Qee zaum cov npe ntawm cov tshuaj uas cov kws kho mob sau rau peb nyuaj me ntsis, puas yog? Tab sis thaum peb nkag siab tias cov tshuaj ntawd cuam tshuam li cas rau peb lub cev, nws ua rau peb zoo siab heev. Niaj hnub no peb tab tom tham txog ib qho tshuaj tshwj xeeb, hu ua Burosumab, uas yog muab ua koob tshuaj. Qhov no yog ib qho kev kho mob tseem ceeb heev, tshwj xeeb tshaj yog rau cov neeg uas muaj kab mob caj ces hu ua X-linked hypophosphatemia (XLH).
Muaj dab tsi tshwm sim tiag tiag nrog cov tshuaj no?
Hais yooj yim xwb, X-linked hypophosphatemia (XLH) yog ib qho mob uas lub raum tso tawm ntau dhau ntawm cov mineral phosphate uas peb lub cev xav tau. Raws li koj paub, phosphate yog qhov tseem ceeb rau kev ua kom peb cov pob txha muaj zog. Thaum cov phosphate poob qis, cov pob txha tuaj yeem qaug zog, tawg yooj yim, thiab rau cov menyuam yaus, kev loj hlob qeeb, nrog rau mob hauv cov pob txha thiab pob qij txha.
Nov yog qhov uas tshuaj tiv thaiv Burosumab los pab. Cov tshuaj tiv thaiv no ua haujlwm los ntawm kev tswj cov phosphate tawm ntawm lub cev thiab coj cov phosphate hauv cov ntshav rov qab mus rau qhov qub. Qhov no tso cai rau cov pob txha tau txais cov phosphate uas lawv xav tau thiab pib loj hlob tuaj.
Qhov tseem ceeb, Burosumab yog ib txoj kev kho mob uas tswj tau tus mob, tsis yog ib txoj kev kho kom zoo. Cov tshuaj no feem ntau hu ua CRYSViTA.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib kho mob
Ua ntej koj pib kho mob no, koj yuav tsum qhia rau koj tus kws kho mob txog qee yam ntawm koj tus mob, vim tias cov ntaub ntawv ntawd yuav pab lawv txiav txim siab seb cov tshuaj no puas yog rau koj lossis tsis yog.
- Yog koj muaj mob ntsig txog lub raum .
- Yog koj muaj kev tsis haum tshuaj rau cov tshuaj Burosumab no, lwm yam tshuaj, khoom noj, lossis xim zas.
- Yog tias koj cev xeeb tub , lossis tab tom yuav muaj menyuam sai sai no.
- Yog koj yog ib leej niam pub niam mis .
Tsis txhob zais cov lus tseeb no ntawm tus kws kho mob, vim nws tseem ceeb heev rau koj txoj kev nyab xeeb.
Koj siv cov tshuaj no li cas?
Cov tshuaj no tsis yog ib yam tshuaj uas koj noj tau hauv tsev. Burosumab yog ib yam tshuaj txhaj rau hauv qab daim tawv nqaij . Nws yog muab rau koj los ntawm ib tug kws kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob.
Koj puas muab qhov no rau cov menyuam yaus me?
Yog, qee zaum tshwj xeeb, kev kho mob no tuaj yeem muab rau cov menyuam yaus hnub nyoog li 1 xyoos. Tab sis yuav tsum tau ua raws li kev ceev faj tshwj xeeb. Yog li ntawd, yog tias koj muab cov tshuaj no rau koj tus menyuam, nrog koj tus kws kho mob menyuam tham txog nws.Nws yog ib qho tseem ceeb uas yuav tsum nrog lawv tham kom meej thiab nrhiav cov ntsiab lus.
Yog tias kuv tau txais tshuaj ntau dhau lawm ne?
Qhov no yuav tsis tshwm sim vim tias nws yog muab rau hauv tsev kho mob. Txawm li cas los xij, yog tias koj xav tias koj tau noj cov tshuaj no ntau dhau, hu rau National Poisons Information Centre ntawm Colombo National Hospital tam sim ntawd. Los yog mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Tseem Ceeb: Cov tshuaj no tsuas yog muab rau koj xwb. Tsis txhob muab cov tshuaj no rau lwm tus txawm yog vim li cas los xij.
