Sɔmtɛm wi kin yɛri bɔt sik dɛn we nɔ kin bɔku, we min se bɔku pipul dɛn nɔ kin gɛt dɛn. Sɔm pan dɛn tin ya kin apin bikɔs sɔm tin dɛn we nɔ fayn na wi bɔdi, dat na di wan dɛn we kin de we dɛn bɔn wi. Tide wi de tɔk bɔt wan spɛshal vaysin we dɛn kin yuz fɔ mɛn dis kayn sik we nɔ kin bɔku. I nem na Ɛlapegademase.
Us kayn mɛrɛsin dis? Wetin mek dɛn de gi dis?
Fɔ tɔk am simpul wan, Elapegademase na injɛkshɔn we de kɔmɔt na do de gi wan ɛnzaym we wi bɔdi nɔ go ebul fɔ du if wi nɔ gɛt am. Sɔm pipul dɛn, mɔ di pikin dɛn, dɛn kin bɔn wit wan ɛnzaym we dɛn kɔl Adenosine Deaminase (ADA) . Dis ɛnzaym impɔtant fɔ mek wi bɔdi in imyun sistɛm, di difɛns sistɛm we de protɛkt wi frɔm sik, fɔ wok fayn fayn wan.
we dis ADA εnzym nכ de, di bכdi in imyun sistεm de wik kכlכsכl. Wi kin kɔl dis kɔndishɔn Siva Kɔmbayn Imyunodefisiɛns Disease (SCID) . Dis na wan sik we rili siriɔs. Bikɔs di bɔdi in difens sistɛm nɔ de, ivin kol ɔ kɔf we go izi fɔ mɛn pan nɔmal pɔsin kin kil da kayn pɔsin de.
So, wetin dis vaksin we dεn kכl Elapegademase de du na fכ gi di bכdi di ADA εnzym we nכ de. I tan lɛk se yu de ful-ɔp sɔntin we dɔn lɔs. Dɛn kin kɔl dis vaysin bak REVCOVI na di makit.
I impɔtant fɔ mɛmba se dis nɔto mɛrɛsin fɔ di sik. Na tritmɛnt wae de protɛkt di pɔrsin in layf ɛn gi di imyuniti wae nid fɔ liv nɔrmal layf.
Wetin a fɔ tɛl di dɔktɔ bifo a tek dis mɛrɛsin?
Bifo yu ɔ yu pikin bigin dis vaysin, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɛl dɛn if yu gɛt ɛni wan pan di kɔndishɔn dɛn we de dɔŋ ya.
- Blɔd disɔda: If yu gɛt prɔblɛm wit blɔd we de klɔt, ɔ if yu gɛt di abit fɔ blɔd we yu nɔ ebul fɔ kɔntrol ivin we yu kɔt am smɔl.
- Infεkshכn dεm naw: If yu gεt eni infεkshכn naw lεk fiva, kol, kכf.
- Di pletlɛt dɛn we de na yu blɔd nɔ bɔku: If dɛn dɔn no se yu gɛt smɔl pletlɛt dɛn na yu blɔd insay di ripɔt dɛn we dɛn bin dɔn gi yu trade.
- Alɛji: If yu gɛt alɛji fɔ ɛni mɛrɛsin, it, ɔ day, nɔto jɔs dis mɛrɛsin we dɛn kɔl Elapegademase.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de tink se yu go gɛt bɛlɛ jisnɔ.
- Fɔ gi pikin in bɛlɛ: If yu na mama we de gi yu pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go plan di tritmɛnt we go fayn fɔ yu.
Aw a fɔ yuz dis mɛrɛsin?
Dɛn kin gi dis vaysin as injɛkshɔn insay wan mɔsul . Bɔku tɛm, na pɔsin we tren fɔ kia fɔ wɛlbɔdi biznɛs kin du dis na ɔspitul ɔ klinik.
