Koj tus kws kho mob puas tau muab tshuaj txhaj tshwj xeeb los tswj kev los ntshav sai sai rau koj lossis ib tug neeg hauv tsev neeg? Tej zaum koj yuav tsis nkag siab lub npe. Tab sis tsis txhob txhawj. Peb tab tom tham txog cov tshuaj ntawd hnub no. Feem ntau nws yog siv los tswj kev los ntshav hauv ib qho mob tsis tshua muaj hu ua Acquired Hemophilia A. Cia peb tham txog nws yooj yim thiab meej.
Kab mob Hemophilia A uas tau txais yog dab tsi?
Hais yooj yim xwb, qhov no yog teeb meem nrog peb lub cev cov ntshav txhaws. Feem ntau, thaum peb raug mob, peb cov ntshav txhaws thiab tsis los ntshav. Qhov no tau pab los ntawm cov protein tshwj xeeb hauv peb cov ntshav, xws li Factor VIII .
Txawm li cas los xij, hauv Acquired Hemophilia A, peb lub cev tiv thaiv kab mob pib tawm tsam cov protein no hu ua Factor VIII. Peb kuj hu cov tshuaj no ua cov tshuaj tiv thaiv . Qhov no txo qhov peev xwm ntawm cov ntshav kom khov, thiab qee zaum ua rau los ntshav ntau dhau yam tsis muaj laj thawj lossis txawm tias los ntawm kev raug mob me me. Qhov no tsis zoo li cov kab mob hemophilia uas yug los, tab sis yog ib qho mob uas tuaj yeem tshwm sim txhua lub sijhawm hauv lub neej.
Yog li ntawd, cov tshuaj tiv thaiv kab mob no (OBIZUR) ua haujlwm li cas?
Tam sim no koj nkag siab tias qhov teeb meem yog peb cov tshuaj tiv thaiv kab mob tawm tsam peb tus kheej Factor VIII. Yog li cov kws kho mob muab cov tshuaj tiv thaiv tshwj xeeb no los daws qhov teeb meem no.
Txawm hais tias lub npe ntawm cov tshuaj no ntev heev, nws hais li cas tseem ceeb heev:
- Antihemophilic Factor: Qhov no txhais tau tias yog ib yam dab tsi uas tiv thaiv tus mob hemophilia, lossis txhawb kom ntshav txhaws.
- Kab Mob Npua: Qhov no yog qhov tshwj xeeb. "Npua" txhais tau tias yog ib yam dab tsi uas muaj feem cuam tshuam nrog npua. Cov tshuaj tiv thaiv no yog ua los ntawm txoj kev uas zoo ib yam li cov kab mob ntawm cov ntshav txhaws ntawm npua. Vim li cas nws thiaj ua li ntawd? Vim tias, thaum cov tshuaj tiv thaiv kab mob hauv peb lub cev paub thiab tawm tsam tib neeg Factor VIII, lawv tsis paub cov qauv zoo ib yam li cov npua no. Yog li ntawd, lawv tuaj yeem pab cov ntshav txhaws yam tsis tawm tsam nws.
- Recombinant: Qhov no txhais tau hais tias cov tshuaj no tsis tau txais ncaj qha los ntawm tsiaj, tab sis yog tsim tawm hauv chav kuaj mob siv biotechnology (recombinant DNA technology) hauv txoj kev huv si thiab muaj kev nyab xeeb.
Hais yooj yim xwb, qhov tshuaj tiv thaiv kab mob no ua yog tswj kev los ntshav ntau dhau los ntawm kev muab ib yam uas koj lub cev xav tau los txhaws yam tsis raug cuam tshuam los ntawm cov tshuaj tiv thaiv kab mob.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej noj cov tshuaj no
Vim tias qhov no yog ib yam tshuaj tshwj xeeb, nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj keeb kwm kev kho mob ua ntej pib kho mob.
| Yam koj yuav tsum paub | Yog vim li cas? |
|---|---|
| Kev ua xua | Nco ntsoov qhia rau koj tus kws kho mob yog tias koj ua xua rau cov tshuaj no, cov protein nqaij npuas, cov protein hamster (siv rau hauv kev tsim qee cov tshuaj), lossis lwm yam tshuaj, khoom noj, lossis xim zas. |
| Cev xeeb tub los yog pub niam mis | Nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob yog tias koj cev xeeb tub, tab tom sim cev xeeb tub, lossis pub niam mis. |
Koj siv cov tshuaj no li cas?
Qhov no tsis yog tshuaj uas koj nqos zoo li cov tshuaj ntsiav ib txwm muaj. Qhov no yog kev txhaj tshuaj rau hauv cov hlab ntsha . Kev kho mob no feem ntau yog muab rau hauv tsev kho mob lossis chaw kho mob los ntawm tus kws kho mob lossis tus nais maum uas tau kawm tiav. Qhov no yog vim tias koj yuav tsum tau saib xyuas ze thaum lub sijhawm kho mob.
Tsis tshua muaj neeg mob uas raug qhia kom txhaj tshuaj tiv thaiv kab mob no hauv tsev. Yog tias muaj, lawv yuav qhia koj txog kev npaj thiab txhaj tshuaj kom raug. Tsis txhob noj tshuaj ntau tshaj li tus kws kho mob tau qhia lossis noj tshuaj ua ntej lub sijhawm tau teem tseg.
Yuav ua li cas yog tias cov tshuaj ntau ntxiv?
Yog koj xav tias koj tau noj ntau dua li qhov tau teev tseg, hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Hauv Tebchaws Colombo lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Yog tias kuv tsis nco qab noj tshuaj li cas?
Nws yog ib qho tseem ceeb heev uas yuav tsum noj cov tshuaj raws sijhawm thaum lub sijhawm kho mob no. Yog tias koj tsis nco qab mus ntsib kws kho mob, hu rau koj tus kws kho mob tam sim ntawd kom tau txais lus qhia. Yog tias koj tab tom noj tshuaj hauv tsev, noj cov tshuaj uas koj tsis nco qab sai li sai tau thaum koj nco qab. Txawm li cas los xij, yog tias nws yuav luag txog lub sijhawm rau cov tshuaj tom ntej, hla cov tshuaj uas koj tsis nco qab thiab noj cov tshuaj tom ntej raws sijhawm teem tseg. Tsis txhob noj ob zaug rau txhua qhov laj thawj.
Tej yam yuav tsum xav txog thaum lub sijhawm kho mob
- Kev Kuaj Ntshav: Thaum noj cov tshuaj no, koj tus kws kho mob yuav hais kom kuaj ntshav tas li kom paub seb nws puas ua haujlwm zoo, koj cov ntshav khov li cas, thiab seb koj lub cev puas tsim cov tshuaj tiv thaiv tshiab tawm tsam cov tshuaj. Nws yog ib qho tseem ceeb heev uas yuav tsum tsis txhob hla cov kev kuaj no.
- Kev saib xyuas kev kho mob: Thaum koj nyob hauv tsev kho mob, cov neeg ua haujlwm kho mob yuav saib xyuas koj ze. Lawv yuav saib xyuas tas li seb puas muaj cov cim qhia tias koj los ntshav thiab ua xua.
- Daim Ntawv Pov Thawj Kho Mob: Yog tias koj muaj tus kab mob hemophilia, nws yog ib qho tseem ceeb heev uas yuav tsum nqa daim ntawv pov thawj kho mob lossis lub kauj tes/saw uas teev koj tus mob, cov tshuaj uas koj noj, qhov ntau npaum li cas, thiab lub sijhawm. Nws tuaj yeem pab cawm koj txoj sia thaum muaj xwm txheej ceev.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj, cov tshuaj no tuaj yeem ua rau muaj kev phiv, txawm hais tias tsis yog txhua tus neeg yuav muaj. Yog tias koj muaj ib qho ntawm cov tsos mob hauv qab no, qhia rau koj tus kws kho mob lossis tus kws saib mob tam sim ntawd.
| Hom kev phiv tshuaj | Cov tsos mob |
|---|---|
| Kev Ua Xua Loj Hlob | Tawv nqaij tawm pob, khaus los yog ua pob khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig los yog caj pas, ua pa nyuaj. Cov no tuaj yeem ua rau mob hnyav heev thiab yuav tsum tau tshaj tawm tam sim ntawd. |
| Kev Tsim Kho Tshuaj Tiv Thaiv | Yog tias koj tswj tsis tau qhov ntshav txawm tias tom qab noj tshuaj lawm los xij, nws txhais tau tias koj lub cev kuj tau pib tsim cov tshuaj tiv thaiv kab mob tawm tsam cov tshuaj no lawm thiab. Qhia rau koj tus kws kho mob txog qhov no. |
Yog tias koj muaj lwm yam tsos mob txawv txawv uas tsis tau hais nyob rau hauv daim ntawv teev npe no, nrog koj tus kws kho mob tham txog lawv thiab.
Kev sib cuam tshuam nrog lwm cov tshuaj
Lwm cov tshuaj uas koj noj yuav cuam tshuam nrog cov tshuaj tiv thaiv kab mob no, tshwj xeeb yog Factor VIIa.Koj yuav tsum ceev faj heev thaum siv qhov no nrog lwm cov tshuaj uas ua rau cov ntshav nyias, xws li:
Yog li ntawd, muab daim ntawv teev tag nrho cov tshuaj uas koj noj rau koj tus kws kho mob (cov tshuaj uas kws kho mob sau ntawv kom noj, cov vitamins, cov tshuaj ntsuab, thiab cov tshuaj ntxiv). Tsis tas li ntawd, qhia rau koj tus kws kho mob yog tias koj haus luam yeeb lossis haus cawv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Cov tshuaj tiv thaiv no yog siv los tswj kev los ntshav ntau dhau hauv ib qho mob tsis tshua muaj hu ua Acquired Hemophilia A.
- Qhov no yog ib qho kev kho mob tshwj xeeb uas raug txhaj rau hauv cov leeg ntshav, feem ntau muab rau hauv tsev kho mob.
- Nco ntsoov qhia rau koj tus kws kho mob txog koj cov kev ua xua thiab lwm yam tshuaj uas koj noj.
- Yog koj muaj cov tsos mob ua xua loj heev (mob tawv nqaij, o, ua pa nyuaj), nrhiav kev pab kho mob tam sim ntawd.
- Tsis txhob hla dhau kev kuaj ntshav thiab kev teem sijhawm uas koj tus kws kho mob tau sau tseg.
- Cov tshuaj no tsuas yog rau koj xwb. Tsis txhob muab qhia rau lwm tus. Yog tias koj muaj lus nug, nrog koj tus kws kho mob tham.
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