Xav txog tias koj cia li pom tias nws nyuaj rau sawv ntawm lub rooj zaum, lossis thaum koj tsa koj txhais tes los txhuam koj cov plaub hau, nws zoo li koj txhais tes loog. Tib lub sijhawm, cov pob me me xim av tshwm sim nyob ib puag ncig koj lub qhov muag, ntawm koj lub caj dab, thiab ntawm koj lub hauv siab. Qhov no puas tau tshwm sim rau koj? Tej zaum koj yuav xav tias qhov no tsuas yog qaug zog ib txwm muaj. Tab sis qee zaum nws tuaj yeem yog cov tsos mob ntawm tus mob hnyav dua, tsis tshua muaj hu ua Dermatomyositis . Tsis txhob txhawj, peb yuav tham txog txhua yam hauv cov lus yooj yim.
Dermatomyositis yog dab tsi?
Hais yooj yim xwb, Dermatomyositis yog ib yam mob tsis tshua muaj uas ua rau cov leeg nqaij hauv peb lub cev tsis muaj zog thiab ua rau tawv nqaij khaus. Nws yog ib qho ntawm cov kab mob (myopathy) uas cuam tshuam rau cov leeg nqaij. Cov kab mob no qee zaum tuaj yeem ua rau muaj cov mob hnyav xws li ua pa nyuaj thiab nqos.
Cov tsos mob no yuav maj mam tshwm sim hauv ntau lub hlis rau qee tus neeg. Tab sis rau lwm tus, lawv yuav tshwm sim sai sai. Yog li ntawd, yog tias koj muaj ib qho ntawm cov tsos mob no, nws yog ib qho tseem ceeb kom mus ntsib koj tus kws kho mob sai li sai tau. Thaum peb pib kho mob sai npaum li cas, qhov zoo dua uas yuav zam tau cov teeb meem loj.
Tsis tshua muaj, tshwj xeeb tshaj yog nyob rau thawj xyoo tom qab pib muaj cov tsos mob, tus kab mob no tuaj yeem ua rau tuag taus. Nws kuj tseem ua rau muaj kev pheej hmoo ntawm kev mob qog noj ntshav.
Qhov txawv ntawm Dermatomyositis thiab Lupus yog dab tsi?
Tej zaum koj twb tau hnov txog ib yam kab mob hu ua lupus. Dermatomyositis zoo ib yam li lupus thiab lwm yam kab mob autoimmune. Txawm li cas los xij, muaj qee qhov sib txawv ntawm ob yam no. Vim tias qhov ua rau dermatomyositis tseem tsis tau paub meej, nws tsis raug cais ua kab mob autoimmune.
Cia peb saib lub rooj no kom paub meej ntxiv txog qhov txawv.
| Yam ntxwv | Lupus | Kab mob dermatomyositis |
|---|---|---|
| Cov tsos mob tseem ceeb | Mob pob qij txha, tawv nqaij rhiab thiab ua pob khaus, cuam tshuam rau cov kabmob sab hauv (lub hlwb, lub ntsws, lub raum). Cov tsos mob tuaj thiab mus. | Cov leeg tsis muaj zog thiab cov tawv nqaij ua pob khaus tshwj xeeb. Cov leeg raug mob. |
| Kev kuaj mob | Raws li kev kuaj ntshav thiab cov tsos mob tshwj xeeb. | Kev kuaj ntshav, kev kuaj tawv nqaij thiab cov leeg nqaij, thiab kev luam theej duab. |
Nws yog ib qho tseem ceeb heev uas yuav tsum kuaj mob thiab kho ob qho mob no sai li sai tau. Yog tias koj muaj cov tsos mob tshiab, mus ntsib kws kho mob tam sim ntawd.
Leej twg yuav muaj feem kis tau tus kab mob no tshaj?
Txhua tus neeg tuaj yeem mob dermatomyositis, tab sis qee pawg neeg muaj kev pheej hmoo siab dua.
- Rau cov menyuam yaus hnub nyoog ntawm 5 thiab 15 xyoos.
- Rau cov neeg laus hnub nyoog ntawm 40 thiab 60 xyoo.
- Cov poj niam muaj feem yuav pom tus kab mob no ntau dua li cov txiv neej.
Tiam sis nco ntsoov, qhov no yog ib yam kab mob tsis tshua muaj . Qhov nruab nrab, tsuas muaj li ib tug ntawm ib puas txhiab tus neeg uas muaj tus kab mob no txhua xyoo.
Kab mob no cuam tshuam li cas rau lub cev thiab qhov kev pheej hmoo ntawm mob qog noj ntshav?
Kab mob dermatomyositis yog ib yam mob uas yuav cuam tshuam rau koj mus tas koj lub neej. Yog tias qhov kev puas tsuaj rau koj cov leeg nqaij hnyav heev, koj yuav siv tsis tau ib feem ntawm koj lub cev kom zoo, uas tuaj yeem ua rau muaj qee yam kev tsis taus. Qhov no feem ntau tshwm sim dhau ib lub sijhawm ntau xyoo, tab sis rau qee tus neeg, qhov kev qaug zog ntawm cov leeg nqaij no tshwm sim sai dua.
Tsis tas li ntawd xwb , qhov kev pheej hmoo loj tshaj plaws yog qhov kev pheej hmoo ntawm mob qog noj ntshav.
Cov kev tshawb fawb qhia tau tias kwv yees li 15% ntawm cov neeg uas muaj dermatomyositis muaj feem yuav mob qog noj ntshav tom qab ntawd.
Cov hom mob qog noj ntshav uas pom ntau tshaj plaws nrog tus kab mob no yog:
- Mob qog nqaij hlav zes qe menyuam
- Mob qog nqaij hlav ntsws
- Lymphoma
- Mob qog noj ntshav hauv lub mis
- Mob qog nqaij hlav plab
Yog li ntawd, yog tias koj raug kuaj pom tias muaj tus kab mob no, nws yog ib qho tseem ceeb heev uas yuav tsum tham nrog koj tus kws kho mob txog koj qhov kev pheej hmoo ntawm mob qog noj ntshav thiab cov kev kuaj mob uas yuav tsum tau ua rau nws.
Cov tsos mob ntawm dermatomyositis yog dab tsi?
Ob qho tsos mob tseem ceeb ntawm tus kab mob no yog cov leeg tsis muaj zog thiab tawv nqaij ua pob.Rau qee tus neeg, ob qho tsos mob tshwm sim tib lub sijhawm. Rau lwm tus, ib qho tsos mob tshwm sim ntau lub lis piam, ntau lub hlis, lossis txawm tias ntau xyoo tom qab lwm qhov.
Cia peb saib cov yam ntxwv no kom meej me ntsis.
| Hom cwj pwm | Kev piav qhia thiab piv txwv |
|---|---|
| Cov leeg tsis muaj zog | Qhov tsis muaj zog no ua rau nws nyuaj rau ua tej haujlwm txhua hnub. Piv txwv li:
|
| Mob pob khaus ntawm daim tawv nqaij | Cov qhov txhab no tshwm sim tshwj xeeb tshaj yog nyob rau hauv cov cheeb tsam uas raug tshav ntuj. Lawv muaj xim liab-ntsuab thiab tej zaum yuav o me ntsis. Cov cheeb tsam uas pom ntau tshaj plaws yog:
|
| Lwm yam nta |
|
Muaj ib txhia menyuam yaus uas muaj tus kab mob no thiab cov tsos mob ploj mus tag thaum lawv loj hlob tuaj. Txawm li cas los xij, hauv 80% ntawm cov neeg mob, nws yog ib qho mob uas kav ntev mus ib txhis. Qhov no txhais tau tias cov tsos mob rov tshwm sim dua ib ntus.
Dab tsi ua rau qhov no?
Qhov tseeb, cov kws tshaj lij tseem tsis tau paub qhov tseeb ua rau mob dermatomyositis, tab sis muaj ntau yam uas xav tias yuav pab txhawb rau nws.
- Cov yam ntxwv caj ces: Qee qhov kev tshawb fawb qhia tias qhov no yuav yog ib qho mob caj ces uas tau kis los ntawm ib tiam dhau ib tiam.
- Cov teeb meem tiv thaiv kab mob (Autoimmune diseases): Raws li peb tau tham ua ntej lawm, qhov no zoo ib yam li cov kab mob tiv thaiv kab mob (Autoimmune diseases). Qhov no txhais tau tias lub cev tiv thaiv kab mob, uas tiv thaiv peb lub cev, yuav ua yuam kev tawm tsam peb cov leeg nqaij thiab cov tawv nqaij noj qab haus huv.
- Cov kab mob viral: Qee cov pov thawj qhia tias kev kis kab mob viral, thaum nws tau daws lawm, tuaj yeem ua rau mob Dermatomyositis.
- Tej yam ib puag ncig: Qee qhov kev tshawb fawb tau pom tias kev nyob hauv thaj chaw uas muaj huab cua tsis zoo kuj tuaj yeem ua rau muaj tus kab mob no.
Yuav kuaj mob li cas?
Tom qab koj tus kws kho mob mloog koj cov tsos mob, nws yuav xaj ntau qhov kev kuaj mob kom paub tseeb tias koj tau kuaj mob.
| Txoj kev sim | Koj pom dab tsi hauv qhov ntawd? |
|---|---|
| Kev kuaj ntshav | Lawv nrhiav cov qib enzymes uas sib sau ua ke hauv cov ntshav thaum cov leeg nqaij raug puas tsuaj, nrog rau cov autoantibodies uas qhia txog kev ua haujlwm ntawm lub cev tiv thaiv kab mob. |
| Kev kuaj mob | Yuav muab ib daim nqaij me me ntawm daim tawv nqaij thiab ntawm cov leeg nqaij coj mus kuaj hauv lub tshuab tsom iav me me. Qhov no yuav ua rau paub tseeb tias puas muaj kev o ntawm cov leeg nqaij. |
| Kev kuaj duab | Yuav ua tau ib qho kev luam theej duab MRI (Magnetic Resonance Imaging) lossis duab X-ray hauv siab los xyuas seb cov leeg nqaij, cov hlab ntsha, lub ntsws, thiab lwm yam kabmob zoo li cas. |
| Kev kuaj EMG | Kev kuaj hluav taws xob ntawm cov leeg thiab cov hlab ntsha (EMG) yog ib qho kev kuaj uas ntsuas qhov ua haujlwm ntawm cov hluav taws xob ntawm cov leeg thiab cov hlab ntsha. Qhov no tuaj yeem pab txiav txim seb cov leeg tsis muaj zog puas yog los ntawm tus kab mob nws tus kheej lossis los ntawm lwm yam ua rau. |
Cov kev kho mob rau dermatomyositis yog dab tsi?
Txawm hais tias dermatomyositis kho tsis tau los xij, muaj ntau yam kev kho mob zoo uas tuaj yeem pab tswj cov tsos mob, txo cov leeg nqaij puas tsuaj, thiab pab koj ua neej nyob li qub. Koj tus kws kho mob yuav xaiv txoj kev kho mob zoo tshaj plaws raws li qhov xwm txheej thiab qhov hnyav ntawm koj cov tsos mob.
- Corticosteroids: Cov tshuaj no txo qhov o ntawm cov leeg.
- Kev Kho Mob Lub Cev: Yog tias cov leeg nqaij raug puas tsuaj, kev tawm dag zog thiab kev kho mob lub cev yog qhov tseem ceeb heev los txhawb kom lawv rov qab muaj zog dua. Cov leeg nqaij muaj zog npaum li cas, lawv yuav tiv taus kev puas tsuaj los ntawm tus kab mob ntau npaum li ntawd.
- Cov tshuaj tiv thaiv kab mob: Cov tshuaj no tiv thaiv lub cev tiv thaiv kab mob kom tsis txhob tawm tsam cov hlwb noj qab haus huv.
- Kev txhaj tshuaj immunoglobulin rau hauv cov hlab ntsha (IVIg): Qhov no yog kev kho mob uas siv immunoglobulin, ib feem ntawm peb cov ntshav, muab rau sab nraud lub cev, zoo li saline. Qhov no pab tswj kev ua haujlwm ntawm lub cev tiv thaiv kab mob.
- Kev Kho Mob Hais Lus: Yog tias cov leeg nqaij hauv caj pas tsis muaj zog thiab ua rau nws nyuaj rau nqos, kev kho mob hais lus tuaj yeem pab txhawb cov leeg nqaij ntawd.
Yuav tswj cov tsos mob li cas?
Nyob nrog tus kab mob no yog ib txoj kev taug kev mus sij hawm ntev, yog li kev tswj cov tsos mob yog qhov tseem ceeb heev.
- Tsis txhob hla dhau kev tawm dag zog: Ua cov kev tawm dag zog uas koj tus kws kho mob lossis tus kws kho lub cev muab rau koj raws nraim li lawv qhia rau koj. Qhov no yuav pab kom koj cov leeg nqaij muaj zog.
- Siv tshuaj kom raug: Noj tshuaj uas koj tus kws kho mob tau sau tseg kom raws sijhawm uas tau sau tseg.
