Sɔm tin dɛn we kin apin to pɔsin in skin kin simpul lɛk smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Sɔntɛnde, dɛn tin ya kin ivin tɔn to kansa na di skin. Bɔt di sayɛns we dɛn de yuz fɔ mɛn pipul dɛn tide dɔn so go bifo so dat dɛn gɛt fayn tritmɛnt fɔ dɛn sik dɛn ya. Tide, wi go tɔk bɔt wan difrɛn tritmɛnt fɔ wan patikyula sik we gɛt kansa na di skin. Di nem fɔ dis drɔg na Methoxsalen.
Fɔ tɔk am simpul wan, wetin na Mɛtɔkssalɛn?
Methoxsalen nɔ tan lɛk rɛgyula pil ɔ shot. Na wan drɔg we de mek pɔsin fil lɛk layt. Spɛshal wan, dɛn kin yuz am fɔ kɔntrol di sayn dɛm fɔ wan patikyula kayn kansa we kin afɛkt di skin we dɛn kɔl cutaneous T-cell lymphoma (CTCL) .
Dɛn nɔ kin gi dis tritmɛnt in wan. Dɛn kin gi am bak wit ɔltra vayolɛt raytin. di nem fכ dis כl tritmεnt prכsεs na Extracorporeal Photopheresis (ECP). Pan ɔl we dis kin tan lɛk se na kɔmplikɛt wɔd, di we aw dɛn kin du am kin rili simpul wans yu ɔndastand am.
So aw dɛn kin du dis ECP tritmɛnt?
Tink bɔt am, dis nɔ tan lɛk fɔ gi mɛrɛsin to pɔsin we sik. Dis na spɛshal tin we dɛn kin du na ɔspitul ɔ klinik we di dɔktɔ dɛn we dɔn tren kin du.
1. Blɔd we dɛn kin gɛda: Fɔs, dɛn kin pul sɔm blɔd na yu bɔdi ɛn sɛn am tru spɛshal mashin.
2. Separeshכn fכ di sεl dεm: Dis mashin de separet כnli di wayt blכd sεl dεm frכm yu blכd. Dɔn dɛn kin put di ɔda pat dɛn na di blɔd (lɛk rɛd blɔd sɛl ɛn plasma) bak insay yu bɔdi.
3. : , Methoxsalen .
4. Layt tɛrapi: Dɔn, dɛn kin put di wayt blɔd sɛl dɛn we dɛn dɔn miks wit dis mɛrɛsin pan wan spɛshal kayn ɔltra vayolɛt A (UVA) layt we de insay di mashin. Bikɔs ɔf di mɛrɛsin we dɛn kɔl Methoxsalen, di kansa sɛl dɛn kin rili sɛnsitiv to dis layt ɛn dɛn kin bigin fɔ day.
5. Sεl rεinfyushכn: fכ finish, di wayt blכd sεl dεm we dεn trit dis kayn we de infuz bak insay yu bכdi, lεk salin.
Dis ɔltin kin tek sɔm awa, bɔt yu kin sidɔm na chia ɛn rid buk ɔ lisin to siŋ insay dis tɛm.
Tin dɛn we yu fɔ rili tɛl yu dɔktɔ bifo yu gɛt tritmɛnt
Bifo yu disayd if dis tritmɛnt fayn fɔ yu, yu dɔktɔ go nid fɔ no yu kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɛl dɛn bɔt ɛni wan pan dɛn tin ya, mɔ:
| Yu mɛdikal kɔndishɔn | Wetin mek yu fɔ tɛl pipul dɛn? |
|---|---|
| Prɔblɛm na di yay (e.g. katarakt, aphakia if dɛn dɔn pul di lens) . | Bikɔs dis mɛrɛsin de mek di yay dɛn fil fɔ layt, di tin dɛn we bin dɔn de na di yay bifo tɛm kin wɔs. |
| At sik, liva sik | Bikɔs di tritmɛnt prɔses kin put sɔm strɛs pan di bɔdi, dɛn fɔ tek tɛm wit aw dɛn ɔgan ya de wok. |
| Skin sik dɛm lɛk lupus, porphyria, ɛn xeroderma | Dɛn tin ya kin ɔlrɛdi mek di skin gɛt bɔku bɔku layt, ɛn Mɛtɔkssalen kin mek i fil mɔ. |
| Fɔ gɛt histri bɔt kansa na yu skin ɔ fɔ gɛt ɛkstrem rayt/asɛnik tritmɛnt | Dis infɔmeshɔn impɔtant fɔ asɛs di risk fɔ gɛt kansa na yu skin tumara bambay. |
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ | Dɛn nɔ kin fayn fɔ tek dis mɛrɛsin pan dɛn kayn tin ya, bikɔs i kin afɛkt di pikin we nɔ gɛt bɛlɛ. |
| Alɛji to ɔda mɛrɛsin, it, ɔ tin dɛn | Yu fɔ no se i pɔsibul fɔ mek yu gɛt alɛji to Methoxsalen ɔ ɛni wan pan di tin dɛn we de insay am. |
I impɔtant fɔ gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de tek (di mɛrɛsin dɛn we yu kin bay na kɔt, vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn tin dɛn we yu kin yuz fɔ it). Sɔm mɛrɛsin kin miks wit Methoxsalen.
Tin dɛm wae yu fɔ pe spɛshal atɛnshɔn to wae yu de trit yu
Bɔrku tin de wae yu fɔ fala fɔ yu sef wae yu de du dis tritmɛnt.
San protɛkshɔn - dis na di tin we impɔtant pas ɔl!
Methoxsalen nɔ de mek yu skin nɔmɔ de mek yu yay rili sɛnsitiv to layt. So, yu fɔ avɔyd fɔ de na di san as yu ebul fɔ 24 awa afta yu dɔn gɛt di tritmɛnt .
- Nɔ kɔmɔt na os: de insay os as yu ebul.
- If yu go na do: Wear klos we gɛt lɔng sliv, lɔng pant, hat, ɛn kɔba yu bɔdi fayn fayn wan.
- Wan tin we yu fɔ yuz fɔ protɛkt yusɛf frɔm di san: Put gud tin fɔ protɛkt yusɛf frɔm di san na ɔl di say dɛn we yu gɛt di san.
- Sunglasses: Dis na tin we yu fɔ du! Wear 100% UV-blɔk, rap-arawnd sanglas ɛnitɛm we yu de pan ivin smɔl layt (ivin insay os, if di layt de kam tru winda) fɔ di fɔs 24 awa afta yu dɔn trit yu . Dis rili impɔtant fɔ mek yu nɔ pwɛl di yay.
- Nɔ yuz atifishal layt: Nɔ yuz tin dɛn lɛk san lamp ɛn tan bed.
Ɔda tin dɛn we wi fɔ tink bɔt
- Mɛdikal Chɛk-ap: Atɛnd chɛk-ap ɔltɛm lɛk aw yu dɔktɔ tɛl yu fɔ du.
- Fɔ chɛk yu yay: If yu notis ɛni chenj na yu yay, tɛl yu dɔktɔ wantɛm wantɛm. Si dɔktɔ we de mɛn yu yay ɔltɛm fɔ mek dɛn chɛk yu yay.
- Risk fɔ gɛt kansa: Dis tritmɛnt kin mek yu gɛt ɔda kayn kansa na yu skin tumara bambay smɔl. Nɔ wɔri bɔt dis. Yu dɔktɔ go tɔk to yu bɔt dis risk ɛn advays yu fɔ de chɛk yu skin ɔltɛm.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Jɔs lɛk ɛni tritmɛnt, sayd ɛfɛkt kin apin. Sɔm dɛn fɔ ripɔt wantɛm wantɛm, ɛn ɔda wan dɛn nɔ kin siriɔs.
| Notis yu dɔktɔ ɔ ɔspitul we de trit yu wantɛm wantɛm. | |
|---|---|
| Di sayn dɛn we de sho se pɔsin gɛt alɛji | Skin rash, it, swel na di lip, tong ɔ fes. |
| Di chenj dɛn we de apin na di we aw pɔsin de si | Blɔr vishɔn, si difrɛn frɔm aw i kin si. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, trot we de at. |
| Lɔw blɔd prɛshɔn | Diziz , blu yay we yu de grap. |
| Bɔku tɛm, i nɔ kin siriɔs, bɔt tɛl yu dɔktɔ if i kɔntinyu fɔ de. | |
| Diziz , ed we de at | I kin apin sɔm tɛm afta dɛn dɔn trit am. |
| Dray skin, i de it | I kin bi bikɔs di skin kin fil lɛk layt. |
| Tinin fɔ di skin, wrinkles | Dɛn kin si am pan tritmɛnt dɛn we kin tek lɔng tɛm. |
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
Bikɔs na dɔktɔ dɛn we de wok na ɔspitul kin gi dis, chans nɔ de fɔ mek dɛn tek am pasmak. Bɔt if yu sɔspɛkt ɛnitin lɛk dis, tɛl di ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm. If nid de, yu kin aks fɔ advays frɔm di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Mɛsej we dɛn kin kɛr go na os
- Methoxsalen nɔto injɛkshɔn ɔltɛm, na spɛshal tritmɛnt we dɛn kin gi togɛda wit ɔltra vayolɛt layt.
- Tɛl yu dɔktɔ kɔmplit wan bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek ɛn ɔl di mɛrɛsin dɛn we yu gɛt.
- I rili impɔtant fɔ protɛkt yusɛf frɔm di san fɔ 24 awa afta yu dɔn trit yu. I impɔtant mɔ fɔ wɛr sanglas we de blok di UV rayt.
- Fɔ fala ɔl di instrɔkshɔn dɛn we di dɔktɔ gi yu ɛn mek shɔ se yu atɛnd di tɛst ɛn klinik dɛn we dɛn dɔn sɛtul fɔ du.
- If yu de wɔri bɔt prɔblɛm ɔ sayd ɛfɛkt, nɔ ɛva fred fɔ tɔk opin wan to yu dɔktɔ bɔt am.
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