Omanyi ku bulwadde bwa Hemophilia B? Tukimenye!

Wali okirabye nti abantu abamu beeyongera okuvaamu omusaayi ne bwe baba bafunye ekiwundu ekitono? Oba okirabye nti awatali nsonga, ebitundu by’omubiri gwo bifuuka bbululu ne biba n’emiguwa gy’omusaayi? Ensonga emu lwaki ebintu bino bivuddeko eyinza okuba embeera gye tugenda okwogerako leero eyitibwa Hemophilia B. Tofaayo, kino tujja kukyogerako mu ngeri ennyangu gy’osobola okutegeera.

Obulwadde bwa Hemophilia B kye ki?

Mu ngeri ennyangu, hemophilia B bulwadde bwa kuvaamu omusaayi obusikira. Kibaawo nga waliwo enkyukakyuka mu buzaale obuyamba omusaayi gwaffe okuzimba. Abantu abalina obulwadde bwa hemophilia B balina ekirungo kya factor IX (era ekimanyiddwa nga factor 9, F9, FIX), ekirungo ekikulu ekiyamba omusaayi okuzimba. Singa embeera eno tegijjanjabwa, eyinza okutta omuntu. Amawulire amalungi gali nti abasawo bagijjanjaba nga bakozesa factor 9 replacements. Obujjanjabi obupya, gamba ng’obujjanjabi bw’obuzaale nabwo bunoonyezebwa.

Embeera eno ekosa etya omubiri gwo?

Okufaananako n’ebika ebirala eby’obulwadde bwa hemophilia, abantu abalina obulwadde bwa hemophilia B bavaamu omusaayi mungi era okumala ekiseera ekiwanvu okusinga ekya bulijjo nga bafunye obuvune, nga balongooseddwa oba nga baggyiddwako amannyo. Embeera eno esinga kukwata basajja, naye era esobola okukwata n’abakyala.

Abasawo bassa obulwadde bwa hemophilia mu kibinja ky’obulwadde obutono, obw’ekigero, n’obw’amaanyi . Abantu abalina obulwadde bwa hemophilia B obw’amaanyi basobola okuvaamu omusaayi mu binywa byabwe. Kino kiruma nnyo, era ekiseera bwe kigenda kiyitawo, kiyinza okuvaako embeera ng’endwadde z’enkizi. Abantu abamu beetaaga okulongoosebwa okuggyamu ennyondo ezonoonese ne bazizza mu kifo kyabwe. Era zisobola okuvaamu omusaayi mu bwongo, ekiyinza okutta obulamu bwabwe mu matigga.

Obulwadde bwa hemophilia B butera kwenkana wa?

Okusinziira ku bibalo mu Amerika, abasajja nga 4 ku buli 100,000 balina obulwadde bwa hemophilia B. Abakyala nabo babufuna, naye kizibu okwogera ddala bameka. Kubanga wadde balina obubonero ng’okugenda mu nsonga, bangi tebalowooza nti kikwatagana n’obulwadde bwa hemophilia.

Omanyi enjawulo eriwo wakati w’obulwadde bwa hemophilia A ne B?

Hemophilia A ne B byombi bulwadde bwa kuvaamu omusaayi obusikira. Wadde ng’obubonero buno bufaanagana nnyo, enkyukakyuka mu buzaale ezibuleeta za njawulo. Okunoonyereza kulaga nti obubonero bw’obulwadde bwa hemophilia B buyinza okuba nga butono nnyo okusinga obw’obulwadde bwa hemophilia A. Kino kitegeeza nti hemophilia B nayo mbeera ya maanyi, naye abantu ababulina bayinza okuba n’obuzibu obutono olw’okuvaamu omusaayi omungi. Wano waliwo enjawulo endala:

• Okunoonyereza kulaga nti abantu abalina obulwadde bwa hemophilia B bavaamu omusaayi mutono mu nnyondo (hemathroses) ate nga n’ennyondo tezikwonooneka nnyo.
• Okuvaamu omusaayi mu ngeri eyeetongodde tekitera kubaawo mu bantu abalina obulwadde bwa hemophilia B.
• Oluusi, mu kiseera ky’okujjanjaba obulwadde bwa hemophilia, omubiri gufuna obutoffaali obuziyiza endwadde obutaataaganya obujjanjabi. Kyokka abantu abalina obulwadde bwa hemophilia B tebatera kufuna bizibu bino.

