Koj tus menyuam puas mob tas li? Lawv cov pob qij txha puas mob? Lawv lub ntsej muag puas qee zaum liab, zoo li npauj npaim? Yog tias koj tsis yog ib lossis ob qho ntawm cov tsos mob no, tab sis ntau yam ua ke, koj yuav txhawj xeeb. Hnub no peb tab tom tham txog ib qho mob uas tuaj yeem ua rau ntau cov tsos mob no tshwm sim ua ke, thiab nws nyuaj me ntsis, tab sis tuaj yeem tswj tau zoo . Ntawd yog lupus rau menyuam yaus.
Hais yooj yim xwb, lupus yog dab tsi rau cov menyuam no?
Kab mob Lupus yog ib yam kab mob autoimmune uas tuaj yeem cuam tshuam rau tib neeg txhua lub hnub nyoog. Hais yooj yim xwb, txoj haujlwm tseem ceeb ntawm peb lub cev tiv thaiv kab mob yog tiv thaiv peb ntawm cov neeg txawv teb chaws uas nkag los, xws li cov kab mob thiab cov kab mob uas ua rau muaj kab mob. Tab sis ib tug neeg uas muaj kab mob lupus muaj ib qho mob tsis zoo heev. Lub cev tiv thaiv kab mob no mus tsis zoo. Nws pib pom nws cov hlwb thiab cov nqaij noj qab haus huv ua "tus yeeb ncuab." Tom qab ntawd nws pib tawm tsam cov hlwb noj qab haus huv ntawd. Nws zoo li peb cov tub rog tawm tsam peb cov neeg es tsis yog tawm tsam cov neeg txawv teb chaws uas nkag los.
Thaum kuaj pom tus kab mob ua ntej hnub nyoog 18 xyoo, peb hu nws ua "juvenile lupus." Lupus rau cov menyuam yaus tuaj yeem hnyav dua li lupus rau cov neeg laus. Qhov no txhais tau tias:
- Kab mob uas nquag dua: Kev o thiab cov tsos mob cuam tshuam yuav pom tseeb dua.
- Kev pheej hmoo ntawm kev puas tsuaj rau cov kab mob sab hauv: Cov kab mob tseem ceeb, tshwj xeeb tshaj yog lub raum, lub plawv, lub ntsws, thiab lub hlwb, tuaj yeem raug cuam tshuam.
- Xav tau kev kho mob muaj zog dua: Tej zaum yuav tsum tau nce qhov koob tshuaj.
- Cov kev mob tshwm sim ntawm kev siv tshuaj mus sij hawm ntev: Koj yuav tsum paub txog cov kev mob tshwm sim ntawm kev noj tshuaj, tshwj xeeb yog cov tshuaj steroids (corticosteroids), ntev.
Hom mob lupus uas feem ntau tshwm sim rau menyuam yaus yog Systemic Lupus Erythematosus (SLE) . Thaum ib tug neeg hais tias "lupus," feem ntau lawv txhais tau tias hom SLE no. Nws tseem hu ua 'Childhood-onset SLE' lossis 'Juvenile-onset SLE'. Cov tsos mob feem ntau pib tshwm sim thaum muaj hnub nyoog 12 xyoos. Txawm li cas los xij, lawv tuaj yeem pib ua ntej lossis tom qab. Nws tsis tshua muaj menyuam yaus hnub nyoog qis dua 5 xyoos uas muaj mob lupus.
Qhov tseem ceeb yog tias txawm tias qhov no yog ib yam kab mob ntev los xij, yog tias muaj kev kho mob thiab kev tswj hwm zoo, tus menyuam yuav muaj lub sijhawm los ua neej nyob li qub. Yog li ntawd, tsis txhob ntshai, cia peb nkag siab qhov no kom zoo.
Cov tsos mob dab tsi qhia tias tus menyuam muaj lupus?
Ib qho tshwj xeeb txog tus kab mob lupus yog tias tsis yog txhua tus menyuam muaj cov tsos mob zoo ib yam. Ib txhia neeg muaj ib pawg tsos mob, thaum lwm tus muaj cov tsos mob sib txawv kiag li. Yog vim li ntawd cov kws kho mob thiaj hu qhov no ua "lupus fingerprint" - txhais tau tias txhua tus neeg muaj cov tsos mob sib txawv.
Cia peb faib cov tsos mob no ua ob ntu.
Cov tsos mob uas koj tus menyuam hnov thiab koj pom
Cov no yog tej yam uas koj pom thiab paub hauv koj tus menyuam lub neej txhua hnub.
| Cov tsos mob | Ib qho lus piav qhia yooj yim |
|---|---|
| Kab npauj npaim pob khaus | Muaj ib qho pob liab tshwm rau ntawm tus menyuam lub puab tsaig thiab hla lub qhov ntswg, zoo li tus npauj npaim nthuav nws tis. Qhov no yog ib qho tsos mob uas pom ntau heev ntawm tus mob lupus. |
| Mob pob qij txha thiab o (Arthritis) | Cov pob qij txha xws li ntiv tes, dab teg, thiab hauv caug mob thiab o. Qhov mob tawv no hnyav dua thaum koj sawv thaum sawv ntxov. |
| Kev qaug zog | Txawm tias pw tsaug zog zoo los xij, koj tseem nkees thiab qaug zog heev. |
| Kub taub hau tsis muaj laj thawj | Nws tsis yog mob khaub thuas, tsuas yog kub taub hau xwb. Qhov kub taub hau no tuaj yeem kav ntev li ntau hnub. |
| Kev Poob Plaub Hau | Cov plaub hau poob ntau dua li qub. Qee zaum, cov plaub hau poob tuaj yeem hnyav heev uas ua rau pom cov tawv taub hau ntawm qee qhov chaw. |
| Mob qhov ncauj los yog qhov ntswg | Cov qhov txhab me me, tsis mob hauv lub qhov ncauj lossis lub qhov ntswg. |
| Kev poob phaus | Yog tsis tswj kev noj zaub mov zoo, tus menyuam lub cev qhov hnyav yuav txo qis thiab lawv yuav nyias nyias. |
Cov tsos mob no yuav tshwm sim maj mam zuj zus, lossis lawv yuav tshwm sim tag nrho ib zaug. Nco ntsoov, tsis txhob xav tias koj tus menyuam muaj mob lupus tsuas yog vim lawv muaj ib qho ntawm cov tsos mob no. Piv txwv li, tej zaum yuav muaj ntau txhiab lwm yam ua rau kub taub hau. Tus kws kho mob yuav xav tias mob lupus thaum ntau cov tsos mob no tshwm sim ua ke .
Cov cim qhia tau los ntawm kev kuaj mob
Cov no yog cov khoom uas tuaj yeem pom los ntawm kev kuaj mob uas tus kws kho mob ua, tshwj xeeb tshaj yog kev kuaj ntshav thiab zis.
- Cov qe ntshav tsawg zuj zus:
- Cov qe ntshav liab txo qis (anemia)
- Cov ntshav platelet tsawg (thrombocytopenia)
- Cov qe ntshav dawb txo qis (leukopenia)
- Cov Tshuaj Tiv Thaiv Kab Mob Nuclear (ANA): Hom tshuaj tiv thaiv kab mob no hu ua 'ANA' feem ntau pom muaj nyob rau hauv cov ntshav ntawm cov menyuam yaus uas muaj mob lupus. Txawm li cas los xij, qhov kev kuaj ANA 'zoo' tsis tas txhais tau tias koj muaj mob lupus. Cov neeg noj qab haus huv kuj qee zaum 'zoo'. Yog li ntawd, koj tus kws kho mob yuav piav qhia rau koj txog lub ntsiab lus ntawm daim ntawv qhia.
Cov teeb meem uas yuav tshwm sim ntawm lupus yog dab tsi?
Kev kho mob kom zoo yuav txo tau qhov kev pheej hmoo ntawm cov teeb meem no, tab sis qee tus menyuam tseem yuav muaj cov mob no.
- Kev puas tsuaj rau lub raum (Lupus Nephritis): Qhov no yog qhov teeb meem loj tshaj plaws rau cov menyuam yaus. Lub cev tiv thaiv kab mob tawm tsam lub raum, uas tuaj yeem ua rau lub raum tsis ua haujlwm. Tus menyuam yuav muaj cov tsos mob xws li ceg o thiab zis ua npuas vim muaj protein nyob rau hauv cov zis.
- Cov teebmeem ntawm lub ntsws thiab lub plawv: Kev o ntawm daim ntaub ntawm lub ntsws (pleurisy) lossis kev o ntawm lub hnab nyob ib puag ncig lub plawv (pericarditis) tuaj yeem tshwm sim. Ob qho tib si mob tuaj yeem ua rau mob hauv siab .
- Cov teebmeem ntawm lub paj hlwb hauv nruab nrab: Yog tias lub hlwb thiab tus txha caj qaum raug cuam tshuam, cov mob xws li mob taub hau hnyav, kev hloov pauv tus cwj pwm, thiab qaug dab peg tuaj yeem tshwm sim.
- Cov Ntshav Txhaws: Cov ntshav txhaws tuaj yeem tsim tau sab hauv cov hlab ntsha, tshwj xeeb tshaj yog nyob rau hauv ob txhais ceg. Cov tsos mob suav nrog mob, o, thiab liab ntawm ob txhais ceg uas raug mob.
Vim li cas cov menyuam yaus thiaj li muaj mob lupus?
Tseem tsis tau muaj ib qho laj thawj tshwj xeeb rau qhov no, tab sis cov kws tshawb fawb ntseeg tias nws yog los ntawm kev sib xyaw ua ke ntawm ntau yam.
1. Cov noob caj noob ces: Yog tias ib tug neeg hauv tsev neeg muaj mob lupus lossis lwm yam kab mob autoimmune, tus menyuam kuj yuav muaj qhov ua rau mob no me ntsis. Txawm li cas los xij, kev muaj cov noob caj noob ces no tsis tas txhais tau tias lawv yuav mob lupus.
2. Tej Yam Uas Ua Rau Mob: Ib tug me nyuam uas muaj tej yam caj ces ua rau mob yuav muaj tau tus mob no vim muaj tej yam sab nraud ua rau mob. Tej yam uas ua rau mob no muaj xws li:
- Kev kis kab mob viral
- Kev raug tshav ntuj muaj zog (UVA / UVB rays)
- Kev hloov pauv hormonal (tshwj xeeb tshaj yog thaum lub sijhawm puberty)
Hais yooj yim xwb ces, cov noob caj noob ces zoo li rab phom uas muaj hmoov phom puv nkaus. Tiam sis yog tsis muaj ib tug neeg rub lub qhov (lub qhov), lub mos txwv yuav tsis tawm. Kab mob Lupus zoo li ntawd.
Tus kws kho mob kuaj mob li cas?
Kev kuaj mob lupus yog ib qho txheej txheem nyuaj vim tias tsis muaj ib qho kev kuaj mob uas tshwj xeeb rau nws. Tus kws kho mob yuav muab ntau yam los ua ke los kuaj mob.
- Tham nrog koj tus kheej thiab koj tus menyuam: Nug koj tus menyuam kom meej txog lawv cov tsos mob, xws li thaum twg lawv pib thiab lawv tau muaj mob ntev npaum li cas lawm.
- Ua kev kuaj lub cev tag nrho: Xyuas seb puas muaj cov qhov txhab ntawm daim tawv nqaij, pob qij txha o, thiab mob hauv qhov ncauj.
- Kev kuaj ntshav thiab zis: Raws li tau hais ua ntej lawm, cov kev kuaj no kuaj ntau yam, xws li kev kuaj 'ANA', suav cov qe ntshav, thiab kev ua haujlwm ntawm lub raum.
- Keeb kwm tsev neeg: Nug seb puas muaj leej twg hauv tsev neeg muaj mob lupus lossis cov kab mob zoo sib xws.
Tom qab xav txog txhua yam no lawm ces tus kws kho mob mam li txiav txim siab seb koj puas muaj mob lupus.
Cov kev kho mob rau lupus yog dab tsi?
Tam sim no tsis muaj tshuaj kho tau tus mob lupus. Tab sis tsis txhob txhawj. Muaj ntau txoj kev kho mob zoo uas tuaj yeem pab tswj tus kab mob thiab pab koj tus menyuam ua neej nyob li qub. Lub hom phiaj tseem ceeb ntawm kev kho mob yog:
- Txo cov tsos mob ntawm tus menyuam.
- Tiv thaiv lub cev tiv thaiv kab mob kom tsis txhob ua puas rau lub cev cov kab mob.
- Tswj xyuas kom tus menyuam lub cev thiab lub hlwb noj qab haus huv zoo.
Ib pab neeg kws tshwj xeeb tuaj ua ke los tsim ib txoj kev npaj kho mob uas haum rau tus menyuam. Pab neeg no yuav suav nrog tus kws kho mob pob qij txha menyuam yaus , cov kws tu mob, cov kws kho lub cev, thiab cov kws tshaj lij kev noj qab haus huv ntawm lub hlwb.
Muaj ntau hom tshuaj tseem ceeb uas siv:
- Corticosteroids: Piv txwv li, ib yam tshuaj hu ua 'Prednisone'. Cov no tswj tau qhov o ntawm lub cev sai sai.
- Hydroxychloroquine:Txawm hais tias qhov no yog tshuaj rau mob malaria, nws pab tau zoo heev rau kev tswj hwm qhov mob lupus.
- Cov tshuaj tiv thaiv kab mob: Cov tshuaj no ua haujlwm los ntawm kev ua kom lub cev tiv thaiv kab mob qeeb. Cov tshuaj xws li 'Azathioprine', 'Mycophenolate mofetil', 'Methotrexate' poob rau hauv pawg no.
- Tshuaj Tua Kab Mob: Cov tshuaj xws li 'Ibuprofen' lossis 'Naproxen' tuaj yeem muab rau mob pob qij txha.
- Calcium thiab vitamin D: Cov no yog muab los tiv thaiv kev mob pob txha, vim tias muaj kev pheej hmoo ntawm kev nyias pob txha thaum noj cov tshuaj steroids ntev.
Tseem Ceeb: Nws yog ib qho tseem ceeb heev uas yuav tsum muab cov tshuaj uas tus kws kho mob tau sau rau koj tus menyuam raws nraim li tau sau tseg, raws sijhawm, thiab raws li qhov ntau npaum li cas. Tsis txhob tsum noj cov tshuaj lossis hloov qhov ntau npaum li cas ntawm koj tus kheej.
Cia peb kuj paub txog cov kev mob tshwm sim ntawm kev kho mob.
Ib yam li txhua yam tshuaj, cov tshuaj lupus tuaj yeem muaj cov kev mob tshwm sim. Tus kws kho mob yeej ib txwm paub txog qhov no thiab ua cov kev kuaj mob tsim nyog thaum lub sijhawm kho mob.
- Prednisone (steroid): Kev siv ntev ntev tuaj yeem ua rau hnyav nce, ncab cov cim, ntshav siab, pob txha nyias nyias, kev nyuaj siab, ntshav qab zib, thiab cataracts.
- Hydroxychloroquine: Tsis tshua muaj, nws tuaj yeem ua rau lub retina ntawm lub qhov muag puas tsuaj. Yog li ntawd, txhua tus menyuam yaus uas noj cov tshuaj no yuav tsum tau mus ntsib kws kho qhov muag kuaj xyuas lawv lub qhov muag tsis tu ncua.
- Cov tshuaj tiv thaiv kab mob: Cov tshuaj no tuaj yeem txo cov qe ntshav dawb thiab ua rau lub siab o. Lawv kuj txo qis kev tiv thaiv kab mob, ua rau muaj kev pheej hmoo ntawm kev kis kab mob. Yog li ntawd, kev kuaj ntshav tsis tu ncua yuav tsum tau ua kom paub tseeb tias muaj cov no.
Ua ib tug niam txiv, kuv yuav pab tau kuv tus menyuam li cas?
Koj txoj kev pab rau txoj kev taug kev no muaj nqis heev. Muaj ntau yam uas koj ua tau los muab kev saib xyuas zoo tshaj plaws rau koj tus menyuam.
