Koj puas tau muaj ib lub pob lossis cov qog me me uas tsis zoo li qub nyob hauv qab daim tawv nqaij ntawm koj ceg lossis caj npab uas tsis ploj mus? Tej zaum nws yuav tsis mob thaum koj nias rau nws. Tab sis yog tias nws zoo li nws loj zuj zus, nws yuav yog ib yam dab tsi uas yuav tsum txhawj xeeb txog. Hnub no peb yuav tham txog ib hom mob qog noj ntshav uas tsis tshua muaj uas tuaj yeem ua rau muaj cov tsos mob zoo sib xws, tab sis nws tsim nyog paub txog. Nws hu ua Clear Cell Sarcoma .
Mob qog ntshav Clear Cell Sarcoma yog dab tsi?
Hais yooj yim xwb, mob qog nqaij hlav ntshiab yog ib hom mob qog nqaij hlav uas tsis tshua muaj tshwm sim hauv cov nqaij mos . Nws poob rau hauv ib pawg hu ua sarcoma . Feem ntau, cov mob qog nqaij hlav no pib hauv cov leeg , cov nqaij uas txuas cov leeg rau cov pob txha, thiab cov nqaij mos nyob ib puag ncig cov leeg, hauv koj ob txhais ceg, tshwj xeeb tshaj yog koj txhais taw.
Ib yam li lwm hom mob qog noj ntshav, mob qog ntshav dawb yooj yim kho dua yog tias pom ua ntej nws kis mus rau lwm qhov ntawm lub cev. Cov kws kho mob kho qhov mob no feem ntau nrog kev phais , thiab yog tias tsim nyog , kev kho mob hluav taws xob thiab qee zaum chemotherapy . Hmoov tsis zoo, txawm tias tom qab kho mob lawm, tus kab mob muaj feem yuav rov tshwm sim dua. Yog vim li ntawd cov kws tshawb fawb kho mob thiaj li nrhiav txoj hauv kev tshiab los kho mob qog ntshav dawb.
Kab mob sarcoma ntawm cov hlwb dawb paug cuam tshuam rau kuv lub cev li cas?
Feem ntau cov qog nqaij hlav clear cell sarcoma pib nyob rau hauv cov nqaij mos mos tob tob uas nyob ib puag ncig koj cov leeg thiab cov leeg, lossis nyob rau hauv ib txheej ntawm cov nqaij hu ua fascia . Fascia zoo li ib txoj hlua uas qhwv txhua qhov qauv hauv peb lub cev.
Thaum xub thawj, tej zaum koj yuav tsis pom dab tsi li. Tab sis koj yuav pom nws thaum tus mob qog noj ntshav loj hlob thiab ua ib lub pob uas koj hnov tau hauv qab daim tawv nqaij ntawm koj ceg lossis ko taw. Lub pob no yuav zoo li lub pob uas tshwm sim thaum koj ntaus koj ceg lossis ko taw hnyav, tab sis qhov txawv tseem ceeb yog tias lub pob no tsis ntsws zuj zus raws sijhawm . Mob qog ntshav dawb (clear cell sarcoma) loj hlob qeeb heev. Txawm li cas los xij, thaum nws kis tau los ntawm koj cov nqaij mos mos tob hauv qab daim tawv nqaij, tej zaum nws twb pib kis mus rau lwm qhov ntawm koj lub cev lawm.
Xav txog seb, koj muaj ib lub pob me me ntawm koj ceg thiab koj tsis quav ntsej nws, xav tias, "Auj, qhov no yuav tsum tau tshwm sim." Ob peb lub lis piam lossis ob peb lub hlis tom qab, nws tseem nyob ntawd, tej zaum yuav loj dua me ntsis. Yog li ntawd, nws yog qhov zoo tshaj plaws los nrhiav kev pab kho mob.
Kab mob clear cell sarcoma kis mus rau qhov twg?
Kab mob sarcoma ntshiab tuaj yeem kis mus rau lwm qhov ntawm lub cev, feem ntau yog:
- Koj lub cev zom zaub mov (gastrointestinal system)
- Koj liMus rau lub ntsws
- Koj lub cev lymphatic , uas yog cov qog ntshav thiab cov hlab ntsha lymph hauv koj lub cev.
Qhov no puas yog ib qho mob uas neeg feem ntau muaj?
Tsis yog, tsis yog li ntawd. Qhov no yog ib hom mob qog noj ntshav uas tsis tshua muaj. Qhov tseeb, sarcoma kuj yog ib hom mob qog noj ntshav uas tsis tshua muaj. Piv txwv li, hauv Tebchaws Meskas, muaj li ntawm 1,600 tus neeg raug kuaj pom tias muaj sarcoma txhua xyoo. Qhov ntawd yog tus lej me me, kwv yees li 1% ntawm tag nrho cov mob qog noj ntshav hauv cov neeg laus. Clear cell sarcoma, qhov ntawd tsuas yog 1% ntawm tag nrho cov sarcomas. Yog li koj tuaj yeem xav txog qhov no tsis tshua muaj npaum li cas.
Leej twg yuav muaj feem mob clear cell sarcoma ntau dua?
Txawm hais tias mob qog nqaij hlav ntshiab tuaj yeem tshwm sim thaum twg los tau, feem ntau pom muaj rau cov tub ntxhais hluas hnub nyoog ntawm 15 thiab 40 xyoo , tshwj xeeb tshaj yog cov neeg hnub nyoog 20 thiab 30 xyoo.
Cov tsos mob ntawm cov qog nqaij hlav ntshiab yog dab tsi?
Zoo li peb tau tham txog ua ntej lawm, cov tsos mob feem ntau yog ib lub pob uas tsis ploj mus rau hauv qab daim tawv nqaij ntawm koj ceg lossis ko taw . Lub pob no tej zaum yuav mob lossis tsis mob. Tab sis yog tias nws nyob ntawd thiab zoo li nws loj zuj zus, qhov ntawd yog ib qho cim loj.
Ntxiv rau, cov tsos mob hauv qab no yuav tshwm sim tom qab:
- Kev qaug zog ntau dhau tsis muaj laj thawj
- Kev poob phaus tsis paub meej
- Kev hws hmo ntuj
Dab tsi ua rau muaj mob sarcoma ntshiab?
Qhov no nyuaj me ntsis. Cov kws tshawb fawb kho mob tau pom tias tus kab mob sarcoma ntshiab yog tshwm sim los ntawm qee qhov ntawm ob lub chromosomes hauv peb lub cev cov hlwb sib pauv chaw, tsim ib lub noob tshiab sib xyaws ua ke .
Hauv lus yooj yim, qhov no yog qhov tshwm sim:
Thaum peb lub cev cov cell faib, qee zaum ob lub chromosomes tawg thiab cov khoom tawg pauv nrog ib leeg. Hauv qhov no, cov chromosome segments uas tau pauv muaj cov noob hu ua EWSR1 thiab ATF1 . Cov protein tsim los ntawm EWSR1 gene zoo li tseem ceeb rau kev ua haujlwm ntawm cell. ATF1 gene pab tswj kev loj hlob ntawm cell. Thaum cov chromosomes no rov qab los ua ke, cov noob hloov pauv xaus rau hauv qhov chaw tsis raug. Cov kws kho mob hu qhov no ua reciprocal translocation . Qhov laj thawj tseeb vim li cas qhov no tshwm sim tseem tsis tau paub.
Thaum hloov mus rau ib lub chromosome tshiab, cov noob caj noob ces uas tau hloov pauv yuav los ua ke los ua ib lub noob caj noob ces sib xyaws hu ua EWSR1/ATF1 . Cov kws tshawb fawb ntseeg tias cov noob caj noob ces sib xyaws no yog qhov ua rau muaj mob sarcoma ntawm cov hlwb.
Cov kws kho mob kuaj mob clear cell sarcoma li cas?
Thaum koj mus ntsib kws kho mob uas muaj ib lub qog zoo li ntawd, nws yuav xub kuaj koj thiab xyuas seb lub qog nyob qhov twg, nws loj npaum li cas, thiab lwm yam. Tom qab ntawd koj yuav xav tau kev kuaj MRI (Magnetic Resonance Imaging - MRI).Nws ua tau.
Txawm li cas los xij, kev kuaj mob ntawm cov qog ntshav dawb yog lees paub los ntawm kev kuaj mob, uas yog siv kev rho ib daim nqaij me me los ntawm lub qog . Thaum kuaj cov nqaij no hauv qab lub tshuab microscope, cov kws kho mob, cov kws tshwj xeeb uas kuaj cov nqaij hauv chav kuaj, nrhiav seb puas muaj EWSR1/ATF1 fused gene uas peb tau tham txog ua ntej.
Yuav kho tus mob sarcoma ntshiab li cas?
Lub hom phiaj tseem ceeb ntawm cov kws kho mob yog tiv thaiv kom tsis txhob muaj mob qog ntshav dawb (clear cell sarcoma) kis mus rau lwm qhov ntawm lub cev. Feem ntau, thawj kauj ruam yog phais kom tshem tawm cov qog ntshav tag nrho . Yog tias mob qog ntshav tau kis mus rau cov qog ntshav hauv lub cev (lymph nodes), cov qog ntshav hauv lub cev ntawd kuj raug tshem tawm thiab. Tom qab ntawd yog kev kho mob adjuvant . Qhov no feem ntau suav nrog kev kho mob hluav taws xob kom tua cov qog ntshav uas tseem tshuav.
Cov kws tshawb fawb kho mob tam sim no tab tom tshawb nrhiav lwm yam kev kho mob. Piv txwv li, lawv tab tom saib seb kev kho mob tiv thaiv kab mob zoo li cas hauv kev tswj hwm cov qog nqaij hlav ntshiab. Lawv kuj tseem tab tom sim seb cov tshuaj uas siv los kho lwm hom qog nqaij hlav puas tuaj yeem pab tiv thaiv kev kis tus kab mob qog nqaij hlav ntshiab.
Qhov tseem ceeb yog tias mob qog ntshav dawb yog ib yam mob uas feem ntau rov tshwm sim dua. Yog tias qhov ntawd tshwm sim, koj yuav tsum tau phais ntau dua thiab siv tshuaj tua kab mob ntau dua. Thiab vim tias nws tuaj yeem kis tau sai heev, cov kws kho mob yuav kuaj xyuas koj tsis tu ncua kom pom tias puas muaj qog tshiab tshwm sim.
Kuv puas txo tau kuv txoj kev pheej hmoo ntawm kev mob sarcoma ntawm cov hlwb clear cell?
Tu siab kawg li, tsis muaj ib yam dab tsi uas koj ua tau los txo koj txoj kev pheej hmoo ntawm kev mob no. Vim tias cov kws tshawb fawb kho mob tseem tsis tau txheeb xyuas cov yam ntxwv tshwj xeeb uas ua rau muaj mob sarcoma ntshiab. Ib qho yam ntxwv uas ua rau muaj kev pheej hmoo yog ib qho kev ua ub no lossis ib qho mob uas ua rau muaj feem yuav mob ntau ntxiv.
Puas kho tau tus mob sarcoma ntshiab tag nrho?
Cov kws kho mob tuaj yeem kho tus mob clear cell sarcoma, uas txhais tau tias lawv tuaj yeem tshem tawm cov qog thiab sim tswj nws txoj kev kis. Txawm li cas los xij, nws tsis yog ib qho mob uas kho tau tag nrho . Feem ntau, tus mob clear cell sarcoma tuaj yeem kis mus rau lwm qhov ntawm lub cev thaum lub sijhawm kuaj pom tias muaj tus kab mob no. Qhov no ua rau nws nyuaj rau kho. Nws kuj tseem yuav rov qab los tom qab kev kho mob.
Lub neej cia siab ntawm ib tus neeg uas muaj mob sarcoma ntshiab yog dab tsi?
Lub neej ntev yog qhov kwv yees li cas koj yuav nyob ntev npaum li cas, raws li koj txoj kev noj qab haus huv tag nrho thiab cov yam ntxwv ntawm tus kheej. Kev tshuaj xyuas xyoo 2018 ntawm US National Cancer Database qhia tau hais tias ntawm cov neeg uas muaj mob sarcoma ntshiab,Nws kuj tau hais tias 50% tseem muaj sia nyob tsib xyoos tom qab kuaj pom tias muaj tus kab mob, thiab 38% tseem muaj sia nyob kaum xyoo tom qab kuaj pom tias muaj tus kab mob .
Txawm peb tham txog lub neej ntev npaum li cas lossis tus nqi ciaj sia nyob, nws yog ib qho tseem ceeb uas yuav tsum nco ntsoov tias cov no tsuas yog kwv yees xwb, tsis yog kev kwv yees. Lub neej ntev npaum li cas yog kev kwv yees raws li tag nrho cov pej xeem. Tus nqi ciaj sia nyob ntawm mob qog noj ntshav yog kev kwv yees raws li lub sijhawm ntev npaum li cas tib neeg nyob tom qab kev kho mob rau ib hom mob qog noj ntshav tshwj xeeb. Muaj ntau yam uas tuaj yeem cuam tshuam rau tus neeg lub neej ntev npaum li cas lossis lawv txoj kev muaj sia nyob ntawm mob qog noj ntshav. Yog tias koj muaj mob qog ntshav ntshiab, koj tus kws kho mob tuaj yeem muab cov ntaub ntawv zoo tshaj plaws rau koj txog yam yuav tshwm sim.
Puas yog mob qog nqaij hlav ntshiab tuaj yeem ua rau tuag taus?
Yog, nws tuaj yeem ua rau tuag taus. Feem ntau, cov neeg uas muaj mob qog nqaij hlav ntshiab tau kis mus rau lwm qhov ntawm lub cev yuav muaj feem tuag sai dua li cov neeg uas tau txais kev kho mob ua ntej mob qog nqaij hlav kis mus.
Kuv yuav tsum mus ntsib kuv tus kws kho mob thaum twg?
Vim tias mob qog nqaij hlav ntshiab tuaj yeem rov tshwm sim tom qab kev kho mob, koj tus kws kho mob yuav xav ntsib koj txhua peb lub hlis rau ob xyoos thawj zaug tom qab ua tiav kev kho mob, nyob ntawm koj tus mob. Nws yog ib qho tseem ceeb kom muaj kev kuaj xyuas tsis tu ncua ntawm lub sijhawm tsis tu ncua tom qab ntawd.
Kuv yuav tsum nug kuv tus kws kho mob li cas?
Kab mob qog ntshav dawb yog ib yam kab mob uas tsis tshua muaj. Nws tuaj yeem ua rau tuag taus. Yog tias koj raug kuaj pom tias muaj tus mob no, tej zaum koj yuav xav nug koj tus kws kho mob cov lus nug no:
- Lub qog nyob qhov twg? Nws loj npaum li cas?
- Puas yog tus mob qog no kis mus rau lwm qhov chaw hauv kuv lub cev?
- Koj pom zoo kom muaj kev kho mob dab tsi?
- Cov kev mob tshwm sim ntawm kev kho mob yog dab tsi?
- Yog tias kuv phais lawm, muaj feem ntau npaum li cas uas cov qog yuav rov qab los?
- Puas muaj kev sim tshuaj uas kuv tuaj yeem xav txog?