Lwaki kino edda kyayitibwa ‘obulwadde bwa Ssekukkulu’?

Eno mboozi nnyuvu nnyo. Okumala emyaka egisukka mu 100, abasawo baali balowooza nti waliwo ekika kimu kyokka eky’obulwadde bwa hemophilia. Naye mu 1952, omunoonyereza yakozesa omusaayi gw’omusaayi gw’abantu musanvu abalina obulwadde bwa hemophilia (omu yatuumibwa ‘Ssekukkulu’) okujjanjaba abalwadde abalala abalina obulwadde bwa hemophilia. Ekyewuunyisa, obujjanjabi bwakola! Wano abanoonyereza we baakitegeera nti Mwami Ssekukkulu yalina ekika kya hemophilia eky’enjawulo, kwe kugamba, kyava ku nkyukakyuka mu buzaale obw’enjawulo. Kale ekika kino eky’okubiri ekya hemophilia baakiyita ‘Christmas factor’ oba ‘Christmas disease’. Oluvannyuma kyayitibwa hemophilia B.

Kiki ekivaako obulwadde bwa hemophilia B?

Nga bwe kyayogeddwako emabegako, hemophilia B bulwadde bwa buzaale obuva mu musaayi. Bw’oba ​​olina hemophilia B, kitegeeza nti osikira obuzaale obutali bwa bulijjo obukosa obungi bwa factor 9. Ebiseera ebisinga, waliwo gene eyitibwa F9, ekubuulira engeri y’okukolamu factor 9. Hemophilia B ebaawo nga gene eno eya F9 ekyusiddwa, ne kitondekawo gene etali ya bulijjo ekendeeza ku level ya factor 9, oba okumalawo ddala factor 9. Ebiseera ebisinga, abalenzi basikira hemophilia B singa baba... bamaama be basitula obulwadde buno.

Laba engeri gye bibaawo:

• Ffenna tufuna X chromosomes bbiri okuva ku maama waffe, X chromosome emu ate Y chromosome emu okuva ku kitaffe.
• Singa omukyala aba n’obuzaale bwa F9 obutali bwa bulijjo ku emu ku X chromosomes ze, ajja kuba atambuza obulwadde bwa hemophilia B, naye tajja kulaga bubonero. Kino kiri bwe kityo kubanga alina obuzaale bwa F9 obwa bulijjo ku X chromosome ye endala.
• Omukyala ono asobola okuyisa ensengekera ya X chromosome erimu obuzaale bwa F9 obutali bwa bulijjo eri mutabani we. Okuva bwe kiri nti abaana ab’obulenzi balina X chromosome emu yokka, bajja kufuna obulwadde bwa hemophilia B.

Oluusi, enkyukakyuka eyeetongodde tesikira okuva ku maama okudda ku mutabani.Obulwadde bwa Hemophilia B era busobola okuva ku nkola eyitibwa involution. Kino kibaawo ng’eggi n’ensigo byegattira wamu ne bikola embuto, oluvannyuma ne yeeyawulamu n’etandika okukola obutoffaali obupya. Obutoffaali buno obupya butambuza kkopi z’obuzaale obwali mu katoffaali akaasooka. N’olwekyo, oluusi ensobi, oba enkyukakyuka, zisobola okubaawo ng’obuzaale buno bukoppoloddwa. Singa wabaawo ensobi nga bakoppa obuzaale bwa F9, omwana wo ayinza okukwatibwa obulwadde bwa hemophilia B oba okufuuka omutambuze w’obulwadde bwa hemophilia B. (Bannabyafaayo n’abanoonyereza ku by’obusawo balowooza nti kino kyatuuka ku Nnabagereka Victoria owa Bungereza. Wadde nga tewali muntu yenna mu maka ge yalina obulwadde bwa hemophilia, naye yalina obulwadde bwa hemophilia. Obulwadde buno yabuyisa mu baana be. Abaana abo bwe baafumbiriganwa mu maka g’obwakabaka mu Spain ne Russia, abaana baabwe nabo baafuna obulwadde buno. Oluvannyuma kyazuulibwa nga hemophilia B.)

Bubonero ki obulaga obulwadde bwa hemophilia B?

Twagamba dda nti obubonero bwa hemophilia B buteekebwa mu kibinja ky’obubonero obutono, obw’ekigero, n’obw’amaanyi. Abasawo bino babigabanya okusinziira ku miwendo gya factor 9 mu musaayi.

Obulwadde bwa hemophilia obutono B

Abantu abalina emiwendo gya factor 9 wakati wa 6% ne 49% balina hemophilia B. Obubonero buba butono. Oluusi, abantu abalina obulwadde bwa hemophilia B obutono bazuulibwa nga bakuze, bwe baba nga beetegekera okulongoosebwa, nga banaatera okuzaala omwana, oluvannyuma lw’okufuna obuvune obw’amaanyi, oba, mu mbeera y’abakyala, nga bajjanjabwa omusaayi omungi okuva mu nsonga.

Obulwadde bwa hemophilia obw’ekigero B

Abantu abalina factor 9 levels wakati wa 1% ne 5% balina mild hemophilia B. Obubonero nabwo buba butono. Abaana abalina embeera eno batera okutandika okulaga obubonero nga bawezezza emyezi nga 18.

Abaana bano bayinza okuba n’obubonero nga:

• Ebiwundu: Binyiga n’okunyiga mangu nnyo.
• Okuvaamu omusaayi mu ngeri etaali ya bulijjo: Singa olongoosebwa, ekiwundu ekivaamu omusaayi, oba okuggyibwako amannyo, oyinza okuvaamu omusaayi omungi n’okumala ekiseera ekiwanvu okusinga ekya bulijjo.
• Okuvaamu omusaayi mu ngeri eyeetongodde: Tekitera kubaawo, okuvaamu omusaayi kuyinza okutandika awatali nsonga.

Obulwadde bwa hemophilia obw’amaanyi B

Abantu abalina factor 9 levels ezitasukka 1% balina hemophilia B. Obubonero buba bwa maanyi. Abaana abamu bayinza okutandika okuvaamu omusaayi nga bazaalibwa, nga bamaze okuzaalibwa, oba nga bamaze okukomolebwa. Abaana abalala bayinza obutalaga bubonero okutuusa nga wayise emyezi mitono nga bamaze okuzaalibwa. Obubonero obutera okulabika mulimu:

• Okuvaamu omusaayi: Abalongo abato n’abaana abato bayinza okuvaamu omusaayi mu kamwa singa ekintu ekitono, ng’akazannyo, kibayingidde mu kamwa.
• Ebizimba ku mitwe gyabwe: Singa omwana omuto akuba omutwe awalala, asobola okufuna ebizimba ebiringa amagi g’engo.
• Okukaaba ennyo, obutawummulamu oba okugaana okwekulukuunya oba okutambula:Bino bisobola okubaawo singa omwana avaamu omusaayi mu kinywa oba ekiwanga ekiri munda mu mubiri gwe. Ziyinza okulabika nga za bbululu ate nga zizimba mu bifo ebimu. Bayinza okuwulira nga babuguma nga bakwatako era omwana ayinza okuba ng’alumizibwa.
• Hematomas: Hematoma gwe musaayi oguzimba wansi w’olususu. Omwana naye asobola okufuna obulwadde bwa hematoma oluvannyuma lw’okumukuba empiso.
• Obuzibu mu kussa: Oluusi, olulimi lw’omwana luyinza okuzimba olw’okuvaamu omusaayi ne luziba omukutu gw’empewo.

Kino abasawo bakitegeera batya?

Abasawo bazuula obulwadde bwa hemophilia B nga bakebera omubiri, nga banoonya obubonero ng’okunyiga n’okuzimba ennyondo, n’okubuuza oba waliwo omuntu yenna mu maka alina obulwadde bwa hemophilia oba obuzibu obulala mu musaayi.

Okugatta ku ekyo, ebigezo bino wammanga nabyo bikolebwa:

• Complete Blood Count (CBC): Kino kikebera ebika by’obutoffaali mu musaayi n’omuwendo gwabwo.
• Okukebera Prothrombin Time (PT): Kino kikebera engeri omusaayi gwo gye guzimba amangu.
• Activated Partial Thromboplastin Time test: Kino nakyo kigezo ekipima ebbanga lye kitwala omusaayi okuzimba.
• Fibrinogen test: Okukebera okupima obungi bwa puloteyina eyitibwa fibrinogen, eyamba omusaayi okuzimba.
• Clotting factor test: Kino kye kiyamba okuzuula ekika kyennyini eky’obulwadde bwa hemophilia n’obuzibu bw’obulwadde.

Bujjanjabi ki obukolebwa ku kino?

Abasawo batera okujjanjaba obulwadde bwa hemophilia B nga bakozesa eddagala erikyusa ensonga . Kino kizingiramu okukuba empiso ya concentrated factor 9 mu musuwa. Ensonga eno esengekeddwa 9 ekola okudda mu kifo ky’ensonga ebula, eyamba okuziyiza omusaayi oguyitiridde oba okufuga omusaayi bwe gubaawo.

Mu budde obutuufu, abantu abalina obulwadde bwa hemophilia B obutono oba obw’ekigero beetaaga obujjanjabi buno nga balina okuba n’ekintu ng’okulongoosebwa. Kyokka, abantu abalina obulwadde bwa hemophilia B obw’amaanyi bayinza okwetaaga obujjanjabi obukyusa ensonga buli kiseera.

Waliwo ebizibu byonna ebiyinza okubaawo nga bajjanjabwa?

Ebizibu ebimu biyinza okubaawo mu bantu abamira obujjanjabi buno. Ebikulu kwe kukola ebiziyiza n'okukwatibwa akawuka .

Ebiziyiza

Ebiziyiza bibaawo ng’omubiri gukomye okukkiriza okukyusa ensonga ng’ekitundu ky’omusaayi gwagwo ogwa bulijjo. Ebiziyiza bino biremesa obujjanjabi obukyusa ensonga okukola obulungi. Kino kizibuwalira nnyo okukomya oba okukendeeza omusaayi. Abantu abalina obuzibu obw’amaanyi mu kuvaamu omusaayi nga bafuna dose ennene ez’obujjanjabi bwa factor batera okufuna ekizibu kino. Kino abasawo bakijjanjaba nga bakozesa ebintu ebirala ebisobola okumaliriza omusaayi okuzimba nga tebayise ku nsonga 9.

Obulwadde bw’akawuka

Tekitera kubaawo, yinfekisoni z’akawuka nga hepatitis C ziyinza okubaawo nga bakozesezza factor substitutes, ezikoleddwa okuva mu musaayi ogwaweebwayo. Kyokka, n’enkola z’okukebera eziriwo kati, akabi kano katono nnyo.

Obulabe bw’ekintu kino okubaawo busobola okukendeezebwa?

Olw’okuba obulwadde bwa hemophilia B bulwadde bwa nsikirano, tosobola kubuziyiza kukula oba okubuyisa mu baana bo. Ka tuyige ebisingawo katono ku nkola y’obuzaale mwe busikira:

• Bw’oba ​​oli mukyala era ng’olina obuzaale bwa F9 obutali bwa bulijjo ku emu ku X chromosomes zo (ekitegeeza nti oli carrier), abaana bo abasajja balina emikisa 50% egy’okulwala hemophilia B, ate abaana bo abakazi balina emikisa 50% okubeera carriers.
• Bawala bo, abasikira obuzaale buno, basobola okuyisa obulwadde bwa hemophilia B eri batabani baabwe. Bawala baabwe basobola okuba abasitula.
• Batabani bo abalina obulwadde bwa hemophilia B basobola okuyisa chromosome eno eri bawala baabwe.
• Bw’oba ​​musajja ate ng’olina obulwadde bwa hemophilia B, batabani bo tebajja kufuna bulwadde buno. Naye bawala bo bonna bajja kuba basitula ensengekera y’obutonde (chromosome) erimu obuzaale bwa F9 obutali bwa bulijjo.

Okubuulirira ku buzaale kikulu nnyo mu mbeera eno. Bw’oba ​​ggwe oba omuntu mu maka go alina obulwadde bwa hemophilia, kiba kirungi okusisinkana omukugu mu kubuulirira ku buzaale nga tonnazaala mwana.

Bwemba ndi lubuto, nsobola okumanya nga bukyali oba omwana wange alina embeera eno?

Yee, osobola. Abasawo basobola okuggya omusaayi mu nnabaana yo ne bagukebera oba tegulina bizimba. Mu ngeri eyo, ggwe ne bo musobola okumanya nga bukyali eky’okusuubira ng’ozadde omwana wo n’eky’okukola okutangira ebizibu okuvaamu omusaayi.

Bwemba nnina obulwadde bwa hemophilia B, kiki kye nsuubira?

Hemophilia B bulwadde obutawona. Abasawo tebasobola kuguwonya ddala. Kyokka waliwo obujjanjabi obuyinza okuziyiza oba okukendeeza ku bulumi obw’amaanyi mu binywa n’ebizibu ebirala eby’obujjanjabi. Abantu abasinga obungi abalina obulwadde bwa hemophilia B basobola okukuuma obulamu obulungi nga bafunye obujjanjabi.

Abantu abalina obulwadde bwa hemophilia B obw’amaanyi beetaaga okufuna empiso ezikyusa factor buli kiseera (okufuyira oba empiso) okujjanjaba obuzibu bw’okuvaamu omusaayi. Bayinza okugenda ew’omusawo okufuna obujjanjabi, omuntu ow’omu maka gaabwe oba omulabirira abawe empiso, oba bo bennyini bayinza okugikuba empiso. Kyokka abantu abalina obulwadde bwa hemophilia B obw’amaanyi beetaaga okujjanjabibwa buli kiseera okusobola okutangira omusaayi oguyitiridde.

Era bayinza okufuna embeera endala ez’obujjanjabi ezikosa obulamu bwabwe okutwalira awamu n’obulamu bwabwe. Ng’ekyokulabirako, abantu bangi abalina obulwadde bwa hemophilia B bafuna obuzibu obw’amaanyi mu maviivi oba mu bisambi, nga kyetaagisa okulongoosebwa okuggyamu ennyondo ezonoonese ne bazizzaamu empya. Bw’oba ​​olina obulwadde bwa hemophilia B, buuza omusawo ky’osuubira. Ye muntu asinga okukuwa amawulire agasinga kubanga amanyi embeera yo n’obulamu bwo okutwalira awamu.

Kiki kye nnina okumanya singa omwana wange alina embeera eno?

Omwana wo bw’aba alina obulwadde bwa hemophilia B obutono oba obw’ekigero, kikulu okutegeeza omusawo wo ku mbeera eno asobole okuziyiza omusaayi oguyitiridde singa omwana wo alongoosebwa oba okuggyibwako amannyo. Wano waliwo ebirala by’oyinza okuteesa. Omusawo wo ayinza okuba n’amagezi amalala:

• Abaana bo bwe baba bakyali bato nnyo, kebera oba entebe zaabwe empanvu n’entebe z’emmotoka zirina emisipi emituufu.
• Bwe bakula katono ne bazannya n’abaana abalala, abalabirira n’abasomesa b’amasomero balina okumanya eky’okukola singa omwana afuna obuvune mu butanwa n’atandika okuvaamu omusaayi.
• Omwana wo ajja kwetaaga okwewala emirimu egimu, gamba ng’emizannyo egizingiramu okukwatagana ennyo n’abalala oba okugwa.

Watya singa omwana wange alina obulwadde bwa hemophilia B obw’amaanyi?

Abaana abalina obulwadde bwa hemophilia B obw’amaanyi bajja kwetaaga obujjanjabi obulamu bwabwe bwonna – okuziyiza oba okukendeeza ku kuvaamu omusaayi, oba okuddukanya obubonero. Bino bye bimu ku bizibu by’oyinza okwolekagana nabyo, n’ebimu ku biyinza okukuyamba:

• Abalongo abalina obulwadde bwa hemophilia B, bwe baba bayiga okutambula, basobola okutandika okuvaamu omusaayi singa bakuba oba okugwa. Tekisoboka kuziyiza kugwa kwonna, naye kirungi okuteeka ebibikka ebikuuma ku nsonda ensongovu ez’ebintu mu maka.
• Omwana wo bw’agenda akula n’atandika okudduka n’okubuuka, yogerako n’omusawo wo ku by’okwerinda ng’enkoofiira n’ebisiba ku maviivi. Mu butuufu abaana bonna balina okwambala enkoofiira nga batambulira ku ddigi. Omwana wo ayinza okwetaaga obukuumi obw’enjawulo okwewala okutomeragana okuyinza okuvaamu omusaayi.
• Omwana wo ajja kwetaaga okufuna obujjanjabi buli kiseera okukomya okuvaamu omusaayi. Ayinza okuwulira obusungu n’okunyiiga olw’obutasobola kumala biseera na mikwano gye n’okusubwa emirimu gy’essomero ng’ate alina okugenda okujjanjabibwa.
• Omwana alina obulwadde bwa hemophilia akimanyi nti abasomesa be n’abalala bamanyi embeera gy’alimu. Ayinza okuwulira obubi ng’abasomesa n’abalala ku ssomero bagezaako okumuyamba naye nga bamuyisa mu ngeri ya njawulo.
• Abaana n’abavubuka abakulu bayinza okwetaaga okuyambibwa okukola ku nneewulira zaabwe n’okugumira engeri abalala gye beeyisaamu. Omwana wo bw’aba ali mu mbeera efaananako bwetyo, yogerako n’omusawo wo ku pulogulaamu oba ebibiina ebiyamba abavubuka.

Nnina obulwadde bwa hemophilia B. Nkola ntya okwerabirira?

Okubeera n’obulwadde bwa hemophilia B kitegeeza okukola emitendera egy’enjawulo okukuuma obulamu bwo okutwalira awamu, ate ng’ofaayo ku bujjanjabi bwo. Bino bye bimu ku biteeso:

• Weekuume obutakwatibwa yinfekisoni: Buuza omusawo wo ku kugema ki okukusaanira.
• Kuuma omugejjo omulungi: Bw’oba ​​okaluubirirwa okutambula olw’omusaayi munda n’okwonooneka kw’ennyondo, okufuga obuzito bwo kiyinza okukuyamba.
• Yingira mu nkola ya dduyiro: Oyinza okutya okulumwa ng’okola dduyiro. Yogerako n’omusawo wo ku ngeri gy’oyinza okukendeeza ku bulabe bw’okuvaamu omusaayi ng’okola emirimu.
• Fulumya situleesi yo: Obulwadde bwa Hemophilia B bulwadde bwa bulamu bwo bwonna. Kiyinza okukwetaagisa okufuba ennyo okusobola okukigeraageranya n’amaka go n’obuvunaanyizibwa bw’emirimu.
• Weewale eddagala erimu eriweweeza ku bulumi: Bw’oba ​​olina obulwadde bwa hemophilia B, tolina kumira aspirin oba ibuprofen. Eddagala lino eriweweeza ku bulumi litaataaganya omusaayi okuzimba.

Olina okulaba omusawo ku bujjanjabi bwo bw’otegese n’essaawa yonna ng’olina obubonero obulala bwonna, gamba ng’okuvaamu omusaayi mu ngeri etaali ya bulijjo oba okulumwa ennyo ennyondo.

Ddi lwe weetaaga okugenda okujjanjabibwa mu bwangu?

Bw’oba ​​olina obuvune ku mutwe , olina okugenda ew’omusawo mu bwangu. Obubonero buno buyinza okulaga nti olina omusaayi mu bwongo (intracranial hemorrhage):

• Okulumizibwa omutwe.
• Obunafu.
• Okuziyira n’okusiiyibwa.
• Okuzirika oba okusannyalala.

Bw’oba ​​tosobola kulekera awo kuvaamu musaayi olw’ekiwundu eky’ekika kyonna, oba bw’otandika okuvaamu omusaayi awatali nsonga, laba omusawo oba genda mu kisenge eky’amangu mu bwangu.

N’ekisembayo, ebintu by’olina okujjukira (Obubaka bw’okutwala awaka) .

Hemophilia B ngeri ndala etali ya bulijjo ey’obulwadde obutatera kulabika. Okufaananako n’obulwadde bwa hemophilia A, hemophilia B bulwadde bwa kuvaamu omusaayi obusikira. Wadde ng’okunoonyereza kulaga nti abantu abalina obulwadde bwa hemophilia B bayinza okuba n’obubonero obutali bwa maanyi okusinga abo abalina hemophilia A, hemophilia B ekyali mbeera ereeta okusoomoozebwa okuwerako mu by’obujjanjabi, mu bulamu, ne mu birowoozo.

Abakyala abasitula embeera eno bayinza okweraliikirira nti abaana baabwe bajja kugisikira. Abazadde b’omwana alina obulwadde bwa hemophilia B bayinza okweraliikirira okukuuma omwana waabwe obutafuna buvune mu butanwa. Oluvannyuma, bayinza okuba nga balina okuyamba omwana waabwe akula okuyiga okubeera n’obulwadde bwa hemophilia B. Abantu abalina obulwadde bwa hemophilia B obw’amaanyi bayinza okwetaaga okujjanjabibwa obulamu bwabwe bwonna okuziyiza omusaayi oguyitiridde.

Naye waliwo essuubi! Abanoonyereza banoonyereza ku bujjanjabi obupya, gamba ng’okukyusa obuzaale n’obujjanjabi bw’obuzaale. Bino biyinza okuleeta enjawulo nnene mu ngeri obulwadde bwa hemophilia B obw’amaanyi gye bujjanjabwamu. Bw’oba ​​ggwe oba omwana wo mulina embeera eno, buuza omusawo wo ku kugezesebwa mu malwaliro okuyinza okukusaanira. Jjukira nti singa abasawo bakuwa amagezi n’obujjanjabi obutuufu, osobola okubeera n’obulamu obulungi, obulungi ng’olina obulwadde bwa hemophilia B.

` Hemophilia B, okuvaamu omusaayi, endwadde z’obuzaale, okuzimba omusaayi, Factor IX, endwadde ez’obuzaale, obulwadde bwa Ssekukkulu