Yu mɔsul dɛn kin at ɔltɛm ɔ yu kin fil wik? Mek wi tɔk bɔt Polymyositis!

Sɔntɛnde yu kin fil pen na yu mɔsul dɛm, ɔ yu kin fil se yu nɔ ebul fɔ du natin? Ɔ pɔsin we yu sabi gɛt dɛn kayn prɔblɛm dɛn de? Dɛn tin ya kin rili afɛkt wi na wi layf ɛvride. Tide wi go tɔk bɔt wan sik we de afɛkt wi mɔsul dɛm, bɔt nɔr kin bɔrku. Dɛn kɔl dis polymyositis.

Wetin na Polymyositis? Fɔ tɔk am simpul wan...

Fɔ tɔk am simpul wan, polymyositis na wan sik we nɔ kin apin ɔltɛm we pɔsin kin gɛt insɛf. We yu yɛri di wɔd "autoimmune disease," i go mɔs bi se i at fɔ ɔndastand smɔl, nɔto so? Mek a ɛksplen am dis we.

Wi gɛt wan imyun sistɛm na wi bɔdi. I tan lɛk ami na wi kɔntri. Di wok we dis sistɛm de du na fɔ protɛkt wi bay we i de fɛt di jem ɛn tin dɛn we de mek wi gɛt sik frɔm ɔdasay. Bɔt sɔntɛnde, dis difens sistɛm we wi gɛt nɔ kin go fayn. Dɔn i nɔ kin jɔs atak di ɛnimi dɛn we kɔmɔt na do, bɔt i kin atak bak di wɛlbɔdi sɛl ɛn tisu dɛn na wi yon bɔdi. Dat na di sik we dɛn kɔl ɔtoimyun sik.

Na dat kin apin pan polymyositis. Wi imyun sistɛm kin bigin fɔ atak wi yon mɔsul dɛn, dat na di mɔsul dɛn. Dis na wan kayn mayosaytis. Mayosaytis na wan inflamɛns we nɔ de dɔn, dat na fɔ swel, na di mɔsul dɛm. Dis inflamɛns kin kam ɛn go as tɛm de go, ɛn leta i kin mek wi mɔsul dɛn wik.

If yu gɛt polymyositis, dis inflamɛns kin apin na sɔm mɔsul dɛn di sem tɛm. I kin apin mɔ na di mɔsul dɛn we de nia di midul pat na di bɔdi. Fɔ ɛgzampul:

• Na yu an (arms) .
• Na di hip eria ɛn di shɔl
• Na di chɛst
• Bak
• Na di bɛlɛ
• Na di nɛk

Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt polymyositis, ɛn no mɛrɛsin nɔ de fɔ mɛn am. Bɔt dɔktɔ kin ɛp yu fɔ trit yu sik dɛn ɛn kɔntrol aw dɛn kin afɛkt yu ɛvride layf.

Aw dis sik kin bɔku?

Polymyositis na rili wan sik we nɔ kin apin so ɔltɛm. Masta sabi bukman dɛn se, nɔto 25 pan ɛvri 100,000 pipul dɛn kin gɛt dis sik ɛvri ia. So yu kin imajin aw i nɔ kin bɔku.

Wetin na di sayn dɛm fɔ dis? Aw wi kin no am?

Bɔku kɔmɔn sayn dɛn de we kin sho se pɔsin gɛt polymyositis. Lɛ wi tek wan luk pan wetin dɛn bi:

• Mɔsul dɛn we wik: Yu kin fil lɛk se yu mɔsul dɛn de lɔs trɛnk, mɔ na yu sholda ɛn hip.
• Mɔsul dɛn de pen ɛn stif: I kin mek yu fil pen bak we yu tɔch am.
• I nɔ kin izi fɔ swɛla: Dɔktɔ dɛn kin kɔl dis ``dysphagia.'' I kin tan lɛk se it ɔ drink nɔ de go dɔŋ yu trot.
• I nɔ izi fɔ tɔk: Wɔd dɛn kin slɔp, ɛn dis kin mek i nɔ izi fɔ tɔk klia wan.
• I nɔ izi fɔ blo ɔ we yu nɔ de blo shɔt: Dɛn kɔl dis ``dyspnea.'' Yu kin fil lɛk se yu gɛt prɔblɛm fɔ blo ivin if yu tray smɔl.
• Taya ɔltɛm: I nɔ mata aw yu de slip, yu kin fil lɛk se yu nɔ gɛt trɛnk, yu kin taya ɔltɛm.
• Pen na di jɔyn dɛn.
• Fiva.
• Bɔdi stiff: Yu bɔdi kin fil stiff lɛk wud, mɔ we yu wek na mɔnin.
• We yu de lɔs yu wet.

Dɛn sayn ya kin mek i nɔ izi fɔ yu fɔ du di tin dɛn we yu kin du ɔltɛm. Tink bɔt am dis we:

• I at fɔ grap we yu sidɔm na chia.
• Mi leg dɛn kin numb we a de klaym stej.
• I at fɔ es wan wet.
• I at fɔ es yu an ɛn pik sɔntin.

Wan impɔtant tin fɔ mɛmba: Sɔm pan de sayn dɛm wae de sho se pɔrsin gɛt polymyositis kin mek pɔrsin gɛt prɔblɛm wae kin mek pɔrsin in layf de pan denja. So, if yu fil se yu gɛt prɔblɛm fɔ blo ɔ yu nɔ ebul fɔ swɛla fayn, go na ɔspitul ɔ kɔl ambulans wantɛm wantɛm . I impɔtant fɔ tɔk to yu dɔktɔ bɔt dɛn tin ya ɛn fɔ no bɔt dis.

Wetin mek polymyositis kin apin? Wetin na di kɔz?

As wi bin dɔn tɔk bifo tɛm, polymyositis na wan sik we pɔsin kin gɛt we i de fɛt insɛf. Bɔt masta sabi bukman dɛn stil nɔ gɛt klia aidia bɔt wetin mek i kin apin. Dat min se wetin mek wi imyun sistɛm bigin fɔ atak wi yon bɔdi wantɛm wantɛm stil na sɔntin we nɔ izi fɔ ɔndastand.

Sɔntɛnde, polymyositis kin jɔs bigin witout ɛni klia kɔz. Dɔktɔ dɛn kin kɔl dis ``idiopathic.'' Bɔt, sɔm tɛm, i kin kam bak bay ɔda wɛlbɔdi prɔblɛm ɔ riakshɔn to sɔm mɛrɛsin dɛn.

Yu kin gɛt polymyositis if yu gɛt ɔda ɔtoimyun sik dɛn. Fɔ ɛgzampul:

• Lupus we gɛt di sik
• Rimatɔyd at at sik
• Sklɛrodama

Dɔn bak, sɔm vayral infɛkshɔn kin mek di polymyositis wɔs.

• Covid-19 `(COVID-19)`
• Influɛnsa (di flu) .
• Di kɔmɔn kol
• HIV `(HIV)`

Udat dɛn kin gɛt am mɔ? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

Pan ɔl we ɛnibɔdi kin gɛt polymyositis, sɔm grup dɛn kin gɛt am mɔ.

• Fɔ uman dɛn: Uman dɛn kin gɛt dis sik lɛk tu tɛm pas man dɛn.
• Fɔ di wan dɛn we gɛt ɔda sik dɛn we dɛn kin gɛt we dɛn de fɛt dɛnsɛf.
• Fɔ pipul dɛm wae ol bitwin 30 ɛn 60 ia: Pan ɔl wae i kin kam pan ɛni ej, i kin pasmak pan big pipul dɛm na dis ej grup.

Aw yu no dis? Aw dɔktɔ kin no dis?

Dɔktɔ kin no if pɔsin gɛt polymyositis bay we i de chɛk in bɔdi ɛn ɔda tɛst dɛn. Fɔs, i go aks yu bɔt yu sik dɛn, aw lɔng dɛn dɔn de, ɛn aw yu de fil. Dɔn, i go chɛk yu mɔsul dɛn, mɔ di wan dɛn we wik ɛn we de sho sɔm sayn dɛn. I go aks yu bak aw yu de fil we yu de du sɔm muvmɛnt dɛn.

Yu dɔktɔ go yuz sɔm tɛst fɔ no if yu gɛt polymyositis. Sɔm pan dɛn tɛst ya kin ɛp bak fɔ pul ɔda tin dɛn we kin mek pɔsin gɛt di sem kayn sik. Yu dɔktɔ kin yuz tɛst dɛn lɛk dɛn wan ya:

• Blɔd tɛst: Dɛn tin ya de chɛk fɔ si if yu gɛt mɔsul ɛnzaym ɔ antibodi dɛn we de sho if yu mɔsul dɛn dɔn pwɛl.
• MRI (Magnetic Resonance Imaging) scan: Dis kin chɛk fɔ si if yu mɔsul dɛn de inflamɛns, ɔ swɛlin.
• EMG (Electromyography) test: Dis kin no se di mכsul dεm de wok we nכ nכmal.
• Muscle biopsy: Dis na fɔ tek smɔl pat pan di mɔsul we afɛkt ɛn chɛk am ɔnda maykroskɔp. Dis kin gi yu aidia bɔt aw di mɔsul tisu dɔn pwɛl ɛn in ɔl wɛlbɔdi.

