Yu kin slip wantɛm wantɛm insay di de? Dis kin bi (Narcolepsy)! Lɛ wi tɔk bɔt dis

Yu dɔn ɛva fil lɛk se yu de slip we yu nɔ ebul fɔ bia we yu de wok na di de ɔ we yu de tɔk to yu padi dɛn? Yu kin tink se, "O... A nɔ bin slip las nɛt." Bɔt nɔto jɔs we pɔsin taya. Tide wi go tok boht wan difrεnt sכm kayn slip prכblεm. Dat na wan sik we dɛn kɔl Narcolepsy . Pan ɔl we i nɔ kin rili kɔmɔn, na sɔntin we bɔku pipul dɛn dɔn yɛri bɔt bikɔs ɔf di sayn dɛn we gɛt fɔ du wit am . Dɛn kin trit am, bɔt e kin gɛt big impak pan yu layf, woke, ɛn soshal rileshɔnship.

Wetin na Narkɔlepsi?

Fɔ tɔk am simpul wan, Narcolepsy na wan nyurolɔjik kɔndishɔn we kin mek pɔsin slip wantɛm wantɛm we pɔsin nɔ ebul fɔ kɔntrol insɛf insay di de. Speshal, yu bren nɔ kin ebul fɔ rigul di slip ɛn wek fayn fayn wan. Dis kin mek yu fil bad fɔ slip na di de, ilɛksɛf yu slip na nɛt.

Wetin na di men sayn dɛm wae de sho se yu gɛt Narkɔlepsi?

Fo men sayn dɛm de fɔ Narkolepsi. Bɔt bɔku pipul dɛn nɔ kin gɛt ɔl di 4 dɛn wan tɛm. Sɔm pipul dɛn kin gɛt wan ɔ tu. Lɛ wi si wetin na dɛn sayn ya.

• Slip pasmak na de : Dis na kɔmɔn sayn fɔ Narkolepsi. I tan lɛk se yu gɛt "slip atak" usay yu kin slip wantɛm wantɛm. I nɔ mata wetin yu de du, yu kin fil lɛk fɔ stɔp ɛn go slip.
• Katapleksi: Dis na we pɔsin nɔ ebul fɔ kɔntrol di mɔsul dɛn wantɛm wantɛm . Sɔntɛnde, i kin smɔl, lɛk we di mɔsul dɛn we de na wan say na di fes ɔ di nɛk de shek shek. If i bad, yu kin fɔdɔm na grɔn wantɛm wantɛm. Lɛ wi tɔk mɔ bɔt dis.
• Slip-related hallucinations : Dis na hallucinations wae de apin wae yu de slip ɔr wae yu de kam fɔ wek, ɛn e kin mek yu frayd bad bad wan.
• Slip Paralysis : Yu kin dɔn yɛri bɔt dis as "fɔ fred na drim ɛn nɔr ebul fɔ muv" ɔr lɛk aw sɔm pipul dɛn kin se, "fil lɛk dɛbul dɔn klaym ɔp." Dis na we yu nɔ ebul fɔ muv yu bɔdi ivin we yu wek, ɔ sɔntɛm yu nɔ wek ful wan. Lɛ wi luk dis smɔl mɔ.

Smɔl mɔ bɔt (Cataplexy)

Wi bin dɔn tɔk se katapleksi na we pɔsin in mɔsul dɛn nɔ gɛt trɛnk wantɛm wantɛm. Narkolepsi dεn sheb am to tu men tכyp dεm dipכnt pan if dis katapleksi simptom de כ nכ de:

• (Narcolepsy Type 1) : Dis kayn sik gɛt di sayn fɔ (Cataplexy) . Na lɛk 20% pan di wan dɛn we gɛt (Narcolepsy) de pan dis kayn.
• (Narcolepsy Type 2) : Dis kayn sik nɔr gɛt di sayn fɔ (Cataplexy) . di mכtalman, dat na lεk 80%, de fכl insay dis kayn.

Nɔmal wan, we wi de slip, bɔku pan wi bren kin stɔp fɔ kɔntrol wi mɔsul dɛn so dat wi nɔ go du wetin wi de drim. Pipul wae gɛt katapleksi kin gɛt mɔsul dɛn we kin lɔs wantɛm wantɛm, we fiba di wan we dɛn kin gɛt we dɛn de slip na REM, ivin we dɛn wek.

insay sכm kayn we, katapleksi kin afekt כnli di mכsul dεm na di fes εn nεk - fכ egzampl, di jaw kin dכp. Ɔ i kin afɛkt wan say nɔmɔ na di bɔdi. If i siriɔs, katapleksi kin mek i fɔdɔm wantɛm wantɛm, ɛn dis kin kil pɔsin. Dɛn episɔd ya kin tek sɔm minit, bɔt yu nɔ go ebul fɔ tɔk ɔ muv insay dis tɛm.

Wan ɔda spɛshal tin bɔt katapleksi na dat sɔm kayn filin kin kam wit am . I kin apin mɔ we yu gladi, we yu de laf, ɔ we yu de jok. I kin apin bak we yu sɔprayz, fred, ɔ vɛks, bɔt i nɔ kin apin so ɔltɛm.

Katapleksi kin luk difrɛn smɔl pan pikin dɛm ɛn di wan dɛm wae dɔn ol lɛk siks mɔnt wae di sik fɔs sho. Dɛn kin kray wantɛm wantɛm, dɛn kin stik dɛn tɔng, ɔ dɛn kin gɛt mɔsul dɛn we nɔ gɛt natin fɔ du wit di we aw dɛn de fil.

Smɔl mɔ bɔt slip paralayz

We wi de slip, di bren kin stɔp fɔ kɔntrol wi mɔsul dɛn so dat dɛn nɔ go du wetin wi de si na wi drim. Bɔt we wi wek, dis kɔntrol fɔ de wok fayn bak. Bɔt if yu gɛt slip paralayz, yu bɔdi nɔ kin gɛt da mɔsul kɔntrol de bak. Yu kin blo ɛn muv yu yay, bɔt yu nɔ kin ebul fɔ tɔk ɔ muv ɔda pat dɛn na yu bɔdi.

Hallucinations kin rili kɔmɔn wae pɔrsin de slip paralayz. Dɛn kin rili klia, sɔntɛnde dɛn kin mek pɔsin fred we yu nɔ go ebul fɔ imajin. Laki, slip paralayz kin te fɔ sɔm minit (pan ɔl we i kin fil lɛk fɔ lɔng tɛm to di pɔsin we de gɛt am).

Ɔda sayn dɛn de we de sho se yu gɛt dis sik?

Apat frɔm di 4 men sayn dɛm, pipul dɛm wae gɛt narkɔlepsi kin gɛt sɔm ɔda sayn dɛm ɛn bihayvya. Sɔm pan dɛn na:

• Ɔtomatik Muvmɛnt : Sɔntɛnde, pipul dɛm wae gɛt narkɔlepsi kin kɔntinyu fɔ muv bɔdi pat dɛm lɛk dɛn an, ivin we dɛn slip.
• Amnesia or Forgetfulness : Na kɔmɔn tin fɔ lɛ dɛn pipul ya fɔgɛt wetin dɛn bin dɔn du bifo dɛn go slip.
• Sɔdɛn ɔtbɔst/tɔk we yu de slip atak : Pɔsin we gɛt narkɔlepsi kin tɔk sɔntin wantɛm wantɛm (bɔku tɛm i nɔ kin gɛt sɛns ɔ i nɔ kin rili impɔtant da tɛm de). We dis kin apin, dɛn kin wek bak. Bɔt bɔku tɛm dɛn nɔ kin mɛmba am.

Udat kin gɛt sik we dɛn kɔl narkolepsi? Aw i kɔmɔn?

Dɔktɔ dɛn kin no se dɛn gɛt narkɔlepsi pan pipul dɛn we ol bitwin 5 ɛn 50. Bɔt i kin apin mɔ pan yɔŋ pipul dɛn , we ol bitwin 18 ɛn 25. Man dɛn kin gɛt dis sik.

Narkolepsi nɔto wan sik we kin rili kɔmɔn.Risach dɔn sho se bitwin 25 ɛn 50 pan ɛvri 100,000 pipul dɛn ɔlsay na di wɔl gɛt am. Bɔt bikɔs i kin tek sɔm ia fɔ no di sik, i nɔ kin izi fɔ tɔk ɔmɔs pipul dɛn rili gɛt am.

Aw Narkolepsy kin afɛkt mi bɔdi?

Fɔ ɔndastand narkolepsi, i kin ɛp fɔ no smɔl bɔt aw wi slip de wok. Bɔku men tin dɛn de we wi kin du fɔ slip:

• Stej 1: Layt Slip . Dis na shɔt stej. I kin bigin jɔs afta yu slip. I de mek lɛk 5% pan yu ɔl slip.
• Stej 2: Dip Slip . Dis na tin we dip smɔl. i de mek lεk 45%-50% pan di tכtal slip (dis amoun de inkrεs as wi de ol).
• Stej 3: Slow Wev Slip . כlmost 25% pan di tכtal slip (dis de dכn wit di ej). I rili at fɔ wek pɔsin we de na dis stej. if yu wek dεm wan wan, dεn go go insay wan stet fכ mental fכg we dεn kכl "slip inertia". Slip waka ɛn slip tɔk kin apin bak na dis stej.
• (REM) Slip : (REM) tinap fɔ (Rapid Eye Movement) , we min se di yay dɛn de muv kwik kwik wan. Na insay dis stej wi kin drim. We pɔsin de na (REM) slip, yu kin si di yay dɛn we de muv ɔnda di yaylid.

If yu nɔ gɛt narkɔlepsi, we yu go slip, yu kin bigin na stej 1, dɔn yu go na stej 2 ɛn 3. Yu kin saykl bitwin dɛn stej ya, ɛn dɔn yu kin go insay REM slip, usay yu kin bigin fɔ drim. afta di fכs REM saykl, yu stat nyu saykl εn go bak to stej 1 כ 2. Wan saykl kin tek lεk 90 minit. Bɔrku pipul kin go tru lɛk 4 to fayv saykl dɛm fɔ wan nɛt (if dɛn slip fɔ 8 awa).

Bɔt if yu gɛt narkɔlepsi, yu slip saykl nɔ kin apin lɛk dat. Bifo dat, yu kin go slip na REM jɔs lɛk aw yu slip . Ɔl di nɛt, yu kin slip shɔt tɛm, bɔku tɛm yu nɔ kin dɔn di nɔmal slip saykl.

Insay narkolepsi, ilɛksɛf yu slip fayn na nɛt, yu kin fil lɛk se yu nɔ go ebul fɔ bia wit slip na de. I rili at fɔ lɛ pɔsin stɔp fɔ slip. Bɔt dis slip we kin kam insay di de sɛf kin shɔt (lɛk 15-30 minit). We yu wek, yu kin fil fri ɛn rɛdi fɔ du wetin yu bin de du bifo bak. Bɔt na bikɔs dis kin apin bɔku tɛm insay di de, dat kin mek yu gɛt sik we dɛn kɔl narkolepsi, dat kin ambɔg yu layf.

Wetin na de tin wae kin mek pɔrsin gɛt narkolepsi?

Di tin dɛn we kin mek yu gɛt narkɔlepsi kin difrɛn difrɛn wan bay di kayn sik we yu gɛt, bɔt dɛn ɔl gɛt fɔ du wit wan spɛshal say na yu bren we dɛn kɔl di haypothalamus , we de kɔntrol aw yu de slip ɛn we yu wek.

Di tin dɛn we kin mek pɔsin gɛt (Tayp 1 Narkɔlepsi) .

Insay 1998, sɔm pipul dɛn we de stɔdi bɔt dis bin kam fɔ no wan kemikal we dɛn kɔl ɔrɛksin (sɔntɛnde dɛn kin kɔl am haypokrɛtin) . sכm nyuron dεm (bren sεl dεm) de yuz dεn tin ya fכ sεnd mεsej. di nyuron dεm we de yuz כreksin dεm de na wan pat pan di bren we dεn kכl di haypothalamus. Na dɛn nyuron ya de ɛp wi mɔ fɔ mek wi wek.

di כreksin lεvεl dεm nכmal fכ de na di sεribrospεnal fכluid (CSF) – di tכn layεr fכ fכm we de rawnd di bren εn di spεnal kכd. Bɔt pan pipul dɛm wae gɛt narkolepsi, di ɔrɛksin lɛvɛl na di CSF kin rili smɔl ɔr nɔr kin no. dis min se di sεl dεm we de mek כreksin dכn stכp fכ wok כ sכmtin dεn dכn pwεl dεm.

כda risach dεn sho se di rizin we mek dεn nyuron dεm ya nכ de wok na di כtoimyun prכblεm . dis min se yu bכdi in yon imyun sistεm de atak di nyuron dεm we de mek εn yuz כreksin, כ di כreksin insεf, כ כl tu.

כlmost 90%-95% pan di pipul dεm we gεt Tayp 1 Narkolepsi gεt spεsifi k jεnεtik mכtεshכn we de afekt dεn imyun sistεm (dεn dεn no am as HLA-DQB1*06:02 ). כltu, lεk 25% pan di jεnarכl pipul dεm dεn tu gεt dis mכtεshכn bכt dεn nכ gεt Narkolepsi. So, masta sabi pipul dɛn nɔ kin tɛst fɔ dis muteshon, ɛn dɛn nɔ shɔ us wok i de du. Sɔm pruf de bak fɔ sho se dis sik kin rɔn na famili. If yu fambul we de na yu fɔs digri (mama ɔ papa, brɔda ɛn sista, pikin) gɛt Narkɔlepsi, yu kin gɛt am bak.

Bɔt, Tayp 1 Narkɔlepsi kin kam bak afta sɔm vayral ɛn baktriyal infɛkshɔn, mɔ di influenza vayrɔs lɛk H1N1 influenza ɛn di baktri dɛm we de mek pɔsin gɛt strɛp trot. Masta sabi bukman dɛn biliv se dis kin bi bikɔs sɔntɛnde infɛkshɔn kin mek di imyun sistɛm chenj ɛn nɔ wok fayn.

Di tin dɛn we kin mek pɔsin gɛt (Tayp 2 Narkɔlepsi) .

Pan ɔl we dɛn no bɔku tin bɔt di tin dɛn we kin mek pɔsin gɛt Tayp 1 Narkɔlepsi, nɔto so bɔt Tayp 2 Narkɔlepsi. Di masta sabi pipul dɛm stil nɔr ɔndastand gud gud wan wetin mek Tayp 2 Narkɔlepsi kin kam. Bɔt dɛn tink se sɔntɛm na di sem tin dɛn we kin mek i apin. fכ egzampl, i kin bi biכs fכ di nyuron dεm we de yuz כreksin we nכ de pwεl bad bad wan, כ prכblεm wit di we aw כreksin de travul na di bren.

Sɛkɔndari Narkɔlepsi

Sɔntɛm, narkolepsi kin kam bikɔs yu haypothalamus dɔn pwɛl. Dis damej kin kam wit tin dɛm lɛk ed injury (kɔnkyushɔn), traumatik bren injury (traumatik bren injury), strok, ɛn bren tumor.

Narkolepsi kin bi bak wan sayn fɔ ɔda tin dɛm wae nɔr gɛt ɛnitin fɔ du wit dis wae yu kin gɛt. Ɛgzampul dɛn:

• (Autosomal Dominant Sɛribɛl Ataksia, Narkɔlepsi ɛn Dɛfnɛs (ADCADN))
• (Autosomal Dominant Narcolepsy, Tayp 2 Dayabitis ɛn Fat)

Yu tink se Narkolepsi kin pas?

Nɔ, Narkɔlepsi nɔto sik we pɔsin kin gɛt. Yu nɔ go ebul fɔ kech am frɔm ɔda pɔsin, ɛn pɔsin nɔ go ebul fɔ kech am frɔm yu.

Aw fɔ no di sik we dɛn kɔl narkolepsi?

Yu sik kin mek dɔktɔ tink se yu gɛt narkolepsi. Bɔt di sayn dɛm wae de sho se pɔrsin gɛt narkolepsi kin fiba bɔrku ɔda kayn sik wae de mɛk pɔrsin nɔr de fil fayn na in bren ɛn slip. So, e fayn fɔ no if yu gɛt narkolepsi.wan difinitiv diagnosis kin כnli bi tru spεsifi k diagnostik tεst dεm.

Bifo yu du bɔku pan di men tɛst dɛn fɔ no if yu gɛt narkolepsi, dɔktɔ go chɛk fɔs fɔ si if yu de slip fayn. Dɛn kin du dis bay we dɛn de yuz simpul we dɛn we de wach aw yu de slip ɛn wek. Wan ɛgzampul na aktigrafi . Dis min se yu fɔ yuz sɔntin lɛk wristwatch fɔ wach aw yu de muv (lɛk we yu de slip ɛn we yu wek ɛn muv rawnd).

Us tɛst dɛn kin yuz fɔ no if pɔsin gɛt narkolepsi?

Bɔku tɛst dɛn de we dɛn kin du fɔ no if pɔsin gɛt narkɔlepsi:

• Slip Stɔdi ((Slip Stɔdi - Polysomnogram)) : Dis tɛst de yuz difrɛn sɛns fɔ wach aw yu de slip. Di men tin we de insay wan kɔmplit slip stɔdi, dat na, wan polysomnogram ((Polysomnogram)) na fɔ yuz (EEG) sɛns dɛn . dis sεns dεm de mכnitor yu bren wev dεm ((Brain Waves)). Dis kin mek dɔktɔ dɛn si us stej yu de slip minit to minit. Pipul wae gɛt (Narcolepsy) kin fɔdɔm pan (REM) slip fast pas nɔrmal pipul dɛm, so dis tɛst kin no am. I de rayt bak di tɛm dɛn we dɛn wek we dɛn de slip midul. Wan ɔda rizin we mek dis tɛst impɔtant na bikɔs if pɔsin slip pasmak na de, i kin bi bak wan sayn fɔ wan sik we dɛn kɔl slip apnea ((Sleep Apnea)) . Wan stɔdi we yu du pan slip kin kɔnfirm se yu nɔ gɛt slip apnea.
• Multiple Sleep Latency Test (MSLT) : Dis tɛst de mɛzhɔ aw i izi fɔ mek yu slip insay di de. I min se yu fɔ slip bɔku tɛm insay wan patikyula tɛm. I kin sho if yu de slip pasmak na de. Dis na wan kɔmɔn sayn fɔ gɛt narkolepsi. Bɔku tɛm dɛn kin du am di de afta dɛn dɔn stɔdi bɔt slip na nɛt.
• Maintenance of Wakefulness Test : Dis test de mɛzhɔ aw yu kin de wek insay di de, ivin we yu izi fɔ slip. Nɔr kin yuse am fɔ chɛk fɔ si if pɔsin gɛt narkolepsi, bɔt i kin ɛp fɔ pul ɔda prɔblɛm dɛn. I fayn bak fɔ si if di mɛrɛsin dɛn we de mek pɔsin fil fayn de wok.
• Spinal Tap (Lumbar Puncture) : Dis tεst kin no di lכw lεvεl כf כreksin na yu sεribrospεnal fכluid (CSF). Dis na di men we fɔ no if pɔsin gɛt Tayp 1 Narkɔlepsi. di lכw orexin lεvεl kin bi sayn fכ se pכsin we gεt Narkolepsy nכ de gεt katapleksi yet, bכt i kin bi sayn fכ se dεn kin de divεlכp katapleksi insay di fכs tεm. Bɔt bikɔs di ɔrɛksin lɛvɛl nɔ kin chenj pan pipul dɛn we gɛt Tayp 2 Narkɔlepsi, dis nɔto ɔltɛm na tɛst fɔ no if pɔsin gɛt di sik.

Ɔda tɛst dɛn

Pipul wae gɛt narkolepsi kin gɛt bɔrku ɔda tɛst. Fɔ ɛgzampul, if yu gɛt katapleksi, i kin tan lɛk di sayn dɛm wae kin kam wae yu de muv wae yu gɛt ɔda sik dɛm na yu bren, lɛk wae yu de siz. So, dɔktɔ dɛn kin fɔs tɛst fɔ no if dɛn gɛt mɔ siriɔs sik, lɛk ɛpilepshi. So, e kin tek sɔm tɛm fɔ no se yu gɛt narkolepsi. Yu dɔktɔ na di bɛst pɔsin fɔ ɛksplen us tɛst yu nid fɔ du ɛn wetin mek dɛn de du am.

Aw dɛn kin trit pɔsin we gɛt sik we dɛn kɔl narkolepsi? Yu tink se dɛn kin mɛn am?

Dɛn kin trit di sik we dɛn kɔl narkolepsi, bɔt dɛn nɔ go ebul fɔ mɛn am . Bɔrku tɛm, dɛn kin bigin fɔ trit am wit mɛrɛsin. Bɔt if yu chenj di tin dɛn we yu de du ɛvride ɛn di we aw yu de liv yu layf, dat kin ɛp bak. Bɔrku tɛm, narkolepsi kin ansa fayn fayn wan to tritmɛnt. Dis kin ɛp fɔ stɔp di disrɔpshɔn we di sik kin kam wit.

Mɛmba se, narkolepsi na tin wae kin apun to yu layf, bɔt e nɔr kin wɔs as tɛm de go.

Wetin na di mɛrɛsin dɛm fɔ narkolepsi?

Mɛrɛsin na di men tritmɛnt fɔ sik we dɛn kɔl narkolepsi. Bɔku pan di mɛrɛsin dɛn kin tɔch pɔsin we de slip pasmak na de. Bɔt sɔm mɛrɛsin dɛn kin afɛkt ɔda sayn dɛn bak. Na sɔm kayn mɛrɛsin wae dɛn kin gi fɔ dis sik:

• Wakefulness Medications : Dɛn kin gɛt dis fɔs tritmɛnt. Sɔm ɛgzampul dɛn na Modafinil ɛn Armodafinil . Dɛn mɛrɛsin ya kin mek yu nervɔs sistɛm wok. Dis kin ɛp fɔ ridyus di tranga ɛn di frɛkuɛns we pɔsin kin slip na de.
• Amphetamines ɛn Amphetamine-like Stimulants : Drug dɛm lɛk methylphenidate (dɛn kɔl am ɔnda di brand nem Ritalin®, Concerta®, Qullivant®) ɛn amphetamine/dextroamphetamine kɔmbaynshɔn (dɛn sabi am ɔnda di brand nem Adderall®).
• Antidipreshan : Dɛn kin inklud Serotonin-Norepinephrine Riuptek Inhibitors (SNRI) (e.g. Venlafaxine - we dɛn kɔl Effexor®), Selective Serotonin Riupteke Inhibitors (SSRI) (e.g. Fluoxetine - we dɛn kɔl Prozac®), ɔ Tricyclic Antidipreshan (e.g. Clomipramine ɔ Protriptyline - dɛn wan ya naw dɛn nɔ kin yuz dɛn so igen).
• (Sodium Oxybate) : Dis mɛrɛsin de ɛp yu fɔ slip fayn ɛn i de ridyus bak di frɛkuɛns fɔ (Cataplexy). Bikɔs ɔf di ifɛkt dɛm we dis mɛrɛsin gɛt, dɛn kin kɔntrol am strikt wan na bɔku kɔntri dɛm. Bɔt bɔku tɛm dɛn kin yuz am fɔ mɛn (Type 1 Narcolepsy).
• Drug dɛm we de afɛkt histamin : Wan ɛgzampul fɔ dis kayn drɔgs na Pitolisant.. Dis na wan histamin rεsεpכta antagonist. Risεptor antagonist na mεdisin dεm we de stכp sכm kεmεkal dεm na yu bכdi fכ atak di sεl dεm. Dis kin mek di sɛl dɛn nɔ du sɔm tin dɛn ɔ stɔp dɛn.

Pan ɔl we bɔku tritmɛnt dɛn de fɔ big pipul dɛn (narcolepsy), di tritmɛnt dɛn we pikin dɛn kin gɛt nɔ bɔku. Yu pikin in dɔktɔ we de mɛn pikin dɛn ɔ spɛshal dɔktɔ kin tɛl yu di bɛst we fɔ mɛn yu ɛn wetin dɛn kin tɛl yu fɔ du.

Kɔmplikɛshɔn/sayd ifɛkt dɛm fɔ tritmɛnt

Bɔrku mɛrɛsin wae dɛn kin yuse fɔ trit narkolepsi ɛn in sayn dɛm gɛt bɔrku chans fɔ miks wit ɔda mɛrɛsin dɛm. Di ay blɔd prɛshɔn ɛn di at ritm we nɔ de ɔltɛm na jɔs tu pan di prɔblɛm dɛn we kin apin wit ɛni kayn mɛrɛsin we de mek pɔsin fil fayn. Sɔdiɔm Ɔksijɛt, mɔ, rili denja we dɛn put am wit ɔda mɛrɛsin dɛn we de pwɛl di sɛntral nervɔs sistɛm. Dɔn bak, nɔ ɛva yuz dis mɛrɛsin wit rɔm .

Jɛnɛral wan, yu dɔktɔ na di bɛst pɔsin fɔ tɛl yu us sayd ɛfɛkt, kɔmplikeshɔn, ɛn di drɔg intarakshɔn yu fɔ no bɔt. I kin gi yu infɔmeshɔn we fit yu patikyula kɔndishɔn, wɛlbɔdi istri, ɛn yusɛf.

Aw a go tek kia ɔf misɛf ɛn kɔntrol mi sik dɛn?

Yu nɔ fɔ ɛva tray fɔ no ɔ trit yusɛf fɔ gɛt narkolepsi . Dis na bikɔs di sayn dɛm fɔ dis sik kin kɔmɔn bak pan ɔda siriɔs sik dɛm, lɛk slip apnea ɛn epilepsy. Dɔn bak, dis sik kin mek sɔm tin dɛn we pɔsin kin du, lɛk fɔ drayv ɛn swim, denja. So, go to dɔktɔ ɔltɛm fɔ no if yu gɛt di sik ɛn fɔ mek i trit am .

Aw kwik a go fil fayn afta dɛn dɔn trit mi?

Di tɛm we i kin tek fɔ mek di tritmɛnt bigin fɔ wok, ɔ fɔ mek dɛn fil di tin dɛn we di tritmɛnt kin du, kin dipen pan bɔku tin dɛn. Yu dɔktɔ na di bɛst pɔsin fɔ tɛl yu wetin fɔ ɛkspɛkt bay aw yu sik, aw lɔng i go tek fɔ mek di mɛrɛsin wok, ɛn aw lɔng i go tek fɔ si chenj na yu sik.

Yu tink se dɛn kin ridyus ɔr nɔr kin gɛt di sik wae de kam wit narkolepsi?

Bɔrku tɛm, narkolepsi kin kam wae yu nɔr bin de ɛkspɛkt. So, i nɔ pɔsibul fɔ ridyus di risk fɔ gɛt am ɔ fɔ mek i nɔ gɛt am.

Wetin a fɔ ɛkspɛkt if a gɛt Narkɔlepsi?

Bɔrku tɛm, narkolepsi insɛf nɔr kin denja. Bɔt we pɔsin kin slip wantɛm wantɛm ɛn we i nɔ ebul fɔ kɔntrol insɛf, dat kin rili ambɔg layf. Pipul wae gɛt dis sik nɔr kin ebul fɔ drayv (fɔ sɔm tɛm ɔr fɔ ɔltɛm - i kin dipen pan dɛn simptom ɛn kɔndishɔn).

Pan ɔl we narkolepsi nɔ kin denja, insay Tayp 1 narkolepsi, di risk kin bɔku fɔ injuri frɔm we pɔsin fɔdɔm we di katapleksi de apin. Narkolepsi kin mek yu gɛt denja bak we yu de drayv, yu de yuz pawa tul ɔ ebi ebi mashin, ɔ yu de swim.

We pikin dɛn kin gɛt sik we dɛn kɔl narkolepsi

Bɔrku tɛm, pikin dɛm wae gɛt narkɔlepsi kin strɛs wit di ifɛkt dɛm wae de sik kin gɛt. We pɔsin de slip na di de, i kin mek i nɔ izi fɔ pe atɛnshɔn pan skul wok, fɔ kɔntinyu fɔ gɛt padi biznɛs wit ɔda pipul dɛn, ɛn fɔ tek pat pan skul ɛn tin dɛn we nɔ de na skul.

Bɔt, Narkɔlepsi na wan sik we pɔsin kin gɛt we i de mɛn pipul dɛn. As a so, pikin dɛm wae gɛt Narcolepsy gɛt rayt fɔ gɛt ligal protɛkshɔn. Di lɔ se skul dɛn bak fɔ mek ples fɔ slip. Fɔ ɛgzampul, fɔ chenj di klas schedule, fɔ put tɛm fɔ slip ɔ fɔ rɛst, ɛn fɔ mek i izi fɔ pikin dɛn fɔ tek dɛn mɛrɛsin na skul. Yu pikin in dɔktɔ we de mɛn pikin dɛn ɔ ɔda spɛshal pipul dɛn kin ɛp yu fɔ fɛn sɔlv dɛn we go ɛp yu pikin.

Fɔ big pipul dɛn we de wok (Narcolepsy) .

Jɔs lɛk aw lɔ de protɛkt pikin dɛn na skul, na so lɔ de protɛkt big pipul dɛn bak we gɛt narkɔlepsi. Dɛn nɔ gri fɔ mek pɔsin nɔ trit pɔsin bikɔs ɔf in mɛrɛsin, ivin fɔ gɛt narkolepsi (fɔ ɛgzampul, na Amɛrika, ɔnda di Americans with Disabilities Act).

Bikɔs ɔf da ligal protɛkshɔn de, pipul dɛm wae gɛt narkɔlepsi kin tɔk to dɛn bɔs na dɛn wokples ɛn gɛt ples fɔ slip so dat dɛn go kɔntinyu fɔ wok we dɛn de manej dɛn kɔndishɔn.

Aw a fɔ kia fɔ misɛf? (Advays we pɔsin kin du)

If yu gɛt narkolepsi, sɔm tin dɛn de we yu kin du fɔ kɔntrol yu sik ɛn gɛt di bɛst pan yu tritmɛnt. Bɔku pan dɛn tin ya kin gɛt fɔ du wit fɔ kɔntinyu fɔ slip fayn (Good Sleep Hygiene) ɛn chenj yu schedule ɛn rutin.

• Mek yu slip ɔltɛm : If yu gɛt di abit fɔ go slip ɛn wek di sem tɛm, dat kin mek yu slip fayn.
• Set tɛm fɔ slip : Sɛt tɛm fɔ slip we go mek yu ebul fɔ slip we fit yu ej. Dɔn bak, sɛt tɛm fɔ rilaks ɛn mek yu maynd kol bifo yu go slip.
• Limit exposure to brayt layt ɛn ilɛktronik divays dɛn : Di layt we de kɔmɔt na dɛn divays ya we de nia fɔ slip kin ambɔg yu bɔdi in natura l slip-wek saykl.
• Nɔ drink rɔm, kafin, yuz tabak, ɛn it nia di tɛm we yu go slip.: If yu fil angri bifo yu go slip, i bɛtɛ fɔ it layt. If yu de tek sɔm mɛrɛsin dɛn, yu fɔ stɔp fɔ drink rɔm kpatakpata (yu dɔktɔ go tɛl yu if dɛn dɔn gi yu dɛn kayn mɛrɛsin ya). Masta sabi bukman dɛn kin se bak fɔ stɔp di tin dɛn we dɛn kin yuz fɔ smok kpatakpata (inklud sigrɛt, ilɛktronik sigrɛt ((vaping)), ɛn tabak we nɔ gɛt smok ((smokless tobacco))).
• Bi fyzikal active : Ivin if na jɔs sɔntin lɛk fɔ waka, fɔ de active kin ɛp fɔ yu slip kwaliti.
• Tek wan nap : Pipul wae gɛt narkolepsy kin fil fayn afta dɛn dɔn tek nap. I kin ɛp fɔ no us tɛm pan di de yu kin fil lɛk se yu de slip mɔ ɛn mek yu slip arawnd dɛn tɛm dɛn de.

Nɔ du tin dɛn we denja, ɔ tek tɛm.

Narkolepsi kin mek siriɔs aksidɛnt, ivin kil. Fɔ protɛkt yusɛf ɛn di wan dɛn we de arawnd yu, nɔ ɛva drayv pas dɔktɔ klia wan .

If yu gɛt sayn dɛm fɔ narkolepsi we yu de drayv, stɔp fɔ drayv wantɛm wantɛm ɛn kɔntak yu dɔktɔ. Pan ɔl we dis nɔ kin izi fɔ du, i impɔtant fɔ mek aksidɛnt we go kil pɔsin ɔ chenj in layf nɔ apin bikɔs i slip na di wil.

Wan ɔda say we narkolepsi kin rili denja na di wata . If yu gɛt narkolepsi, i rili impɔtant fɔ wɛr layf jakit fayn ɔltɛm we yu de swim ɔ pan ɛni bot ɔ wata kraft we se yu fɔ wɛr layf prɛzɛv. If yu nɔ gɛt tin fɔ protɛkt yu layf, if pɔsin slip na di wata, i kin kil pɔsin.

Ustɛm a fɔ go to dɔktɔ?

If yu slip wantɛm wantɛm, we yu nɔ bin de tink se yu go slip, dat na sayn fɔ sho se yu nid fɔ go to dɔktɔ. Dis nɔto jɔs narkolepsi, bɔt i kin sho bak se yu gɛt difrɛn kayn mɛrɛsin. Sɔm pan dɛn rili siriɔs. Bɔrku tɛm, di mɔr yu de delay fɔ no di sik ɛn tritmɛnt, na di mɔr de risk fɔ gɛt prɔblɛm ɔr de tritmɛnt nɔr de woke fayn.

Ustɛm a fɔ go na Imejɛnsi Tritmɛnt Yunit (ETU) ?

If yu fɔdɔm wantɛm wantɛm ɔ yu nɔ no natin, go to dɔktɔ wantɛm wantɛm na ɔspitul ɔ imejensi rum. Dis na wan big sayn fɔ bɔrku sik, lɛk at atak, strok, ɛn at ritm wae nɔr de rit ɔltɛm. Dɛn tin ya na mɛdikal imejensi ɛn dɛn nid fɔ gɛt tritmɛnt kwik kwik wan.

Injury wae kin kam wae yu fɔdɔm na injury wae kin kam wae yu fɔdɔm wae yu nɔr bin de ɛkspɛkt, lɛk wae yu pul am ɔr yu nɔr no natin.Risk de fɔ mek pɔsin wund. Ɔltɛm, go to dɔktɔ if yu tink se yu go dɔn wund na yu ed, nɛk, ɔ ɛni pat na yu bak. If di spɛshal kɔd brok ɛn wund, i kin mek i pwɛl sote go, i kin mek i nɔ ebul fɔ waka, ɛn i kin ivin day.

If yu fɔdɔm, ɛn yu de tek ɛni kayn mɛrɛsin we de mek yu blɔd tan , mɔ if yu nak yu ed, yu fɔ go to dɔktɔ wantɛm wantɛm. If pɔsin fɔdɔm ɛn wund, i kin mek pɔsin blɔd insay in bɔdi we denja. Yu nid fɔ go to dɔktɔ fɔ mek shɔ se yu nɔ gɛt ɛni injury we go mek yu gɛt prɔblɛm dɛn we go mek yu layf de pan denja.

Di impɔtant tin dɛn we yu nid fɔ mɛmba (Take-Home Message) .

So, a op se yu dɔn ebul fɔ mɛmba sɔm pan di impɔtant tin dɛm frɔm wetin wi dɔn tɔk bɔt (Narcolepsy).

• Narkolepsi nɔto jɔs we pɔsin kin slip bikɔs i taya. Na prɔblɛm wit di bren in ebul fɔ kɔntrol slip ɛn wek.
• Yu fɔ no di men sayn dɛm wae de sho se yu de slip pasmak na de, yu gɛt katapleksi (we yu mɔsul dɛn wik wantɛm wantɛm), yu de si tin dɛn we yu de tink bɔt we yu de slip, ɛn yu nɔ ebul fɔ slip . Nɔto ɔl dɛn sik ya kin apin to ɔlman.
• Bɔrku tɛm di tin wae kin mek dis sik kin bi wae di kεmεkal ɔrεksin na di bren de dכn, ɔr ɔtoimyun prכblεm.
• Narkolepsi nid fɔ gɛt spɛshal mɛdikal tɛst fɔ no if i gɛt am. So nɔ jomp to kɔnklushɔn fɔ yusɛf.
• Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis ɔl, na sik we dɛn kin kɔntrol bɔku pan dɛn wit mɛrɛsin ɛn chenj dɛn layf .
• Tink gud wan bɔt sef. Tek tɛm mɔ we yu de drayv, swim, ɛn wok na say dɛn we ay. Fɔ fala di advays we dɔktɔ gi yu.
• If yu gɛt dɛn kayn sik ya, nɔr frayd fɔ go to dɔktɔ. Nɔto yu wan de. Ɛp de fɔ yu.

A op se dis infɔmeshɔn go ɛp yu. If yu ɔ pɔsin we yu sabi gɛt dis kayn prɔblɛm, i go fayn fɔ mek yu go to dɔktɔ kwik kwik wan.

` Narkolepsi, slip pasmak de, katapleksi, slip apnea, slip hallucinations, orexin, bren sik