Na nɔmal tin fɔ mek yu fred ɛn wɔri we yu dɔktɔ tɛl yu se yu kidni nɔ de wok fayn. Sɔntɛm dɛn dɔn tɛl yu se yu go gɛt fɔ du dayalaysis. Bɔku pipul dɛn kin wɔri we dɛn yɛri dɛn wɔd ya, ɛn dɛn nɔ kin ebul fɔ imajin wetin go apin. Bɔt if wi ɔndastand dis tritmɛnt we dɛn de yuz fayn fayn wan, yu go ɔndastand se dis na rili impɔtant we we go sev yu layf. So, tide wi go tɔk bɔt ɛmodayalis insay simpul wɔd dɛn.
Fɔ tɔk am simpul wan, wetin na ɛmodayalis?
Tink bɔt yu kidni dɛm lɛk tu supa filta dɛm na wi bɔdi. Dɛn kin filta di dɔti we wi nɔ want, pɔyzin, ɛn wata we pasmak na wi blɔd ɛn pul dɛn kɔmɔt as urine. Bɔt we di sik we dɛn kin gɛt na di kidni kin mek dɛn nɔ ebul fɔ du dis wok fayn, dɛn pɔyzin dɛn de kin bigin fɔ gɛda insay di bɔdi.
Ɛmodayalis na di we aw dɛn kin klin di blɔd bay we dɛn de yuz wan mashin we de pul di naytrɔjen west (urea), di dɔti tin dɛn we de na di mɔsul dɛn (kriatinin), ɛn di asid dɛn we de na di blɔd, ɛn mek di blɔd we dɛn dɔn klin go bak na di bɔdi.
Aw dis mashin de klin blɔd?
Dis mashin we dɛn kɔl ɛmodayalis gɛt spɛshal filta. Dɛn kɔl am ‘daylayza’. Sɔm pipul dɛn kin kɔl am bak ‘atifishal kidni’. di bכdi we dεn tek frכm yu bכdi de go insay dis ‘dialyzer’. As di blɔd de flɔ tru di fayn fayn tiub dɛn we tan lɛk mɛsh insay am, na di dɔti tin dɛn ɛn di wata we pasmak we de na di blɔd nɔmɔ dɛn kin filta kɔmɔt.
Dɛn kin gɛda dɛn dɔti tin ya insay wan spɛshal wata we dɛn kɔl ‘dialysate’. Dis na wata, sɔl, ɛn ilɛktrɔlayt dɛn. Naw di klin blɔd, we dɔn pul ɔl di dɔti, dɛn kin sɛn am bak to yu bɔdi tru di mashin. di ‘dialysate’ likwid, we gεt di west prodakt dεm, dεn de pul am na di mashin. Tink bɔt am lɛk ti filta we de filta di ti lif dɛn ɛn na di ti nɔmɔ de fɔdɔm insay di kɔp.
Tu men we dɛn de fɔ du ɛmodayalis:
Yu kin tɔk to yu dɔktɔ ɛn disayd us we fɔ du am fayn fɔ yu.
| Di we aw dɛn kin trit am | Tɔk bɔt |
|---|---|
| Ɛmodayalis we dɛn kin du na ɔspitul ɔ sɛnta (In-center hemodialysis) . | Dis na di we aw dɛn kin du am pas ɔl. Yu go nid fɔ go na spɛshal ɔspitul ɔ dayalaysis sɛnta fɔ dis. Na de, wan nɔs ɔ tɛknishian we tren go gi yu dis tritmɛnt. Bɔku tɛm, yu go nid fɔ go lɛk tri dez so insay di wik. Ɛni sɛshɔn go tek lɛk 3-4 awa so. |
| Ɛmodayalis na os | If na so i bi, yu kin du dis tritmɛnt na os. Bɔt sɔm wik ɔ mɔnt bifo dat, di ɔspitul go tich yu aw fɔ du am fayn ɛn wetin fɔ du if yu gɛt ɛni prɔblɛm. Afta dat, yu kin du am yusɛf di tɛm we yu want. |
Dɛn kin gɛt difrɛn kayn ɛmodayalis na os bak.