Yu tink se tritmɛnt de? Aw yu de manej dis?

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ mek pɔsin gɛt polymyositis. Bɔt nɔ wɔri. Yu dɔktɔ kin tɛl yu bɔt aw fɔ mɛn yu fɔ ɛp yu fɔ kɔntrol di inflamɛns, ɔ swɛlin, na yu mɔsul dɛn. Pan ɔl we dɛn tritmɛnt ya nɔ go mɛn polymyositis ɔltogɛda, dɛn kin ɛp fɔ ridyus di impak we di sik dɛn kin gɛt pan yu ɛvride layf. Bɔrku pipul kin kɔntrol di sik wit dɛn tritmɛnt ya, kin rich sɔm tɛm wae nɔr gɛt inflamɛns ɛn smɔl smɔl sayn dɛm (dɛn kɔl am `rɛmishɔn`).

Di tritmɛnt dɛm wae dɛn kin yuse fɔ polymyositis na:

• Kɔtikosterɔyd: Dɛn wan ya na wan kayn mɛrɛsin we de mek pɔsin nɔ fil bad we dɔktɔ kin gi am. Dɛn kin ɛp fɔ kɔntrol di swɛlin ɛn pen.
• Immunosuppressants: Dɛn mɛrɛsin ya de wok bay we dɛn de ridyus di wok we yu imyun sistɛm de du, we de ridyus di damej we i kin du to yu mɔsul dɛn. If wi tɔk am simpul wan, i tan lɛk se wi de mek wi yon ami kol.
• Intravenous Immunoglobulin (IVIG): Dis involv fכ gi yu εkstra doz fכ antibodi dεm tru wan vein. Dis IVIG tritmɛnt kin ridayrɛkt yu imyun sistɛm in fɔs. Dɔn i kin atak yu bɔdi in yon tisu dɛn smɔl. I tan lɛk we yu gi yu imyun sistɛm wok fɔ du, so i nɔ go du bɛtɛ damej to yu mɔsul dɛn.
• Fizik tritmɛnt:Yu dɔktɔ ɔ pɔsin we de mɛn yu go tich yu fɔ du ɛksɛsayz ɛn fɔ strɛch fɔ mek di mɔsul dɛn we gɛt di sik go ebul fɔ chenj ɛn strɔng. Fyzikal tritmɛnt kin ɛp fɔ mek yu mɔsul dɛn strɔng ɛn ridyus di fiuja flare-up fɔ polymyositis simptom dɛm.

Yu tink se dɛn go ebul fɔ mek dis nɔ apin?

Bikɔs dɛn nɔ no di rayt tin we kin mek pɔsin gɛt dis sik, no we nɔ de fɔ mek i nɔ gɛt dis sik. Wi nɔr kin ebul fɔ no udat go gɛt am, ustɛm di sayn dɛm go sho, ɔr if i go kam bak.

Aw e tan lɛk fɔ liv wit polymyositis? Wetin wi fɔ ɛkspɛkt?

Bɔku tɛm, polymyositis na wan sik we pɔsin kin gɛt fɔ ɔl in layf. Pan ɔl we no mɛrɛsin nɔ de, bɔku pipul dɛn kin ebul fɔ kɔntrol di sik ɛn kip di sik dɛn we de sho se i nɔ bɔku wit di tritmɛnt dɛn we dɛn jɔyn togɛda.

Bɔt sɔm tɛm dɛn, polymyositis kin mek prɔblɛm dɛn we kin mek pɔsin in layf de pan denja. I kin kil yu, mɔ if i rili afɛkt di mɔsul dɛn na yu trot ɛn chɛst we de ɛp yu fɔ blo ɛn swɛla.

Polymyositis kin mek yu mɔsul dɛn inflamɛns ɛn wik, mɔ na di midul pat na yu bɔdi. Bɔrku tɛm yu go gɛt fɔ kɔntrol am fɔ di res ɔf yu layf, wit sɔm tɛm wae yu kin gɛt sɔm kayn sik wae de kam ɛn go. Pan ɔl we no mɛrɛsin nɔ de fɔ ɔltɛm, yu dɔktɔ kin ɛp yu fɔ fɛn tritmɛnt plan we go wok fɔ yu. Dis kin ɛp fɔ ridyus de impak wae de sik kin gɛt pan yu ɛvride layf. Bɔrku pipul kin kɔntrol dis sik ɛn nɔr kin gɛt bɛtɛ sayn fɔ dis sik.

Ustɛm a fɔ go to dɔktɔ?

If yu gɛt nyu mɔsul dɛn we wik, pen, ɔ ɔda sayn dɛn, mɔ if dɛn nɔ de bɛtɛ insay sɔm dez, go to dɔktɔ wantɛm wantɛm.

Tɔk to yu dɔktɔ if yu sik de wɔs ɔr if i tan lɛk se i de go ɔda say. Tɛl yu dɔktɔ bak if yu fil se yu tritmɛnt nɔr de woke fayn lɛk aw i bin de woke, ɔr if yu polymyositis simptom de wɔs ɔr de wɔs.

If yu gɛt ɛni wan pan dɛn sayn ya, go na imejensi rum wantɛm wantɛm ɔ kɔl 911 (ɔ yu lokal imejensi nɔmba):

• If yu nɔ ebul fɔ muv wan bɔdi pat we yu kin muv nɔmal wan.
• If yu gɛt prɔblɛm fɔ blo.
• If i nɔ izi fɔ yu fɔ swɛla.

Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?

I fayn fɔ aks yu dɔktɔ kwɛstyɔn dɛn lɛk dɛn wan ya:

• I pɔsibul fɔ mek a gɛt ɔda kayn mayosaytis?
• Us kayn tritmɛnt a nid?
• Us sayn ɔ chenj dɛn a fɔ luk fɔ?
• Aw ɔltɛm a nid fɔ kam insay fɔ tɛst fɔ wach mi sik ɔ chenj mi tritmɛnt?

Dis na sɔntin we kɔmɔt frɔm jɛnɛreshɔn?

Sɔm stɔdi dɔn sho se polymyositis (ɛn ɔda kayn myositis) kin gɛt jɛnɛtik link. Dis min se pikin dɛn kin gɛt sɔm jɛnɛtik muteshon frɔm dɛn mama ɛn papa, we kin mek dɛn gɛt dis sik mɔ ɛn mɔ.

Bɔt masta sabi pipul dɛn nɔ dɔn no yet di patikyula jɛnɛtik muteshɔn dɛn we kin mek pɔsin gɛt polymyositis. Ɛn i nɔ pɔsibul yet fɔ pruv se if yu gɛt polymyositis, yu pikin dɛn kin gɛt mɔ risk fɔ gɛt am bak.

If yu de wɔri bɔt fɔ pas dɛn sik ya to yu pikin dɛn, tɔk to yu dɔktɔ bɔt aw fɔ advays yu bɔt aw fɔ gi yu jɛnɛtiks.

Wetin na di layf we pɔsin we gɛt polymyositis kin liv?

Bɔku tɛm, polymyositis nɔ kin afɛkt di layf we yu de liv (aw lɔng yu go liv). Bɔt i kin mek yu gɛt prɔblɛm dɛn we go mek yu layf de pan denja, mɔ if di mɔsul dɛn na yu nɛk ɛn yu trot wik bad bad wan. If yu gɛt prɔblɛm fɔ blo ɔ fɔ swɛla, tɛl yu dɔktɔ wantɛm wantɛm. I kin ɛp yu fɔ ajɔst yu tritmɛnt fɔ kɔntrol dɛn sik ya bifo dɛn bi denja.

Fɔ dɔn, tin dɛn we wi fɔ mɛmba

Polymyositis na wan kɔmpleks ɛn we kin mek pɔsin in layf de pan denja. Bɔt, wit di rayt mɛrɛsin advays, tritmɛnt, ɛn yu yone dedikeshɔn, bɔrku pipul dɛn dɔn ebul fɔ mɛn di sik fayn fayn wan ɛn liv fayn layf.

Mɛmba se nɔto yu wangren de. We yu de liv wit dis kayn sik, di sɔpɔt we yu fambul ɛn padi dɛn de gi yu rili impɔtant. I impɔtant bak fɔ tɔk opin wan wit yu dɔktɔ bɔt di tin dɛn we de mɔna yu ɛn di tin dɛn we yu de fred. Na da tɛm de nɔmɔ yu go ebul fɔ mek wan tritmɛnt plan we go fayn fɔ yu.

Tɔk to yu dɔktɔ bɔt di risk fɔ mek yu gɛt siriɔs prɔblɛm dɛn, mɔ di wan dɛn we gɛt fɔ du wit di mɔsul dɛn we de kɔntrol aw yu de swɛla ɛn aw yu de blo. I go ɛksplen to yu us wɔnin sayn dɛn fɔ tek tɛm wit. Nɔ ɛva ignore di sayn dɛm. If yu go to dɔktɔ kwik kwik wan, dat go ɛp yu fɔ avɔyd bɔku ɔda prɔblɛm dɛn.

` Polymyositis, Polymyositis, Mɔsul wik, Mɔsul pen, Ɔtoimyun sik, I nɔ izi fɔ swɛla, I nɔ izi fɔ blo, Tritmɛnt