I naute hian lip/palate a cleft em? (Cleft Lip/Cleft Palate) - Hei hi i fimkhur ang u!

A awlsam zawngin, cleft lip leh cleft palate hi naute hmui chunglam emaw, a hmui chunglam emawa hawnna a ni. Chungte chu piansualna/piangsualna anga ngaih a ni . Chumi awmzia chu heng dinhmunte hi naute chu nausen pum chhunga a la awm laiin, a nih loh leh nausen lo piang chhuak lai, hmai peng hrang hrangte inzawmkhawm laiin a thleng tihna a ni. Hei hi hmui chunglam leh hmui chunglam siamtu tissue te chu a inzawm tha lo a nih chuan a thleng thin. Mahse lungngai suh, heng pahnih hi surgery hmangin nasa takin siamthat theih a ni.

Cleft lip chu eng nge ni?

Kan hmui hi naupai atanga kar li atanga kar sarih inkar velah a lo piang tan thin. Lu sir lehlamah tissue te chu hmai lai takah an inzawm khawm a, hmui leh hmui an siam a ni. Cleft lip hi heng hmui siamtu tissue te hi an inzawm kim loh chuan a lo awm thin.

Thil thleng chu hmui chunglam sir pahnih inkarah hian gap te tak te emaw lian emaw a lo awm ta a ni. He cleft hi a chang chuan crack te tak te a ni thei a, a nih loh leh gap lian tak, hnar thlenga zau a ni thei bawk. Hetianga inthenna hian gums emaw palate emaw a nghawng thei bawk.

Cleft Palate tih hi eng nge ni?

I palate hi naupai kar ruk atanga kar kua inkarah a lo thang lian thin. Cleft palate chu i hmui chung lama inthen emaw, inhawng emaw, he hun chhunga lo awm hi a ni. A hmalam a hard palate, a hnung lama soft palate emaw, a pahnih emaw a nghawng thei.

Kawngkhar leh hmui hrual (cleft lip and palate) hi hmui sir khatah emaw, a sir lehlamah emaw a awm thei. Cleft lip leh palate hi a hranin a lo awm avangin a hnuaia thil awmte hi a lo awm thei a ni:

• Cleft lip nei lovin cleft palate a awm lo.
• Cleft palate a awm lo.
• A hmui cleft leh cleft palate pahnih - Hei hi a tam ber.

Hetiang dinhmun hi engtiang chiahin nge a awm?

Dik tak chuan heng cleft lip leh cleft palate an tih te hi Sri Lanka ramah pawh hmuh tur a awm a ni. America ramah chuan hengte hi piansualna awm tam ber pakhat a ni.

Chuta data (US Centers for Disease Control and Prevention) atanga a lan dan chuan:

• Naute 1,600 zinga pakhat vel chu hmui leh hmui hrual vek neiin an piang a ni.
• Naute 2,800 zinga pakhat vel chu hmui hrual neiin an piang a, hmui hrual nei lovin an piang a ni.
• Nau piang 1,700 zinga pakhat vel chu hmui hrual ni lovin, hmui hrual neia piang an ni.

Cleft lip (cleft palate nei emaw nei lo emaw) hi naute mipaah ​​a tam zawk. Cleft palate chauh (cleft lip tel lo) hi naute hmeichhiaah a tam zawk.

Hmuh leh hmui cleft awm chhante chu engte nge ni?

A tam zawkah chuan hmui emaw, hmui emaw a cleft chhan dik tak hriat a harsa thin . Nu leh pate ven theih thil a ni lo. Scientist tam zawk chuan genetic influence leh environment factors pahnih inzawmkhawm avanga lo awm niin an ngai.Hetiang dinhmun hi a thleng niin a lang. Chhungkaw zinga tu emaw, chu chu unau, nu leh pa emaw, chhungte dang emaw pawhin he natna hi a neih chuan nausen piang thar pawhin a vei theihna chance tlem a sang zawk niin a lang.

Risk factors te chu engte nge ni?

Naupai laiin damdawi thenkhat i hman chuan i naute chu a hmui/kawp (cleft lip/palate) a neih theihna chance a sang deuh mai thei. Entir nan:

• Epilepsy ang chi natna atana pek damdawi thenkhat (Antiseizure damdawi).
• Damdawi `(Accutane®)` awmna, hmai vun natna.
• Methotrexate hi natna chi hrang hrang cancer, arthritis, leh psoriasis te enkawlna atana hman thin a ni.

