A no se dis na tɔpik we at ɛn sɛnsitiv fɔ tɔk bɔt. Bɔt wi ɔl de dil wit sɔntin we wi go gɛt sɔm tɛm na wi layf, ilɛksɛf na fɔ wisɛf ɔ fɔ pɔsin we wi lɛk. Dat na sik we de kil pɔsin. Fɔ no dis kin bi big trɛnk sɔm tɛm dɛn lɛk dis. So lɛ wi tɔk bɔt dis opin wan ɛn di we we wi go ɔndastand.
Wetin na dis sik wae de mek pɔrsin nɔr de mɛn?
Fɔ tɔk am simpul wan, sik we nɔ go mɛn na sik we pɔsin nɔ go ebul fɔ mɛn ɔltogɛda wit ɛni mɛrɛsin ɛn i nɔ go ɛva dɔn wit day. Dis min se yu nɔ go ebul fɔ rivɛns ɔ mɛn yu sik.
Dis kayn sik kin tranga kwik kwik wan, ɔr kin kam smɔl smɔl as tɛm de go, ɛn smɔl smɔl de sik kin wɔs.
We yu lan se yu gɛt sik we de mek yu nɔ ebul fɔ mɛn yu, yu kin fil lɛk se di wɔl dɔn kam fɔ krach pan yu. No rayt ɔ rɔng we nɔ de fɔ dil wit dis kayn nyus. Yu kin fil bad, vɛks, fred, ɔ ivin fil fri. Yu kin ivin fil so ɛmti dat yu nɔ go ebul fɔ mɛmba ɛnitin. Yu kin fil ɔl dɛn filin ya wan tɛm. Aw yu fil, dat na nɔmal tin.
Ilɛksɛf yu na pɔsin we gɛt dis sik ɔ pɔsin we de kia fɔ yu, fɔ tɔk bɔt day nɔ kin izi. Bɔt if yu no wetin fɔ ɛkspɛkt, dat go ɛp yu fɔ waka na dis tranga waka.
Wetin na de sik wae kin kam pan pɔrsin wae nɔr de mɛn?
I nɔ kin izi fɔ gi wan kɔmplit list fɔ dɛn sik ya we nɔ de mɛn. Na bikɔs di sem sik kin kil wan pɔsin ɛn nɔ kin kil ɔda pɔsin. Bɔt sɔm sik dɛn de we kin mek pɔsin day as tɛm de go.
| Mɛdikal kɔndishɔn | Wan shɔt introdukshɔn |
|---|---|
| Advans kansa (Advans kansa / Mɛtastatik kansa) . | We di kansa go skata to ɔda pat dɛn na di bɔdi ɛn nɔ ebul fɔ kɔntrol am. |
| Dis sik we dɛn kɔl Alzaima | Na sik we kin pwɛl di bren sɛl dɛn smɔl smɔl, we kin mek pɔsin nɔ ebul fɔ mɛmba ɛn ɔda tin dɛn we pɔsin kin du na in maynd. |
| Kɔnjɛstiv at we nɔ de wok fayn | Na wan sik we di at kin wik smɔl smɔl, ɛn i nɔ kin ebul fɔ pɔmp inof blɔd to di bɔdi. |
| Kidni we nɔ de wok fayn | di kidni dεm de lכs dεn ebul fכ filta west frכm di bכdi εn stכp fכ wok. |
| Liva nɔ de wok fayn | Di liva in wok kin stɔp ɔlmost, ɛn dis kin mek i nɔ ebul fɔ du in wok. |
| Di sik we dɛn kɔl multiple sclerosis | Na sik we de na di nervɔs sistɛm we de pwɛl di bren ɛn di spɛnal kɔd. |
| Dis sik we dɛn kɔl Parkinson | Wan sik we de go bifo na di nervɔs sistɛm we de afɛkt di we aw di bɔdi de muv. |
Bɔt mɛmba dis: Jɔs bikɔs yu gɛt wan pan di sik dɛn we de na dis list nɔ min se i de mek yu layf de pan denja. Yu fɔ tɔk to yu dɔktɔ fɔ no mɔ bɔt yu sik ɛn aw i go afɛkt yu layf.
Wetin na di difrɛns bitwin sik we nɔ de mɛn ɛn sik we nɔ de mɛn?
Sɔntɛnde, wi kin kɔnfyus dɛn tu wɔd ya bikɔs dɛn kin yuz dɛn tu wɔd ya fɔ tɔk bɔt sik dɛn we pɔsin kin gɛt fɔ ɔl in layf. Bɔt big difrɛns de bitwin dɛn tu.
- Krεse sik: Sik dεm lεk dayabεtis, asma, ɔr ɔtoimyun dizayd na sik dεm wae nɔr de mɛn. Pipul wae gɛt dis kin ebul fɔ kɔntrol ɛn kɔntrol di sik wit tritmɛnt ɛn liv nɔrmal layf.
- Sik we nɔ de mɛn: Na ya, tritmɛnt kin ɛp yuNa jɔs fɔ mek pɔsin fil fayn. Dat min se yu fɔ kɔntrol di sik dɛn we yu de gɛt, fɔ mek yu nɔ fil pen, ɛn fɔ mek yu fil fayn. Bɔt dɛn tritmɛnt dɛn de nɔ go sev yu frɔm day.
Aw lɔng pɔrsin wae gɛt dis kayn sik kin liv?
Dis na kwɛstyɔn we bɔku pipul dɛn kin aks, bɔt na wan pan di kwɛstyɔn dɛn we at fɔ ansa bak. Fɔ tɔk tru, no wan ansa nɔ de fɔ dis. I kin difrɛn bad bad wan frɔm wan pɔsin to ɔda pɔsin. Di lɔng tɛm we yu fɔ liv de dipen pan bɔku tin dɛn. Fɔ ɛgzampul:
- Us sik yu gɛt?
- Aw yu bɔdi gɛt wɛlbɔdi?
- Us tritmɛnt yu de gɛt?
Yu dɔktɔ go tray in bɛst fɔ no aw lɔng yu go liv. Bɔt nɔbɔdi nɔ go ebul fɔ tɔk fɔ tru. Pipul wae gɛt dis sik kin liv fɔ sɔm dez, wik, mɔnt, ɔr ivin sɔm ia. Yu dɔktɔ go tɛl yu dis infɔmeshɔn nɔmɔ if yu want fɔ no.
Us sayn dɛm kin apin wae pɔrsin dɔn day?
Pan ɔl we di sayn dɛm go difrɛn difrɛn wan bay aw yu sik, sɔm kɔmɔn sayn dɛm de wae yu kin si as yu de kam nia fɔ dɔn.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Kɔnfyus | Disorientation of tɛm, ples, ɔ pipul dɛn. |
| Di tin dɛn we pɔsin kin si we i de tink bɔt sɔntin | Fɔ si ɔ yɛri tin dɛn we nɔ rili de. |
| I nɔ izi fɔ swɛla | I nɔ kin izi fɔ swɛla it ɔ drink. |
| Taya | Taya bad bad wan we de kɔntinyu ilɛksɛf yu rɛst. |
| I nɔ kin want fɔ it igen | I nɔ kin want fɔ it igen. |
| Shot we yu de blo | Fɔ fil lɛk se yu de swɛla. |
| Agiteshɔn | Fɔ biev wit wɔri ɛn nɔ gɛt peshɛnt fɔ natin. |
| Urinary ɔ bowel inkɔntinɛns | Fɔ pas urine ɔ stɔl we yu nɔ no. |
I impɔtant fɔ tɛl yu wɛlbɔdi tim if yu gɛt ɛni nyu sik ɔ if wan we dɔn de de wɔs . Nɔ panik we yu si dɛn sayn ya. Mɛrɛsin ɛn tritmɛnt dɛn de we kin ɛp fɔ kɔntrol dɛn ɛn gi yu fridɔm.
Aw dɛn kin trit sik dɛn we nɔ de mɛn?
Di men gol fɔ tritmɛnt ya na fɔ mek di pɔsin fil fayn ɛn nɔ gɛt pen as i pɔsibul, pas fɔ mɛn di sik. Di mɛdikal tim de pe atɛnshɔn pan di kɔnsɛpt fɔ palliativ kia . Fɔ tɔk am simpul wan, dɛn kin kɔl dis ‘kɔmfɔt kia’. Di gol dɛn we gɛt fɔ du wit dis na:
- Fɔ mek yu layf bɛtɛ.
- Fɔ manej yu sayn dɛm (lɛk pen ɛn shɔt briz) fayn fayn wan.
- Sɔpɔt yu imɔshɔnal, maynd ɛn spiritual wɛlbɔdi.
Dis palliativ kia tim kin ɛp bak wit yu ligal plan dɛm (liv wil, pawa fɔ atɔna, ɛn ɔda tin dɛm).
Aw yu go no ustɛm fɔ go na hospice care?
Bɔku pipul dɛn we gɛt sik dɛn we nɔ de mɛn kin kwalifay fɔ kia fɔ dɛn na hospice . Dis na wan kayn kia wae de pe atɛnshɔn pan de pɔrsin in kɔmfɔt. Dɛn kin gi dis kia na yu yon os, na spɛshal hospice sɛnta, na os fɔ ol pipul dɛn, ɔ na ɔspitul. Di hospice tim kin ɛp yu fɔ disayd usay di bɛst fɔ yu. Bɔrku tɛm, if yu dɔktɔ tink se yu gɛt siks mɔnt ɔr less fɔ liv, yu kwalifay fɔ gɛt hospice care.
No lɔ nɔ de we se fɔ kia fɔ pipul dɛn we de na di os fɔ bigin dis de. Bɔt yu dɔktɔ kin ɛp yu fɔ disayd di bɛst tɛm fɔ chenj.
If yu gɛt dis kayn sik, aw yu go kia fɔ yusɛf?
Na nɔmal tin fɔ gɛt wan tawzin tin dɛn we de rɔn na yu ed we yu gɛt diagnosis lɛk dis. Wae pɔrsin kin wɔri ɛn pwɛl hat kin bɔrku bak. Dis tɛm, i impɔtant pas ɛni ɔda tɛm fɔ kia fɔ yusɛf. Sɔntɛm dɛn tin ya go ɛp yu:
- Tray fɔ gri wit di rial tin: Dis nyus de mek pɔsin sɔprayz. I go tek tɛm fɔ mek yu tek am gud gud wan. Fɔ gri se yu go day min se yu fɔ lɛf di tumara bambay we yu bin dɔn drim bɔt. I nɔ izi. Bɔt if yu ɔndastand ɛn rɛspɛkt di rial tin we de apin, dat go ɛp yu fɔ liv insay di tɛm we wi de naw ɛn yuz ɛvri mɔnt fayn fayn wan.
- Fɛn pɔsin fɔ tɔk to: We yu tɔk to di wan dɛn we yu lɛk, dat kin ɛp yu fɔ dil wit dɛn kɔmpleks filin ya. I de gi dɛn chans bak fɔ sɔpɔt yu. If yu nɔ fil fɔ tɔk to ɛnibɔdi rayt naw, dat nɔ bad. Yu go no we di tɛm rich. Insay da tɛm de, fɔ rayt jɔnal ɔ tɔk to pɔsin we de gi advays kin ɛp yu fɔ ɔganayz wetin yu de tink.
- If i pɔsibul, kɔntinyu fɔ du yu nɔmal rutin: If yu ebul fɔ du tin wit yu bɔdi, plan yu de lɛk aw yu kin du. Tray fɔ kɔntinyu fɔ du di tin dɛn we yu lɛk.
- Yu fɔ put tin dɛn we de mek yu gladi fɔs: Dis sik de fos yu fɔ go na di tɛm we yu de naw. Yuz dat fɔ yu yon bɛnifit. Yu fɔ du tin dɛn we go mek yu gladi ɛn kɔrej yu. I kin simpul lɛk fɔ drink ɔt kɔp ti, fɔ rid buk we yu lɛk, ɔ fɔ lisin to di bɔd dɛn we de siŋ na di gadin.
- Tray fɔ tek kɔmplimɛnt tritmɛnt dɛn: Tin dɛn lɛk akupankcha, reiki, yoga, masaj, ɛn meditashɔn kin mek yu gɛt bɔku rilif. Bɔt bifo yu bigin ɛnitin lɛk dis, aks yu dɔktɔ us we dɛn nɔ fayn fɔ yu.
If di pɔsin we yu lɛk gɛt sik we nɔ de mɛn, aw yu go ɛp?
Fɔ kray we yu de tink bɔt na filin we kin mek yu fil pen bad bad wan. Na ebi lod fɔ tink bɔt day, aw i go apin, ɛn ustɛm i go apin.
If dis na di fɔs tɛm we yu de dil wit sɔntin lɛk dis, yu nɔ go no wetin fɔ du ɔ tɔk. Na nɔmal tin fɔ lɛ pɔsin fil bad. Bɔt fɔ kia fɔ pɔsin lɛk dis nɔ at lɛk aw yu go tink. Pipul wae de day nid di sem tin wae wi ɔl nid - pɔrsin fɔ lisin, ɔndastand, ɛn lɛk dɛm. Na sɔm we dɛn ya we yu go ɛp:
- Bi pɔsin we de lisin gud wan: Ilɛksɛf yu nɔ no wetin fɔ tɔk, gi di pɔsin chans fɔ tɔk. Lisin to wetin dɛn de fil. Dis na tɛm we una ɔl tu de mek una fred. Una fɔ sɔpɔt unasɛf.
- Spend tɛm wit dɛn: Jɔs fɔ de de kin rili kɔrej dɛn. Wach fim togɛda. Tek wan shɔt drayv. Lisin to di siŋ dɛn we dɛn lɛk. Rid wan buk. Nɔto wetin yu de du impɔtant, na dat yu de wit dɛn.
- If yu tink se yu nid ɛp, nɔ wet te yu aks: Pipul dɛn we de nia fɔ dɔn dɛn layf kin shem fɔ aks fɔ ɛp bikɔs dɛn nɔ want fɔ bi lod pan ɔda pipul dɛn. If yu ebul fɔ si we fɔ ɛp, du am. I kin tan lɛk fɔ go na di stoa, fɔ mek dina, ɔ fɔ was klos.
- Put dɛn insay ɔltin: Nɔ tink se dɛn nɔ go want fɔ kam pan ɛnitin bikɔs dɛn sik. Invayt dɛn bak, ɛn lɛ dɛn disayd fɔ du dat.
- Pan ɔl we yu ɔnɛs bɔt di tin we de apin, mek dɛn biliv se yu nɔ go lɛf dɛn wan: Tɔk bɔt di sik simpul ɛn tru. Nɔ akt lɛk se i nɔ de apin. Na da sem tɛm de, gi op. Aks dɛn wetin na di las tin we dɛn want, ɛn put dɛn insay dɛn plan dɛn de. Mek dɛn no se yu de wit dɛn ɛn yu nɔ go ɛva giv ɔp.
- Rɛspɛkt wetin dɛn want ɛn wetin dɛn nid: Lisin to wetin dɛn want ɛn nid. Ɛp dɛn di we aw dɛn nid ɛp, nɔto di we aw yu want fɔ ɛp dɛn.
Layf kin chenj wantɛm wantɛm we yu gɛt diagnosis lɛk dis. I at fɔ tink bɔt fɔ se gudbai to di wan dɛn we yu lɛk ɛn lɛf fɔ plan fɔ tumara bambay. Sɔm dez kin fayn, sɔm dez kin bad. Rɛst we yu nid fɔ du dat. Nɔ fɔgɛt fɔ tɛl yu dɔktɔ if yu gɛt ɛni nyu sik. Bɔt mɛmba se, bitwin diagnosis ɛn day, sɔmtin de we dɛn kɔl ‘layf’. Dat layf, fɔ liv lɛk aw yu want, wit di pipul dɛn we yu lɛk.
Mɛsej we dɛn kin kɛr go na os
- Wan sik wae de mɛk pɔrsin nɔr de mɛn na wan sik wae nɔr kin ebul fɔ wɛl ɔl ɛn kin dɔn wit day.
- Di men gol fɔ tritmɛnt nɔto fɔ mɛn di sik, bɔt fɔ manej di sayn dɛm ɛn gi di pɔsin maksimal kɔmfɔt ɛn gud kwaliti layf. Palliative care na impɔtant tin fɔ dis.
- Na nɔmal tin fɔ gɛt difrɛn kayn filin lɛk fɔ fil bad, fɔ vɛks, ɛn fɔ fred we yu gɛt nyuz lɛk dis.
- Sɔpɔt pan pɔsin in maynd ɛn in bɔdi impɔtant fɔ di pɔsin ɛn di wan dɛn we de kia fɔ am. Mɛmba se nɔto yu wangren de.
- If yu ɔ pɔsin we yu lɛk gɛt ɛnitin fɔ wɔri bɔt dis, i rili impɔtant fɔ tɔk to yu dɔktɔ fɔ gɛt di bɛst gayd.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt