I doctor chuan nangmah emaw, i chhungte zinga mi tu emaw chuan Pompe natna an tih hi a awm lo tih a hrilh tawh em? Chutiang a nih chuan vawiin hian a damdawi kan sawi dawn a ni. He damdawi hming hi Avalglucosidase Alfa a ni. Brand name Nexviazyme hmangin i hre mai thei. He hming hi a buaithlak deuh a, chuvangin zawhna tam tak i nei mai thei. Ngaihtuah buai suh, heng zawng zawng hi i hriatthiam theih tur khawpa awlsam takin kan sawi dawn a ni.
A awlsam zawngin, hei hi eng damdawi nge ni?
Kan taksa hi factory lian tak ang maiin han ngaihtuah teh. He factory-ah hian engkim a thawk tha tur chuan hna hrang hrang thawktu an awm a ngai a ni. Kan taksaa hnathawkte hi enzyme kan ti thin .
Pompe natna vei te hi an pian tirh atanga enzyme bik tlakchhamna nei an ni. He enzyme hna hi kan taksa peng leh cell chhunga sugar glycogen an tih chu a tichhia a, a control a ni. He enzyme hi a awm loh chuan kan taksa peng hrang hrangah glycogen an tih sugar chu a lo awm tan ta a ni. Factory chhunga bawlhhlawh paih ang mai a ni. Hei hi a lo pun chuan taksa ruhte chu a chak lo a, thawk harsa an ti a, thinlung a nghawng bawk.
Chuvangin, he damdawi Avalglucosidase Alfa an tih hian a tih chu chu enzyme bo, tihtlem tawh hnathawh chu a thlak danglam a ni. Chu chu, hnathawk tihtlem ai chuan pawn lam atanga hna inang thawk tura rawn hruai luh ang mai a ni. He damdawi hi vein kaltlangin taksaah a luh chuan chu glycogen khawlkhawm chu a tichhia tan a, a paih chhuak ta a ni. Tichuan, a lan chhuah dan chu a tlahniam zauh zauh a, hahdamna i nei tan ta a ni.
He damdawi hi i ei hmaa i doctor hnena i hrilh tur thilte
He damdawi hi i tan hmain i doctor-in i hriselna dinhmun kimchang a hriat a pawimawh hle. Hei hi him zawka enkawl i nih theih nan a ni. Heng thilte hi a bik takin hrilh ngei ang che.
- Lung natna i neih chuan .
- Lung natna i neih chuan .
- He Avalglucosidase Alfa damdawi, damdawi dang, ei tur, dye, emaw, preservative emaw allergy i neih tawh chuan.
- Naupai emaw, nau pai tum emaw i nih chuan.
- Nu hnute pe lai i nih chuan.
He thu hi thup lovin i doctor hnena hrilh hi nangmah himna atan a pawimawh hle.
Damdawi hi engtin nge hman ang?
Hei hi in lama i hman theih damdawi a ni lo. Damdawi in emaw clinic emaw-ah doctor enkawlna hnuaiah pek a ni.
- Vein hmanga pek damdawi:He damdawi hi vein-ah pek a ni a, saline ang maiin. Hetiang kalphung hi infusion kan ti a .
- Medical team-in a pek: He damdawi hi doctor emaw nursing staff emaw trained-in an pe che a, chuvangin ngaihtuah tur a awm lo.
He damdawi hi naupang te te tan pek theih a ni em?
Ni e, a then phei chuan he damdawi hi naupang kum khat mi lek te hnenah pek thin a ni. Mahse damdawi lam thurawn bik leh fimkhur taka tih a ni. He damdawi hi i fa hnenah i pe a nih chuan i medical team te nen uluk takin inbia la, engkim hrilhfiah rawh.
Dose a san chuan engtin nge i tih ang?
Hei hi damdawi ina damdawi a nih avangin overdose chance a tlem hle. Mahse engtin emaw tak i overdose tawh mai thei nia i ngaih chuan hlau suh. I tih nghal tur thil pahnih a awm.
1. Damdawi in Emergency Treatment Unit (ETU) ah kal nghal rawh.
2. A nih loh leh Colombo National Hospital-a National Poison Information Center-ah biak theih a ni bawk .
Hei hi thil hmanhmawhthlak tak a nih avangin hmalak vat a pawimawh.
Damdawi dose khat ka ei loh chuan engtin nge ni ang?
He damdawi hi a hun taka leh ni ruat anga ei hi a enkawlna hlawhtlinna atan a pawimawh hle. Damdawi inah ni ruat saah i kal thei lo a nih chuan lo tlawh loh tur a ni. I medical team te call nghal la, hriattir nghal rawh. I tih leh tur chu an hrilh ang che.
Thil bik hriat tur pawimawh tak tak
- Medical checkup: Clinic-a checkup pangngai neih loh tur. I natna lan chhuah dan a tha em tih te, a zual zel em tih te, harsatna thar i neih leh neih loh te chu i doctor nen sawiho rawh.
- Allergic Reactions: Mi thenkhat chuan he damdawi hi allergic reaction na tak an nei thei a, an pek hnu rei vak lovah emaw hian allergic reaction na tak an nei thei bawk. Hetiang hlauhawmna tihziaawm nan hian i healthcare team chuan damdawi dang (piritan ang chi) i ei tan hmain an pe thei che a ni. Chuvângin, an thupêkte chu dik takin zawm rawh.
He damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin hei hian mi thenkhatah side effect a thlen thei a ni. Mahse, mi zawng zawngin an hmu vek lo. A pawimawh ber chu chutiang side effects chu eng nge ni tih leh a lo awm a nih chuan eng nge tih tur tih hriat hi a ni.
| Side effect chi hrang hrang | Natna |
|---|---|
| 🚨 Side effects i medical team-ah report nghal tur a ni | |
| Allergy natna a awm thei | Vun vun rawng, hnim hring, sen, hmai, hmui, lei emaw kawr emaw a hring. |
| Infusion hmanga thil tih dan | Chhung na, thawk harsa, muhil, luak chhuak tih hriat. |
| 🙂 Side effects a awm reng emaw, a buaithlak emaw a nih chuan doctor hnenah hriattir tur a ni | |
| Side effect awm fo thin |
|
A pawimawh ber chu, thil danglam bik i hriat chuan, thil tenau tak pawh ni se, medical team te hrilh hreh suh.
Damdawi dangah harsatna a awm thei em?
Tuna thu hriat danin he damdawi hian damdawi dangah harsatna lian tham a thlen thei tih hriat a la ni lo. Mahse, i doctor hnenah damdawi i ei zawng zawng (vitamin, herbal remedies, leh supplement te pawh tel) list kimchang pe rawh. Tin, zu i in emaw, zu i in emaw chuan doctor hnenah hrilh bawk ang che. Hei hian a tul lova harsatna lo thleng tur venna kawngah a pui thei a ni.
Take-Home Thuchah a ni
- Avalglucosidase Alfa hi Pompe natna vei taksaa enzyme tlakchhamna thlaktu tur a ni.
- He damdawi hi damdawi inah pek thin a ni a, vein (infusion) kaltlangin pek thin a ni. Chuvangin in lama hruai tur damdawi pek i ni lovang.
- Enkawl i tan hmain i damdawi lam dinhmun leh allergy zawng zawng chu i doctor hnenah hrilh kim vek ang che.
- Damdawi i ei lai emaw, i ei hnu emawa thawk harsa, rilru na, vun na tak tak i neih chuan medical team hnenah hriattir nghal rawh.
- I damdawi ei ngei ngei tur a ni a, ni ruat saah clinic-ah kal ngei ngei tur a ni. Appointment engmah lo nei tawh suh.
- He damdawi chungchanga zawhna dang i neih chuan i doctor nen sawiho theih a ni.
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