Yu gɛt Gaucher’s Disease bak? Mek wi tok abaut di drug Taliglucerase Alfa?

Sɔntɛnde, wi kin gɛt sik dɛn we wi nɔ kin ivin imajin, nɔto so? Gaucher in sik bak na wan sik wae nɔr kin bɔrku wae nid fɔ de mɛn fayn fayn wan. So if yu ɔ pɔsin we de nia yu gɛt dis sik, tide wi go tɔk bɔt di mɛrɛsin we dɛn kɔl Taliglucerase alfa, we na tritmɛnt fɔ am. Lɛ wi jɔs ɔndastand wetin i bi, aw i de wok, ɛn wetin wi fɔ tek tɛm wit.

Lɛ wi si fɔs wetin na Gaucher’s Disease.

Fɔ tɔk am simpul wan, Gaucher sik na wan sik wae kin apun bikɔs ɔf sɔm jɛnɛtik tin dɛm na wi bɔdi. Bɔku kayn ɛnzaym dɛn de we de du rili impɔtant wok na wi bɔdi. pan dis sik, wan enzym we dεn kכl glucocerebrosidase nכ de prodyuz fayn fayn wan na wi bכdi sεl dεm, כ in aktiviti dεm de rεdכks. dis εnzym de brok dכn sכm fεt tin dεm na wi bכdi εn mek yusful tin dεm frכm dεm. So we dis ɛnzaym de dɔŋ, dɛn fat tin dɛn de kin bigin fɔ gɛda na sɔm pat dɛn na wi bɔdi, fɔ ɛgzampul , bon mɛro, splin, ɛn liva . We dɛn kin gɛda, difrɛn sayn dɛn kin sho. Dat min se sɔm pipul dɛn kin gɛt pen na dɛn bon, dɛn nɔ kin gɛt bɛtɛ blɔd, ɛn dɛn kin gɛt bɔku bɔku bɔdi. Pan ɔl we i kin tan lɛk se dis nɔ izi fɔ du, i nɔto big tin we dɛn ɔndastand am fayn.

So wetin na dis mɛrɛsin we dɛn kɔl Taliglucerase Alfa?

Taliglucerase alfa na wan mɛrɛsin we dɛn kin gi pipul dɛn we gɛt Gaucher sik, we wi bin dɔn tɔk bɔt bifo tɛm, bay we dɛn kin mek di ɛnzaym we dɛn nɔ gɛt na dɛn bɔdi. Fɔ tɔk di kɔrɛkt tin, dis na wan we we mɔtalman mek fɔ mek wan ɛnzaym . Dɛn kin yuse am fɔ kɔntrol di sayn dɛm fɔ Gaucher sik. Bɔt yu fɔ mɛmba bak se dis nɔto mɛrɛsin we go mɛn di sik kpatakpata . Bɔt i kin ɛp fɔ kɔntrol di sayn dɛm ɛn mek layf izi pasmak.

Sɔntɛnde, dɔktɔ dɛn kin yuz dis mɛrɛsin fɔ ɔda tin, so if yu gɛt ɛni kwɛstyɔn, i go fayn fɔ aks yu dɔktɔ ɔ fama.

Yu go ɔltɛm si dis mɛrɛsin ɔnda di brand nem ELELYSO .

Wetin a fɔ tɛl di mɛdikal tim bifo a yuz dis mɛrɛsin?

Bifo dɛn gi yu dis mɛrɛsin, Taliglucerase alfa, yu mɛdikal tim (keya tim) nid fɔ no sɔm tin dɛn. Bikɔs, bay da infɔmeshɔn de, dɛn kin gi yu di tritmɛnt sef wan. Lɛ wi si wetin dɛn bi:

• If yu dɔn ɛva gɛt wan ɔda kayn alɛji fɔ Taliglucerase alfa, ɔda mɛrɛsin dɛn, it dɛn, it day, ɔ tin dɛn we dɛn kin yuz fɔ mek tin nɔ pwɛl, yu fɔ rili tɛl wi. Dis kin tan lɛk smɔl tin, bɔt i rili impɔtant.
• If yu gɛt bɛlɛ, ɔ if yu de plan fɔ gɛt bɛlɛ insay di nɛks tɛm, tɛl yu dɔktɔ bak.
• If yu na mama we de gi pikin in bɛlɛ, nɔ fɔgɛt fɔ tɔk bɔt dat bak.

If yu du dɛn tin ya fayn fayn wan, di mɛdikal tim kin plan di tritmɛnt we go fayn ɛn we go mek yu nɔ gɛt prɔblɛm.

Aw a go gi yu dis mɛrɛsin?

Dɛn kin gi dis mɛrɛsin bay we dɛn put am insay wan vein . Fɔ tɔk am simpul wan, dɛn kin gi am insay wan vein. Dɛn kin du dis na ɔspitul ɔ klinik say na pɔsin we de kia fɔ wɛlbɔdi biznɛs we dɛn dɔn tren fɔ gi am. Dis min se yu nɔ go ebul fɔ yuz am na os. Dat na wan we bak fɔ protɛkt wi.

Yu tink se dɛn fɔ gi dis mɛrɛsin to smɔl pikin dɛn?

If yu pikin de yuz dis mɛrɛsin, Taliglucerase alfa, yu fɔ rili tɔk to yu pikin dɔktɔ bɔt am. Bikɔs sɔntɛnde, dɛn kin tek spɛshal kia we dɛn de gi dis kayn mɛrɛsin to yɔŋ pikin dɛn. Tin dɛn lɛk di doz ɛn di schedule fɔ administreshɔn nid fɔ ajɔst fɔ fit dɛn.

Wetin kin apin if yu tek bɔku mɛrɛsin?

Mɛmba se if yu tink se dɛn dɔn gi yu dis mɛrɛsin tumɔs, ɔ if yu tink se yu dɔn gi yu, yu fɔ kɔl pɔyzin kɔntrol sɛnta ɔ di ɔspitul imejensi rum we de nia yu wantɛm wantɛm . Fɔ tek akshɔn kwik na di tin we impɔtant pas ɔl pan tin dɛn lɛk dis.

Duya mɛmba: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ gi am to yu padi ɔ yu fambul, ilɛksɛf dɛn gɛt di sem sayn. Di rayt mɛrɛsin ɛn di doz kin difrɛn fɔ ɛnibɔdi.

Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?

I rili impɔtant fɔ tek dis mɛrɛsin di rayt tɛm ɛn nɔ skip di doz. Dis na di tɛm we yu go gɛt di mɔs bɛnifit frɔm di mɛrɛsin. If yu nɔ ebul fɔ go na ɔspitul/klinik fɔ tritmɛnt di de we dɛn dɔn sɛtul, kɔl yu dɔktɔ ɔ wɛlbɔdi pɔsin wantɛm wantɛm ɛn mek dɛn no . Dɔn dɛn go tɛl yu wetin fɔ du nɛks.

Us ɔda tin dɛn kin miks wit dis mɛrɛsin?

jεnarali dεn kin se dεn de εkspεkt nכ siriכs intarakshכn bitwin dis Taliglucerase alfa dכg εn כda dכg dεm. Bɔt dat nɔ min se i nɔ go miks wit ɛnitin. Sɔntɛnde, smɔl smɔl sayd ɛfɛkt dɛn kin apin.

So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de tek – nɔto jɔs di wan dɛn we dɔktɔ gi yu, bɔt bak ɛni ɔyl, mɛrɛsin we yu nɔ gi yu, ɔ tin dɛn we yu kin it lɛk vaytamɛn. Dɔn bak, if yu de smok, drink rɔm, ɔ yuz drɔgs we nɔ rayt.Bi ɔnɛs bɔt dat bak, bikɔs sɔm tin dɛn kin gɛt bad bad tin fɔ du we dɛn put dɛn togɛda wit yu mɛrɛsin.

Wetin yu fɔ tek tɛm wit we yu de tek dis mɛrɛsin?

Go to yu dɔktɔ fɔ chɛk ɔltɛm fɔ si aw yu tritmɛnt de go bifo. Dis rili impɔtant. Yu dɔktɔ go chɛk yu fɔ si if di mɛrɛsin de wok ɛn if yu sik dɛn de bɛtɛ. If yu sik nɔr de bɛtɛ, ɔr if dɛn de wɔs , tɛl yu dɔktɔ ɔr pɔrsin wae de kia fɔ yu wɛl bɔdi. Nɔ kip ɛnitin fɔ yusɛf.

Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?

Lɛk ɛni mɛrɛsin, Taliglucerase alfa kin mek sɔm sayd ɛfɛkt. Nɔto ɔlman kin gɛt dɛn, bɔt i fayn fɔ no bɔt dɛn. Sɔm kin siriɔs ɛn dɛn nid fɔ go to dɔktɔ wantɛm wantɛm. Ɔda wan dɛn kin kɔmɔn ɛn dɛn go dɔn afta sɔm dez. Mek wi tek wan luk pan dem.

Di sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ ɔ wɛlbɔdi pɔsin wantɛm wantɛm:

If yu gɛt ɛni wan pan dɛn sik ya, i impɔtant fɔ go to dɔktɔ kwik kwik wan ɛn nɔ go te, bikɔs sɔntɛnde dɛn tin ya kin bi sayn fɔ se yu gɛt mɔ sik:

• Alɛji : Dɛn tin ya na we yu skin kin rɔsh wantɛm wantɛm, yu kin it bad bad wan ɔ yu kin gɛt ayv, yu fes, yu lip, ɔ yu tɔng kin swel. Dɛn tin ya kin mek bak i nɔ izi fɔ blo.
• Blu finga nel ɔ lip dɛn .
• Prɔblɛm fɔ blo , fil lɛk se yu de swɛla.
• Chɛst pen ɔ fil se yu chɛst tayt.
• Kɔf we nɔ go ebul fɔ stɔp.
• Wan at bit kwik kwik wan ɔ we nɔ de bit ɔltɛm .
• di fes de rεd, di bכdi de wam εn i de swet (flash) .
• Lɔw blɔd prɛshɔn , we min se yu de fil lɛk yu ed de tɔn ɛn yu ed layt.
• Pen, rɛd, ɔ iritashɔn na di say we dɛn gi di injɛkshɔn , ɛn sɔntɛnde i kin swel bak.
• Swel na di ankles, fut, an.

Sayd ɛfɛkt dɛn we nɔ kin nid fɔ gɛt mɛrɛsin, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de ɔ we de mɔna dɛn:

Dɛn tin ya kin go afta sɔm dez, bɔt if dɛn kɔntinyu fɔ de, ɔ if dɛn de mɔna yu fɔ mek yu nɔ ebul fɔ du yu wok ɛvride, tɛl yu dɔktɔ:

• Fɔ fil kol, shek shek (chills) .
• Rɔnbɛlɛ .
• Fiva .
• Ed de at .
• Nɔs, vɔmit .
• I nɔ go ebul fɔ biaFɔ fil se yu taya bad bad wan.
• Bɛlɛ we nɔ fayn, lɛk we pɔsin nɔ de it fayn .

Dis list nɔto ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn ɔ chenj na yu bɔdi, duya go to yu dɔktɔ. Nɔ tek ɛnitin as sɔntin we nɔ impɔtant.

Usay yu kin kip dis mɛrɛsin?

Bikɔs dɛn go gi yu dis mɛrɛsin na ɔspitul ɔ klinik, yu nɔ go nid fɔ kip am na os . Dis min se yu nɔ fɔ wɔri if di mɛrɛsin go pwɛl ɔ if dɛn go kip am fayn. Dat wok de pan di wan dɛn we de wok na di ɔspitul ɔ di klinik.

Fɔ dɔn, sɔm tin dɛn we yu fɔ mɛmba:

Taliglucerase alfa na impɔtant mɛrɛsin we de ɛp fɔ kɔntrol di sayn dɛm fɔ Gaucher in sik. Dis involv fɔ mek dɛn chenj wan ɛnzaym we nɔ de na di bɔdi bay we dɛn mek am. Dɛn kin gi dis mɛrɛsin as injɛkshɔn na wan vein, na ɔspitul. Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni alɛji, yu gɛt bɛlɛ, ɔ yu de tek ɛni ɔda mɛrɛsin. Sɔm bad tin kin apin, so go to dɔktɔ wantɛm wantɛm if yu gɛt ɛni siriɔs sayn . I rili impɔtant fɔ gɛt tritmɛnt di rayt tɛm ɛn fɔ de tɔk to yu dɔktɔ ɔltɛm.

Nɔ ɛva fred fɔ aks yu dɔktɔ, fama, ɔ pɔsin we de kia fɔ yu wɛlbɔdi biznɛs ɛni kwɛstyɔn ɔ tin we de mɔna yu. Dɛn de de fɔ ɛp yu. Yu wɛlbɔdi impɔtant to dɛnsɛf.