Nga maama oba taata, ffenna tufaayo nnyo ku bulamu bw’omwana waffe. Oluusi, n’omusujja omutono oba okulumwa n’obulumi mu mwana kiyinza okuba omugugu omunene ku mitima gyaffe. Leero, twogera ku kookolo atiisa abazadde, naye ekirungi tatera nnyo naddala mu baana abato. Oyo ye bulwadde bwa neuroblastoma. Wadde ng’erinnya eryo liyinza okuwulikika ng’eritiisa, kikulu okulimanya obulungi.
Ddala neuroblastoma kye ki?
Mu ngeri ennyangu, Neuroblastoma kookolo akula mu kitundu ky’obusimu bwaffe. Tulina omukutu gw’obusimu obutambuza amawulire mu mubiri gwaffe gwonna. Kilowoozeeko nga "enkola y'obubaka" y'omubiri gwaffe. Kino tukiyita `enkola y'obusimu obusaasizi.' Kookolo wa Neuroblastoma atandikira mu butoffaali bw’enkola eno ey’obusimu.
Eky’enjawulo ku kino kiri nti abalwadde abasukka mu 90% baana abali wansi w’emyaka 5. Kitera nnyo okulaba omwana asussa emyaka 10 ng’afuna obulwadde buno.
Ebiseera ebisinga, kookolo ono atandikira mu busimu bubiri obutono obukola obusimu obusangibwa waggulu w’ensigo. Zino ziyitibwa endwadde z’ekibumba (adrenal glands). Wabula kookolo ono asobola okutandikira wonna mu mubiri awali obutoffaali bw’obusimu.
Ekisinga obulungi kati waliwo obujjanjabi obukola ennyo ku mbeera eno, kale abaana balina emikisa mingi okuwona n’okubeera n’obulamu obulungi.
Kiki ekivuddeko embeera eno?
Ebiseera ebisinga, kookolo yenna ava ku nkyukakyuka ezimu, oba enkyukakyuka ezimu mu butoffaali obumu mu mubiri gwaffe. N’ekyavaamu, obutoffaali obwo butandika okukula nga tebufugibwa ne bukola ebizimba.
Mu neuroblastoma, kino kituuka ku kika ky’obutoffaali bw’obusimu obutakuze ng’omwana akyali mu lubuto. Obutoffaali buno obutakuze buyitibwa neuroblasts. Omwana omulamu bw’akula mu lubuto, obusimu buno bugenda bukula mpolampola ne bufuuka obutoffaali bw’obusimu obukulu, era obulala bufa.
Naye mu mubiri gw’omwana alina Neuroblastoma, olw’enkyukakyuka mu buzaale, obutoffaali buno obw’obusimu obutakuze tebufa, wabula mu kifo ky’ekyo bukuŋŋaanyizibwa ne bukula ne bufuuka ekizimba kya kookolo.
Wano waliwo ekintu kye mulina okujjukira ng’abazadde: Kino tekiva ku mmere gy’olya, dduyiro, obutonde bw’ensi oba ekintu ekirala kyonna ky’okoze ekikyamu. Eno nkyukakyuka ebaawo ku mutendera gw’obutoffaali mu mubiri gw’omwana wo.
Bubonero ki bwe tusaanidde okwegendereza?
Obubonero bw’obulwadde buno buyinza okwawukana ennyo. Bisinziira ku kifo ekizimba kya kookolo we kiri, obunene bwakyo, n’obuwanvu bwe kibunye. Obumu ku bubonero buno era busobola okulabibwa mu ndwadde eza bulijjo, gamba ng’omusujja oba okulumwa olubuto, ekifuula okuzuula obulwadde okusoomoozebwa katono.
"Oluusi obubonero obusooka buba bintu bya bulijjo ng'omwana obutalya bulungi, okuwulira ng'akooye, n'okulumwa omubiri emirundi mingi. Bino bisobola okulabibwa ne bwe biba n'omusujja omutono ogw'akawuka," omusawo wa kookolo w'abaana bw'agamba. Kale kikulu okumanya obubonero buno.
| Ekifo kookolo w’ali | Obubonero obuyinza okuvaamu |
|---|---|
| Ebikwatagana n’olubuto (olubuto). |
|
| Okwetoloola ekifuba oba ensingo | |
| Kookolo bw’asaasaana mu bifo ebirala (Metastatic) . |
Ebintu ebirala bibiri eby’enjawulo
- Amabala g’olususu:Mu kika eky’enjawulo ekisangibwa mu balongo bokka, obuzimba obutonotono obulinga bbululu buyinza okulabika ku lususu. Kano kabonero akalaga nti kookolo asaasaanidde ku lususu. Wabula embeera eno ejjanjabibwa era etera okukendeera oba okuwona ku bwayo.
- Ebikosa obusimu: Ebizimba ebimu ebiyitibwa neuroblastoma bifulumya obusimu, ekiyinza okuvaako obubonero ng’ekiddukano ekitaggwaawo, omusujja, puleesa, okutuuyana ennyo, n’okufuumuuka kw’olususu.
Omusawo azuula atya ddala obulwadde buno?
Nga bwe twayogeddeko emabegako, obubonero buno bungi bufaananako n’endwadde eza bulijjo, n’olwekyo okuzuula embeera eno kiyinza okuba ekizibu. Kale omusawo wo ajja kukola ebigezo ebiwerako okukakasa oba omwana wo alina kookolo ono atatera kulabika.
- Okukebera omusaayi n’omusulo: Okukebera kuno kunoonya obusimu obumu obukolebwa ebizimba by’obusimu obuyitibwa neuroblastoma mu musaayi oba mu musulo.
- Okukebera ebifaananyi: Bino bisobola okuyamba okuzuula ekifo kookolo w’ali, obunene n’okusaasaana. Sikaani nga ultrasound, X-ray, CT, PET, oba MRI ziyinza okukozesebwa ku kino.
- Biopsy: Mu bujjanjabi obubudamya, akatundu akatono akaggibwa mu kizimba oba mu busimu bw’amagumba ne kakeberebwa mu microscope okuzuula oba waliwo obutoffaali bwa kookolo.
- MIBG scan: Kino kika kya njawulo ekya sikaani y’eddagala lya nukiriya. Okukebera kuno okuyitibwa ``MIBG scan'', kusobola okuzuula obulungi ebifo obutoffaali bwa Neuroblastoma we buli.
Ng’oggyeeko okukeberebwa kuno, ebintu ng’obutoffaali bw’omusaayi bw’omwana, ekibumba, n’enkola y’ekibumba nabyo bikeberebwa.
Bujjanjabi ki obukolebwa ku kino?
Obujjanjabi omwana bw’afuna businziira ku bintu ebiwerako. Abaana bagabanyizibwa mu bibinja bisatu eby’akabi : ab’akabi akatono, ak’akabi ak’omu makkati, n’akabi ennyo, okusinziira ku myaka gy’omwana, omutendera gwa kookolo, okutuuka wa kookolo w’asasaanye, n’ekika ky’obutoffaali bwa kookolo. Obujjanjabi butegekebwa okusinziira ku kibinja kino eky’akabi.
Waliwo enkola enkulu eziwerako ez’obujjanjabi:
- Okwetegereza: Tokyewuunya, ebizimba ebimu eby’akabi akatono, ebitonotono bijja kukendeera oba okubula ku bwabyo awatali bujjanjabi bwonna. Mu mbeera ng’ezo abasawo bajja kulondoola omwana ono nnyo.
- Okulongoosa: Okuggyawo ekizimba mu bujjuvu nga bayita mu kulongoosa.
- Chemotherapy: Okuwa eddagala ery’amaanyi ng’oyita mu musuwa oba ng’empeke okutta obutoffaali bwa kookolo oba okubulemesa okwawukana.
- Obujjanjabi bw’amasannyalaze: Okukozesa emisinde egy’amaanyi amangi (nga X-rays) okusaanyaawo obutoffaali bwa kookolo.
- Okusimbuliza obutoffaali obusibuka mu mubiri:Obujjanjabi obukozesebwa ku baana abali mu bulabe obw’amaanyi. Mu kino, obutoffaali bw’omwana yennyini obulamu bukuŋŋaanyizibwa, eddagala ery’amaanyi ne likozesebwa okusaanyaawo obutoffaali bwa kookolo, oluvannyuma obutoffaali obulamu ne buddizibwa mu mubiri.
- Obujjanjabi obw’omulembe: Waliwo obujjanjabi bungi obupya era obukola obulungi ennyo obuliwo leero.
- Obujjanjabi obugendereddwamu: Okuwa eddagala erigenderera n’okuziyiza obutoffaali oba enziyiza ezenjawulo eziyamba obutoffaali bwa kookolo okukula.
- Obujjanjabi bw’abaserikale b’omubiri: Okusitula abaserikale b’omubiri gw’omwana yennyini okutegeera n’okulumba obutoffaali bwa kookolo.
Emikisa ki egy’okuwona obulwadde buno?
Kino kye kibuuzo ekisinga obukulu eri abazadde. Omuwendo gw’okuwangaala olw’obulwadde bwa neuroblastoma gusinziira ku myaka gy’omwana n’omutendera gw’akabi.
Abaana abali mu bibinja eby’akabi akatono n’aka wakati naddala abaana abato, balina emikisa mingi nnyo egy’okuwona egya 90% - 95% . Ku baana abali mu kibinja eky’akabi ennyo, omuwendo guno guli nga 60% . Olw’okukulaakulana kwa tekinologiya, ebitundu bino ku buli kikumi byeyongera buli lunaku.
N’olwekyo, bw’olaba obubonero bwonna obuteeberezebwa, ekisinga obulungi kwe kulaba omusawo mu bwangu n’ofuna amagezi.
Obubaka Obutwala Awaka
- Neuroblastoma kika kya kookolo ekitali kya bulijjo era asinga kukwata baana abali wansi w’emyaka 5.
- Kino kiva ku nkyukakyuka mu buzaale ebeerawo mu butoffaali bw’obusimu obutakuze (neuroblasts) ng’omwana ali mu lubuto. Kino tekivudde ku nsobi yonna ya bazadde.
- Weetegereze obubonero ng’ekizimba mu lubuto, okugejja mu ngeri etategeerekeka, okunyiga okwetooloola amaaso, n’okulumwa amagumba.
- Kino kisobola okuzuulibwa obulungi nga bayita mu sikaani n’okukeberebwa mu bitundu by’omubiri (biopsy tests).
- Waliwo enkola nnyingi ez’omulembe ez’obujjanjabi ezituuse ku buwanguzi ennyo ku kino, omuli okulongoosa, eddagala eriweweeza ku bulwadde, n’obujjanjabi obw’amasannyalaze.
- Omuwendo gw’abawona guli waggulu nnyo naddala eri abaana abali mu bibinja eby’akabi akatono n’aka wakati. N’olwekyo, kyetaagisa nnyo okunoonya obujjanjabi obutuufu awatali kutya.
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