Sɔntɛnde, yu kin fil taya we nɔ kɔmɔn fɔ natin? Yu kin fil shɔt fɔ blo ivin we yu de klaym smɔl stej? Bɔku tɛm, wi nɔ kin tink bɔt dɛn tin ya as nɔmal tin. Bɔt sɔntɛnde, prɔblɛm kin de na wi at we wi nɔ no bɔt. Tide wi de tɔk bɔt wan sik we de mek di at wik smɔl smɔl, bɔt bɔku pipul dɛn nɔ no bɔt am. Dat na Dilated Cardiomyopathy we dɛn kɔl Dilated Cardiomyopathy.
Wetin rili na Dilated Cardiomyopathy?
Fɔ tɔk am simpul wan, dis na we yu at mɔsul de strɛch ɛn big pas aw i fɔ bi. Jɔs lɛk aw rɔba band nɔ kin ebul fɔ elastik we i strɛch, na so wi at mɔsul kin strɛch, tan, ɛn wik.
dis kכndyushכn de stat mεntal wan na di lεft vεntrikl, di men pכmp chεmba na di at. Dis chɛmba na di men pat we de pɔmp blɔd to di wan ol bɔdi. So we dis mɔsul wik, di at nɔ kin ebul fɔ pɔmp blɔd fayn fayn wan. Ɛnitɛm we di at de bit, sɔm pan di blɔd we dɛn nid fɔ pɔmp kin lɛf insay di at. As tɛm de go, dis kin bi big lod pan di at. I de ridyus bak di blɔd we di ɔda pat na di bɔdi nid fɔ gɛt ɔksijɛn ɛn tin dɛn we de mek i gɛt tin fɔ it.
Pan ɔl we dɛn nɔ gɛt ɛni patikyula tin bɔt dis na Sri Lanka, risach dɔn sho se pan ɔl 100,000 pipul dɛn ɔlsay na di wɔl na lɛk 36 pipul dɛn gɛt dis sik. Bɔt di gud nyus na dat naw, tritmɛnt dɛn de we rili fayn fɔ dis. Ɛn bɔku tin dɛn de we yu kin du fɔ ɛp fɔ mɛn dis sik.
Wetin na di sayn dɛm fɔ dis sik?
Bɔrku pipul, mɔr lɛk wae dis sik bigin, nɔr kin gɛt ɛni sayn. Bɔt as yu at de wok smɔl smɔl, yu kin bigin fɔ gɛt sɔm sayn dɛn. Bɔku tɛm, dɛn sayn ya nɔ kin kam wantɛm wantɛm bɔt dɛn kin bɔku smɔl smɔl.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| I nɔ izi fɔ blo (Dyspnea) . | Fɔ fil se yu nɔ gɛt bɛtɛ briz we yu de du smɔl smɔl wok dɛn, we yu de waka, ɔ ivin jɔs tinap. |
| Taya | Taya we nɔ kɔmɔn, we yu nɔ go ebul fɔ bia we yu kin fil ɔl di de, ivin afta yu dɔn slip fayn. |
| Di leg, ankles, ɛn bɛlɛ kin swel (Edima) . | di leg, fut, εn bכdi de swεla bikoz fכ di wata we de kכmכt na di bכdi bikoz fכ di wik pכmp akshכn na di at. |
| Di we aw pɔsin de blo | Fɔ fil lɛk se yu at de bit wantɛm wantɛm ɛn yu chɛst de bit. |
| Diziz ɛn fɔdɔm | Diziz, blu yay, ɔr fɔdɔm bikɔs blɔd nɔ de flɔ na di bren. |
| Chest pen ɔ diskɔmfɔt | Pen we de fil lɛk se yu prɛs yu chɛst, lɛk se wet de pan am. |
| Kɔf ɛn chɛst tayt | Kɔf we kin kɔntinyu fɔ kɔf we wata kin gɛda na di lɔng dɛn. |
| We yu de gɛt mɔ wet | di wet we yu nɔ bin de ɛkspɛkt insay sɔm dez bikɔs ɔf di wata we de kɔntinyu fɔ de na di bɔdi. |
Wetin na di tin dɛm wae kin mek pɔrsin gɛt Dilated Cardiomyopathy?
Bɔrku tɛm e kin tranga fɔ fɛn sɔm patikyula kɔz fɔ dis sik. Bɔt sɔm tɛm dɛn de, dɛn dɔn no bɔku tin dɛn. Sɔm pipul dɛn kin gɛt pas wan pan dɛn tin ya.
| Rizin | Tɔk bɔt |
|---|---|
| Jin dɛn bin de pas fɔ lɔng lɔng tɛm | Dɛn dɔn si se pas 50% pan di pipul dɛm wae gɛt dis sik kin gɛt am frɔm dɛn jin dɛm. Dɛn kɔl dis famili dilated cardiomyopathy. |
| Koronari at sik ɛn at atak | Dis kכndyushכn kin kכz bay we di blכd vεsul dεm we de gi di at blכk כ di at mכsul dεm we de pwεl bikoz fכ at atak. |
| Di ay blɔd prɛshɔn | Di ay blɔd prɛshɔn we dɛn nɔ kɔntrol fɔ lɔng tɛm kin mek di at mɔsul wik bay we i kin fos di at fɔ wok tranga wan. |
| Vayral infɛkshɔn dɛn | dis kכndyushכn kin kכz fכ sכm kayn vayrus dεm (e.g. epataytis, HIV) כ infεkshכn dεm we de afekt di at mכsul insεf (mayokarditis). |
| Fɔ drink rɔm pasmak | If pɔsin drink pasmak fɔ lɔng tɛm, dat kin pwɛl di at mɔsul dairekt wan. |
| Ɔda tin dɛn we kin apin to pɔsin we sik | Kɔndishɔn lɛk dayabitis, tayroyd sik, at valv sik, ɛn at sik we dɛn bɔn wit. |
| Kɔmplikɛshɔn dɛn we kin apin we uman gɛt bɛlɛ | dis kin apin bikoz fכ di kכmplikεshכn dεm we kin apin di las pat pan di bεlε כ afta dεn bכn pikin. |
| Sɔm mɛrɛsin ɛn drɔgs dɛn | Sɔm kemotɛrapi drɔgs fɔ kansa ɛn di yus fɔ drɔgs lɛk kɔkɛyn. |
Us prɔblɛm dɛn kin kam wit dis sik?
We Dilated Cardiomyopathy de kam tranga, difrɛn kɔmplikɛshɔn kin apin. Sɔm pan dɛn tin ya kin rili siriɔs.
Di tin we impɔtant pas ɔl na fɔ no di sik ɛn bigin fɔ trit am fayn bifo dɛn kɔmplikeshɔn ya apin. Dɔn dɛn kin ridyus dɛn prɔblɛm ya bad bad wan.
- At Fayla: Dis na di men prɔblɛm. Di at nɔ kin ebul fɔ pɔmp inof blɔd fɔ mit di bɔdi in nid.
- Aritmia: Na di at bit we nɔ de bit ɔltɛm we di at kin chenj bikɔs ɔf di chenj dɛn we de apin na di at in ilɛktrik signal sistɛm.
- di at valv prכblεm: bikoz di at de big, di valv dεm na di at nכ de kכloz fayn εn bכdi de bigin fכ lik bak.
- Blɔd klɔt: Blɔd klɔt kin fɔm na di at bikɔs di at in spid we i de pɔmp de dɔŋ. If dis blɔd klɔt brok ɛn stɔp na wan vein na di bren, i kin mek pɔsin strok , ɔ if i stɔp na wan vein na di lɔng, i kin mek wan denja tin we dɛn kɔl pulmonary embolism .
- Sudden Cardiac Arrest: Na di at we de stɔp wantɛm wantɛm bikɔs ɔf wan denja aritmia.
Aw di dɔktɔ kin no bɔt dis sik?
If yu gɛt di sayn dɛm we wi dɔn tɔk bɔt, di fɔs tin we yu fɔ du na fɔ go to yu dɔktɔ. I go aks yu bɔt yu sik, if ɛnibɔdi na yu famili gɛt at sik (famili istri), ɛn yu mɛdikal histri.
Dɔn, di dɔktɔ go chɛk yu. I go lisin to yu chɛst wit stetɔskɔp fɔ chɛk if wata de na yu lɔng ɛn fɔ lisin fɔ di at sawnd dɛn we nɔmal (at de grɔmbul). Di dɔktɔ kin yɛri at de grɔmbul bifo yu gɛt ɛni sayn.
Test fɔ kɔnfɔm di diagnosis
Afta yu dɔn chɛk yu bɔdi, yu dɔktɔ go tɛl yu fɔ du bɔku tɛst fɔ no if yu gɛt di sik, ɔndastand aw i rili bad, ɛn plan di bɛst tritmɛnt akɔdin to dat.
| Tɛst | Wetin dɛn de op fɔ frɔm dis? |
|---|---|
| Ekokardiogram we dɛn kin du | Dis na di tɛst we impɔtant pas ɔl. I tan lɛk se dɛn de skan bebi. I de yuz sawnd wev fɔ no aw di at de wok, di sayz we in chɛmba dɛn gɛt, ɛn aw i de pɔmp blɔd fayn fayn wan. |
| Ilɛktrokardiogram (ECG) . | Test we de rayt di ilɛktrik wok we di at de du. I kin no bɔt tin dɛn lɛk we pɔsin nɔ gɛt ritmi. |
| X-ray na di chɛst | Yu kin chɛk fɔ si if di at big pas aw i fɔ bi ɛn if wata dɔn gɛda na di lɔng dɛn. |
| Blɔd tɛst dɛn | Fɔ no if di at mɔsul dɔn pwɛl, ɛn ɔda tin dɛn lɛk dayabitis ɛn tayroyd prɔblɛm. |
| MRI skan fɔ di at | Yu kin gɛt rili klia pikchɔ bɔt di sayz ɛn di wok we di at in chɛmba dɛn de du. |
| Angiogram we dɛn kin du | Chek fɔ si if di korona at dɛn we de gi blɔd to di at dɔn blok. |
Wetin na di tritmɛnt dɛm fɔ Dilated Cardiomyopathy?
Pan ɔl we no mɛrɛsin nɔ de fɔ dis sik, tritmɛnt dɛn de we rili fayn we go ebul fɔ kɔntrol di sayn dɛm, stɔp yu at fɔ wik, ɛn ɛp yu fɔ liv lɔng. Di kwik we yu bigin fɔ trit yu, na di mɔ yu go gɛt bɛtɛ tin fɔ du. Dɛn kin sheb di tritmɛnt to tri men pat.
1. Mɛrɛsin (di kayn mɛrɛsin dɛn) .
Yu dɔktɔ kin gi yu bɔku mɛrɛsin fɔ mek yu at wok fayn, fɔ mek yu nɔ gɛt bɔku prɔblɛm dɛn, ɛn fɔ mek yu nɔ gɛt prɔblɛm dɛn.
- ACE inhibitors ɛn ARNI: Dɛn wan ya kin mek di blɔd vesel dɛn big, i kin mek di blɔd prɛshɔn go dɔŋ, ɛn i kin mek di at nɔ wok bɔku.
- Beta-blɔka: Kɔntrol di at rit, gi di at rɛst, ɛn mek di at wok fayn fɔ lɔng tɛm.
- Diuretiks:Dɛn kɔl dɛn tin ya "wata pils." Dɛn kin ɛp fɔ pul di wata we pasmak na di bɔdi tru di urine, we kin mek yu nɔ swel ɛn nɔ blo fayn.
- Aldosterone antagonists: Dɛn wan ya na wan kayn diuretic bak. Dɛn kin ɛp fɔ kɔntrol sɔdiɔm ɛn wata we de na di bɔdi.
- Anticoagulants: Dɛn kin gi dɛn mɛrɛsin ya fɔ mek blɔd nɔ klɔt na di at if risk de fɔ mek dɛn fɔm.
2. Di chenj we pɔsin de liv in layf
Di mɛrɛsin nɔmɔ nɔ go du fɔ am. Smɔl smɔl chenj dɛn we yu kin mek na yu layf ɛvride kin rili ɛp fɔ mek di tritmɛnt go bifo.
- Ridyus di sɔl we yu de it: Sɔl na di men tin we kin mek di wata nɔ de insay di bɔdi. If yu nɔ it bɔku sɔl we yu de it, dat kin ɛp fɔ mek yu nɔ swel ɛn mek yu at nɔ strɛs.
- Nɔ drink rɔm ɛn drɔgs: Bikɔs rɔm kin pwɛl di at mɔsul dairekt wan, i impɔtant fɔ stɔp am ɔl ɔ stɔp am lɛk aw di dɔktɔ advays yu. Dɛn fɔ avɔyd drɔgs lɛk kɔkɛyn kpatakpata.
- Layt ɛksesaiz: Yu kin mek yu at wok fayn bay we yu de du layt ɛksesaiz (e.g. waka) we fit yu ɛn we yu dɔktɔ gri fɔ.
- Fɔ it tin dɛn we go ɛp yu at: It mɔ vɛjitebul, frut, mit we nɔ gɛt bɛtɛ bɔdi (kɔk, fish), ɛn ɔda tin dɛn.Avɔyd it dɛn we gɛt bɔku ɔyl ɛn shuga.
3. Ɔpreshɔn ɛn ɔda tin dɛn we dɛn kin du fɔ mɛn pipul dɛn
If di sik de na say we bad ɛn i nɔ izi fɔ kɔntrol wit mɛrɛsin nɔmɔ, di dɔktɔ kin tɛl yu fɔ yuz am lɛk dis.
- Biventricular Pacemaker: na smɔl tin we de ɛp di at in chɛmba dɛn fɔ kɔntrakt di sem tɛm, we de mek di pɔmp wok fayn fayn wan.
- ICD (Implantable Cardioverter Defibrillator): Na tin we de no if di at nɔ de wok fayn ɛn i de gi smɔl ilɛktrik shɔk to di at fɔ mek di at ritm bak.
- LVAD (Left Ventricular Assist Device): Na mɛkanikal pɔmp we de ɛp di at fɔ pɔmp. Dɛn kin yuz dis fɔ sɔm tɛm pan di wan dɛn we de wet fɔ mek dɛn transplant dɛn at.
- At Transplant: Na di las tin we dɛn kin tink bɔt fɔ di wan dɛn we gɛt di sik dɛn we rili bad, we ɔl di ɔda tritmɛnt dɛn nɔ wok.
Wetin yu fɔ ɛkspɛkt we yu de liv wit dis sik?
Yu prɔgnosis de dipen pan de kɔz fɔ de sik, aw de sik tranga, ɛn aw yu bigin tritmɛnt kwik kwik wan. If dɛn trit dɛn fayn ɛn chenj dɛn layf, bɔku pipul dɛn kin liv nɔmal layf ɛn kɔntinyu fɔ du dɛn wok.
Bɔt fɔ sɔm pipul dɛn, di sik kin wɔs as tɛm de go, ɛn dɛn kin nid fɔ go na ɔspitul fɔ gɛt tritmɛnt.
Bɔt nɔ wɔri. Di tritmɛnt fɔ dis sik dɔn bɛtɛ naw pas aw i bin de sɔm ia bifo. Wit di advans tritmɛnt dɛm tide, pas 80% pan di pipul dɛm wae gɛt dis sik stil de liv fayn afta 8 ia wae nɔr nid fɔ gɛt at transplant.
Aw yu fɔ kia fɔ yusɛf?
I rili impɔtant fɔ mek yu tek kia ɔf yusɛf pan dis waka.
- Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn: Tek yu mɛrɛsin jɔs lɛk aw dɛn tɛl yu fɔ tek am, di rayt tɛm, ɛn di rayt doz. Nɔ mis wan de.
- Wej yusɛf ɛvride: Wej yusɛf di sem tɛm ɛvri mɔnin ɛn rayt yu wet. If yu gɛt mɔ wet wantɛm wantɛm insay wan ɔ tu dez, dat kin min se yu de gɛt mɔ wet na wata. If dis apin, tɛl yu dɔktɔ wantɛm wantɛm.
- Atɛnd klinik dɛn we dɛn dɔn sɛtul fɔ go: Mek shɔ se yu go na di klinik di de dɛn we di dɔktɔ se fɔ kam. I rili impɔtant fɔ wach yu kɔndishɔn.
- Lisin to yu bɔdi: If yu fil se yu sik de wɔs, fɔ ɛgzampul, if yu gɛt prɔblɛm fɔ blo ɔ if yu leg dɛn de swel, nɔ ignore am ɛn tɛl yu dɔktɔ.
Na nɔmal tin fɔ mek yu fred ɛn fil bad we yu kam fɔ no se yu gɛt at prɔblɛm. Bɔt mɛmba se nɔto yu wangren de. Wit di tritmɛnt dɛm wae de tide, dɛn kin ebul fɔ mɛn dis sik fayn fayn wan. Tɔk to yu dɔktɔ opin wan bɔt ɛni prɔblɛm ɔ tin we de mɔna yu. Yu ɛn yu dɔktɔ de pan dis joyn togɛda.
Mɛsej we dɛn kin kɛr go na os
- Dilated Cardiomyopathy na siriɔs sik we di at mɔsul kin wik ɛn di at kin big.
- Nɔr ignore sɔm sayn dɛm lɛk wae yu taya wae yu nɔr ɛksplen, yu nɔr de blo fayn, ɛn yu leg dɛm wae de swel.
- Bɔku tin kin afɛkt dis, lɛk di tin dɛn we kin mek pɔsin gɛt jɛnɛtiks, di sik dɛn we pɔsin kin gɛt, di ay blɔd prɛshɔn, ɛn di we aw i de liv in layf.
- If yu no di sik kwik kwik wan ɛn trit yu, dat kin mek yu gɛt fayn fayn tin dɛn.
- Fɔ trit pɔsin, i nid fɔ tek mɛrɛsin, chenj di we aw i de liv in layf, ɛn sɔntɛnde dɛn kin du ɔpreshɔn pan am.
- I impɔtant fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan ɛn go na di klinik dɛn di de dɛn we dɛn dɔn plan fɔ go.
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