E noʻonoʻo ʻoe ua loaʻa koke iā ʻoe ke kuni nui. I ka manawa like, hoʻomaka ka ʻulaʻula, ka ʻūlū iki, a me nā pehu ʻeha e ʻike ʻia ma kou kino, nā lima, a me nā wāwae. He mea ʻoluʻolu ʻole loa ia, a ua like kou kino me he mea lā e ʻeha ana. E makaʻu paha kekahi ke ʻike lākou i kahi mea e like me kēia, ʻeā? "He aha ka mea i hana koke ʻia?" Manaʻo paha ʻoe. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi maʻi e hoʻoulu ai i nā hōʻailona e like me kēia, he mea kakaikahi iki ia ma ko mākou ʻāina, akā he mea nui loa ia e ʻike. Ua kapa ʻia kēia ʻo Sweet Syndrome i ka lāʻau lapaʻau.
I ka ʻōlelo maʻalahi, he aha ka Sweet Syndrome?
He maʻi ʻili mumū ka Sweet Syndrome. He mea kākaʻikahi loa ia. ʻO ka hōʻailona nui ka hoʻomaka koke ʻana o ke kuni a me ke ʻano o nā pehu ʻeha a i ʻole nā puʻupuʻu ma ke kino, ʻoi aku hoʻi ma nā lima, nā wāwae, ke kino, ka ʻāʻī, a i ʻole ka maka. He inoa lapaʻau ʻē aʻe kona, ʻo Acute Febrile Neutrophilic Dermatosis . He ʻano paʻakikī iki ke kani ʻana o ka inoa, ʻeā? E mālama kākou i ka maʻalahi.
- ʻOi: ʻO ke ʻano kēia he mea kēia e hoʻomaka koke ana.
- Febrile: ʻo ia hoʻi "me ke kuni."
- Neutrophilic: ʻO ke ʻano kēia, ua pili kekahi ʻano o ke koko keʻokeʻo i kapa ʻia ʻo 'Neutrophil', ʻo ia kekahi ʻano o ke kelepona i loko o ka ʻōnaehana pale o ko kākou kino. Hiki iā ʻoe ke ʻike i kahi hōʻiliʻili nui o kēia mau kelepona i loko o kēia mau pehu.
- Dermatosis: ʻo ia hoʻi ka maʻi ʻili.
No laila, i ka ʻōlelo maʻalahi, he ʻano ʻili kēia i hoʻokumu ʻia e nā pūnaewele i kapa ʻia ʻo neutrophils e hele koke mai me ke kuni.
I kekahi manawa, hiki ke loaʻa ka Sweet's Syndrome me nā maʻi ʻē aʻe. No ka laʻana, ua ʻike ʻia kēia ʻano me ka maʻi kanesa, nā maʻi ʻōpū, a i ʻole i ka wā hāpai. Hiki nō hoʻi ke loaʻa ma ke ʻano he hopena ʻaoʻao o kekahi mau lāʻau lapaʻau a mākou e hoʻohana ai.
He mea maʻamau anei kēia maʻi? ʻO wai ka mea i pilikia?
ʻAʻole, he maʻi laha ʻole ka Sweet Syndrome. He mau hihia liʻiliʻi wale nō i hōʻike ʻia ma ka honua holoʻokoʻa. No laila, ʻaʻohe pono e hopohopo ke lohe ʻoe e pili ana i ia mea.
ʻOiai hiki ke ulu kēia maʻi i kekahi kanaka, ʻoi aku ka maʻamau i nā wahine ma waena o 30 a me 50 mau makahiki. Eia naʻe, ʻaʻole ia manaʻo ʻaʻole hiki ke ulu i nā kāne a i ʻole nā hui makahiki ʻē aʻe.
He aha ke kumu o ka Sweet Syndrome?
ʻO kaʻoiaʻiʻo, ʻaʻole i loaʻa i nā kauka kahi kumu kikoʻī no kēia. ʻO ke ʻano kēia, ʻo ka hapa nui o ka manawa e kū mai ia me ke kumu ʻole. Eia nō naʻe, hoʻokaʻawale nā kauka i kēia kūlana i ʻekolu mau māhele nui e pili ana i ke ʻano o kona hanana ʻana. He kōkua nui nō hoʻi kēia hoʻokaʻawale ʻana i ka mālama ʻana.
| ʻAno | He wehewehe maʻalahi |
|---|---|
| Kuʻuna (ʻano maʻamau) | ʻO kēia ke ʻano maʻamau. Hiki ke hana pū me kekahi maʻi olakino ʻē aʻe. No ka laʻana, he maʻi ʻāʻī a i ʻole ka maʻi hanu (e like me ke anu a i ʻole ka maʻi palū), he maʻi ʻōpū (e like me ka maʻi kahe), a i ʻole i ka wā hāpai. |
| Pili i ka maʻi ʻaʻai (pili me nā maʻi kanesa) | I kekahi manawa, hiki ke loaʻa kēia maʻi me kahi ʻano maʻi kanesa. ʻIke nui ʻia kēia me nā maʻi kanesa e pili ana i ke koko, no ka laʻana , ʻo Acute Myeloid Leukemia . Eia naʻe, ʻaʻole kēia manaʻo he maʻi kanesa ka poʻe a pau e loaʻa ana i ka Sweet Syndrome. He mea nui loa kēia. |
| Hoʻoulu ʻia e ka lāʻau lapaʻau | Hiki ke hana ʻia kēia ʻano ma muli o kekahi o nā lāʻau lapaʻau a mākou e hoʻohana ai. ʻO kekahi mau antibiotics, nā painkillers (NSAIDs), a ʻoi aku hoʻi kahi lāʻau i kapa ʻia ʻo G-CSF (Granulocyte Colony-Stimulating Factor) (he lāʻau kēia e hoʻonui ai i ka hana ʻana o nā cell neutrophil i loko o ke kino) hiki ke hana i kēia. |
He aha nā hōʻailona nui?
ʻIke koke ʻia nā hōʻailona o ka Sweet Syndrome, i loko o kekahi mau lā. E nānā kākou i ke ʻano o ia mau mea.
- Nā loli o ka ʻili: ʻO kēia ka hōʻailona nui a maopopo loa.
- Nā puʻupuʻu ʻulaʻula ʻeha a i ʻole nā pehu e ʻike koke ʻia ma ka maka, ka ʻāʻī, nā lima, nā wāwae, a i ʻole ke kino.
- Hoʻomaka kēia mau puʻupuʻu me he mau pehu liʻiliʻi lā, e ulu mālie ana, a hiki ke hui pū i kahi e hana i kahi ʻeha nui.
- I kekahi manawa ua piha paha kēia mau pehu me kahi wai e like me ka pus.
- Hiki nō hoʻi ke loaʻa nā ʻeha i loko o ka waha.
- Kuni: Hiki mai ke kuni kiʻekiʻe, ʻoi aku ma mua o 38 kekelē Celsius (100.4 Fahrenheit) .
- Nā pilikia maʻamau:
- ʻEha kino a me ka ʻeha ʻiʻo.
- ʻEha hui.
- ʻEha poʻo.
- Manaʻo luhi loa a me ke ola ʻole (Fatigue).
- ʻAʻole maikaʻi koʻu kino ma ke ʻano laulā.
Hiki i kēia ke hana i nā pilikia ʻē aʻe?
ʻAe, i kekahi manawa ʻaʻole i kaupalena ʻia ka Sweet Syndrome i ka ʻili. Hiki iā ia ke hoʻopilikia i nā ʻōnaehana ʻē aʻe o ke kino. Akā he mea kākaʻikahi loa kēlā.
ʻO nā maka ka mea i hoʻopilikia pinepine ʻia.
- Hiki ke huhū nā maka.
- Aia kahi hiki ke hoʻonui ʻia ke kaomi i loko o ka maka a hoʻoulu i ka glaucoma .
- Hiki ke hana i nā ʻeha corneal.
Eia kekahi, he mea kākaʻikahi loa, hiki ke hoʻopilikia ʻia ka ʻōnaehana nerve, nā puʻupaʻa, a i ʻole nā māmā. No laila he mea nui e ʻike i ke kauka i ka wā e ʻike ʻia ai nā hōʻailona.
Pehea e ʻike ai ke kauka i kēia?
Ke hele ʻoe e ʻike i ke kauka me nā hōʻailona e like me kēia, ʻo ka mea mua āna e hana ai, ʻo ia ka hoʻolohe pono ʻana i kāu mau hōʻailona a nānā pono i kou kino, ʻoiai hoʻi nā pehu ma kou ʻili.
A laila, hiki ke hana ʻia kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona.
- Biopsy ʻIli: ʻO kēia ka hoʻāʻo koʻikoʻi loa. Lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka ʻeha ʻili a nānā ʻia ma lalo o kahi microscope. Inā loaʻa ka Sweet's Syndrome, e hōʻike ka hāpana ʻiʻo i ka nui o nā neutrophils.
- Nā hoʻāʻo koko: Hana ʻia nā hoʻāʻo koko e nānā i nā helu koko keʻokeʻo kiʻekiʻe (ʻoi aku ka neutrophils) a me nā māka mumū.
Eia kekahi, e nīnau ke kauka iā ʻoe e pili ana i nā maʻi i loaʻa iā ʻoe, nā lāʻau lapaʻau āu e lawe nei, a me nā kūlana olakino ʻē aʻe.
Pehea e mālama ʻia ai?
ʻO ka nūhou maikaʻi, aia nā lāʻau lapaʻau holomua no ka Sweet Syndrome.
I kekahi manawa, hiki i kēia kūlana ke hoʻomaikaʻi mālie me ka ʻole o kekahi lāʻau lapaʻau. Eia nō naʻe, no ka mea he koʻikoʻi nā hōʻailona a hiki ke loaʻa nā pilikia, kuhikuhi pinepine nā kauka i ka lāʻau lapaʻau.
ʻO ka lāʻau lapaʻau nui he papa o nā lāʻau i kapa ʻia ʻo corticosteroids . Hāʻawi ʻia kēia mau mea ma ke ʻano he mau pila. ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia ʻo ia nā lāʻau e like me Prednisone .
Hana kēia mau lāʻau steroid ma ka kaohi ʻana i ka pane pale kino ikaika loa a me ka mumū. E emi koke ke kuni, ka ʻeha, a me nā ʻulaʻula ʻili i loko o kekahi mau lā o ka hoʻomaka ʻana i kēia mau lāʻau.
- Ke mālama nei i ke kumu kumu:
- Inā hoʻokumu ʻia ka Sweet Syndrome e kahi lāʻau lapaʻau, e pau nā hōʻailona ke hoʻopau ʻia ka lāʻau lapaʻau.
- Eia kekahi, inā loaʻa kēia i kahi maʻi a i ʻole kekahi maʻi ʻē aʻe (e like me ke kanesa), he mea nui e mālama i kēlā kūlana kumu.
He aha kāu e manaʻo ai ma hope o ka lāʻau lapaʻau?
No nā kānaka he nui, ho'ōla loa nā ʻeha ʻili i hoʻokumu ʻia e ka Sweet Syndrome me ka waiho ʻole ʻana i nā ʻeha . He mea maikaʻi kēia. Eia nō naʻe, ma hope o ka ho'ōla ʻana o nā ʻeha, aia paha kekahi ʻano ʻili i hoʻololi ʻia ma kēlā mau wahi (e like me nā kiko ʻeleʻele a ʻeleʻele paha) e mau ana no kekahi mau mahina. I ka hala ʻana o ka manawa, e nalo mālie ana kēia.
ʻO ka maʻamau, mau nā hōʻailona no kekahi mau pule a i ʻole hoʻokahi mahina, akā me ka mālama ʻana, wikiwiki ka hoʻōla ʻana. Inā he maʻi ʻē aʻe ma lalo, hiki ke lōʻihi iki ka manawa hoʻōla.
ʻO ka mea nui loa, ʻaʻole kēia maʻi e laha. ʻO ia hoʻi, ʻaʻole ia e laha mai kekahi kanaka a i kekahi kanaka ma o ka hoʻopā ʻana a i ʻole kekahi ʻano ʻē aʻe.
Āhea wau e ʻike ai i ke kauka?
He nīnau koʻikoʻi loa kēia.
Inā ʻike ʻoe i kekahi o nā hōʻailona i ʻōlelo ʻia ma kēia ʻatikala, ʻoiai ke kuni kiʻekiʻe koke me nā pehu ʻulaʻula ʻeha a i ʻole nā puʻupuʻu ma kou ʻili , mai hoʻowahāwahā iā ia he "maʻamau." E ʻike pono i kāu kauka i ka hikiwawe loa.
Ma ka ʻike mua ʻana i ka maʻi a me ka hoʻomaka ʻana i ka lāʻau e pono ai, hiki ke kaohi koke ʻia nā hōʻailona a hiki ke pale ʻia nā pilikia.
Leka Lawe-Home
- He maʻi laha ʻole ka Sweet Syndrome e hoʻoulu ai i nā pehu ʻulaʻula ʻeha ma ka ʻili, me ke kuni koke.
- ʻAʻohe pinepine kumu kikoʻī no kēia, akā pili paha ia i kekahi mau maʻi, nā lāʻau lapaʻau, a i ʻole nā kūlana olakino ʻē aʻe.
- ʻAʻole kēia he maʻi lele, no laila ʻaʻohe pono e makaʻu.
- He mea nui ka hoʻokolokolo kino e ke kauka a me ka biopsy ʻili no ka hōʻoia ʻana.
- Hiki ke hoʻokele pono ʻia kēia kūlana me nā lāʻau i kapa ʻia ʻo corticosteroids.
- Inā ʻike ʻoe a i ʻole kekahi āu i ʻike ai i kēia mau hōʻailona, e ʻimi koke i ke kōkua lapaʻau.
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