ka mea, hiki i kēia ʻoki kino ke hoʻonui i nā pilikia ʻōlelo a i ʻole e hoʻoulu i ka hana velopharyngeal hou.

E pono anei kaʻu keiki i ke ʻoki kino?

ʻAʻole pono ke ʻoki kino. Inā ʻaʻohe pilikia o ke keiki i ka ʻōlelo ʻana, ʻaʻole ʻōlelo ʻia ke ʻoki kino. Akā, e nānā nā kauka i ke keiki no kekahi mau makahiki e ʻike inā loaʻa kekahi mau pilikia.

E pono anei i kaʻu keiki ka hoʻōla ʻōlelo?

ʻAe, i ka hapanui o nā hihia, pono ke keiki i ka hoʻōla ʻōlelo.E nānā kekahi kauka ʻōlelo i kāu keiki e hoʻoholo i nā pilikia ʻōlelo i hoʻokumu ʻia e ka palale māwae. Hoʻokumu ʻia kekahi mau pilikia e nā kumu kino (ʻo ia hoʻi, nā loli i ke ʻano o ka palale). Hiki ke hoʻoponopono ʻia kēia mau mea me ke ʻoki kino. Eia nō naʻe, hoʻokumu ʻia kekahi mau pilikia ʻōlelo e nā ʻano maikaʻi ʻole a ke keiki i hoʻomohala ai. He mea nui ka hoʻōla ʻōlelo e hoʻololi i kēlā mau ʻano a aʻo iā lākou e haʻi pololei i nā huaʻōlelo.

Hiki ke pale ʻia ka Submucous Cleft Palate?

He maʻi hānau ʻia kēia ʻano māwae. No laila, he paʻakikī ke pale loa aku. Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, hiki i nā mea pili i ke kaiapuni ke hoʻopilikia i kēia, no laila ma ke ʻano he makuahine, ʻo ka pale ʻana i ka hoʻohana ʻana i kekahi mau lāʻau lapaʻau, nā lāʻau lapaʻau, ka waiʻona, a me nā kemika ʻawaʻawa ʻē aʻe i ka wā hāpai hiki ke hōʻemi i ka pilikia o kahi keiki e loaʻa ana kēia maʻi i kekahi ʻano.

He aha nā nīnau āu e nīnau ai i ke kauka o kāu keiki?

Ma hope o ka ʻike ʻia ʻana o kāu keiki me ka Submucous Cleft Palate , he mea maʻamau ka loaʻa ʻana o nā nīnau he nui e nīnau aku i kāu kauka. Eia kekahi mau nīnau āu e makemake ai e nīnau:

• He aha ke kumu o kēia?
• E pono anei kaʻu keiki i ke ʻoki kino?
• E pono anei i kaʻu keiki ka hoʻōla ʻōlelo?
• Ua hoʻopilikia anei kēia kūlana i ka lohe o kaʻu keiki?
• ʻEhia ka lōʻihi o ka mālama ʻana?
• Aia kekahi mau mea hiki iaʻu ke hana ma ka home e kōkua ai i kaʻu keiki?

No laila, inā he pilikia ka ʻōlelo a kāu keiki, ʻeha pinepine ka pepeiao, a i ʻole he paʻakikī ke omo a hānai ʻana paha i ka ʻōmole i kona wā pēpē, he palaka submucous paha kona. He mea paʻakikī paha ke ʻike ʻia, akā hiki i kekahi mau keiki ke loaʻa nā hōʻailona. E kamaʻilio me ke kauka pediatric o kāu keiki a e nānā ʻia ka waha a me ka ʻāʻī o kāu keiki. I ka hapanui o nā hihia, hiki ke hoʻoponopono piha ʻia ke kūlana me ka hoʻōla ʻōlelo a i ʻole ke ʻoki kino.

ʻO nā mea nui loa e pono ai kākou e aʻo mai kēia (Leka Lawe-Home)

• ʻO ka Submucous Cleft Palate kahi māwae ma ka lehelehe luna, i hūnā ʻia mai ka ʻike ʻana aku, ma lalo o ka membrane lahilahi.
• Inā puka mai ka waiū o kāu pēpē mai kona ihu i ka wā e inu ai ʻo ia, inā ʻeha pinepine kona pepeiao, inā maopopo ʻole kāna ʻōlelo, a inā he leo ihu kāna , he mea nui loa ia e nānā ʻia ʻo ia e ke kauka.
• Hiki ke paʻakikī iki ka ʻike ʻana i kēia maʻi, akā i ka manawa e ʻike pololei ʻia ai, aia nā lāʻau lapaʻau.
• ʻAʻole pono nā keiki āpau i ke ʻoki kino. No kekahi mau keiki, ua lawa paha ka hoʻōla ʻōlelo wale nō.
• Mai hopohopo. Hiki i nā ʻōlelo aʻoaʻo lapaʻau kūpono a me ka mālama ʻana ke hāʻawi i ka hōʻoluʻolu i kāu keiki. E kamaʻilio ākea me kāu kauka e pili ana i kēia.

E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. Aia kekahi mau mākua ʻē aʻe e kū nei i nā kūlana like. Me ka ʻike kūpono a me ke kākoʻo lapaʻau, hiki iā ʻoe ke hāʻawi i kāu keiki i ka hopena maikaʻi loa.

`Lepe māwae, lepe māwae submucous, pilikia ʻōlelo, pilikia hānai waiū, maʻi pepeiao, palatoplasty, olakino keiki