1. Tiv thaiv kom tsis txhob raug tshav ntuj: Tshav ntuj yog ib qho ua rau mob lupus loj heev. Yog li ntawd, thov siv tshuaj pleev thaiv hnub uas muaj SPF 30 lossis siab dua rau ntawm daim tawv nqaij ntawm koj tus menyuam txhua hnub. Qhov no yuav tsum tau ua txawm tias hnub uas muaj huab cua tsaus ntuj los xij. Hnav lub kaus mom thiab khaub ncaws tes ntev thaum mus sab nraum zoov. Txo qhov kev raug tshav ntuj kub ntawm 10:00 sawv ntxov thiab 4:00 tsaus ntuj.
2. Pw tsaug zog txaus: Qaug zog yog ib qho tsos mob tseem ceeb ntawm tus mob lupus. Yog li ntawd, tsim kom muaj ib puag ncig uas cia koj tus menyuam pw tsaug zog zoo.
3. Tiv thaiv kev kis kab mob: Vim tias tus menyuam noj tshuaj uas ua rau lub cev tiv thaiv kab mob tsis muaj zog, nws yuav muaj feem kis tau kab mob ntau dua. Qhia nws kom ntxuav nws txhais tes nrog xab npum thiab dej ntau zaus. Khaws nws kom deb ntawm cov neeg mob.
4. Kev ua neej noj qab nyob zoo:Nws yog ib qho tseem ceeb uas yuav tsum muab kev noj zaub mov kom zoo thiab ua kom lub cev muaj zog raws li hnub nyoog. Kev tawm dag zog ua rau cov leeg nqaij muaj zog. Tab sis yog tias koj tus menyuam nkees, cia lawv so.
5. Qhia koj tus menyuam txog tus kab mob: Piav qhia tus kab mob rau koj tus menyuam hauv ib txoj kev yooj yim uas haum rau lawv lub hnub nyoog thiab kev nkag siab. Qhov no yuav pab lawv lav ris lub luag haujlwm rau lawv lub cev.
6. Muab kev txhawb nqa rau sab kev xav: Kev nyob nrog tus kab mob ntev ntev tuaj yeem ua rau tus menyuam nyuaj siab. Cia lawv tham txog lawv txoj kev xav, cia lawv qhia lawv txoj kev tu siab, thiab cia lawv tso lawv txoj kev npau taws tawm. Yog tias tsim nyog, nrhiav kev pab los ntawm tus kws pab tswv yim.
7. Qhia rau tsev kawm ntawv: Qhia rau cov xib fwb thiab cov thawj coj ntawm lub tsev kawm ntawv ntawm tus menyuam txog qhov xwm txheej no thiab muab cov chaw tsim nyog.
Tsis txhob hnov qab, yog koj xav saib xyuas koj tus menyuam, koj yuav tsum noj qab nyob zoo thiab . Noj mov, haus dej, thiab so kom raws sijhawm. Yog tias koj lub siab qaug zog, nrog koj tus kws kho mob lossis ib tus neeg uas koj ntseeg siab tham txog qhov no.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Lupus yog ib yam kab mob autoimmune uas lub cev tiv thaiv kab mob tawm tsam nws cov hlwb noj qab haus huv.
- Lupus rau cov menyuam yaus tuaj yeem hnyav dua li cov neeg laus thiab yuav ua rau puas tsuaj rau cov kabmob sab hauv.
- Cov tsos mob tseem ceeb yog pob khaus "npauj npaim" ntawm lub ntsej muag, mob pob qij txha, qaug zog tas li, thiab kub taub hau uas tsis paub ua cas.
- Txawm hais tias qhov no tsis tuaj yeem kho tau tag nrho los xij, kev kho mob zoo heev tuaj yeem tswj tau tus kab mob thiab cia tus menyuam ua neej nyob li qub.
- Nws yog ib qho tseem ceeb kom tiv thaiv koj tus kheej ntawm lub hnub, noj koj cov tshuaj kom raug, thiab ua raws li koj tus kws kho mob cov lus qhia.
- Yog koj muaj lus nug lossis kev tsis ntseeg, hu rau koj tus menyuam tus kws kho mob tam sim ntawd thiab tham txog qhov ntawd.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus