Koj puas tau pom tias koj cov pob qij txha khoov thiab txav ntau dua li koj cov phooj ywg? Los yog koj puas raug mob thiab raug mob txawm tias koj ntaus ib qho me me? Tej zaum koj yuav xav tias, "Auj ... qhov ntawd yog kuv lub cev li cas, kuv tau zoo li no txij li thaum kuv tseem yog menyuam yaus." Tab sis cov no qee zaum tuaj yeem yog cov tsos mob ntawm tus mob uas peb tsis tham txog ntau, tab sis peb yeej yuav tsum paub txog. Hnub no peb yuav tham txog ib qho mob zoo li no, Ehlers-Danlos Syndrome, lossis EDS luv luv.
Hauv lwm lo lus, Ehlers-Danlos Syndrome (EDS) yog dab tsi?
Xav txog peb lub cev zoo li ib lub tsev zoo nkauj heev. Txhua yam hauv lub tsev no, suav nrog cov cib, phab ntsa, thiab lub ru tsev, raug tuav ua ke thiab tuav kom ruaj khov los ntawm cov cement. Ib yam li ntawd, peb lub cev cov kabmob, pob txha, cov leeg, thiab daim tawv nqaij raug txuas, txhawb nqa, thiab tuav kom ruaj khov los ntawm ib lub network tshwj xeeb ntawm cov nqaij. Peb hu cov nqaij sib txuas no.
Tus phab ej tseem ceeb ntawm cov nqaij sib txuas no yog cov protein hu ua collagen . Nws zoo li cement. Cov collagen no yog qhov uas muab lub zog thiab kev ruaj khov rau peb cov tawv nqaij, cov pob qij txha, thiab cov hlab ntsha.
Tam sim no, ntawm no yog qhov tshwm sim hauv lub cev ntawm ib tus neeg uas muaj Ehlers-Danlos Syndrome (EDS): Muaj kev hloov pauv caj ces hauv txoj kev uas lawv lub cev ua cov protein no hu ua collagen. Yog li cov collagen uas tsim tawm tsis muaj zog txaus, zoo li cov cement qub. Yog li muaj dab tsi tshwm sim? Nws zoo li lub tsev tsis muaj zog, cov ntaub so ntswg sib txuas hauv lub cev tsis muaj zog. Yog li nws tuaj yeem cuam tshuam rau ntau qhov chaw ntawm lub cev.
- Cov hlab ntsha thiab cov hlab ntsha
- Cov pob txha (cov pob txha)
- Cartilage (cov nqaij mos ntawm cov pob txha)
- Rog
- Cov kev sib txuas (cov pob qij txha)
- Cov leeg nqaij
- Tawv nqaij
Puas muaj cov hom EDS tseem ceeb?
Yog lawm, EDS tsis zoo ib yam rau txhua tus. Tus mob no muab faib ua 13 hom tseem ceeb raws li nws cuam tshuam rau lub cev thiab cov tsos mob uas nws ua rau. Tab sis hnub no peb yuav tham txog qee hom mob uas koj yuav tsum paub txog.
| Lub npe ntawm EDS | Ib qho kev taw qhia luv luv |
|---|---|
| Hypermobile EDS | Qhov no yog hom uas feem ntau pom. Lawv cov pob qij txha yoog tau yooj yim heev thiab xoob heev. Lawv xav tias lawv 'khawm rau hauv'. Cov pob qij txha feem ntau ua suab 'nias' thiab yooj yim tawg. |
| Cov EDS qub | Qhov no zoo ib yam li hom saum toj no, tab sis nws cuam tshuam rau daim tawv nqaij ntau dua li cov pob qij txha. Daim tawv nqaij nyias heev, roj hmab, thiab yooj yim rhuav thiab raug mob. |
| EDS zoo li Classical | Raws li lub npe qhia, nws zoo ib yam li Classical EDS, tab sis muaj qhov sib txawv me ntsis ntawm cov tsos mob. Tsuas yog tus kws kho mob thiaj li kuaj tau cov no. |
| Kev kho mob plawv-valvular EDS | Qhov no tuaj yeem cuam tshuam rau lub plawv thiab cov hlab ntsha, nrog rau ua rau muaj cov tsos mob ntawm daim tawv nqaij thiab pob qij txha. |
| Cov hlab ntsha EDS | Qhov no yog ib hom mob uas tsis tshua muaj thiab txaus ntshai. Nws cuam tshuam rau cov hlab ntsha thiab cov kabmob sab hauv ntau dua li cov pob qij txha. Lawv cov phab ntsa tsis muaj zog thiab tuaj yeem tawg lossis tawg yooj yim. Qhov no yog ib qho mob uas yuav tsum tau saib xyuas sai. |
Cov tsos mob ntawm EDS feem ntau yog dab tsi?
Tam sim no tej zaum koj yuav xav tias, "Kuv tsis paub tias kuv puas muaj qhov no thiab." Cia peb saib cov tsos mob feem ntau ntawm tus mob no. Tab sis nco ntsoov ib yam, tsuas yog vim koj muaj ib lossis ob qho ntawm cov tsos mob no tsis tau txhais hais tias koj muaj EDS . Cov tsos mob no kuj tuaj yeem pom hauv lwm yam kab mob. Yog li ntawd, qhov zoo tshaj plaws ua yog mus ntsib kws kho mob yog tias koj muaj kev tsis ntseeg thiab ua qhov kev kuaj mob tseeb.
| Cov tsos mob | Hais yooj yim xwb... |
|---|---|
| Cov pob qij txha hypermobile | Cov pob qij txha khoov ntau dua li qub. Ib txhia hu lawv tias 'ob lub pob qij txha'. Cov pob qij txha xws li lub xub pwg nyom, lub hauv caug, thiab cov ntiv tes yeej txav mus tas li. |
| Tawv nqaij ncab thiab du | Daim tawv nqaij du heev, zoo li daim ntaub mos mos. Thiab zoo li lub pob pizza, koj tuaj yeem ncab nws ntau npaum li koj xav tau, thiab nws rov qab mus rau qhov chaw uas nws nyob thaum koj tso tseg. |
| Cov tawv nqaij thiab cov qhov txhab uas tsis muaj zog | Txawm yog qhov txhab me me los yeej yuav siv sijhawm ntev heev los kho. Nws yooj yim ua rau cov qhov txhab mob, thiab qee zaum cov qhov txhab yuav nyias dua thiab zoo li tsis muaj xim. |
| Mob nqaij yooj yim | Qee zaum muaj cov qhov mob xiav tshwm sim rau ntawm lub cev txawm tias tsis tau raug ntaus qhov twg los xij. Txawm tias koj ntaus nws me ntsis qhov twg los xij, nws yuav tig xiav. |
| Mob pob qij txha thiab mob nqaij | Muaj mob tas li, zoo li mob, rau cov pob qij txha thiab cov leeg. Qhov mob no tuaj thiab ploj mus. |
| Kev qaug zog tas mus li | Txawm tias pw tsaug zog zoo los xij, koj yuav xav tias nkees thiab tsis muaj sia nyob thoob plaws hnub. |
| Teeb meem ntawm lub plab zom mov | Tej zaum koj yuav mob plab, o, cem quav, thiab lwm yam. Tej zaum ib txhia neeg yuav muaj mob xws li Irritable Bowel Syndrome (IBS). |
| Kev Pheej Hmoo ntawm Hernias | Qhov kev pheej hmoo ntawm kev mob hernia siab dua vim tias cov ntaub so ntswg txuas ncig cov leeg tsis muaj zog. |
Dab tsi ua rau EDS? Puas yog nws kis tau?
Tsis yog, EDS tsis yog ib yam dab tsi uas tuaj yeem kis tau los ntawm ib tus neeg mus rau lwm tus . Nws yog ib qho mob caj ces tag nrho. Uas yog, nws yog tshwm sim los ntawm kev hloov pauv caj ces hauv peb cov noob caj ces. Qhov tsis zoo no tshwm sim hauv cov noob caj ces uas qhia peb kom tsim cov protein collagen uas peb tau tham txog ua ntej.
Cov kws tshaj lij tau txheeb xyuas ntau tshaj 20 qhov kev hloov pauv caj ces sib txawv uas ua rau muaj EDS. Qhov kev hloov pauv caj ces twg uas koj muaj txiav txim siab hom EDS thiab cov tsos mob uas koj tsim.
Qee hom EDS tuaj yeem tau txais los ntawm niam txiv mus rau cov menyuam. Qhov no txhais tau tias yog tias niam txiv muaj tus mob no, muaj feem yuav muaj cov menyuam thiab. Txawm li cas los xij, qee hom kuj tuaj yeem tshwm sim hauv lub cev, tsis muaj keeb kwm tsev neeg.
Yog tias ib tug neeg hauv koj tsev neeg muaj tus mob no, lossis yog tias koj muaj cov tsos mob zoo sib xws, nws yog ib qho tseem ceeb heev uas yuav tsum tau nrog kws kho mob tham thiab, yog tias tsim nyog, nrhiav kev pab tswv yim txog caj ces .
Cov teeb meem uas yuav tshwm sim ntawm EDS yog dab tsi?
Qhov teeb meem feem ntau tshwm sim hauv qhov mob no yog dislocation . Qhov no tuaj yeem yog qhov mob heev. Muaj qee yam tseem ceeb heev uas peb txhua tus yuav tsum nco ntsoov ntawm no.
Yog koj ua rau koj pob qij txha tawg, tsis txhob sim rov txuas koj tus kheej lossis kom lwm tus ua! Qhov no tsuas yog ua rau pob qij txha, cov nqaij nyob ib puag ncig, thiab cov hlab ntsha puas tsuaj ntxiv xwb. Qhov zoo tshaj plaws yog mus rau chav kho mob ceev (ETU) ze tshaj plaws sai li sai tau.
Hauv qee hom mob hnyav, xws li cov hlab ntsha EDS, cov teeb meem tuaj yeem tshwm sim uas tuaj yeem ua rau tuag taus. Piv txwv li, cov hlab ntsha tuaj yeem tawg, ua rau los ntshav hauv lub cev thiab cov mob hnyav xws li mob stroke .
Lwm yam teeb meem yuav muaj xws li:
- Kab mob Scoliosis
- Teeb meem ntawm lub plawv
- Teeb meem hniav thiab pos hniav
- Cov ceg khoov
Kev kho mob thiab kev tswj hwm ntawm EDS
Ua ntej tshaj plaws, tseem tsis tau muaj tshuaj kho rau EDS. Tab sis tsis txhob txhawj. Koj tuaj yeem tswj koj cov tsos mob, tiv thaiv cov teeb meem, thiab ua neej nyob zoo li qub. Lub hom phiaj tseem ceeb ntawm kev kho mob yog tswj koj cov tsos mob.
- Kev Kho Mob Lub Cev: Qhov no tseem ceeb heev. Kev tawm dag zog uas ua rau cov leeg nqaij nyob ib puag ncig cov pob qij txha muaj zog tuaj yeem pab txo qhov mob thiab mob ntawm cov pob qij txha.
- Hnav cov braces tshwj xeeb:Koj tus kws kho mob yuav pom zoo kom siv cov hlau txhawb tshwj xeeb los txhawb nqa thiab tiv thaiv cov pob qij txha uas tsis muaj zog.
- Kev saib xyuas tshwj xeeb rau daim tawv nqaij: Vim tias daim tawv nqaij rhiab heev, nws yog ib qho tseem ceeb kom tiv thaiv nws los ntawm kev siv tshuaj pleev thaiv hnub thaum tawm mus rau hauv lub hnub thiab siv cov xab npum mos mos, tsis ua rau khaus.
Tsis tas li ntawd, nws yog qhov zoo tshaj plaws kom nyob deb ntawm qee yam uas tuaj yeem ua rau cov pob qij txha puas tsuaj.
- Tiv tauj kev ua si
- Kev tawm dag zog uas muaj kev cuam tshuam loj (khiav, dhia, thiab lwm yam kev tawm dag zog uas muaj kev cuam tshuam loj)
- kev tsa hnyav
Qhov no tsis tau txhais hais tias koj ua tsis tau kev tawm dag zog li. Koj tuaj yeem nrog koj tus kws kho mob tham txog kev tawm dag zog uas haum rau koj lub cev thiab yuav tsis ua rau koj cov pob qij txha puas, xws li ua luam dej lossis caij tsheb kauj vab.
Nyob nrog EDS tuaj yeem nyuaj rau qee lub sijhawm. Kev mob thiab qaug zog tas li tuaj yeem ua rau koj chim siab. Qhov ntawd yog qhov ib txwm muaj. Tab sis koj tuaj yeem nkag siab txog koj qhov kev txwv, ua qhov kev hloov pauv tsim nyog, thiab txuas ntxiv ua tej yam koj nyiam. Mloog koj lub cev. Yog tias koj pom muaj kev hloov pauv hauv koj cov tsos mob lossis koj xav li cas, tsis txhob ntshai tham nrog koj tus kws kho mob.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Ehlers-Danlos Syndrome (EDS) yog ib qho mob caj ces uas tshwm sim los ntawm qhov tsis txaus ntawm cov protein collagen.
- Cov tsos mob tseem ceeb yog khoov ntau dhau thiab dhia ntau zaus ntawm cov pob qij txha, tawv nqaij elasticity, thiab yooj yim raug mob.
- Txawm hais tias nws tsis tuaj yeem kho tau tag nrho, cov tsos mob tuaj yeem tswj tau zoo nrog kev kho lub cev, kev hloov pauv hauv lub neej, thiab kev qhia kho mob kom zoo.
- Yog koj pob qij txha tawg, tsis txhob sim kho koj tus kheej, tab sis mus rau chav kho mob ceev hauv tsev kho mob (ETU) tam sim ntawd.
- Yog tias koj muaj cov tsos mob no lossis muaj keeb kwm tsev neeg, nws yog ib qho tseem ceeb heev uas yuav tsum mus ntsib koj tus kws kho mob kom tau txais kev kuaj mob thiab cov lus qhia tseeb.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus