Yu dɔn ɛva fil se yu nɔ de blo fayn, yu chɛst de pen smɔl, ɔ yu chɛst de fil smɔl we yu de waka fɔ shɔt tɛm ɔ we yu de klaym stej? Ɔ sɔntɛnde yu kin fil lɛk se yu at de bit kwik kwik wan fɔ natin? Pan ɔl we wi kin tink se dɛn tin ya na nɔmal tin, sɔntɛnde, dɛn tin ya kin bi smɔl smɔl sayn dɛn we wi at de gi wi. Tide wi go tɔk bɔt dis kayn sik we gɛt fɔ du wit at, we bɔku pipul dɛn nɔ no bɔt, bɔt i rili impɔtant fɔ no bɔt. Dat na Hypertrophic Cardiomyopathy, ɔ (HCM) fɔ shɔt tɛm.
Fɔ tɔk am simpul wan, wetin na Hypertrophic Cardiomyopathy (HCM)?
Dis nem kin tan lɛk se i kɔmplikt smɔl. Mek wi brok am dɔŋ fɔ yu. di wod "haypatrofik" min "big pas nכmal." "Cardiomyopathy" na wan grup we de afɛkt di at mɔsul, ɔ di at mɔsul. We yu jɔyn dɛn tu tin ya, Hypertrophic Cardiomyopathy (HCM) min se yu at mɔsul (at mɔsul) kin tik pas aw i kin tik .
Imajin se di wɔl dɛn na yu os de tik mɔ ɛn mɔ. Dat min se ples nɔ bɔku insay di os, nɔto so? Di sem tin kin apin to di at. As di at mɔsul de tik, di ples nɔ de fɔ mek blɔd ful-ɔp di at. Dis kin mek i nɔ izi fɔ di at fɔ pɔmp di blɔd we di bɔdi nid.
Pan ɔl we dis tik kin apin na ɛni pat na di at, i kin afɛkt di wɔl we de midul di at. pan mεdikal, dεn kכl dis septum. we dis wכl tik, i kin blכk di bכdi fכ fכm frכm di at in men pכmp chεmba, di lεft vεntrikl, to di aorta, di men bכdi we de kכri bכdi go na di bכdi.
Dis sik kin de fɔ ɔl in layf. I kin wɔs smɔl as tɛm de go. Bɔt di bɛst tin na dat if dɛn no di sik kwik kwik wan ɛn trit am fayn, dɛn kin ebul fɔ avɔyd bɔku prɔblɛm dɛn .
Tu men kayn HCM de:
Dɛn kin sheb dis sik to tu men kategori, i kin dipen if sɔntin de we de ambɔg di blɔd fɔ flɔ ɔ nɔ de.
| HCM tayp | Fɔ ɛksplen am simpul wan |
|---|---|
| Obstruktiv HCM we de mek pɔsin nɔ ebul fɔ du sɔntin | Na dis na di midul wɔl na di at (septum) .di tik we de tik de blכk di rod we de pכmp bכdi kכmכt na di lεft vεntrikl . Na lɛk tu-tɛd pan di wan dɛn we gɛt HCM gɛt dis kayn. |
| Nonobstruktiv HCM (Nonobstruktiv HCM) . | na ya, di at mכsul de tik na כda ples dεm (fכ egzampl, di lכw pat pan di at). Bɔt dis tik we di blɔd de tik nɔ de ambɔg di blɔd fɔ flɔ dairekt wan. |
Us sayn dɛm wae pɔrsin wae gɛt HCM kin gɛt?
Dis na di tin we impɔtant pas ɔl. Sɔm pipul kin go fɔ lɔng lɔng tɛm ɛn nɔr kin gɛt ɛni sayn. Bɔt ɔda pipul dɛn kin gɛt sɔm sayn dɛn. I rili impɔtant fɔ mek yu gɛt aidia bɔt dɛn tin ya bak.
- Chɛst pen: Na tayt ɔ pen na di chɛst, mɔ we yu de ɛksesaiz ɔ we yu de tray tranga wan.
- Diziz ɛn fɔdɔm: Fɔ fil diziz we yu tinap wantɛm wantɛm ɔ we yu de du ɛksɛsayz, sɔntɛnde i kin mek yu nɔ no natin.
- Fɔ blo shɔt: I nɔ kin izi fɔ yu fɔ blo, ivin afta yu dɔn du smɔl wok ɔ yu dɔn waka fɔ shɔt tɛm.
- Palpitations: Na filin wae yu hat de bit kwik kwik wan ɛn yu chɛst de hev.
- Swɛlin (Edima): Di vein dɛn we de na di leg, anklɛ, ɔ nɛk kin swel.
De impɔtant tin na dat, yu kin gɛt sɔm pan dɛn sik ya. Ɔ sɔntɛm yu nɔ gɛt ɛni wan. Bɔt if yu gɛt ɛni wan pan dɛn sik ya, i rili impɔtant fɔ go to yu dɔktɔ wantɛm wantɛm ɛn aks fɔ advays ɛn nɔ fɔ pe atɛnshɔn to dɛn.
Wetin mek dis tin kin apin?
Wan kweshon we plenti pipul de aks na, "Wetin mek dis hapun to mi?" Tu men tin dɛn de we kin mek pɔsin gɛt HCM.
1. Jεnεtik Kכz: Na lεk 3 pan 5 pipul dεm we gεt HCM gεt dis kכndyushכn biכs fכ chenj dεm na dεn jin dεm. Fɔ tɔk am simpul wan, na tin we pɔsin kin gɛt frɔm in mama ɛn papa . Na bikɔs di jin dɛn we de kɔntrol aw di at mɔsul de gro, nɔ fayn. i de inhεrit insay wan כtosom dכminant we. Dis min se if ɛni wan pan di mama ɛn papa gɛt di jin we nɔ fayn, 50% chans de fɔ mek dɛn pikin gɛt am. Bɔt aw di sik kin tranga kin difrɛn ivin insay di sem famili. Sɔm pipul dɛn kin gɛt di jin bɔt dɛn nɔ kin gɛt di sik.
2. Dɛn nɔ fɛn ɛni kɔz: Insay 2 pan 5 HCM pasɛnt dɛn, dɛn nɔ kin fɛn ɛni patikyula kɔz. Dis min se no jenɛtik inflɔwɛns nɔ de. Risach pipul dɛn stil de stɔdi bɔt dis.
Pan ɔl we dis sik kin apin pan ɛni ej, bɔku tɛm dɛn kin no am arawnd 40 ia.
Us kɔmplikɛshɔn dɛn kin apin bikɔs ɔf HCM?
Dis kin tan lɛk se yu de mek yu fred, bɔt i impɔtant fɔ no. If dɛn nɔ trit HCM, i kin mek i gɛt prɔblɛm dɛn. Bɔt mɛmba se, bɔrku pipul dɛm wae gɛt HCM nɔr kin gɛt siriɔs kɔmplikeshɔn.
| Kɔmplikɛshɔn | Wetin de apin? |
|---|---|
| Atrial fibrilɛshɔn (Afib) . | di כp chεmba dεm na di at de bit rεgulεr εn kwik. Dis kin mek yu blɔd klɔt ɛn gɛt tin dɛn lɛk strok. |
| Kɔnjɛstiv at we nɔ de wok fayn | di at mכsul we tik nכ ebul fכ pכmp blכd fכ mit di bכdi in nid dεm. |
| Infεkshכn εndokarditis | baktri infεkshכn dεm na di insay layn כ di valv dεm na di at. |
| At nɔ de bit (Ventricular arrhythmias) . | di at bit we nɔ de bit ɔltɛm we kin mek pɔsin in layf de pan denja, we kin kɔmɔt na di lכw chεmba dεm na di at. |
| Di at kin stɔp wantɛm wantɛm | Dis na wan prɔblɛm we nɔ kin apin so ɔltɛm bɔt we kin rili siriɔs. |
Nɔ fred dɛn tin ya. Fɔ mek wi go protɛkt yusɛf frɔm dɛn tin ya, wi nid fɔ de chɛk yusɛf ɔltɛm. Ɛspɛshali if pɔsin na yu famili gɛt HCM, ɔ if pɔsin dɔn day pan at atak wantɛm wantɛm, i rili impɔtant fɔ mek yu chɛk yusɛf.
Aw dɔktɔ dɛn kin no bɔt dis sik?
We yu go to dɔktɔ, i go fala sɔm tin dɛn fɔ no if yu gɛt dis sik.
- Mɛdikal istri: Fɔs, dɛn go aks yu bɔt di sayn dɛn we yu gɛt, if ɛnibɔdi na yu famili gɛt at sik, ɔ if ɛnibɔdi dɔn day wantɛm wantɛm.
- Fɔ ɛgzam fɔ yu bɔdi: Di dɔktɔ go lisin to yu at ɛn yu lɔng dɛn bay we i yuz stetɔskɔp. If yu gɛt obstructive HCM, sɔntɛnde yu kin yɛri at de grɔmbul.
- Speshal tɛst dɛn:
- ECG (Electrocardiogram): Dis na di fɔs tɛst we dɛn kin du. dis tεst de rεkכd di ilektrikal aktiviti fכ di at εn i kin no abnכmal tin dεm na bכku pipul dεm we gεt HCM.
- Echocardiogram (Echo): Dis na di mכst imכtant εn difinitiv tεst fכ no HCM. I tan lɛk we dɛn de skan bebi. I kin si klia wan aw di at mɔsul tik, aw di at de wok, ɛn aw i de pɔmp blɔd.
Apat frɔm dɛn men tɛst ya, di dɔktɔ kin tɛl yu fɔ du ɔda tɛst if nid de.
- Blɔd tɛst dɛn
- Kadiak kateshɔn
- MRI skan fɔ di kadyak
- wan ``Holter monitor'' tεst we de mכnitor di hat rεt fכ 24 awa כ mכr
- Eksayz strɛs ɛko tɛst
- Test fɔ di jenɛtiks
Wetin na di tritmɛnt dɛm fɔ HCM?
We dɛn dɔn no se yu gɛt HCM, yu dɔktɔ we de mɛn yu at go disayd di bɛst tritmɛnt plan fɔ yu. Di men gol fɔ tritmɛnt na fɔ kɔntrol di sayn dɛm ɛn ridyus di risk fɔ gɛt prɔblɛm.
1. Laif stayl chenj ɛn monitarin
If yu nɔ gɛt ɛni sayn ɛn yu nɔ gɛt bɔku prɔblɛm dɛn, yu dɔktɔ kin wach yu sik bay we i de chɛk yu ɔltɛm ɛn advays yu fɔ liv yu layf we go mek yu gɛt wɛlbɔdi.
- Nɔ smok atɔl.
- Fɔ it tin dɛn we go ɛp yu at (we nɔ gɛt bɔku sɔl ɛn ɔyl).
- Fɔ gɛt bɛtɛ slip.
- Fɔ du ɛksɛsayz saful wan ɛn smɔl smɔl lɛk aw dɔktɔ tɛl yu fɔ du ɛksɛsayz (we yu nɔ go ebul fɔ du ɛksɛsayz wit trɛnk).
- Fɔ mek yu gɛt wɛlbɔdi wet.
- Gud kɔntrol fɔ ɔda mɛrɛsin sik lɛk ay blɔd prɛshɔn ɛn dayabitis.
2. Di mɛrɛsin dɛn we dɛn kin yuz
Dɛn kin yuz difrɛn mɛrɛsin fɔ kɔntrol di sayn dɛn we pɔsin kin gɛt.
- Beta-blockers: Dɛn kin slo di at rit ɛn ridyus di prɛshɔn pan di at.
- di kכlsiכm chεnal blכk dεm: Rilaks di at mכsul εn mek i izi fכ fכlכ di bכdi.
- Diuretiks:I de pul di wata we pasmak na di bɔdi ɛn i de ridyus di sayn dɛm lɛk fɔ blo shɔt.
Dis biɛn tɛm, dɛn dɔn kam wit wan nyu mɛrɛsin we dɛn kɔl `(mavacamten)`. Dis na di fɔs drɔg we de tɔch di ɔndalayn kɔz fɔ HCM.
3. Speshal Prosidyu ɛn Ɔpreshɔn
Speshal tritmɛnt dɛn de fɔ di kɔndishɔn dɛn we dɛn nɔ kin ebul fɔ kɔntrol wit mɛrɛsin, mɔ di HCM we de ambɔg, ɛn fɔ mek dɛn nɔ gɛt prɔblɛm dɛn.
| Di we aw dɛn kin trit am | Wetin dɛn de du |
|---|---|
| Septal mayktomi we dɛn kin du | Dis na ɔpreshɔn we dɛn kin du fɔ opin in at. We dɛn de du dis, di dɔktɔ kin pul wan smɔl pat pan di at wɔl we tik (septum) , we de mek di blɔd nɔ flɔ. |
| Alkol septal ablashɔn | Dɛn kin du dis fɔ di wan dɛn we nɔ ebul fɔ du ɔpreshɔn. We dɛn de yuz kateshɔn, dɛn kin put smɔl rɔm insay wan smɔl at we de gi blɔd to di at mɔsul we dɔn tik. Dis kin pwɛl di tik we tik ɛn mek i smɔl. |
| ICD divays (Implantabl Kadiɔvata Difibrilatɔ) . | Dɛn kin yuz dis fɔ di wan dɛn we de pan denja fɔ mek dɛn at stɔp wantɛm wantɛm. Wan smɔl tin we dɛn kin put ɔnda di skin. I tan lɛk pɔsin we de protɛkt di at. As soon as at bit we nɔ de bit ɔltɛm we kin mek pɔsin in layf de pan denja, dis divays kin gi ilɛktrik shɔk fɔ mek di at kam bak to nɔmal. |
Wetin fɔ ɛkspɛkt we yu de liv wit HCM?
No nid fɔ fred fɔ mek dɛn tɛl yu se yu gɛt HCM. Bɔrku pipul kin liv nɔrmal layf wit di rayt tritmɛnt ɛn manejmɛnt. Pan ɔl we di pipul dɛn we de day frɔm dis sik bin bɔku trade, tide, bikɔs ɔf di advans tritmɛnt dɛn, da risk de dɔn kam dɔŋ to wan rili lɔw lɛvɛl we na 0.5%.
Di tin we impɔtant pas ɔl fɔ yu na fɔ kɔntinyu fɔ tɔk to yu dɔktɔ we de mɛn yu at ɔltɛm. Tek tɛm chɛk-ap ɔltɛm, tek yu mɛrɛsin dɛn, ɛn kɔntinyu fɔ liv yu layf lɛk aw i tɛl yu.
Bɔt wan tin de we wi fɔ no bɔt. HCM we dɛn nɔ no na di men tin we kin mek atlet dɛn we nɔ rich 35 ia day na dɛn at wantɛm wantɛm.Na dat mek i rili impɔtant fɔ mek dɛn du tɛst bifo yu bigin fɔ ple spɔt if yu gɛt famili histri.
Yu tink se dɛn go ebul fɔ avɔyd dis sik?
Bikɔs bɔku tɛm na di jɛnɛtik tin dɛn kin mek HCM, no we nɔ de fɔ mek i nɔ apin. Bɔt di bɛst tin we wi go du na fɔ mek wi nɔ gɛt prɔblɛm dɛn . Di bɛst we fɔ du dat na fɔ du skrinin tɛst fɔ no di sik kwik kwik wan.
If pɔsin na yu famili (mama, papa, brɔda ɛn sista dɛn, pikin dɛn) gɛt HCM, yu fɔ rili gɛt tɛst.
Fɔs, yu go gɛt ECG ɛn Echocardiogram. Ivin if dɛn tɛst dɛn de nɔmal, i fayn fɔ mek dɛn chɛk dɛn ɛvri 3 ia te yu rich 30 ia ɛn afta dat ɛvri 5 ia.
Mɛsej we dɛn kin kɛr go na os
- HCM na wan kכndyushכn we di at mכsul de tik pas nכmal, we de mek i at fכ di at fכ pכmp bכdi.
- Bɔku tɛm dis na wan sik we de kɔmɔt na di jɛnɛtiks we kin apin na famili . If pɔsin na yu famili gɛt am, i impɔtant fɔ mek dɛn tɛst yu.
- Bɔku pipul dɛn nɔ kin gɛt ɛni sayn . If yu gɛt sɔm sayn dɛn lɛk fɔ mek yu nɔ ebul fɔ blo fayn, yu de fil pen na yu chɛst, ɔ yu de fɔdɔm, go to dɔktɔ wantɛm wantɛm.
- Di men tɛst fɔ no di sik na Echocardiogram (Echo) .
- If yu gɛt di rayt tritmɛnt, mɛrɛsin, ɛn chenj dɛn layf , bɔku pipul dɛn we gɛt HCM kin liv nɔmal, wɛlbɔdi layf . No nid fɔ panik, ɔl wetin yu nid fɔ du na fɔ no ɛn manej am fayn fayn wan.
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