Nilengin rin loh takin i chau tih i hria em? Chauh hmel takin i harh a, zanah eng ang pawhin muthilh mah la, chu hahna chu a reh lo? A châng chuan hei hi hnathawh tam lutuk avânga hahna mai mai niin i ngai mai thei. Mahse chu aia buaithlak zawk a ni a, kan ngaihven tur hriselna dinhmun a ni thei bawk. Vawiin hian hetiang chau reng reng chungchang kan sawi dawn a, chu chu damdawi lama `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) tia hriat a ni. A then chuan `Systemic Exertion Intolerance Disease (SEID)` an ti bawk.
A awlsam zawngin sawi ila, hei hi i taksa battery a charge tha lo tihna a ni. Hei hian nitin hna thawk turin a ti chau lutuk che a ni. A châng chuan, dawr kal te, in lama hna tlemte thawh te, lehkha ziah te ang chi thil awlsam tak tih pawhin i natna lan chhuahna chu a tizual thei a ni. Hetiang dinhmun hi thla 6 chhung, kum tam tak chhung pawh a awm thei. A pawimawh ber chu he hahna hi a reh lova, eng ang pawhin chawlh hahdam leh mut tha i neih pawhin a reh lo.
Doctor chuan he natna hi a hriat theih nan leh i natna lan chhuah dan tur a enkawl thei che a, mahse natna a nih thu an hriat hmasak a ngai a ni.
Hetiang natna lan chhuahna berte chu engte nge ni?
ME/CFS i neih chuan heng "core" symptom pathum te hi i nei ngei ang. Eng nge an nih i han thlir teh ang.
| A symptom ber a ni | A awlsam zawnga sawifiah chuan... |
|---|---|
| Tuar theih loh khawpa hahna | Thla 6 chuang zet chau lutuk anga inhria, nitin hna pawimawh ber ber pawh tih harsat. Hei hi i nun hmasa lama i thil tih tawh nen khaikhin chuan inthlak danglamna lian tak a ni. |
| Exertional hnua natna (PEM) 1.1. | Hei hi he natna danglamna ber a ni. Taksa emaw rilru lam emaw thil tih tlem ber (e.g., hla vak lo kal, lehkhabu chhiar) hnuah pawh darkar tam tak emaw, ni tam tak emaw chhung chu a natna lan chhuahna chu a na hle thin. |
| Mut hahdam lo | Zan mut tha tak nei mah la, zing i thawh chuan nunna nei lo ang maiin i la inhria. Chau takin i inhria a, zankhuain i harh tawh ang mai hian. |
Post-Exertional Malaise (PEM) hi eng nge ni?
Hei hi tlem tal sawifiah a pawimawh. In tihfai ang chi hna awlsam tak i tih ṭhin chu han ngaihtuah teh. Mi hrisel chuan chau deuhin a inhria thei a, mahse rei vak lo hnuah a reh mai ang. Mahse, ME/CFS vei chuan chu hna awlsam tak chu a tih hnuah, darkar 12-48 hnuah pawh a ni mai thei, taksa na tak, lu na, ngaihtuahna seng harsa, rilru na, leh hah lutuk ang chi symptoms a nei nghal mai thei Hetiang dinhmun hi ni tam tak, kar tam tak pawh a awm thei.
Diagnosis atana thil tul dangte
A chunga kan sawi tak symptom lian pathum bakah hian doctor-in ME/CFS dik taka a hriat theih nan a hnuaia symptom pahnih zinga pakhat tal i neih a ngai a ni.
- Thil hriatna lama harsatna awmte:
Mi tam tak chuan hei hi "brain fog" an ti. Chumi awmzia chu ngaihtuahna seng harsa i nei a, i rilru i pe thei lo va, tawngkam i hmu harsa a, thil thar i hrechhuak thei lo va, i ngaihtuahna chakna pawh a tlahniam tihna a ni. I lu chu vur in a khuh ang mai a ni.
- Ding emaw, ṭhut emaw hian natna lan chhuahna a zual (Orthostatic Intolerance):
Hetianga thil thleng chu rei vak lo i ding emaw, i thut nghet emaw hian a natna lan chhuah dan chu a na zual sauh sauh thin. I lu a buai a, i mit a dum a, i chak lo a, i mit a fiah lo va, i mit hmaah thil tui chunga awm ang maiin i inhria thei bawk. Hei vang hian i muhil dawn ang maiin i inhria fo thin.
Engtikah nge Doctor kan hmuh ang?
He thuziak-a kan sawi tak symptom pakhat emaw, a aia tam emaw i neih chuan, a bik takin thla tam tak chhung chu hahna a lo awm tawh a nih chuan, khawngaihin hahna mai maiah ngai suh. Hei hi i doctor nen inbiakna neihpui tur thil a ni ngei ang.
A châng chuan heng chhinchhiahnate hi damdawi lam thil dang, thyroid lama harsatna, thisen tlakchhamna, leh lungngaihna te avânga lo awm thei a ni. Chuvangin, heng natna lan chhuah chhan tak tak hi hriat chian a pawimawh hle. Chu chu Doctor chauhin a ti thei a ni.
Doctor hmu tura i kal hian i natna lan chhuah dan zawng zawng, a tan ni, a na zual lai (PEM), leh i mut dan te pawh sawifiah vek tur a ni. A tul chuan hengte hi notebook-ah ziak rawh. Hei hian doctor chu i dinhmun a hrethiam thei ang.
I doctor hnenah ME/CFS enkawlna kawnga a thil tawn te i zawt thei ang. Hei hi thil buaithlak tak a nih avangin he lam thiam doctor dang hnenah referral i dil mai thei. Sawi hlau suh.
Take-Home Thuchah a ni
- Chronic Fatigue Syndrome (ME/CFS) hi hahdamna chauh a ni lo. Hriselna lama harsatna lian tak, hun rei tak chhunga awm thei a ni a, nitin nunah nasa takin nghawng a nei thei a ni.
- A lan chhuah dan ber pathum chu thla 6 aia rei hah lutuk, minimal activity (PEM) hnua natna lan chhuahna a zual zel, leh mut hahdam loh te hi a ni.
- Tin, hriatrengna leh ngaihtuahna lama harsatna (brain fog) emaw, ding laia symptoms na zual (orthostatic intolerance) emaw a awm fo bawk.
- Heng symptoms te hi i neih chuan ngaihthah suh. I doctor hnenah diagnosis dik tak leh kaihhruaina i hmuh theih nan hma la ngei ang che.
- Hetiang dinhmun hi enkawl dan hrang hrang a awm. Chuvangin beiseina hloh suh. A hmasa ber leh pawimawh ber chu damdawi lam thurawn lak hi a ni.
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