Yu kin gɛt prɔblɛm wit yu bren ɛn yu spɛnal kɔd wantɛm wantɛm? Lɛ wi lan bɔt ADEM (Acute Disseminated Encephalomyelitis)!

Yu dɔn ɛva yɛri bɔt di wɔd `ADEM` (Acute Disseminated Encephalomyelitis)? Dis kin bi nyu tin to yu. Na wan sik wae nɔr kin bɔrku, dat min se i kin afɛkt smɔl pipul dɛm, bɔt i kin kam wantɛm wantɛm ɛn afɛkt wi nervɔs sistɛm. Nɔ wɔri, wi go tɔk bɔt am simpul wan, di we we yu go ɔndastand.

Wetin na ADEM? Lɛ wi ɔndastand am simpul wan.

Fɔ tɔk am simpul wan, ADEM na inflamɛns ɔ swel we de apin wantɛm wantɛm na wi Sɛntral Nɛvɔs Sistɛm – dat na, di bren ɛn di spɛnal kɔd. Tink bɔt am dis we, jɔs lɛk we wi gɛt injuri , wi bɔdi kin swel, dis kin mek sɔm say dɛn na di bren ɛn spɛnal kɔd swel.

Dis inflameshn kin damej di protektiv sheath we de rawnd wi nerve fibers . Dɛn kɔl dis swɛt di maylin swɛt . I tan lɛk di plastic we de kɔba rawnd ilɛktrik waya. I de ɛp di mɛsej dɛn fɔ travul along di nerves fast fast. so, we dis maylin sεt dεm dεm dεm, di nεv mεsej dεm nכ de travul fayn fayn wan. Na da tɛm de difrɛn sayn dɛn kin sho. Sɔm dɔktɔ dɛn kin kɔl dis sik bak "demyelinating" kɔndishɔn.

Di wɔd "acute" na ADEM min se i kin apin wantɛm wantɛm, wantɛm wantɛm . Bɔrku tɛm, na wan tɛm nɔmɔ i kin apin insay yu layf. Bɔt i pɔsibul fɔ mek i kam bak smɔl smɔl.

Aw kɔmɔn tin dis?

ADEM na rili wan kɔndishɔn we nɔ kin apin so ɔltɛm . Sɔv dɔn sho se na kɔntri lɛk Amɛrika, i kin apin to lɛk wan pan ɛvri tu ɛn af milyɔn pipul dɛn. So, dis nɔto sik we de ambɔg ɔlman.

Wetin na di sayn dɛm fɔ dis sik?

ADEM simptom dεm kin apin fכ dez afta yu gεt vayral כ baktriyal infεkshכn . Dɛn sayn ya kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin, ɛn i kin dipen bak pan usay di inflamɛns de na di bren ɔr spɛshal kɔd.

Sɔm sayn wae kin kam pan pɔrsin wae gɛt dis sik na:

• Fiva
• Ed de at.
• Nɔs ɔ vɔmit
• Kɔnfyus
• Taya

Apat frɔm dat, di sayn dɛm wae gɛt fɔ du wit di nervɔs sistɛm kin bi:

• Yu kin fil lɛk se yu gɛt swɛt ɔ yu kin fil lɛk yu de swɛt na di an ɛn fut dɛn
• I nɔ izi fɔ swɛla
• Yu nɔ de si ɔ yu nɔ de si fayn (optik nyuraytis) .
• Di mɔsul dɛn we wik
• I nɔ izi fɔ waka
• Di sik dɛn we kin mek pɔsin sik

As yu si, dɛn sayn ya ɛn aw dɛn kin tranga kin difrɛn frɔm wan pɔsin to ɔda pɔsin . Sɔm pipul kin gɛt sɔm kayn sik wae nɔr kin pasmak, wae ɔda pipul dɛn kin gɛt dis sik pasmak.

Wetin mek dis kin apin? Wetin na di tin dɛn we kin mek pɔsin gɛt ADEM?

Dɛn nɔ no yet di rayt tin we kin mek pɔsin gɛt ADEM . Bɔt risach dɔn sho se we wan vayrɔs ɔ baktri kam insay wi bɔdi, wi imyun sistɛm kin fɛt am. Bɔt pan pɔsin we gɛt ADEM, di imyun sistɛm kin mistek atak sɔm pat dɛn na in yon sɛntral nɛvɔ sistɛm . I tan lɛk se yu atak wan pan in yon mɛmba dɛn, ɛn tink se na ɛnimi. Dis mistek atak de mek di inflamɛns (swɛlin) we wi bin dɔn tɔk bɔt, we kin mek pɔsin gɛt di sik.