Tin, nu nena inzawm thil dangte pawhin hei hi a nghawng thei bawk:

• Folic acid tlakchham vang a ni.
• Obesity tih awmzia chu thau lutuk tihna a ni.
• Naupai laia zuk leh hmuam hman.
• Substance hmansualna (substance hmansualna) a ni.
• Naupai laiin virus emaw chemical emaw thenkhat nena inzawmna.

Hei hi genetic a ni em? (Cleft lip/cleft palate hi genetic a ni em?)

Zirna thenkhatah chuan cleft lip leh cleft palate inkarah hian genetic link a awm tih an sawi. Entirnan, nangmah emaw i kawppui emaw hian a pian tirh khan hmui emaw, i hmui emaw a cleft emaw a nih chuan i naute hian he natna hi a vei theihna chance 2% atanga 8% vel a ni. Naupang hmui hrual/a hmui cleft nei i neih tawh chuan i fa lo awm tur hian he natna hi a vei theihna a sang deuh hlek a ni.

Hetiang dinhmun hian eng harsatna nge a thlen?

Naute hmui hrual emaw, hmui hrual emaw neia piangte chuan chaw pek harsatna an nei thei (bottle-a pek leh hnute pek pawh) . Thusawi harsa an nei thei bawk. Vawi tam tak chu, beng hnung lamah tui a awm khawm a, chu chuan hriatna a tichhe thin . Naute thenkhat chuan ha lam harsatna an nei bawk .

Engtin nge hmui leh hmui hrual (cleft lip and palate) hi kan hriat theih ang?

A tam zawkah chuan prenatal ultrasound neih laiin cleft lip hi hriat theih a ni . Hei hi a chhan chu hmui hrual (cleft lip) hian naute hmaiah taksa a tidanglam thei a ni. Mahse, hmui cleft nei lo cleft palate (Isolated Cleft Palate) chauh a awm chuan hetiang hian hriat a harsa deuh. Chutiang case zinga 7% chauh chu ultrasound hmangin hmuhchhuah a ni.

Hei hi ultrasound-a hmuhchhuah a nih loh chuan naute pian hnuah hmui, hnar leh hmui chu enfiahin hmui emaw, hmui emaw a cleft em tih hriat theih a ni.

A châng chuan doctor chuan amniocentesis tih test a rawt thei a, chu chu naute vêla amniotic fluid sample lak a, genetic condition dang a awm leh awm loh enfiah a ni.

Pian hmain hmui hrual (cleft lip) hi hriat theih a ni em?

A tam zawkah chuan doctor-te chuan kar 20 chhunga i ultrasound scan (Anatomy Scan)-ah hmui hrual (cleft lip) an hmuchhuak ang a, chu chu naupai kar 18 leh kar 22 inkar scan a ni. A châng chuan kar 12 hnuah pawh hriat theih a ni. Mahse, ultrasound hmanga cleft palate hmuhchhuah chu a harsa deuh.

Cleft lip/palate enkawlna tur engte nge ni?

Cleft lip leh/ emaw cleft palate chu operation hmanga enkawl a ni . He enkawlna chipchiar tak chu a cleft lian leh te, naupang kum leh mamawh bik emaw, hriselna lama harsatna dang emaw an neih danah a innghat a ni. I fa chu damdawi inah he surgery hi a nei ang a, general anesthesia hnuaiah , chu chu an muhil vek tihna a ni.

Cleft Lip siamthatna tur

Hmui hrual (cleft lip) chu operation vawi khat emaw vawi hnih emaw neih a ngai thei. Surgery hmasa ber hi i naute thla 3 leh thla 6 inkar a nih chuan tih thin a ni. He surgery hian hmui a siam tha ang a, a khar ang. Surgery vawi hnihna neih a ngai a nih chuan i naute thla 6 vel a nih laiin tih thin a ni tlangpui.

Surgery hmaa result tihchangtlun nan technique hrang hrang hman theih a awm. Hengte hi noninvasive methods an ni a, i naute hmui, hnar leh hmui pianzia nasa takin a thlak danglam thei a ni. Entir nan:

• Lip-taping regimen hian naute hmui cleft chu a ti tawi thei hle.
• Nasal elevator hian naute hnar chu natural shape-a siam turin a pui a ni.
• Nasal-Alveolar Molding (NAM) device hian lip tissue chu surgery atan a tha zawkin a siam thei a ni.

Cleft Palate siamthat a ni

Cleft palate surgery hi naute thla 12 vel a nih chuan tih a ni tlangpui. Hei hian naute beng lai takah tui a awm theihna tur a ti tlem a, a hmui (palate) hnathawk thei tak siam a ni. Hetianga a pungkhawm loh nan hian naupang cleft palates nei te hian an beng bulah tube bik dahin tui chu a chhuah tir thin. An doctor-te chuan kum khatah vawi khat vel an hriatna an enfiah ang.

Naupang cleft palates nei zinga 40% vel chuan an thusawi tihchangtlun nan operation dang an mamawh dawn a ni . Speech pathologist chuan i fa kum 4 leh 5 inkar a tawng dan a zirchiang ang a , nasopharyngeal scope ( hnar atanga camera dah) hmangin lei leh hmui inher dan a en thei ang. I fain a thusawi a tihchangtlun nan operation a mamawh chuan kum 5 vel a nih chuan tih thin a ni tlangpui.

Naupangte pawhin gum line tichhe thei cleft nei te pawhin kum 6 leh 10 inkar ah bone graft an mamawh thei bawk a, he procedure hian upper gum line a luah khat a, ha awm reng tur tanpuina a pe a, upper jaw chu a stabilize bawk. Ha nghet tak a lo luh veleh i fa chu a ha tihdik a ngai mai thei.Palate tihzauh nan braces leh palate expander hman a ngai fo thin.

I fa chu operation dang neih belh a ngai mai thei a, chu chu:

• Ka hmui leh hnar hmel siam that.
• I hmui leh hnar inkar kawngkhar chu khar rawh.
• Thâwk lak a awlsam phah ang.
• I jaw kha stabilize la, straight rawh.

Surgery hian thisen chhuah, natna hrik kai, leh nerve, tissue emaw, thil dang tihchhiat te ang chi hlauhawmna a keng tel thei a ni. Mahse, cleft lip leh palate surgery hi a hlawhtling tlangpui a, risk a tlem hle. Cleft lip surgery hnuah pink scar te tak te a awm a, chu chu naupang a lo puitlin chuan a bo zauh zauh tur a ni.

Nonsurgical treatment te chu engte nge ni?

Naupang hmui hrual emaw, hmui hrual emaw nei te chuan operation tih loh chu enkawl an ngai mai thei. An doctor ten enkawlna dang an rawt theih chu speech therapy leh orthodontic treatment te hi a ni .

Heng naupangte hi tuin nge enkawl?

hmui emaw, hmui emaw cleft emaw avanga hmui hriselna leh damdawi lama harsatna awm tam em avangin, healthcare provider team pakhatin enkawlna ruahmanna kimchang tak an siam a ni I fa enkawlna hi nausen lai atanga tan a ni tlangpui a, puitling naupang thlengin a chhunzawm fo thin.

An healthcare team-ah hian:

• Naupang Plastic Surgeon pakhat a ni.
• Naupang enkawltu doctor a ni.
• Otolaryngologist (beng, hnar leh beng lama mithiam) a ni.
• Lactation Support Provider te chuan chaw pek hmaa tanpui turin.
• Orthodontist chu ha lam specialist a ni a, ha a tidik a, a awmna tur dik takah a sawn thin.
• Ha enkawltu emaw naupang dentist emaw, ha enkawlna tlangpui pe thin.
• Ha siam leh ha hmanrua siamna lama mithiam (Prosthodontist).
• Speech-Language Pathologist (SLP) te hian thusawi lama harsatna awmte an zirchiang thin.
• Audiologist, hriatna test leh enkawltu.
• Chhungkaw enkawltu leh naupang insiamrem danah harsatna a awm leh awm loh enfiahtu social worker/psychologist.
• Nu leh pa leh puitling damlote tanpuitu genetic counselor te chuan nakin lawkah cleft palate/lip nei fa an neih theih dan tur an hriatthiam theih nan.

Cleft lip/palate hi a veng thei ang em?

I naute hian a hmui/a hmui (cleft lip/palate) a neih loh nan a khap tlat theih loh . Mahse, naupai laiin cigarette, zu leh damdawi thenkhat ei loh chuan a hlauhawmna chu i tihziaawm thei a ni. Thu chiang zawk hriat duh chuan i doctor nen inbia ang che.

Chung naupangte hmalam hun chu eng ang nge ni ang?

Enkawlna atan kum tam tak a daih thei a, operation vawi tam tak neih a ngai thei bawk. MahseHetiang natna nei naupang tam zawk hian naupan lai pangngai an nei thin. Enkawlna nen chuan tawng leh ei leh in lama harsatna a lo tha chho thei a ni. Ṭhenkhat chuan an hmui pianzia emaw, a hliam emaw chu an hrethiam zawk mai thei. I fa doctor-te nen kum tam tak chhunga an puih theih dan tur che sawipui rawh.

Nausen hmui/hmeh hrual nei chu hnute pek theih a ni em?

I naute chu hmui leh/ emaw, hmui hrual (cleft lip and/or palate) hmangin hnute pek theih a ni . Mahse, damdawi lam thiam trained tak hnen atangin tanpuina i mamawh ang . Naupai hlawhtlinna chu thil engemaw zatah a innghat a, chungte chu:

• Crack chi, a lian leh a awmna hmun.
• I hnute i pekna position.
• I naute hian he thil nena inzawm syndrome a neih leh neih loh (chu chuan nau hnute pekna tibuaitu symptom dang a nei thei bawk).
• Nu hnute pek dan zirtirna leh puihna i dawn te.

Naute hian hnute atanga hnute chu suction hmangin an hnute chu an hnim thin. A hmui cleft leh/ emaw cleft palate hian naute chu he suction hi a hmang thei lo thei a ni.

Research atanga a lan dan chuan naute thenkhat, hmui hrual chauh nei te hian hlawhtling taka hnute pe thei tur khawpa suction an nei thei a ni. Naute, clefts te tak te, soft palate chauh tichhe thei te pawhin a tul angin suction an nei thei bawk.

Mahse, naute zingah hian hetiang hian grasping power neih hi a harsa tlangpui:

• Naute hmui leh hmui hrual pahnih nei tan.
• Naute, luruh khauh leh/ emaw, a nêm lai a nghawng thei crack lian tak tak nei tan.

He naute hian hnar chhung lam leh hmui chhung lam inthen dan mumal a awm loh avangin hnute hnek theihna neih a harsat phah thei a ni.

I naute chu a latch on ṭha thei lo a nih chuan, chutianga tih tum chu a hahthlâk hle thei a ni . Nasal regurgitation emaw reflux emaw an nei thei bawk. Nausen \henkhatin bawnghnute an dawng tlem thei a, chu chuan chaw pek leh thanna kawngah harsatna a thlen thei a ni.

Naute hmui/hmei hrual (cleft lip/palate) nei hnute pekna tur support

Hriat hmasak tur chu nangmah chauh i ni lo tih hi a ni . Chhungkaw dang tam tak pawhin hetiang dinhmun hi an tawk mek a, nau hnute pek emaw, duhthlan tur dang emaw enkawl dan tur pawh an ngaihtuah mek bawk.

Vanneihthlak takin, naute hnute pek dan tur zawng turin lactation consultant leh hnute pek dan thiam, hnute pek dan thiamte pawh an awm reng a ni. Heng mite hian hnute i pek theih loh pawhin an pui thei che a ni. Naupai lai pawhin a rang thei ang bera hmu turin appointment siam rawh. I naute enkawl dan tur leh beisei tur te i zir thei ang.

Lactation consultant chuan heng thilte hi a pui thei ang che:

• Nau hnute pek theih a nih leh nih loh hriat chian.
• I bawnghnute supply kha enkawl rawh.
• Nu hnute tui express dan zir la, kut hmangin emaw, hnute pump hmangin emaw.
• Nangmah leh i naute nena inmil tur hnute pekna hmun tha ber zawng rawh.
• I naute hian tui a dawng tlem em tih enfiah rawh.
• I naute rihna a pun leh than dan hi en reng ang che.
• A tul chuan chaw pek belh (formula emaw donor breast milk substitutes) pek belh tur a ni.
• Cleft lip/palate surgery hnuah nang leh i naute tan hnute peknaah tanpui rawh.

Nau hnute i pek theih loh chuan support rawh

Mi zawng zawngin theihtawp chhuah mah se, i naute hian hnute a\angin direct-in a hnute a pe thei lo mai thei tih hriat a pawimawh. Hei hi operation hnuah pawh a la awm thei tho. Mahse, i lactation consultant chuan i naute chaw pek dan tur leh inzawmna tur kawng dang zawng turin a pui thei che a ni.

Entîr nân, i doctor chuan hnute tui express-naah a ṭanpui thei che a ni . Hei hian hnute tui (kut emaw, pump emaw) express a, spoon, cup, bottle, syringe hmanga i naute hnena pek a huam a ni. Bottle thenkhat chu i naute chu hnute hnek kawngah tanpuina tlem tal pek belh turin siam a ni. I doctor chuan i tana bottle dik tak thlang turin a pui thei che a ni.

Nau hnute pek hian i naute chu i hnute chhunga ei tur pawimawh tak tak a pe a ni. Nausen hnute pek hian i naute beng natna vei theihna a ti tlem thei bawk , hei hi naute hmui/hmei hrual (cleft lip/palate) te zingah a awm fo thin.

I doctor chuan naute hnute pek tum turin a fuih thei bawk che a, i naute hian hnute pek tur a dawng tlem hle a nih pawhin. Chutianga tih chuan i bawnghnute supply chu a vawng reng thei a ni. I naute thlamuanna leh inzawmna siamna kawng pawimawh tak a ni bawk.

I fa hian eng ha enkawlna nge a mamawh?

A tlangpuiin naupang cleft nei te hian naupang dang ang bawkin ha mamawh an nei ve tho. Mahse, naupang hmui leh hmui hrual (cleft lip and palate) nei naupangte chuan ha an nei lo thei a, an ha pianzia a danglam thei a, an ha a inmil lo thei bawk. Thurawn thenkhat chu hetiang hi a ni:

• Ha enkawl hmasak: I fate hian an ha hrisel a nih theih nan ei leh in tha, silfai tha, leh fluoride hmanga enkawlna a mamawh a ni. An ha a luh tan veleh i fate ha chu toothbrush te tak te, hrual nem tak hmangin silfai ang che. He toothbrush hian an hmui leh ha pianzia inang lo avanga an ha a tifai tha thei lo a nih chuan dentist chuan hmui silna nen sponge nem tak hman a rawt thei ang. I fa chu ha enfiahna atan engzat nge a ha lak tur tih zawt rawh.
• Orthodontic Care: Ha nghet tak a lo luh hnuah orthodontist chuan i fain hun rei lote leh hun rei tak chhunga ha a mamawh dan a zirchiang ang. Naupang tam tak, cleft palate nei tam tak chuan kum 6 emaw 7 emaw velin palatal expansion an mamawh ang a, ha nghet zawng zawng a lo luh hnuah orthodontist chuan braces hmangin ha chu a tidik thei a ni. I fa pawhin orthognathic surgery atana inbuatsaih nan orthodontic care a mamawh thei bawk.
• Prosthodontic Care: Prosthodontist chuan ha bo chu ha bridge hmangin a thlak thei a, a nih loh leh thusawi tihchangtlunna tura pui turin speech bulb emaw palatal lifts tih hming pu hmanraw bik a siam thei bawk. Prosthodontist hian oral emaw plastic surgeon leh speech therapist te nen thawhhona tha tak neiin hna a thawk thin.

Cleft lip leh palate avanga harsatna awmte chu engte nge ni?

Naupang cleft nei te hian ei leh in lama harsatna te, hriatna lama harsatna te, leh tawng thiam lohna te an nei fo thin . Naupangte pawhin ha lam harsatna emaw, mahni inngaihsakna lama harsatna emaw an nei thei bawk.

• Ei leh in lama harsatna: Ka hmuiah cleft emaw, inhawng emaw a awm chuan ei leh in tur chu hnar kaltlangin ka atang hian a lo chhuak leh thei a ni. Nausen thenkhat chuan hnute an pek that loh avangin nausen hnute pek emaw, bottle-a pek emaw an harsat thin.
• Hearing Loss: Naupang cleft palate nei te hian glue ear an nei tam zawk a, hei hian enkawl loh chuan hriatna a tichhe thei a ni.
• Thusawi lama harsatna: Naupang hmui hrual (cleft palates) nei te hian tawng harsatna an nei thei. An aw chu a hriat chian loh phah thei a, an thusawi pawh hriatthiam harsa tak a ni thei bawk. Naupang zawng zawng hian heng harsatnate hi an nei vek lo va, operation hmangin siamthat theih a ni.
• Ha lama harsatna: Naupang cleft nei te hian cavities an nei tam zawk a, ha an hloh a, an lo sei dik lo a, an dinhmun an thlak danglam nasa zawk bawk.

Ha awmna upper gum ruh awmna alveolar ridge -ah chhiatna an nei tam zawk. He alveolar ridge-a chhiatna awm hian:

• Ha nghet tak chu a che thei a, a lo chhuak thei a, a inher thei bawk.
• Ha nghet tak puak chhuak tur a veng thei a ni.
• Alveolar ridge siam hi a veng thei a ni.
• Canine ha leh incisor ha lo chhuak te hi a hun hmain a tla chhuak thei.
• Emotional emaw Social Problems: Naupang clefts nei te hian an hmel lan danah inngaitlawm emaw, mualphona emaw an nei thei a, an naupan lai pawhin. Hei hian sikulah rilru lam, khawtlang nun, nungchang lama harsatna a thlen thei a, mahni inngaihhlutna a nghawng thei bawk.

He natna hi i naute chu a pum chhunga a la awm laiin, emaw, i naute pian hnuah emaw ultrasound scan-ah i hre tawh mai thei. Mahse, hmui emaw, hmui emaw hrual (cleft lip or palate) neih hi thil buaithlak tak, thumal hmanga sawi harsa tak a ni thei. I nautein operation a mamawh tur te, a dam leh dan tur te, leh a naupan lai hun eng ang nge a nih dawn tih te i ngaihtuah mai thei. I naute medical team chu i chhungte zawng zawng (nang pawh tel vein) tanpui turin an awm tih hre reng ang che.I zawhna leh ngaihtuahna zawng zawng chu sawi hreh suh. Tichuan i rilru i siam thei ang a, i hmaa zinkawng hmachhawn tur chuan i mamawh information i hmu thei ang.

He thawnthu atang hian kan in lama kan hruai tur pawimawh ber berte (Take-Home Message) .

I naute hian hmui emaw, a hmui emaw a cleft tih i hriat chuan i rilru a buai tih hi thil pangngai a ni. Mahse, nangmah chauh i ni lo tih hre reng ang che .

A pawimawh ber chu heng natna pahnih tan hian enkawlna tha tak tak a awm a ni. Ni e, hun a duh a, vawi tam tak operation a ngai thei bawk. Mahse damdawi lam enkawlna mumal leh i chhungte hmangaihna leh thlawpna i neih chuan i fa chu mi zawng zawng ang bawkin nun hlim leh hrisel takin a nung thei a ni.

A tir lama chaw pek leh a hnua inbiakna ang chi thilte chu a bik takin ngaihven a ngai dawn a ni. Chu zawng zawnga pui turin mi tam tak an awm a, doctor leh speech therapist te pawh an tel a ni.

A naupan lai pawhin i naute hian a hmel lan danah a lungngai deuh mai thei. Chutih hunah chuan amah hriatthiam a, hmangaihnaa biak a, thlamuan a pawimawh hle. Heng zawng zawng hi i doctor nen sawiho rawh. Anni chuan chiang takin an kaihruai ang che.

Chuvangin, chak takin awm la, he zinkawng i zawh hian doctor-te thurawn zawm rawh. I naute chu a dam thuai ang a, nuihzat hmel takin khawvel a hmu ang!

` Hmui hrual, hmui hrual, nau piangsual, naute hriselna, surgery, speech therapy, nau hnute pek