I nɔ kin izi fɔ tɔk bɔt aw i kin tan lɛk we dɛn no se yu gɛt kansa. Bɔt we di sayɛns bɔt mɛrɛsin dɔn go bifo, bɔku advans tritmɛnt dɛn de tide fɔ fɛt kansa. Tide wi go tɔk bɔt wan pan dɛn kayn nyu, spɛshal tritmɛnt ya. Dis na fayn we we yu kin yuz yu yon sɛl fɔ pwɛl di kansa sɛl dɛn.
Wetin na dis Brexucabtagene Autoleucel?
Di nem kin tan lɛk se i kɔmplikt smɔl, bɔt fɔ tɔk am simpul wan, dis na spɛshal mɛrɛsin we dɛn kin yuz fɔ mɛn kayn kansa lɛk lukimiya ɛn limfoma . Bɔt dis nɔto pil we wi kin tek ɔ injɛkshɔn we wi kin gɛt. Dis rili difrɛn frɔm dat.
Imajin, wi gɛt difens ami na wi bɔdi. Wi kin kɔl am di imyun sistɛm . Di sojaman dɛm (immune cells) na dis ami na dɛn de fɛt di jem dɛm we de mek sik. Insay dis tritmɛnt, yu kin tek sɔm pan dɛn difɛns sojaman ya (sɛl dɛn) frɔm yu yon bɔdi, gi dɛn spɛshal trenin, tich dɛn fɔ no ɛn atak kansa sɛl dɛn, dɔn yu put dɛn bak insay yu bɔdi. Insay mɛrɛsin, dɛn kin kɔl dis CAR T-cell therapy . Dat min se dis tritmɛnt de yuz yu yon imyun sistɛm fɔ ɛp fɔ stɔp ɔ ridyus di kansa sɛl dɛn we de skata.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
Bikɔs dis na rili patikyula tritmɛnt, i impɔtant fɔ mek yu dɔktɔ no bɔt yu kɔmplit wɛlbɔdi kɔndishɔn bifo yu bigin am. So, if yu gɛt ɛni wan pan dɛn sik ya, mek shɔ se yu tɛl yu dɔktɔ bɔt dɛn.
- At sik: If yu gɛt at sik.
- Infεkshכn: Eni kכndishכn dεm we de infεkshכn naw.
- Inflammatory disorders: Bɔt di inflammatory kɔndishɔn dɛm na di bɔdi.
- Kidni ɔ liva sik: If ɛni prɔblɛm de wit di kidni ɔ liva.
- Lɔng ɔr respiratory disease: I nɔ kin izi fɔ blo lɛk asma ɔ COPD.
- Prɔblɛm dɛn na yu nervɔs sistɛm: If yu dɔn gɛt sik bifo, if yu dɔn gɛt strok, ɔ if yu gɛt prɔblɛm wit yu mɛmori.
- Vaksin: If yu jɔs dɔn gɛt ɛni vaysin, ɔ yu de plan fɔ gɛt am tumara bambay.
- Alɛji: If yu gɛt alɛji fɔ dis mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- Bɛlɛ: If yu gɛt bɛlɛ, ɔ yu de tray fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ: If yu de gi yu pikin in bɛlɛ.
Dis infɔmeshɔn go rili ɛp yu dɔktɔ fɔ disayd aw di tritmɛnt fayn ɛn sef fɔ yu.
Aw dɛn kin gi dis tritmɛnt?
Dis nɔto sɔntin we pɔsin kin du na os. Di ɔl di tin dɛn we dɛn kin du kin apin na ɔspitul ɔ klinik, ɛn wan mɛdikal tim kin kia fɔ am gud gud wan.
Fɔ tɔk am simpul wan, dis kin apin insay sɔm step dɛn:
1. Dɛn kin gɛda di sɛl dɛn: Fɔs, dɛn kin pul blɔd frɔm wan vein we de na yu an, dɛn kin kɔnɛkt am to spɛshal mashin, ɛn dɛn kin pul di imyun sɛl dɛn (T-sɛl dɛn) frɔm yu blɔd. Dis kin tek sɔm wiks.
2. sεl modifyushכn: afta dat, dεn de sεnd yu כwn isol imyun sεl dεm to spεshal lab, usay dεn de mכdify dεm jεnεtik εn "tren" fכ no εn atak kεnsar sεl dεm.
3. Aw fɔ pripia: Sɔm dez bifo dɛn gi yu bak dɛn sɛl dɛn ya we dɛn dɔn tren to yu bɔdi, dɛn go gi yu wan smɔl doz kemotɛrapi. Nɔ wɔri, dis go ɛp fɔ ridyus di nɔmba fɔ ɔda imyun sɛl dɛm na yu bɔdi ɛn mek di envayrɔmɛnt fɔ di nyu sɛl dɛm we dɛn dɔn tren fɔ wok fayn fayn wan.
4. Ri-introdכks sεl dεm: fכ finish, di sεl dεm we dεn bin tren na di lab de ri-infuz insay yu bכdi tru wan vein (infushכn) lεk salin.
Bifo yu tritmɛnt, dɛn go gi yu wan spɛshal infɔmeshɔn liflet (`MedGuide`). I rili impɔtant fɔ tek tɛm rid ɛn ɔndastand am.
De tin wae impɔtant pas ɔl na, dis tritmɛnt na fɔ yu wan. Dɛn nɔ go ebul fɔ sheb am wit ɛni ɔda pɔsin. Na bikɔs dɛn mek am wit yu yon sɛl dɛn.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt ɛn afta yu dɔn gɛt am
Afta tritmɛnt, di mɛdikal tim go de wach yu sik gud gud wan.
- Ɔspitul fɔ wach: Afta dɛn dɔn put di sɛl dɛn insay yu bɔdi, di ɔspitul dɔktɔ dɛn go de wach yu gud gud wan fɔ at le 7 dez .
- Nɔ drayv: Dis tritmɛnt kin afɛkt di we aw yu de pe atɛnshɔn, di we aw yu kin disayd fɔ du sɔntin, ɛn aw yu kin balans. So, nɔ drayv ɔ yuz mashin te yu no gud gud wan aw dis mɛrɛsin de afɛkt yu. Stand ɛn sidɔm ɔltɛm fɔ mek yu nɔ gɛt bɔku diziz ɛn yu nɔ gɛt bɛtɛ ed.
- Patient Wallet Card: Dɛn go gi yu wan spɛshal kad. I fɔ kip dis wit yu ɔltɛm. Sho dis kad we yu go si ɛni dɔktɔ. I gɛt ditel bɔt di sayn dɛm fɔ siriɔs sayd ɛfɛkt wae kin apin bikɔs ɔf dis tritmɛnt.
- Protɛkt yusɛf frɔm infɛkshɔn:Dis tritmɛnt kin mek yu imyun sistɛm wik, ɛn dis kin mek yu gɛt mɔ sik. If yu gɛt sɔm kayn sik lɛk fiva, kol, trot we de at, ɔ yu nos we de rɔn, nɔr de mɛn yusɛf ɛn kɔl yu wɛlbɔdi tim wantɛm wantɛm fɔ advays. Minimize yu exposure to sik pipul dem.
- Nɔ gi blɔd ɛn ɔgan dɛn: Dis rili impɔtant. Afta yu dɔn gɛt dis tritmɛnt, yu nɔ fɔ gi blɔd, ɔgan, tisu, ɔ sɛl fɔ di res ɔf yu layf.
- Risk fɔ gɛt ɔda kansa: If yu tek dis tritmɛnt, i kin mek yu gɛt sɔm ɔda kayn kansa dɛn tumara bambay smɔl. Tɔk to yu dɔktɔ bɔt dis.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Jɔs lɛk ɛni tritmɛnt, sɔm bad tin dɛn de we kin apin to am. Sɔm pan dɛn kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu mɛdikal tim wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Saytokin Rilis Sindrom | Dis na siriɔs imyun sistɛm riakshɔn. Di sayn dɛm na fiva, kol, taya pasmak, nɔr kin want fɔ it, nɔs, ed pen, diziz, fɔdɔm, i nɔ kin izi fɔ blo, ɛn at kin bit fast ɔr nɔr kin bit ɔltɛm. |
| Prɔblɛm dɛn we de na di nervɔs sistɛm | Fiva, limf no dɛm we swel, kɔnfyushɔn, i nɔ kin izi fɔ waka, i nɔ kin balans, i kin gɛt sik, i nɔ kin izi fɔ tɔk. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen we yu de pis, ɛn bɔdi nɔ de fil fayn. |
| Di blɔd sɛl dɛn we de go dɔŋ | If di rεd blɔd sɛl dεm dכn dכn, i kin mek yu taya pasmak, in ed kin tɔn, ed kin at, εn i kin at fɔ blo. |
| Blɔd we nɔ de kɔmɔt fayn | Brus ɔlsay na di bɔdi ɔ blɔd we nɔ de stɔp ivin frɔm smɔl injuri. |
| Sayd ɛfɛkt dɛm wae nɔr kin denja, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Smɔl smɔl sayd ɛfɛkt dɛn | Daya, taya, ed we de at, we yu nɔ want fɔ it, mɔsul dɛn we de pen, nɔs, swel na yu anklɛ, an ɔ fut. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn, nɔ shem fɔ aks yu dɔktɔ bɔt am.
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?
Yɛs. Na mɔtalman, nɔ gɛt dis tritmɛnt wit layf vayrɔs vaysin . Dɔn bak, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de yuz (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn) . Tɛl yu dɔktɔ bak if yu de smok ɔ drink rɔm.
Bikɔs dis na tritmɛnt we de na ɔspitul, chans nɔ de fɔ mek dɛn tek am pasmak. Bɔt if yu gɛt ɛnitin we nɔ kɔmɔn ɔ we rili bad, go to di Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm. If nid de, yu kin kɔl bak di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Mɛsej we dɛn kin kɛr go na os
- Brexecabtagene Autolucell na wan tritmɛnt we rili advans ɛn we pɔsin kin yuz fɔ yu yon imyun sɛl fɔ fɛt kansa.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu wɛlbɔdi prɔblɛm ɛn di mɛrɛsin dɛn we yu de tek.
- Dɛn kin gi yu dis tritmɛnt na ɔspitul, ɛn dɛn go kip yu ɔnda di dɔktɔ we de kia fɔ yu fɔ sɔm dez afta dat.
- Ɔltɛm kip di spɛshal kad (Patient Wallet Card) we dɛn gi yu wit yu.
- Wach fɔ siriɔs sayd ɛfɛkt lɛk ay fiva, kɔnfyushɔn, ɛn prɔblɛm fɔ blo. If yu gɛt ɛnitin we de mɔna yu, tɛl yu dɔktɔ wantɛm wantɛm.
- Afta yu dɔn gɛt dis tritmɛnt, dɛn go advays yu fɔ avɔyd fɔ gi blɔd, ɔgan, ɔ tisu fɔ di res ɔf yu layf.
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