Phenylketonuria, emaw kan hriat vek angin PKU , i thisena amino acid phenylalanine tihpunna tur natna i nei em? Chuvangin, Pegvaliase hi he level control nana pek thin special injection a ni tih hi i hre chiang hle mai thei. He damdawi chungchangah hian i rilruah zawhna tam tak i nei ngei ang. Ngaihtuah buai suh, vawiinah hian he damdawi, a that dan, a side effect leh him taka hman dan tur awlsam takin i hriatthiam theih nan kan sawi dawn a ni.
A awlsam zawngin, he damdawi hi Pegvaliase an tih hi eng nge ni?
Hei hi sawifiahna awlsam ber a ni. PKU vei te hian an taksain phenylalanine an tih thil chu a ti chhe thei lo va, a ei thei lo bawk. Hei hian thisenah a pungkhawm a, thluak leh nervous system a tichhe thei a ni.
Chuvangin, Pegvaliase injection hian a tih chu i taksa a pui a ni. Chu chu i taksain a tihchhiat theih loh phenylalanine hi i taksain a tihchhiat theih nan a pui tihna a ni. Tichuan i thisenah a lo awm tawh lo va, a level pawh a control ta a ni. He damdawi hi brand name Palynziq hmanga hralh chhuah a ni tlangpui .
He damdawi hi i hman hmaa i doctor hnena i hrilh tur thilte
Okay, he damdawi hi i ei tan hma hian heng thilte hi i doctor nen hian i sawipui ngei tur a ni. Heng thilte hi thup suh, hei hi i himna atan a pawimawh em em a ni.
- Allergy: Pegvaliase chauh ni lovin, damdawi dang, ei tur, dye emaw, preservative dang emaw allergy i neih chuan i doctor hnenah hrilh ngei ang che.
- Naupai: Naupai emaw, nau neih thuai tum emaw i nih chuan doctor hnenah i hrilh tur a ni.
- Nu hnute pe i nih chuan: Nu hnute pe i nih chuan chu chu i naute hnenah pawh hriattir ngei ang che.
Heng thu hriatte a\ang hian doctor chuan he damdawi hi i tan a tha em tih a rel ang a, eng fimkhurna nen nge pek tur tih pawh a rel ang.
Damdawi hi engtin nge dik taka hman ang?
Hei hi injection chi khat a ni a, in lama vun hnuaiah i inject theih a ni. Mahse, lungngai suh. I doctor emaw, nurse trained emaw chuan chiang tak leh uluk takin a pek dan tur leh damdawi siam dan tur a hrilhfiah ang che.
- Dose pek zat chauh ei rawh: I doctor-in a pek ang chiah kha ei la, a hun ruat ang chiah khan ei rawh. Doctor-in chawlhsan tura a tih hma chuan damdawi ei kha titawp suh.
- Needle leh syringe him taka paih dan: Hei hi a pawimawh hle. Needle leh syringe hman tawhte chu bawlhhlawh bawmah paih ngai suh.Plastic bawm bik, thuk takah (sharps container) dah tur a ni. I neih loh chuan i doctor hnenah engtin nge i neih theih tih zawt la.
- Thupek bik: He damdawi hi i pek hunah hian thupek bik leaflet (MedGuide) i dawng ang. A chang apiangin ngun takin chhiar thin ang che. I hriatthiam loh thil a awm a nih chuan i doctor zawh zak suh.
He damdawi hi i tan chauh pek a ni tih hre reng ang che. Midang hnenah share ngai suh.
Damdawi ei huna fimkhur bik tur thil
He damdawi i ei lai hian i doctor chuan i dinhmun a enfiah fo ang. Hei hian thisen hnathawh pawh a huam tel thei.
A pawimawh hle: Allergy na tak tak i neih chuan fimkhur rawh!
He damdawi hman huna fimkhur hle tur pakhat chu allergic reaction na tak, anaphylaxis a awm theihna hi a ni. Hei hi nunna atana hlauhawm emergency a ni.
Hetiang hlauhawmna avang hian i doctor chuan epinephrine auto-injector . Pen ang chi hmanrua a ni. Nang leh chhungte chu allergy i neih chuan engtin nge i hman ang a, engtikah nge i hman ang tih zirtir in ni ang.
Hei hi engtik lai pawha i hnena vawn reng a pawimawh hle. I kalna apiangah hetiang hian hnaih reng ang che, in lama i awm lai pawhin.
Tin, Patient Wallet Card pek i nih kha vawng reng la, i enkawltu doctor leh nurse zawng zawng hnenah entir rawh.
Side effect awm thei te chu engte nge ni?
Damdawi dang ang bawkin he damdawi hian side effect engemaw zat a nei thei. Ṭhenkhat chu hmanhmawhthlak tak a ni a, ṭhenkhat erawh chu a awm fo. I ti chhe vek ang u.
| Side effect/symptom a awm thei | Description leh tih tur |
|---|---|
| Side effect na tak tak, doctor hnena hriattir nghal tur | |
| Allergy na tak emaw angioedema emaw a awm thei | Skin rash, hives, itching, hmai, mit, hmui, lei, kut emaw ke emaw, ei harsa, thawk harsa. Heng zinga pakhat tal a lo awm chuan doctor hnenah hriattir nghal la, damdawi in hnai ber ETU-ah kal rawh. |
| Infusion hmanga thil tih dan | Chhung na, thawk harsa, thawk hah, muhil, luak chhuak tih hriatna. Damdawi lam pan nghal rawh. |
| Side effects hlauhawm lo tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Digestive system lama harsatna awm thei | Diarrhea, pum na, luak chhuak. |
| Thil dang natna tlanglawn tak takte | Luak chhuak, lu na, ruh na. |
| Injection na hmuna harsatna awm | Injection na hmuna natna, sen, emaw, a hring emaw. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Chu bâkah, thil danglam tak i tawn chuan i doctor-te nên chu chu sawipui rawh.
Damdawi ka ei tam lutuk emaw, chaw ka ei loh emaw chuan engtin nge ni ang?
Overdosage a ni
He damdawi hi i ei tam lutuk nia i rinhlelh chuan thil pahnih i tih nghal tur a awm tih han ngaihtuah teh.
1. Damdawi in hnai ber Emergency Treatment Unit (ETU) ah kal rawh .
2. Colombo National Hospital-a National Poison Information Center- ah biak theih a ni.
Damdawi dose khat i ei loh chuan (Missed Dose) .
Lungngai suh. Dose hloh tawh chu siam that nan double dose ei suh. Chu chu a hlauhawm thei hle. I tih tur chu missed dose kha theihnghilh la, a hnuaia dose chu scheduled time-ah ei mai tur a ni.
Damdawi hi engtin nge dik taka kan dahkhawm ang?
Damdawi quality vawng reng tur chuan uluk taka dahkhawm a pawimawh hle.
- Thil tih dan tha ber: Refrigerator-a dah hi a tha ber. Mahse freezer-ah dah ngai suh. Chu chu freeze suh tihna a ni.
- Room temperature: A tul chuan room temperature 25 degree Celsius (77 degree Fahrenheit) thleng ni 30 thleng dah theih a ni. Mahse, i tih chuan ni 30 hnua a la awm zawng zawng chu paih vek tur a ni. Refrigerator-ah dah leh a tha lo.
- Thil dang: Damdawi hi a original packaging-ah dah fo ang che. Eng lakah venghim rawh. Naupang leh ran vulhte hmuh theih lohna hmunah dah tur a ni. Damdawi expire tawh chu paih vek rawh.
Take-Home Thuchah a ni
- Pegvaliase hi PKU vei te thisena phenylalanine level control nana injection bik pek thin a ni.
- He damdawi hman hian a hlauhawm ber chu allergic reaction na tak a ni. Chuvangin , i doctor-in a pek che epinephrine auto-injector chu keng reng ang che.
- Damdawi i ei tan hmain i doctor hnenah i damdawi lam dinhmun zawng zawng, allergy leh i ei tur dang zawng zawngte hrilh hmasa phawt ang che.
- Damdawi hman dan tur leh a zungte lak chhuah dan tur hrilhfiahna dik tak zawm rawh.
- Thil danglam tak tak, a bik takin thawk harsa, hliam, emaw, rilru na emaw i neih chuan doctor thurawn zawng nghal rawh.
- He damdawi chungchangah hian zawhna emaw rinhlelhna emaw i neih chuan i doctor hnenah sawipui hlau suh.
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