Bɔt sɔm tɛm, fɔ mek i izi fɔ di pɔsin, dɛn kin tɛl yu ɔ pɔsin we de kia fɔ am fɔ gi di vaysin na os. If na so i bi, i rili impɔtant fɔ gi di vaysin jɔs lɛk aw dɛn tɛl yu, di rayt tɛm, ɛn di rayt doz . Nɔ gi yu mɔ dos ɔ mɔ pas aw yu dɔktɔ tɛl yu fɔ gi yu.
Wetin yu kin du wit nidul we yu dɔn yuz?
Dis rili impɔtant. Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti . Dɛn kin rili ambɔg ɔda pipul dɛn. Wan spɛshal kɔntena de we gɛt shap shap fɔ dɛn tin ya. If yu nɔ gɛt wan, yu kin gɛt wan frɔm yu dɔktɔ.
Ustɛm fɔ gi pikin dɛn dis mɛrɛsin?
Bikɔs dis sik kin bɔku pan yɔŋ pikin dɛn ɛn pikin dɛn we dɛn jɔs bɔn, dɛn kin advays dis vaysin bak fɔ dɛn ej grup dɛn de. Bɔt dɛn fɔ tek tɛm wit spɛshal tin dɛn we dɛn de gi pikin dɛn. So, du wetin yu pikin in dɔktɔ tɛl yu fɔ du di rayt tin.
Wetin fɔ du if di doz go ɔp (ɔvados)?
If yu tink se yu dɔn tek ɔvados, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm . Ɔ, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis vaysin kin mek sɔm sayd ɛfɛkt dɛn. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm pan dɛn tin ya siriɔs, ɛn ɔda wan dɛn kin kɔmɔn. I impɔtant fɔ no bɔt dɛn tin ya.
| Tayp fɔ di sayd ɛfɛkt | Karakta |
|---|---|
| If yu gɛt dɛn sik ya, tɛl yu dɔktɔ wantɛm wantɛm. | |
| Siriɔs Alɛji Riakshɔn dɛn | Skin rash, it, swel na yu fes, lip ɔ tong, i nɔ izi fɔ blo. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, trot we de at, pen we yu de pis. |
| Anemia we nɔ gɛt bɛtɛ blɔd | Fɔ fil taya pasmak, fil wik, fɔdɔm, ed de tɔn, ɛn i nɔ izi fɔ blo. |
| If dɛn tin ya kɔntinyu ɔ de mɔna yu, tɛl yu dɔktɔ. | |
| Kɔf | Fɔ gɛt kɔf we nɔ de dɔn. |
| Fɔ vɔmit | Fɔ vɔmit. |
| Pen na di say we dɛn injɛkshɔn | Pen, rɛd, ɔ swel na di say we dɛn injekt am. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni difrɛn tin, tɔk to yu dɔktɔ bɔt am.
Aw fɔ kip di mɛrɛsin?
If yu de yuz dis vaysin na os, i rili impɔtant fɔ kip am kɔrɛkt wan.
- Kip am na say we sef we pikin dɛn nɔ go ebul fɔ rich .
- Stɔr am na frij we di tɛmpracha de bitwin 2°C ɛn 8°C .
- Nɔ friz di mɛrɛsin fɔ ɛni rizin. If yu du dat, dat go mek di mɛrɛsin nɔ wok fayn.
- Trowe ɛni mɛrɛsin we dɔn pas di de we i fɔ dɔn we yu nɔ yuz am.
Mɛsej we dɛn kin kɛr go na os
- Elapegademase na vaysin fɔ siriɔs kɔmbayn imyunodefisiɛns sindrom (SCID), we na sik we kin kam bikɔs di ɛnzaym ADA nɔ de. Dis na tritmɛnt we de sev pɔsin in layf ɛn we de kɔntrol di sik pas fɔ mɛn am.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- Tek di mɛrɛsin di rayt tɛm, insay di rayt doz. If yu mis wan doz, kɔl yu dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni sayn lɛk siriɔs alɛji, infɛkshɔn, ɔ taya pasmak, go to dɔktɔ wantɛm wantɛm.
- If yu de yuz mɛrɛsin na os, kip am fayn fayn wan na frij. Nɔ ɛva miks di amɔnt dɛn.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, nɔ fred fɔ aks yu dɔktɔ.
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