I fa te hian thisen chhuah tihtawp harsatna a nei lo em ni? Hemophilia chungchang hi han sawi ila!

Nu emaw, pa emaw i nih angin i fa chu tlem a hliam emaw, thisen chhuak emaw pawh ni se, hlauhna leh lungkhamna nasa tak i nei a ni lawm ni? A pangngai hle mai. Mahse naupang thenkhat tan chuan hliam tenau a\ang pawhin thisen chhuah chu a hma angin a tawp rang lo mai thei. A châng chuan, chhan awm lovin thisen an chhuak thei bawk. Hei hi a chhan ber chu hemophilia an tih natna a ni thei. He hming i hriat hian hlauhna a thlen nghal mai thei, mahse lungngai suh. Vawiin hian engkim hi awlsam leh chiang takin sawi ila. Hengte hi i hriatthiam theih dan tur zawngin ka sawifiah ang.

Hemophilia hi eng nge ni?

A awlsam zawngin, hemophilia hi thil awm lo, rochun kan thisen a tichhe thei lo a ni. I hria em, hliam tenau, chemte hrual ang chi kan neih hian kan thisena protein thenkhat ( clotting factors tia koh) te chu an inzawm khawm a, hliam chu an khuh a, thisen chhuah chu a titawp thin avangin thisen chhuahna thenkhat chu a tawp thin. Hliam "seal" tu dam te tak te ang mai a ni.

Chuvangin, naupang hemophilia vei te hian heng clotting factors pakhat emaw a aia tam emaw hi an nei tlem a, a nih loh leh an thawk tha lo. Hei vang hian hliam tenau tak atanga thisen chhuah tihtawp nan a pangngai aia rei an hmang a, a nih loh leh a chang chuan awlsam takin thisen an chhuak tan thin. Chuvangin, hemophilia vei naupang nu leh pa kan nih angin, thisen chhuah a lo awm chuan a enkawl dan tur dik taka hriat a pawimawh hle .

Hei hi i tan chuan ngaihtuahawm tak a ni mai thei. "Aw, ka fa, hetiang hi ka chungah a thleng dawn em ni?" Mahse, tûn laia damdawi hmanraw changkang tak takte avângin, hemophilia vei naupang pawhin a theih ang anga nun pangngai leh hrisel takin a nung thei tih hre reng ang che. A pawimawh ber chu nang leh i chhungte hian natna chungchang leh a enkawl dan tur hriatthiamna tha tak in neih hi a ni.

Thisen chhuak hi engtin nge kan enkawl ang?

Hemophilia vei naupang thisen a chhuah chuan a enkawl dan tur chu a thisen chhuah dan, a hliam nasat dan leh a thisen chhuahna hmun a zirin a innghat a ni. A tam zawkah chuan hliam tenau avanga thisen chhuak tenau te chu in lamah enkawl theih a ni. Mahse, hliam na zawk a awm chuan doctor emaw, Hemophilia Treatment Center emaw, damdawi in emergency room emaw pan a ngai a ni.

Tunah chuan thisen chhuah chi hrang hrangah eng nge kan tih tur tih hi han thlir ila. I doctor chuan heng zawng zawng hi chipchiar zawkin a hrilhfiah ang che. Mahse heng thil bulpui te hi hriat a pawimawh hle.

Bruises tan eng nge tih tur?

Inkhelh lai, tlan lai emaw, zuang lai emaw hian hliam tenau te i neih hi thil pangngai a ni. Naupang hemophilia veiah chuan heng hliamte hi a lianin a dum thei hle.

• I fa chu a inkhelh laiin chair-ah a tlu a, an ke a hliam ang tih han ngaihtuah teh. Chutiang a nih chuan ice pack towel-a khuh chu a hliam chungah minute 10 vel dah la. Darkar hnih danah hetiang hian ti thin ang che. Ice hi vunah direct-in dah ngai suh, okay? Vun a tichhe thei a ni.
• Mahse, heng hun chhung hian i care team te nen inbia ang che:
• A hliam chu a na hle a nih chuan.
• Bruise chu a lian chho zel niin a lang a nih chuan.
• A hliam hian ke ruh sawn a tiharsa a nih chuan, a nih loh leh na a thlen chuan.

Kawng hliam thisen chhuak a nih chuan engtin nge ni ang? (Kawng thisen chhuak) .

Naupangte hian an hmui chhungah hliam te tak te an neih chuan an buai deuh a, entirnan, ha an sil laiin an hmui a hliam emaw, ei laiin an lei a hliam a, thisen a chhuak emaw a ni. Chutiang thil a nih chuan tih tur chu hetiang hi a ni:

• Thisen chhuahna hmunah pressure pe rawh. Hei hian gauze emaw puan thianghlim emaw hmanga hun rei lote chhung vawn tlat tihna a ni.
• Chu hmunah chuan ice pop emaw ice cube emaw i hnawih thei bawk. Khawsik hian thisen kalna kawng a tikhawlo ang a, thisen chhuah a ti tlem bawk ang.
• Thisen chhuah a reh tawh chuan i fate chu ei tur khauh, hmin (e.g. biscuit, chips) leh ei leh in lum te pek loh tur a ni a, hengte hian thisen a chhuak leh thei a ni.
• Minute 20 vel hnua thisen chhuak a reh loh chuan i medical team te koh ngei ngei tur a ni.

Cut leh scrape te te tan

Hetiang ang hliam tenau te hi in lamah kan enkawl thei fo a, mahse heng thilte hi uluk taka tih a ngai a ni.

• A hmasa berin a cut emaw scratched emaw chu tuiin uluk takin silfai ang che.
• Tichuan, hliam chu sterile gauze phek emaw, puan fai emaw, plaster emaw hmangin pressure pe rawh.
• Minute 20 vel hnua thisen chhuak a reh loh chuan doctor ko nghal rawh. I tih tur a hrilh ang che. I mamawh mai thei:
• Factor Replacement Therapy hi in lamah pek thin a ni. Hei hian naupang chu injection angin an taksaa tlakchham clotting factor pek a huam a ni. Doctor leh nurse ten hei hi pek dan tur an zirtir ang che.
• Chutiang a nih loh chuan doctor chuan hemophilia enkawlna hmunah emaw, damdawi in emergency room-ah emaw hruai turin a hrilh ang che.

Thisen tam tak awmna cut na tak a awm chuan engtin nge ni ang?

Hei hi dinhmun pawi tak a ni. Hlauthawng suh, mahse heng step te hi zawm vat rawh.

1. Pakhatnaah chuan thisen chhuah chu a rang thei ang bera control la:

• Sterile gauze phek, puan thianghlim emaw, bandage emawHliam chungah pressure tha tak pe thin ang che.
• Hliam chunga gauze emaw puan emaw dah chu thisenin a hnim chuan la chhuak lo la, a chungah dang dah la, pressure pe chhunzawm rawh.
• A theih chuan kut emaw ke emaw hliam chu thinlung level aia sangah dah tur a ni. Hei hian thisen chhuah tlem a ti tlem thei hle.

2. A dawtah chuan i doctor chu tihkhawtlai lovin call la, a thupek zawm rawh:

• A nihna takah chuan, a rang thei ang bera factor replacement therapy an rawt ang .
• Doctor hnenah hruai nghal turin an hrilh a, hemophilia enkawlna hmunah emaw, damdawi in emergency room-ah emaw hruai nghal turin an hrilh a ni.

Hetiang hunah hian second khat pawh khawhral loh a tha ber. Doctor ko nghal la, a sawi ang ngeiin ti rawh.

Joint emaw, muscle emaw-a thisen chhuak rinhlelhna a awm chuan engtin nge ni ang? (Joint emaw muscle emaw-ah thisen a chhuak thei) .

Hei pawh hi a pawimawh hle. A châng chuan, hmuh theiha hliam awm lo pawhin, hemophilia vei naupangte hian an ruh (e.g., khup, kutphah, ke ruh) emaw, taksa ruh lian tak tak (e.g., kekawr, kutphah) emaw-ah thisen a chhuak thei a ni. Hei hi a na hle thei a, hun rei tak chhung ruh a tichhe thei bawk.

• I fain ruh a sawn duh loh chuan, a hmunah a hring, a sen emaw, a lum emaw a awm a nih chuan, emaw, i fain a hmuna natna a complain mai mai a nih chuan, i doctor chu ko nghal rawh.
• Doctor thupek dik takin zawm rawh. Heng thilte hi ti turin a hrilh fo ang che:
• Factor replacement therapy a rang thei ang bera pe rawh.
• A natna hmunah ice (towel-a khuh) hnawih thin ang che.
• Natna tidamtu him tak pe rawh. Entirnan, acetaminophen (e.g., Tylenol) i pe thei bawk.

Pawimawh tak: Natna tidamtu Aspirin , Ibuprofen (e.g., Advil, Motrin), leh Naproxen Sodium (e.g., Aleve) te hi pe ngai suh . Heng damdawi te hian thisen chhuah a tizual thei!

• Zawi zawiin joint chu elastic bandage emaw ACE wrap emaw hmangin wrap la, a support theih nan.
• Chu mi chu doctor hnenah emaw, hemophilia enkawlna hmunah emaw, damdawi in emergency room-ah emaw hruai nghal rawh.

Lu, rilru, kawr, a nih loh leh pumpuiah hliam a awm a nih chuan engtin nge ni ang? (Lu, rilru, kawng emaw, pum emaw a hliam) .

Heng hliam chi hrang hrangte hi engtikah mah ngaihthah tur a ni lo. Internal bleeding a thlen theih avangin an hlauhawm hle. Naupang a tlu emaw, thil a vuak emaw, an lu, an rilru, an kawr, emaw, an pum emaw na taka a vuak chuan, .Hliam lian tak hmuh theih a awm lo a nih pawhin doctor ko nghal rawh.

• Doctor thupek dik takin zawm rawh. Maithei:
• In lamah factor replacement therapy nghal vat turin an rawt a ni .
• Hospital emergency room-ah hruai nghal turin an hrilh ang che, a nih loh leh ambulance ko rawh .

Hetiang dinhmunah hian rang taka hma lak hian naupang nunna a chhanhim thei a ni.

Engtik laiin nge ka fa chu emergency room-ah ka hruai ang?

Naupang in lama enkawl emaw, doctor koh nghah emaw a rem loh lai pawh a awm. Chutiang hunah chuan , naupang chu damdawi in emergency room hnai berah hruai nghal tur a ni a, tihkhawtlai lohvin.

Chutiang case thenkhat chu hetiang hi a ni:

• Doctor sawi angin i enkawl a, mahse thisen chhuah chu a reh lo a nih chuan.
• Naupangin a pum natna nasa tak a neih chuan .
• Naupang zun chu a sen emaw, tea rawng emaw a nih chuan (hei hi chhungril thisen chhuahna chhinchhiahna a ni thei).
• I fate chu an ek chhungah thisen a awm a nih chuan, emaw, an ek chu a dum dum (tar ang) a nih chuan.
• Naupangin lu na na tak, a luak chhuak, a luak chhuak a, a buai a nih chuan (hei hi thluak chhunga thisen chhuak chhinchhiahna a ni thei).
• Naupang chu accident na tak a tawk a nih chuan (e.g., sang tak atanga tlu, car accident).

I fa hian heng symptoms te hi a neih chuan hospital emergency room hnai ber ah hruai nghal la, tihkhawtlai lohvin hruai nghal rawh. Chutiang huna thil tih vat chu naupang hriselna atan a pawimawh hle.

Take-Home Thuchah a ni

Okay, chuvangin a tawpah chuan kan sawi tawh thenkhat, i tana pawimawh tur nia kan hriatte kha i hriat nawn tir leh ang u.

• Hemophilia hi nausen thisen a inkhalh tha tawk lo a, hei hi a ni. Mahse, hei hi enkawl dan mumal tak hmanga thunun theih a ni.
• Thisen chhuak i tawk a nih chuan eng nge i tih tur tih i hriat a pawimawh hle. Tin, i chhungkaw member dangte (nupui/pasal, fa upa zawk, pi leh pute) pawhin hei hi an hriat chian theih nan hmalak bawk ang che.
• I fa enkawltu doctor nen inzawmna tha tak nei rawh. Zawhna leh ngaihtuahna i neih apiang zawh hlau suh. I fa enkawlna tur ruahmanna siam turin doctor nen thawk ho rawh.
• In lamah thil tul, factor concentrates, sterile gauze, leh bandage te chu dah fo ang che .
• Doctor koh emaw, damdawi in pan emaw hreh ngai suh, a bik takin thil pakhatah rinhlelhna emaw, hlauhna emaw i neih chuan.
• A tawp berah chuan nangmah chauh i ni lo.Healthcare team, doctor, nurse leh hemophilia enkawlna hmuna specialist te pawhin nang leh i fate tanpui leh kaihhruai turin an inpeih reng a ni.

Hemophilia natna vei hi thil harsa tak a ni thei a, mahse hriatna dik, enkawlna dik, leh a hun taka enkawlna i neih chuan i fa chu naupang dang ang bawkin nun hlim tak, thawkrim leh hlim takin a nung thei a ni.

` Hemophilia, thisen chhuah, naupang hriselna, first aid, thisen zam, emergency treatment