- Tiv thaiv koj tus kheej ntawm lub hnub: Qhov no tseem ceeb heev. Cov teeb ultraviolet (UV) hauv lub hnub tuaj yeem ua rau daim tawv nqaij puas tsuaj. Yog li ntawd, txwv koj lub sijhawm nyob hauv lub hnub. Yog tias koj tawm mus,Siv cov tshuaj pleev thaiv hnub zoo uas muaj tsawg kawg yog SPF 50+. Rov pleev dua txhua ob teev.
- Mus ntsib koj tus kws kho mob tsis tu ncua: Koj yuav tsum mus ntsib kws kho mob tsis tu ncua kom saib xyuas koj cov tsos mob thiab saib seb koj tus mob puas hloov pauv.
Ntau yam uas yuav tsum paub txog tus kab mob no
Thaum koj kuaj pom tias koj muaj mob dermatomyositis, nws yog ib qho kev xav tsis thoob uas koj yuav ntshai. Nws tuaj yeem ua rau koj xav tsis thoob thaum paub tias nws yog ib yam kab mob uas yuav ua rau tuag taus mus ib txhis. Tab sis nco ntsoov, qhov sai dua koj tau kuaj pom thiab pib kho mob, qhov zoo dua koj txoj kev muaj sia nyob zoo.
Txawm hais tias tsis muaj kev kho rau tus kab mob no los xij, 80% ntawm cov neeg tseem mob ntev nrog cov tsos mob. Txawm li cas los xij, nrog kev kho mob, kwv yees li 20% ntawm cov neeg tuaj yeem ua tiav kev zam txim mus sij hawm ntev yam tsis muaj tsos mob.
Qhov kev pheej hmoo ntawm kev tuag yog qis li 5%. Txawm li cas los xij, qee yam ua rau muaj qhov kev pheej hmoo no ntau ntxiv:
- Kev ncua sijhawm pib kho mob ntau tshaj 6 lub hlis.
- Muaj hnub nyoog tshaj 60 xyoo.
- Muaj cov tsos mob hnyav heev.
- Kab mob uas cuam tshuam rau caj pas, ntsws, lossis lub plawv.
- Muaj mob qog noj ntshav los yog tsim ib qho tshiab.
Kuv yuav tsum mus ntsib kws kho mob thaum twg?
Yog tias koj muaj cov leeg nqaij tsis muaj zog tshiab, tshwj xeeb tshaj yog tias nws nrog rau pob khaus tawv nqaij, mus ntsib koj tus kws kho mob sai li sai tau. Raws li peb tau hais ua ntej, qhov sai dua koj tuaj yeem tau txais kev kho mob, qhov sai dua koj tuaj yeem zam tau cov teeb meem loj.
Tsis txhob hnov qab nug cov lus nug no thaum koj mus ntsib koj tus kws kho mob:
- Kuv puas muaj mob Dermatomyositis lossis lwm yam kab mob?
- Kuv yuav tsum tau ua cov kev ntsuam xyuas twg?
- Kuv xav tau kev kho mob dab tsi thiab kuv yuav xav tau lawv ntev npaum li cas?
- Kuv puas yuav tsum tau mus kuaj mob qog noj ntshav?
Npaj ib txoj kev kho mob nrog koj tus kws kho mob. Qhov no yuav ua rau koj nkag siab zoo dua txog yam uas yuav tshwm sim tom ntej thiab yam uas yuav ua yog tias koj cov tsos mob hnyav zuj zus.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Dermatomyositis yog ib yam mob tsis tshua muaj uas ua rau cov leeg nqaij tsis muaj zog thiab muaj cov qhov txhab tshwj xeeb ntawm daim tawv nqaij.
- Yog koj pom cov tsos mob, nws yog ib qho tseem ceeb heev uas yuav tsum mus ntsib kws kho mob sai li sai tau. Kev kho mob sai sai tuaj yeem tiv thaiv tau cov teeb meem loj.
- Vim tias qhov no feem ntau yog kab mob uas kav ib sim neej, yuav tsum tau tswj hwm mus sij hawm ntev.
- Nws yog ib qho tseem ceeb uas yuav tsum noj tshuaj raws li koj tus kws kho mob qhia, ua cov kev tawm dag zog kho lub cev, thiab tshwj xeeb tshaj yog tiv thaiv koj tus kheej ntawm lub hnub.
- Tus kab mob no tuaj yeem ua rau koj muaj feem yuav mob qog noj ntshav ntau ntxiv, yog li ntawd nrog koj tus kws kho mob tham txog nws thiab txhua yam kev kuaj mob uas tsim nyog.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus