Ua makaʻu anei ʻoe i ka wā e loaʻa koke ai i kāu keiki liʻiliʻi nā kiko ʻulaʻula-poni liʻiliʻi ma ko lākou mau wāwae a me nā puʻupuʻu? Ua hoʻopiʻi paha lākou i ka ʻeha o ka ʻōpū a me ka ʻeha o nā hono. He mea maʻamau no kekahi makua ke hopohopo ke ʻike lākou i kahi mea e like me kēia. Akā i ka hapa nui o ka manawa, ʻaʻole ia he mea koʻikoʻi . Hiki ke hoʻokumu ʻia kēia mau hōʻailona e kahi maʻi i kapa ʻia ʻo Henoch-Schönlein Purpura (HSP), a i ʻole e like me ka mea i kapa ʻia i kēia manawa, ʻo IgA Vasculitis. E kamaʻilio maʻalahi kākou e pili ana.
I ka ʻōlelo maʻalahi, he aha ka Henoch-Schönlein Purpura (HSP)?
ʻO ka Henoch-Schönlein Purpura (HSP), ma ke ʻano lapaʻau, he ʻano "Vasculitis." ʻO ka Vasculitis ka wā e pehu ai nā kīʻaha koko i loko o ko kākou kino, e like me nā ʻōmole liʻiliʻi e lawe ana i ke koko, mai loko mai. E like me ka wā e pehu ai ko kākou ʻili i ka wā e ʻeha ai, aia ka pehu i loko o nā kīʻaha koko.
I ka HSP, ʻike nui ʻia kēia pehu ʻana ma nā kīʻaha koko liʻiliʻi loa ma lalo o ka ʻili. Eia nō naʻe, i kekahi manawa hiki i kēia hopena ke hoʻonui i nā kīʻaha koko i loko o nā puʻupaʻa, nā ʻōpū, a me nā hono.
Hana ʻia kēia ma muli o ka hōʻiliʻili ʻana o kahi protein kūikawā (antibody) i kapa ʻia ʻo `(Immunoglobulin A)` a i ʻole `(IgA)`, ʻo ia kekahi ʻāpana o ka ʻōnaehana pale o ko mākou kino (ʻo ia hoʻi, ka ʻōnaehana e pale aku iā mākou mai nā maʻi), i loko o nā kīʻaha koko. Ke hōʻiliʻili ʻia ʻo `(IgA)` ma kēia ʻano, ua hōʻino ʻia nā kīʻaha koko, ua pohā lākou, a ua kahe iki ke koko ma lalo o ka ʻili. ʻO ia ke kumu e ʻike ai mākou i nā kiko poni a me ka ʻulaʻula ma waho. E like me kahi palapū liʻiliʻi.
Ua kapa ʻia kēia maʻi ʻo `(IgA) Vasculitis` no ka mea ua pili ka antibody `(IgA)`. ʻOiai hiki ke ulu i loko o nā kānaka o kēlā me kēia makahiki, ʻike pinepine ʻia ia i nā keiki .
ʻO ka mea nui, ʻaʻole maʻamau ka HSP he maʻi koʻikoʻi. Hoʻōla loa ka hapa nui o nā keiki me ka ʻole o ka lāʻau lapaʻau. Eia nō naʻe, hiki ke ʻoi aku ka koʻikoʻi i nā pākeke.
He aha nā hōʻailona a mākou e ʻike nei?
Hiki i nā hōʻailona o ka HSP ke hoʻopilikia nui i ka ʻili o ke keiki, nā hono, nā ʻōpū, a me nā puʻupaʻa. ʻO ka hōʻailona koʻikoʻi a maopopo loa, ʻo ia nā kiko poni-ʻulaʻula e kū mai ana ma ka ʻili. E nānā kākou i kēia mau hōʻailona ma ke kaʻawale.
| Hōʻailona | Wehewehena |
|---|---|
| ʻŌhū ʻili | ʻO kēia ka hōʻailona nui. Hoʻoulu ia i nā kiko ʻulaʻula a poni paha e piʻi iki aʻe ana ma luna o ka ʻili. I kekahi manawa he kakaikahi wale nō nā kiko, i kekahi manawa he nui paha. ʻAʻole kēia mau mea he ʻānai a ʻeha paha . ʻIke pinepine ʻia lākou ma nā wāwae a me nā puʻupuʻu o ke keiki. |
| ʻEha a me ka pehu ʻana o nā hono | Pehu a ʻeha nā hono, ʻoiai nā kuli a me nā kuʻekuʻe wāwae. Hiki i ke keiki ke paʻakikī i ka hele wāwae. |
| ʻeha ka ʻōpū | Hiki ke hele mai a hele aku nā ʻeha o ka ʻōpū. Hiki i kekahi mau keiki ke loaʻa i ka luaʻi a me ka nausea. |
| Nā hiʻohiʻona ʻē aʻe | ʻAʻole paha e ʻike ʻia ke koko i loko o ka ʻōpala a i ʻole ke koko i loko o ka mimi (mimi ʻulaʻula/ʻeleʻele). He mau hōʻailona paha kēia o nā pilikia o ka puʻupaʻa a i ʻole ka ʻōpū. |
No ke aha e hana ʻia ai kēia? He aha nā kumu?
He maʻi autoimmune ka HSP. I ka ʻōlelo maʻalahi, hoʻomaka hewa ka "pūʻali koa" o ko mākou kino (ka ʻōnaehana pale) e hoʻouka i kona mau kīʻaha koko olakino ponoʻī. ʻAʻole maopopo i nā kānaka noiʻi ke kumu o kēia.
Akā hoʻokahi mea i maopopo: Ma kahi o 50% o nā keiki i loaʻa i ka HSP ua loaʻa i ka maʻi hanu o luna, e like me ka ʻeha ʻāʻī a i ʻole ke anu, i kekahi mau lā ma mua o ka ʻike ʻia ʻana o kēia mau hōʻailona .
Nā mea ʻē aʻe e hiki ke hoʻoulu i ka HSP (Triggers)
I kekahi manawa, hiki i ka HSP ke hana ʻia ma ke ʻano he pane maʻamau ʻole o ka ʻōnaehana pale i kēia mau mea:
- Nā maʻi bacteria, no ka laʻana me ka ʻāʻī strep.
- Nā maʻi viral.
- Kekahi mau meaʻai.
- Nā nahu pepeke.
- Kekahi mau lāʻau lapaʻau.
- Kekahi mau ʻano lāʻau pale (he mea kākaʻikahi loa kēia).
ʻO wai ka mea kūpono loa e loaʻa i kēia maʻi?
ʻOiai hiki ke loaʻa ka IgA vasculitis i kēlā me kēia makahiki, ʻoi aku ma mua o 90% o nā hihia i hōʻike ʻia i nā keiki ma waena o 3 a me 10 mau makahiki .
ʻO nā kumu pilikia ʻē aʻe:
- Moʻolelo ʻohana:Inā ua loaʻa i kekahi o kou ʻohana ka HSP ma mua, ʻoi aku ka nui o ka pilikia o kāu keiki i ka loaʻa ʻana iā ia.
- Mana hoʻoilina: Ua ʻike ʻia kēia ʻano he mea maʻamau i waena o ka poʻe o ka hanauna ʻEulopa a me ʻAsia.
Aia kekahi mau pilikia e hiki ke kū mai ma muli o ka HSP?
Hoʻōla loa ka hapa nui o ka poʻe i loko o hoʻokahi a ʻekolu paha mahina me ka ʻole o ka lāʻau lapaʻau. I kekahi manawa hiki ke hoʻi hou mai ka maʻi, akā pinepine kēlā e hoʻōla ponoʻī.
Eia nō naʻe, i kekahi manawa, ʻoiai i waena o nā pākeke, hiki i ka HSP ke lilo i mea koʻikoʻi a hoʻoulu i nā pilikia.
- ʻO ka hōʻino ʻana o nā puʻupaʻa: Hiki ke loaʻa nā maʻi puʻupaʻa no ka manawa lōʻihi. ʻO kēia ka pilikia nui e makaʻala ai i ka HSP.
- Ke kahe ʻana o ke koko i loko o nā ʻōpū.
- Ka hōʻino ʻana a i ʻole ka pale ʻana o nā ʻōpū.
- Ke koko kiʻekiʻe i ka wā hāpai (no nā wahine).
Pehea ʻoe e ʻike ai i kēia, e Kauka?
Ke lawe ʻoe i kāu keiki i ke kauka keiki, e nānā pono mua ʻo ia i kāu keiki, e nānā pono ana i nā ʻōhū ʻili a me nā hono pehu. A laila, e nīnau lākou iā ʻoe e pili ana i nā hōʻailona o kāu keiki a me nā maʻi i hala koke aku nei.
No ka hōʻoia ʻana i ka maʻi a me ka hoʻopau ʻana i nā kūlana olakino ʻē aʻe, hiki i ke kauka ke kauoha i kekahi mau hoʻokolohua.
- Urinalysis: No ka hoʻoholo ʻana inā ua hoʻopilikia ʻia nā puʻupaʻa, nānā ʻia ka mimi no ke koko a i ʻole ka protein.
- Hoʻāʻo koko: No ka nānā ʻana i ka maʻi a i ʻole nā pilikia ʻē aʻe i loko o ke kino.
- ʻO ke kani ʻana o nā puʻupaʻa: E nānā i ke kūlana o nā puʻupaʻa.
- ʻO ka ultrasound o ka ʻōpū: E ʻike i ke kumu o ka ʻeha o ka ʻōpū.
- ʻO ka biopsy ʻili: I kekahi mau hihia, lawe ʻia kahi ʻāpana ʻili liʻiliʻi mai kahi i loaʻa ai ka mole a nānā ʻia e hōʻoia i ka maʻi.
- ʻO ka biopsy puʻupaʻa: He hoʻāʻo i hana ʻia inā he kānalua no ka hōʻino nui ʻana o ka puʻupaʻa.
He aha nā lāʻau lapaʻau no HSP?
ʻO ka hapa nui o ka manawa, ʻaʻole pono ka HSP i kahi lāʻau lapaʻau kūikawā. ʻO ka mea nui ka mālama ʻana i nā hōʻailona ma ka home.
No ka ʻeha o nā hono a me ka pehu ʻana, hiki iā ʻoe ke lawe i ka paracetamol (Tylenol®) a i ʻole kahi lāʻau hoʻomaha ʻeha NSAID (Advil®) e like me ke kuhikuhi a kāu kauka.
Eia nō naʻe, inā koʻikoʻi nā hōʻailona e like me ka ʻeha o ka ʻōpū, hiki i ke kauka ke kuhikuhi i kahi lāʻau steroid e like me ka prednisone. Inā hoʻomau ka ʻili ʻili a me nā hōʻailona ʻē aʻe, e ʻike pono i ke kauka o kāu keiki.
E hoʻomanaʻo, he maʻi ʻoluʻolu pinepine ka HSP e hoʻopau ponoʻī. Akā, i kekahi manawa, hiki iā ia ke hana i nā pilikia koʻikoʻi, me nā pilikia o ka puʻupaʻa a me ka ʻōpū. No laila, pono paha kekahi mau keiki e lawe i nā lāʻau lapaʻau e mālama pono i kā lākou ʻōnaehana pale. E kamaʻilio me kāu kauka e pili ana i kēia mau lāʻau lapaʻau a me ko lākou mau hopena ʻaoʻao.
Āhea mākou e ʻike ai i ke kauka?
ʻOi aku ka maikaʻi o ka ʻike ʻana i ke kauka i ka wā e loaʻa ai i kāu keiki kēia mau hōʻailona. Eia kekahi, inā ʻike ʻia nā hōʻailona ma lalo nei i ka wā o ka mālama ʻana a i ʻole ke ola ʻana o ka maʻi, e ʻike hou i kāu kauka.
| I ka manawa e ʻimi koke ai i ke aʻo lapaʻau | |
|---|---|
| 1. | Inā he pehu ʻano ʻē. |
| 2. | Inā ʻeha a ʻoluʻolu ʻole paha ke keiki. |
| 3. | Inā ʻoi aku ka mau ʻana o nā hōʻailona ma mua o 12 mau pule. |
| 4. | Inā hoʻomaikaʻi aʻe nā hōʻailona a laila hoʻi hou. |
| 5. | Inā e ʻoi aku ka ʻino o nā hōʻailona i kēlā me kēia lā, ma kahi o ka hoʻomaikaʻi ʻana. |
ʻAʻole he maʻi ola ka HSP. Hoʻopau pinepine ia i loko o hoʻokahi a ʻekolu paha mahina. Hiki i kekahi mau keiki ke loaʻa i ka lua o ka hanana, akā ʻaʻole ʻoi aku ka koʻikoʻi o nā hōʻailona.
ʻO ka mea hope loa, hiki i ka HSP ke hōʻeha a me ka ʻoluʻolu ʻole i kāu keiki. Hiki ke paʻakikī loa i nā mākua ke ʻike i kā lākou keiki e ʻeha ana. Akā e hoʻomanaʻo, hoʻōla loa ka hapa nui o nā keiki me ka ʻole o nā pilikia lōʻihi.Pono paha ke kauka e nānā pono i ke keiki no kekahi manawa e nānā i ke kūlana o nā puʻupaʻa. He mea nui loa kēia.
Leka Lawe-Home
- ʻO ka Henoch-Schönlein Purpura (HSP) kahi kūlana e pehu ai nā kīʻaha koko liʻiliʻi ma lalo o ka ʻili, e hana ana i nā kiko poni-ʻulaʻula ma nā wāwae a me nā puʻupuʻu.
- ʻIke pinepine ʻia kēia i nā keiki a ʻaʻole ia he maʻi koʻikoʻi.
- ʻO nā hōʻailona e like me ka ʻeha hono a me ka ʻeha ʻōpū e hiki mai pū me kēia.
- Hoʻōla piha ka hapa nui o nā keiki i loko o 1-3 mau mahina me ka ʻole o ka mālama kūikawā.
- He mea nui loa e ʻike koke i ke kauka inā ʻike ʻoe i kēia mau kiko ma ka ʻili o kāu keiki, no ka mea, ʻaʻole hiki iā lākou ke hoʻopilikia i nā puʻupaʻa.
- He mea nui e hahai i nā ʻōlelo a ke kauka a hana i nā hoʻokolohua kino mau.
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