I fa emaw i chhungte emaw hian Spinal Muscular Atrophy, a tawi zawngin SMA an nei em? Chutiang a nih chuan i doctor chuan Risdiplam tih damdawi chungchang a hrilh che a ni mai thei. He hming i hriat hian i hlau deuh mai thei. I rilruah zawhna tam tak i nei thei a, chungte chu, "Hei hi eng damdawi nge a nih, engtin nge pek a nih, eng nge thleng ang?" Heng zawhna zawng zawng hi i hriatthiam theih tur awlsam takin kan chhang dawn a ni. He damdawi hi eng nge a nih chiang takin i zawng chhuak ang u.
A awlsam zawngin, Risdiplam chu eng nge ni?
Risdiplam (brand name Evrysdi) hi Spinal Muscular Atrophy (SMA) an tih natna enkawlna atana hman thin a ni. Solution angin a lo thleng a ni.
Tunah chuan hei hi eng nge a awmzia tak tak i en ang u. Kan taksa ruhte hian a hnathawh that theih nan leh a chak reng theih nan protein chi khat bik a mamawh tih han ngaihtuah teh. SMA veiah chuan genetic reasons vangin taksain he protein hi a siam tlem hle. Hei vang hian taksa ruhte chu a chak lo zauh zauh a, a atrophy bawk.
Chuvangin he Risdiplam damdawi hian hna ropui tak a thawk a ni . Kan taksain chu protein bik tlakchham chu tam zawk siam turin a pui a ni. Factory pakhat chu a slow deuh laiin a kal tha leh theih nan mi pakhatin a puih ang mai a ni. He protein hi taksaah a siam tam lutuk chuan taksa ruh chak lohna rate a ti hniam a, symptoms na zual zel pawh a control thei bawk.
Damdawi ei tan hmaa doctor hnena i hrilh tur thilte
He damdawi hi nangmah emaw i fa emaw i pek hmain i doctor nen inhawng taka inbiakna neih a pawimawh hle. A hnuaia mi hi i tan a hman theih chuan sawi tel ngei ang che.
| I hriat tur chu | Engvângin nge chu chu a pawimawh? |
|---|---|
| Allergy natna a awm thei | Risdiplam emaw damdawi dang emaw, ei tur emaw, dye dang emaw allergy (allergy) i neih chuan doctor hnenah hrilh rawh. |
| Naupai emaw, nau pai tum emaw | He damdawi hian naupai laia ei a nih chuan nausen piansualna na tak a thlen thei a ni. Chuvangin he thu hi sawi chhuah a pawimawh hle .. |
| Nau hnute pek | Nu hnute petu i nih chuan doctor hnenah hriattir tur a ni. |
Engtin chiah nge he damdawi hi ka hman ang?
Hei hi mawhphurhna nei deuh a ni. Mahse, lungngai suh, rei vak lo hnuah i thiam tawh ang. Damdawi hi nitin a hun ruala pek a tha ber a, doctor-in a tih ang ngeiin pek a tha.
- Inbuatsaihna: Damdawi buatsaih hma leh pek zawhah sahbawn hmangin i kut uluk takin sil thin ang che.
- A tehna dik: He damdawi nen hian special oral syringe i dawng ang. Syringe hmangin i doctor-in ei tur a tih zat dik tak chu teh rawh. A tehna atan spoon dang emaw, cup dang emaw hmang suh.
- Hman nghal tur: Damdawi chu syringe chhunga kan luh hnuah minute 5 chhungin damlo hnenah pek tur a ni . Chu aia rei chu dah suh.
- Chaw ei hma emaw ei zawh hnu emaw?: Hei hi ei tur nen emaw ei loh pawhin pek theih a ni. Pum natna ang maia a lan chuan chaw ei zawha pek a tha ber. Nau hnute i pek chuan nau hnute i pek hma emaw, i hnute pek hnuah emaw i pe thei a ni.
- Chawlh suh: He damdawi hi formula emaw, bawnghnute chi dang emaw nen chawhpawlh ngai suh.
- Tui tlem pe rawh: Damdawi i pek zawh chuan chu mi chu tui in tur pe rawh. Hei hian damdawi zawng zawng kan ei vek tawh tih chian nan min pui ang .
- I vun emaw mit emaw a a tlak chuan: Damdawi hi i vunah i tlak palh a nih chuan a hmun chu sahbawn leh tui hmangin uluk takin silfai thin ang che. I mitah a lut a nih chuan tui chauh hmangin uluk takin silfai ang che.
I doctor-in chawlhsan tura a tih hma loh chuan he damdawi hi ei chhunzawm zel ang che. Nangmah chauhin dosage hi titawp lo la, thlak suh.
Naupang te te hnena pek a nih chuan
He damdawi hi nausen piang thar tan pawh a tha \hin. Mahse, hei hi i doctor chauhvin a rel thei ang. Chuvangin, naupang tê tête hnena i pek dawnin i fimkhur hle tur a ni.
Damdawi dose i ei loh chuan engtin nge i tih ang?
Engkim kan hre reng reng lo. Chuvangin damdawi dose pek theihnghilh theih a ni. Chutiang a nih chuan lungngai suh.
Zing dar 8-ah damdawi chu i pe tur a ni tih han ngaihtuah teh. I theihnghilh ta a ni.
- Darkar 6 aia tlai lo a nih chuan: Tlai dar 2 hmaa i hriatreng chuan (chu chu hun ruat atanga darkar 6 chhunga i hriat reng chuan i hriatreng veleh missed dose chu ei nghal rawh.
- Darkar 6 aia tlai a nih chuan: Tlai dar 2 hnu lama i hriatreng chuan chutih hunah chuan kal suh.. Bansan vek la, a tuk zing dar 8-a ruahman angin a dawt lehah pe leh rawh.
A pawimawh ber: Damdawi hi vawi khatah vawi hnih pe suh emaw, eng thil vang pawha i ei theihnghilh vang mai maiin a let hnih emaw pe suh. Damdawi ei hnua naupangin a luak emaw, a ei kim lo nia a hriat emaw chuan a rualin damdawi chu pe leh tawh suh. A tuk zingah a hun ruat angin dose dang pe leh rawh.
Damdawi dang nena inzawmna a awm thei em?
Ni e, damdawi thenkhat hian Risdiplam nen hian an inzawm thei a ni. Tun thlenga hmuhchhuah a nih ber chu zunthlum damdawi Metformin a ni.
Mahse he list hi a kim lo. Chuvangin i doctor hmu tura i kal hunah i damdawi ei zawng zawng emaw, i fain emaw i ei zawng zawng chu hrilh rawh. Chumi awmzia chu, .
- Damdawi doctor-te’n an pek chhuah
- Damdawi dawr atanga lei theih non-prescription damdawi
- Vitamin, ei leh in tha tak tak te
- Sinhala damdawi, Ayurvedic damdawi
- Zu i in emaw, zu i in emaw chuan an hnenah pawh hrilh ve bawk ang che.
Tichuan i doctor chuan him takin i enkawl dan tur a ruahman thei ang.
Damdawi ei huna fimkhur tur thil bik
Naupai leh nau neih dan tur
Hei hi a pawimawh hle a ni . He damdawi i ei lai hian naute hi naupai a nih chuan piansualna nasa tak a awm theihna a sang hle.
- Damdawi ei tan hmain naupai test i neih hmasak phawt a ngai a, i naupai lo tih finfiah a ngai a ni.
- Pill i ei chhung zawng leh pill i ei zawh hnu thla khat tal chu naupai venna hmanraw tangkai tak i hmang tur a ni.
- I doctor nen i tana tha tur birth control dan chungchang chu zalen takin sawipui rawh.
Nau neih theihna
He damdawi hian nau neihna kawngah nghawng a nei thei ang tih ngaihtuahna engemaw zat a awm. Nakin lawka fa neih chungchangah harsatna i neih chuan i doctor hnenah sawi hreh suh.
Damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin he damdawi hian side effect engemaw zat a nei thei a ni. Mahse, mi zawng zawngin an hmu vek lo. A hnuaia table hian hengte hi eng nge an nih chiang takin a tarlang a ni.
| Side effect awm dan (nature) a ni | Feature beisei awm tak tak |
|---|---|
| I doctor hriattir nghal tur thil | |
| Allergic Reaction na tak tak a awm thei | Vun vun rawng, vun na tak, hmai, hmui, lei emaw, kawr emaw a hring (thawk harsatna a thlen thei). |
| A awm reng emaw, a buaithlak emaw chuan doctor hnenah hrilh rawh. | |
| Side effect awm fo thin |
|
He list-ah hian side effect zawng zawng a tel lo mai thei. Heng bakah hian thil danglam bik i hmuh chuan doctor hnenah hrilh rawh.
Damdawi hi engtin nge kan dahkhawm ang?
He damdawi hi uluk taka dahkhawm a pawimawh hle bawk.
- Kawng tha ber: Refrigerator-a dah hi a tha ber. Mahse freezer-ah chuan engtikah mah. Freeze tir suh. A rawn luhna original bottle-ah dah la, êng atanga hla takah dah rawh.
- Storage period: Damdawi hi damdawi dawrin a pawlh leh a pek ni atanga ni 64 chhungin hman tur a ni. Chumi hnuah chuan damdawi la awm zawng zawng chu paih vek tur a ni.
- Room temperature: Emergency-ah, zin lai ang chiah hian room temperature (40 degree Celsius hnuai lam)-ah ni 5 thleng i dah thei. Chu ni 5 chu a inzawm a ngai lo. Entirnan, vawiinah ni khat chhung i dah chhuak a, fridge-ah i dah leh a, kar khat hnuah ni khat dang i dah chhuak leh a... Ni 5 a ral hnuah chuan i dah chhuak leh thei tawh lo.
- Naupang lakah hlat rawh: Damdawi zawng zawng ang bawkin, he damdawi hi naupang te leh ran vulhte hmuh theih lohna hmunah dah la.
Damdawi la awmte chu engtin nge i paih thin?
Damdawi hun kal tawh emaw, duh loh emaw chu bawlhhlawh bawmah paih mai mai suh la, toilet-ah pawh paih mai suh. I doctor hnenah thurawn zawt rawh.
Take-Home Thuchah a ni
- Risdiplam hi damdawi bik a ni a, Spinal Muscular Atrophy (SMA) vanga taksa chak lohna control nan an hmang thin.
- Damdawi nena rawn kal special syringe kha hmang fo la, doctor-in a sawi zat dik tak pe rawh.
- Dose i miss chuan darkar 6 aia rei a nih chuan skip la, i dose leh tur chu a hun ruatah ei rawh. Dose hi double ngai suh.
- Damdawi dang zawng zawng, vitamin, leh Sinhala damdawi i ei zawng zawng pawh i doctor hnenah hrilh rawh.
- He damdawi hi i ei lai leh i ei zawh hnu thla khat chhung chu naupai loh tur a ni. Nau neih dan tur dik tak hman a pawimawh hle.
- Damdawi tam lutuk i ei palh nia i rinhlelh chuan Colombo National Hospital-a National Poisons Information Center -ah call nghal la, a nih loh leh damdawi in hnai ber Emergency Treatment Unit (ETU)-ah kal nghal rawh.
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