Dɛn dɔn si se bitwin 70% ɛn 80% pan di pipul dɛm we gɛt ADEM kin gɛt infɛkshɔn ɔ sik bifo di sayn dɛm fɔ ADEM sho. Di ADEM simptom dεm kin bigin 7 to 14 dez afta di infεkshכn. Sɔm kɔmɔn infɛkshɔn dɛn we kin gɛt fɔ du wit ADEM na:

• Influɛnsa ɔ Flu
• Mizɛl
• Mumps we de mek pɔsin gɛt bɔdi
• Rubɛla we de na di wɔl
• Chikinpoks we de mek pɔsin gɛt sik
• Epstein Barr vayrɔs we dɛn kɔl Epstein Barr
• Saytomɛgalovayrɔs
• Hɛpi simpul vayrɔs (`Hɛpi simpul vayrɔs`)

Pan ɔl we dɛn dɔn tɔk se difrɛn baktri, vayrɔs, ɛn ɔda infɛkshɔn dɛn gɛt fɔ du wit ADEM, i nɔ tan lɛk se na wan tin we de mek pɔsin gɛt dis sik.

Dis biɛn tɛm, dɛn dɔn no wan ɔda tin we kin mek ADEM, mɔ pan pikin dɛn, na Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD). Dɛn kin tek dis bak as ɔtoimyun kɔndishɔn. Dis min se di bɔdi in yon imyun sistɛm de atak in yon nervɔs sistɛm. Dis MOGAD kin mek ADEM bak sɔm tɛm.

Udat de pan ay risk fɔ gɛt ADEM?

Enibodi kin geht ADEM. Bɔt i kin bɔku smɔl pan pikin dɛn pas big pipul dɛn . Dɔn bak, if yu dɔn gɛt infekshɔn i nɔ tu te yet, yu risk fɔ gɛt ADEM kin bɔku smɔl.

Wetin na di prɔblɛm dɛn we kin apin we ADEM kin gɛt?

ADEM kin mek sɔm prɔblɛm dɛn, lɛk:

• Di mɛmori we yu nɔ ebul fɔ mɛmba
• Dilayed kognitiv prɔsesin
• Kɔma

Na smɔl tɛm nɔmɔ, di ADEM simptom dɛn kin mek pɔsin in layf de pan denja if i bi bad bad wan. Bɔt dat nɔ kin apin so ɔltɛm .

Sɔm pipul kin gɛt sɔm sayn dɛm wae kin kɔntinyu ivin afta dɛn dɔn gɛt tritmɛnt:

• Di ed we de at bad bad wan.
• Fɔ mek pɔsin nɔ ebul fɔ du natin
• Trobul wit kɔdineshɔn
• Di vishɔn we nɔ klia

Aw dɛn kin no bɔt ADEM?

If yu gɛt ADEM simptom, dɔktɔ go tek ditayli histri bɔt yu sik, aks bɔt yu simptom, ɛn du nyurolɔjik ɛgzam , jenɛral fyzikal ɛgzam, ɛn sɔm ɔda tɛst fɔ no if yu gɛt ADEM .

Dɛn kin du tɛst bak fɔ chɛk fɔ ɔda ɔndalayn kɔndishɔn dɛn, lɛk MOGAD, we kin de mek ADEM. Di kɔmɔn tɛst fɔ no ADEM inklud blɔd tɛst ɛn:

• Wan MRI skan we dɛn kin du
• Spɛnal fluid tɛst

Wetin MRI tɛst kin luk fɔ?

MRI (Magnetic Resonance Imaging) na spɛshal we fɔ tek pikchɔ we kin luk fɔ chenj dɛn we de dip insay di bren. Dɔktɔ dɛn kin luk fɔ lɛsin ɔ spat dɛn we ADEM kin mek na tri men say dɛn na di sɛntral nɛvɔ sistɛm: di bren, di spɛshal kɔd, ɛn di optik nɛv dɛn.

• Wait mat : Dis na di say we di nεv fayb dεm de kכba wit maylin. Dɛn tin ya kin tan lɛk wayt pan MRI.
• Grey matter : Dis kin gεt di bכdi dεm fכ di nεv sεl dεm. Dɛn kin tan lɛk dak pan MRI bikɔs dɛn nɔ gɛt maylin.

Afta sɔm mɔnt afta di fɔs MRI, di dɔktɔ kin ɔda ɔda MRI fɔ si aw dɛn say ya kin chenj as tɛm de go.

Wetin dɛn kin luk fɔ we dɛn de tɛst di spɛnal fluid?

Dɛn kin kɔl dis bak lumbar pancture . Dis na impɔtant tɛst fɔ no wetin mek di nyurolɔjik simptom dɛm. I involv fɔ tek smɔl pan yu sɛribrospaynal fluid (CSF). CSF na klia wata we nɔ gɛt kɔlɔ we de rawnd yu bren ɛn yu spɛnal kɔd, protɛkt, ɛn gi tin fɔ it.

insay ADEM, di sεribrospεnal fכluid gεt inkrεs nכmba fכ wayt blכd sεl dεm, spεshal wan di limfosayt dεm . Dɛn sɛl ya na di pat dɛn we de wok na wi imyun sistɛm. dis CSF sεmpl dεn de yuz fכ si aw dεn sεl dεm ya de rεspכnd to baktri כ vayrus dεm we dεn tink se de mek ADEM, εn fכ chεk fכ כda nyuroinflammatory sik dεm.

Wetin na di tritmɛnt dɛm fɔ ADEM?

di men gol fכ trit ADEM na fכ ridyus inflameshn na di bren εn spεnal kכd . Yu kin yuz dɛn tritmɛnt ya:

• Stɛroyd drɔgs dɛnStɛroyd mɛrɛsin: Di fɔs layn fɔ tritmɛnt fɔ ADEM na stɛroyd we dɛn kin put insay di bɛlɛ (IV). Dɛn kin gi dis insay di bɛlɛ fɔ sɔm dez. Dɔn dɛn kin gi yu stɛroyd pils we dɛn kin it fɔ sɔm dez.
• Intravenous immunoglobulin (IVIG) : Dis na tritmεnt we gεt antibodi dεm we dεn mek frכm dכna bכdi plasma. Dɛn kin gi dis bak insay wan vein.
• Plasma exchange (ɔ plasmapheresis): Dis min se yu fɔ tek sɔm pan yu blɔd, rɔn am tru wan mashin we de pul sɔm pan di tin dɛn we de mek yu imyun sistɛm wik, dɔn yu put am bak insay yu bɔdi. Dis tritmɛnt kin tek sɔm awa ɛn dɛn kin du am bɔku tɛm.

Risach de kɔntinyu fɔ lan mɔ bɔt dis sik ɛn fɔ fɛn nyu tritmɛnt.

Mɛmba se na yu dɔktɔ de disayd dɛn tritmɛnt ya. I go pik wetin bɛtɛ fɔ yu kɔndishɔn.

Ɛni bad tin de we dɛn tritmɛnt ya kin du?

Jɔs lɛk ɛni tritmɛnt, sɔm sayd ɛfɛkt dɛn kin apin.

Di sayd ɛfɛkt dɛn we pɔsin kin gɛt we i tek stɛroyd fɔ shɔt tɛm , na fɔ shɔt tɛm nɔmɔ, bɔt dɛn kin inklud:

• Di shuga na di blɔd we de go ɔp
• di potashכm lεvεl dεm we dεn dכn dכn
• I nɔ kin izi fɔ mek yu slip
• Di chenj we yu de fil (we yu de vɛks, yu de kray, yu de wɔri) .
• We yu de gɛt mɔ wet
• Di chɛst dɛn we de rɛd
• Fɔ fil wan mɛtal teys na yu mɔt

Sayd ifekt ɛn kɔmplikɛshɔn dɛm fɔ `IVIG` tritmɛnt :

• Alɛji riakshɔn
• Infεkshכn dεm
• I nɔ kin izi fɔ yu fɔ blo
• Blɔd we de klɔt
• Kidni dɛn we dɔn pwɛl
• Ed de at.

Di kɔmplikɛshɔn dɛn we de kam pan Plasmapheresis : .

• Nɔ izi
• Blɔd we de kɔmɔt
• Infεkshכn dεm
• Kidni dɛn we dɔn pwɛl
• bכdi nכ de gi bכdi to wan pat pan di bכdi (`Ischemia`) .

Tɔk to yu dɔktɔ bɔt dɛn sayd ɛfɛkt ya. Bɔku tɛm, dɛn kin ebul fɔ kɔntrol dɛn.

Aw lɔng e kin tek fɔ wɛl afta dɛn dɔn trit am?

Bɔrku pipul dɛm wae dɛn kin trit fɔ ADEM kin bigin fɔ fil fayn insay sɔm dez afta dɛn dɔn trit dɛn . Bɔt, i kin tek siks mɔnt fɔ mek i wɛl ɔltogɛda, i kin dipen pan aw yu sik bad bad wan. Na smɔl tɛm nɔmɔ, sɔm pipul dɛn nɔ kin wɛl. Bɔt, bɔku pipul dɛn kin wɛl fayn fayn wan.

I gɛt we fɔ mek dɛn nɔ gɛt ADEM?

No patikyula we nɔ de fɔ mek dɛn nɔ gɛt ADEM. Bɔt yu kin ridyus yu risk bay we yu praktis gud hajɛns abit fɔ avɔyd vayral ɛn baktriyal infɛkshɔn (fɔ ɛgzampul, was yu an ɔltɛm ɛn nɔ de fa frɔm sik pipul dɛm).

Wetin na di lukin-grɔn fɔ ADEM? Yu tink se i kin mɛn?

Bɔrku pipul dɛm wae gɛt ADEM kin wɛl ɔl ɔr dɔn nia fɔ wɛl afta dɛn dɔn trit dɛn.If di inflamɛns rili bad, i nɔ kin rili mek pɔsin in layf de pan denja. Yu dɔktɔ kin gi yu di bɛst aidia bɔt yu sityueshɔn.

ADEM simptom dεm kin apin wan tεm nכmכ , bכt i kin kam bak dipכnt pan di כndalayn kכz (lεk MOGAD). ADEM kin sɔlv wit tritmɛnt, bɔt di sayn dɛm kin kam bak. Bɔku pipul dɛn gɛt nɔmal layfspan.

Ustɛm a fɔ go to dɔktɔ?

If yu gɛt sayn dɛn we fiba ADEM, mɔ afta yu gɛt infekshɔn , mek shɔ se yu go to dɔktɔ. Di kwik we dɛn no am, na di mɔ dɛn kin bigin fɔ trit am kwik kwik wan.

Impɔtant kwɛstyɔn dɛn fɔ aks yu dɔktɔ

If dɛn no se yu gɛt ADEM, yu kin aks yu dɔktɔ dɛn kwɛstyɔn ya:

• Aw a fɔ rɛdi fɔ di tɛst dɛn?
• Us kayn tritmɛnt yu kin advays?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Yu tink se di sik dɛn we a gɛt go kɔntinyu fɔ de afta dɛn dɔn trit mi?

E nɔrmal fɔ fil wɔri ɛn frayd wae yu gɛt sɔm kayn sik lɛk wae yu nɔr ebul fɔ waka, yu nɔr de si fayn, ɔr yu gɛt sik wae yu nɔr ɛksplen. Yu mɛdikal tim go ɛp yu fɔ bia wit dis. Sɔm tritmɛnt dɛn kin tek sɔm dez ɔ ivin sɔm awa. Insay dis tɛm, rid buk ɔ du sɔntin we go mek yu at kol. Mɛmba se dis na tin we kin apin wan tɛm fɔ bɔku pipul dɛn, bɔt i kin apin bak.

Smɔl pɔynt dɛn we wi fɔ mɛmba

• ADEM na we di bren ɛn di spɛnal kɔd kin inflamɛns wantɛm wantɛm.
• Dis nɔ kin apin so ɔltɛm ɛn bɔku tɛm i kin apin afta pɔsin gɛt di sik.
• Dɛn kin tink se dis kin apin we wi yon imyun sistɛm mistek atak di nervɔs sistɛm.
• Di sayn dɛm kin difrɛn ɛn kin bi fiva, ed pen , nɔr kin fil fayn, nɔr kin si fayn, ɛn i nɔ kin izi fɔ waka.
• Dɛn kin no am mɔ tru MRI ɛn spɛnal fluid tɛst.
• Tritmɛnt dɛn de lɛk stɛroyd, IVIG, ɛn plasma ɛkshɛnj.
• Bɔrku pipul dɛn kin wɛl fayn fayn wan, bɔt fɔ wɛl ful wan kin tek sɔm mɔnt.
• Pan ɔl we no patikyula we nɔ de fɔ mek yu nɔ gɛt am, i impɔtant fɔ protɛkt yusɛf frɔm infɛkshɔn.

A op se yu go si se dis infɔmeshɔn go ɛp yu. If yu gɛt ɛni ɔda kwɛstyɔn, nɔ fɔgɛt fɔ tɔk to dɔktɔ.