Kuv yuav ua li cas yog tias kuv tsis nco qab noj tshuaj?
Nws yog ib qho tseem ceeb heev uas yuav tsum mus rau tsev kho mob/chaw kho mob raws li hnub teem tseg thiab raws lub sijhawm teem tseg kom ua tiav qhov kev kho mob no. Tsis txhob nco ib qho ntawm cov kev noj tshuaj no rau txhua qhov laj thawj. Yog tias koj mus tsis tau raws li hnub teem tseg, hu rau koj tus kws kho mob tam sim ntawd thiab qhia rau nws txog qhov ntawd, thiab tau txais cov lus qhia rau hnub tom ntej.
Lwm yam tshuaj uas yuav tsum tsis txhob siv nrog cov tshuaj no
Muaj ntau yam tshuaj uas yuav tsum tsis txhob noj nrog Burosumab, yog li nws tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj.
Yog koj noj cov tshuaj no, nco ntsoov hais txog lawv:
- Calcitriol
- Cov tshuaj phosphate hauv qhov ncauj
Daim ntawv teev npe no tsis tiav. Yog li ntawd, qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj (xws li cov vitamins, tshuaj ntsuab, thiab cov khoom noj khoom haus ntxiv). Tsis tas li ntawd, ua siab ncaj txog seb koj puas haus luam yeeb, haus cawv, lossis siv lwm yam tshuaj.
Tej yam yuav tsum xav txog thaum lub sijhawm kho mob
Yog tias koj cov tsos mob tsis zoo dua, lossis yog tias lawv zoo li hnyav zuj zus, qhia rau koj tus kws kho mob. Koj tus kws kho mob yuav saib xyuas koj ze thaum koj noj cov tshuaj no. Nws kuj tseem yuav tsum tau kuaj ntshav tsis tu ncua kom paub meej tias koj cov phosphate nyob rau hauv cov ntshav.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj, Burosumab tuaj yeem ua rau muaj kev phiv rau qee tus neeg. Qee qhov ntawm cov no tuaj yeem ua rau mob hnyav, yog li nws tseem ceeb heev uas yuav tsum paub txog lawv.
| Hom kev phiv tshuaj | Kev piav qhia |
|---|---|
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau tus kws kho mob tam sim ntawd | |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus los yog ua pob khaus, o ntawm lub ntsej muag, daim di ncauj los yog tus nplaig. |
| Teeb meem ntawm qhov chaw txhaj tshuaj | Mob, liab, lossis o ntawm qhov chaw txhaj tshuaj. |
| Tej yam yuav tsum qhia rau koj tus kws kho mob yog tias lawv tseem muaj lossis ua rau koj ntxhov siab | |
| Cov kev mob tshwm sim feem ntau | Mob nraub qaum, cem quav, kiv taub hau, kub taub hau, mob taub hau, mob nqaij, mob hniav, ntuav. |
Daim ntawv teev npe no tsis yog txhua yam kev mob tshwm sim uas yuav tshwm sim. Yog tias koj muaj cov tsos mob txawv txawv, thov nrhiav kev pab kho mob.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Burosumab yog ib qho tshuaj txhaj tshwj xeeb uas tswj cov phosphate hauv lub cev thiab yog muab rau tus mob X-linked hypophosphatemia (XLH).
- Cov tshuaj tiv thaiv kab mob no yog muab los ntawm ib tus kws kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog tag nrho koj cov mob thiab lwm yam tshuaj uas koj noj.
- Tsis txhob hla koj cov sijhawm teem tseg rau kev noj tshuaj. Yog tias koj mus tsis tau rau ib qho laj thawj twg, qhia rau koj tus kws kho mob tam sim ntawd.
- Yog tias muaj cov tsos mob ntawm kev ua xua (xws li daim tawv nqaij liab, o), nrhiav kev pab kho mob tam sim ntawd.
- Yog koj muaj lus nug txog cov tshuaj no, tsis txhob ntshai nug koj tus kws kho mob.
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