- Kɔnvɛnshɔnal hom ɛmodayalis: Insay dis we, dɛn kin du tritmɛnt tri dez insay di wik, fɔ 3-4 awa wan tɛm.
- Short daily home hemodialysis: Dɛn kin du dis wit nyu teknɔlɔji. Dis kin bi lɛk 5-7 dez insay di wik, bɔt i kin tek smɔl tɛm nɔmɔ, lɛk tu awa wan tɛm.
- Nocturnal home hemodialysis: Dɛn kin du dis na nɛt we yu de slip. Di mashin de wok fɔ 6-8 awa wan tɛm, lɛk 4-6 dez insay di wik. Dis kin mek dɛn ebul fɔ klin di blɔd fɔ lɔng tɛm, so i kin pul dɔti tin dɛn bɛtɛ pas ɔda we dɛn.
Udat rili nid dis tritmɛnt?
If yu gɛt siriɔs kidni sik, we dɛn kɔl End-Stage Kidney Disease (ESKD) , yu go nid fɔ gɛt ɛmodayalis. Dɔn bak, fɔ pɔsin we de wet fɔ mek dɛn transplant in kidni, dis tritmɛnt impɔtant fɔ mek i kɔntinyu fɔ liv te dɛn transplant am.
I impɔtant fɔ ɔndastand dis: Ɛmodayalis nɔto mɛrɛsin fɔ kidni sik. I jɔs de ɛp yu kidni fɔ du di wok we dɛn nid fɔ du, ɛn ɛp yu fɔ liv lɔng.
Wetin kin apin if dɛn nɔ gri fɔ tek tritmɛnt?
Dis na tɔpik we rili impɔtant, bɔt wi nid fɔ tɔk bɔt am. If pɔsin disayd nɔ fɔ bigin fɔ yuz ɛmodayalis, ɔ if i bigin ɛn afta dat, pɔyzin kin bigin fɔ gɛda na di blɔd. Wi kin kɔl dis kɔndishɔn `(uremia)`. Bɔt i sɔri fɔ no se dis sik kin kil pɔsin. If yu nɔ gɛt tritmɛnt, yu kin jɔs liv fɔ sɔm dez ɔ wik.
Dis na sɔntin we pɔsin kin disayd fɔ du. Bɔt bifo yu disayd fɔ du dis kayn tin, yu fɔ rili tɔk to yu dɔktɔ ɛn yu fambul bɔt wetin de mɔna yu, wetin yu de fred, ɛn aw yu de fil.
Aw a fɔ pripia bifo a gɛt tritmɛnt?
Bifo dɛn bigin fɔ du ɛmodayalis, sɔm wik ɔ wan mɔnt bifo dat, dɛn nid fɔ pripia smɔl. Dat min se, dɛn nid fɔ mek wan ‘akses’ so dat i go izi fɔ pul blɔd na di bɔdi ɛn kam bak na di bɔdi we dɛn de du di tritmɛnt. Dis nid fɔ mek dɛn du smɔl ɔpreshɔn.
Tu men we dɛn de fɔ du dis:
- AV fistula (Arteriovenous fistula - AV fistula): Insay dis, dɔktɔ we de du ɔpreshɔn kin kɔnɛkt wan at ɛn wan vein na yu an.
- Arteriovenous graft (AV graft): If di at εn di vein na yu an nכ lכng fכ kכnεkt, dכn we de du כpכt de yuz sכm sכft tyub (graft) fכ kכnekt di tu.
Dɛn tu we ya kin mek wan strɔng blɔd vesel we izi fɔ put nidul insay we dɛn de du ɛmodayalis. Dis kin ɛp bak fɔ mek di blɔd flɔ kwik kwik wan.
If yu nid fɔ bigin fɔ yuz ɛmodayalis wantɛm wantɛm, yu dɔktɔ kin put wan sɔft tiub we dɛn kɔl kateta fɔ sɔm tɛm insay wan big vein na yu nɛk, yu chɛst, ɔ yu leg.
I rili impɔtant fɔ tek kia ɔf yu akses!
Dɛn fɔ trit dis akses divays we yu dɔn mek lɛk se na valyu tin. If i gɛt di sik ɔ i dɔn pwɛl, dɛn nɔ go ebul fɔ trit am. Sayn dɛm fɔ se yu gɛt di sik na:
- Pen
- Pen we yu de prɛs
- De swɛl
- Di chenj we di kɔlɔ chenj (rɛd, grey, pink, brawn, ɔ blak) .
- Fiva
Fɔ protɛkt di akses, mɛmba dɛn tin ya:
- Nɔ slip wit di akses sayd we de fes dɔŋ.
- Nɔ wɛr klos ɔ jɔlɔs we go kech na da an de.
- Nɔ mek di bag strap fɔdɔm oba di akses.
- Nɔ ɛva alaw pɔsin fɔ chɛk in blɔd prɛshɔn ɔ pul blɔd na di an we gɛt akses.
Yu nid fɔ chenj di tin dɛn we yu de it?
Yɛs, na fɔ tru. Wetin yu de it ɛn drink kin afɛkt di sakrifays we di tritmɛnt we dɛn kin gi yu we dɛn kɔl ɛmodayalis. Sɔm it dɛn kin mek di dɔti tin dɛn we de na di blɔd, wata kin kɔntinyu fɔ de, blɔd prɛshɔn, ɛn at rit. So, yu fɔ tɔk to pɔsin we de mɛn yu rεnal fɔ mek i gɛt wan it plan we go fayn fɔ yu.
Jɛnɛral wan, yu fɔ stɔp fɔ it ɛn drink we gɛt dɛn tin ya.
| Wetin fɔ stɔp | Rizin ɛn ɛgzampul dɛn |
|---|---|
| Potashɔm we gɛt di sik | If di potashכm lεvεl inkrεs, di at rεt kin bi abnכmal fast. Ɛgzampul dɛn: Banana, avokado, ɔrɛnj, pia, dray frut (dɛt, rɛsin), pɔt. |
| Fɔsfɔr we dɛn kɔl | If di fכsfכs bכku, di bon dεm kin wik εn di skin kin rεsh. Ɛgzampul dɛn: milk ɛn dairy it (yogɔt, chiz), chukchuk, sosish, tin it, lentil, kash. |
| Sɔdiɔm - sɔl | We yu it bɔku sɔl, yu kin tɔsti mɔ ɛn wata kin de na yu bɔdi. Ɛgzampul dɛn: sɔl, sos, ketchup, sup we dɛn pak, instant noodles, it dɛn we dɛn bay na stɔ. |
Wetin kin apin we dɛn de trit am?
Di nɔs ɔ di tɛknishian go put tu nidul dɛn insay di akses we dɛn mek na yu an. Wan nidul go pul blɔd na yu bɔdi ɛn sɛn am na di mashin. Afta we di dayalayza we de na di mashin dɔn klin di blɔd, di ɔda nidul go sɛn di klin blɔd bak insay yu bɔdi.
Di mashin de wach yu blɔd prɛshɔn ɔl di tɛm we yu de du di tritmɛnt. Di mashin kin mek di blɔd flɔ bɔku ɔ smɔl bak as nid de.
Yu tink se dis kin mek pɔsin fil bad?
Yu go fil smɔl smɔl we yu put di tu nidul dɛn insay yu akses. Bɔt yu nɔ go fil ɛni pen fɔ sɔm awa afta di tritmɛnt. Bɔku pipul dɛn kin rid buk, wach TV, ɔ slip insay dis tɛm.
Wetin mek dis de tek lɔng tɛm?
Tu kidni dɛn we gɛt wɛlbɔdi kin kɔntinyu fɔ klin blɔd 24 awa ɛvride, ivin we yu de slip. Wan mashin we dɛn kin yuz fɔ mek ɛmodayalis nɔ kin ebul fɔ du dat. Kidni we gɛt wɛlbɔdi kin klin lɛk 140 lita blɔd ɛvride. Bɔt di efyushɔn we dɛn de yuz ɛmodayalis tritmɛnt kin smɔl pasmak. Na dat mek dɛn fɔ du am fɔ at le 3-4 awa wan tɛm.
Afta tritmɛnt ɛn di sayd ɛfɛkt dɛn we pɔsin kin gɛt
We dɛn dɔn fɔ trit am, dɛn go pul di nidul dɛn, klin di say we dɛn de, ɛn put plasta. Afta dat, yu kin go na os lɛk aw yu kin go.
Bɔku pipul dɛn kin fil taya smɔl ɔ taya afta dɛn dɔn trit dɛn. Dis kin las fɔ sɔm awa. Dis na nɔmal tin. Bɔt if yu de fil bad bad wan, tɛl yu dɔktɔ bɔt dat.
Bɔku ɔda sayd ɛfɛkt dɛn de we kin gɛt fɔ du wit ɛmodayalis. Nɔto ɔlman go gɛt dɛn tin ya, bɔt dɛn fayn fɔ no bɔt dɛn.
| Kɔmɔn sayd ɛfɛkt dɛn | |
|---|---|
| Lɔw blɔd prɛshɔn (Hypotension) . | Diziz ɛn fɔdɔm kin apin. |
| Mɔsul dɛn we kin kramp | I kin apin mɔ na di leg dɛn. |
| Nɔs ɛn vɔmit | Sɔm pipul dɛn kin gɛt dis prɔblɛm. |
| I de it (Pruritus) . | dis kin ridyus bay we yu kכntro di fכsfכr lεvεl na di bכdi. |
| Ed pen, chɛst ɔ bak pen | Dɛn tin ya kin apin bak sɔntɛnde. |
Ustɛm a fɔ go to di dɔktɔ?
If yu gɛt ɛni wan pan dɛn sayn ya, tɛl yu dɔktɔ wantɛm wantɛm.
- Di sayn dɛm wae de sho se yu blɔd prɛshɔn smɔl (diziz, fɔdɔm (syncope)) .
- Nɔs ɛn vɔmit
- Sayn dεm fכ infεkshכn na di akses (swεla, rεd, pen, fiva) .
- Bɛlɛ pen bad bad wan
Mɛsej we dɛn kin kɛr go na os
- Ɛmodayalis na tritmɛnt we de sev yu layf we de ɛp fɔ mek yu kɔntinyu fɔ liv we yu kidni dɛn nɔ de wok fayn. I nɔto mɛrɛsin fɔ mɛn am.
- I rili impɔtant fɔ kɔntrol yu it wit dis tritmɛnt.Fɔ fala di instrɔkshɔn dɛn we yu dɔktɔ ɛn pɔsin we sabi bɔt it gi yu di rayt we.
- Di akses we yu dɔn mek na yu layflayn. Protɛkt am fayn fayn wan frɔm infɛkshɔn ɛn aksidɛnt.
- Na nɔmal tin fɔ fil taya afta yu dɔn gɛt tritmɛnt. Bɔt nɔr frayd fɔ tɔk to yu dɔktɔ bɔt ɛni prɔblɛm we yu go gɛt.
- Nɔto yu wan de pan dis waka. Yu famili, yu padi dɛn, ɛn di wan dɛn we de wok na yu dɔktɔ dɛn de fɔ sɔpɔt yu. Yu na di pɔsin we impɔtant pas ɔlman na yu wɛlbɔdi tim. So mek yu no bɔt ɛnitin we yu disayd fɔ du.
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