Cov Lus Qhia Luv Luv thiab Cov Lus Qhia Txog Kev Yuav Mus Tsev
Kab mob qog nqaij hlav ntshiab yog ib yam kab mob nyuaj heev. Nws tsis tshua muaj. Nws tsuas cuam tshuam rau ob peb tug neeg hauv ib xyoos xwb. Thiab nws loj hlob qeeb heev. Kab mob qog nqaij hlav tuaj yeem kis mus rau lwm qhov thiab ua rau tuag taus thaum cov neeg feem coob pom kev hloov pauv hauv lawv lub cev.
Tiam sis nco ntsoov, cov kws kho mob tuaj yeem kho tus mob sarcoma uas muaj cov hlwb dawb. Lawv tuaj yeem tshem tawm cov qog nqaij hlav nrog kev phais, thiab lawv kuj tuaj yeem muab kev kho mob rau koj kom tua cov hlwb qog nqaij hlav uas tseem tshuav. Hmoov tsis zoo, tus mob sarcoma uas muaj cov hlwb dawb feem ntau tuaj yeem rov qab los. Yog li nws yog ib qho tseem ceeb uas yuav tsum tau kuaj xyuas tsis tu ncua thiab paub txog txhua qhov kev hloov pauv hauv koj lub cev.
Cov kws tshawb fawb kho mob tab tom nrhiav txoj hauv kev tshiab los kho cov kab mob sarcoma ntshiab. Yog tias koj muaj cov kab mob sarcoma ntshiab, muaj kev sim tshuaj tshiab.Yog koj xav paub ntxiv txog qhov no, nug koj tus kws kho mob txog qhov no thiab tau txais kev qhia. Tsis txhob tso tseg kev cia siab. Yog koj muaj lus qhia thiab kev txhawb nqa zoo, koj yuav ntsib tau qhov teeb meem no.
👩🏽⚕️ Cov Lus Nug Ntxiv (FAQs)
💬 Puas yog Clear Cell Sarcoma (CCS) yog mob qog nqaij hlav ntawm daim tawv nqaij (Melanoma)?
Tsis yog! Qhov no yog ib hom mob qog nqaij hlav 'Sarcoma' (mob qog nqaij hlav ntawm cov nqaij mos). Thaum saib hauv lub tshuab tsom iav, cov hlwb uas tsim nws zoo ib yam li melanoma, uas yog mob qog nqaij hlav ntawm daim tawv nqaij (yog vim li cas nws thiaj hu ua Melanoma ntawm cov khoom mos). Txawm li cas los xij, mob qog nqaij hlav no tsis tsim nyob rau hauv daim tawv nqaij, tab sis nyob rau hauv cov nqaij mos uas npog cov leeg, cov leeg, thiab cov pob qij txha.
💬 Cov qog no feem ntau tshwm sim qhov twg ntawm lub cev?
Feem ntau (ntau tshaj 75%) cov qog no tshwm sim rau ntawm cov ceg qis ntawm cov tub ntxhais hluas (20-40 xyoo). Lawv thawj zaug tshwm sim ua ib lub pob tsis mob, tshwj xeeb tshaj yog nyob ib ncig ntawm cov leeg nyob ib puag ncig ko taw, pob luj taws, thiab hauv caug.
💬 Tus mob qog noj ntshav no puas txaus ntshai? Puas yog nws ua rau tuag taus?
Lub pob no, uas tsis muaj qia, yog qhov mob hnyav heev. Nws loj hlob qeeb heev, yog li cov neeg mob tsis quav ntsej txog nws, tab sis nws kis mus deb rau cov qog ntshav thiab lub ntsws (Metastasis). Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum tshem tawm lub pob thiab thaj chaw 'loj' nyob ib puag ncig nws nrog kev phais mob dav dav thiab muab kev kho mob hluav taws xob.
` mob qog nqaij hlav ntshiab, mob qog nqaij hlav mos mos, qog nqaij hlav ceg, qog nqaij hlav ceg, sarcoma, cov tsos mob ntawm mob qog nqaij hlav, kev kho mob qog nqaij hlav
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus